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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

Feels like theres no help out there!!!!

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Feels like theres no help out there!!!!

Post  laura224 on Tue Dec 20, 2011 1:40 pm

I am a 28 year old female, who has been suffering for the past two years, with endless visits to my doctor, gynaecologist, GU clinic ect. my partner ended up having an affair and leaving me because of this, it also affects my social and work life.
Sex has always been painful for me and i would be in pain for days after it and also bleed, I then got a yellow/green discharge and chronic stabbing/burning pains in my vaginal area, my partner had admitted to having an affair and thought he had given me an STD, so have had swabs done on at least 10 different occasions by different people, but they come back negative but sometimes says there are abnormal white cells.
I had a laperoscopy where mild endometriosis was found and lasered off and was told that this was only the cause for painful sex, not for my other pain and discharge, i then had a hysteroscopy where i was told my womb and vagina looked fine and they couldnt find a cause for the discharge!! i have had my bloods and urine tested which also come back clear, and also had my urethra looked at which was also normal.
My doctor told me i could be suffering from vulvodynia and prescribed me amitryptelene, which sometimes gives me some relief, however it doesnt last long!
It is really affecting my everyday life, sometimes the pain gets so bad i cant walk, i feel stressed and depressed and have not had much support offered to me, does anyone have similar symptoms? or can offer anything else to try???


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Re: Feels like theres no help out there!!!!

Post  stephsue on Sun Dec 25, 2011 5:46 pm

Hi Laura -
Sorry to hear you've had so many medical issues! That is so tough. Have you gotten a chance to see someone who specializes in vulvar or vulvovaginal disorders? That is a good starting off point for you. Unfortunately even many OBGYN's still aren't terrifically knowledgable about these things. Fortunately, there are many MANY other things you can try besides amiptryptiline, but seeing a good specialist would be the best way to determine which would make sense for you.

If the pain is all burning/stinging then it could be a skin issue (sometimes people even are treated by dermatologists, but again, not all may know that much about VV). For this people will try topical steroids, topical estrogen and/or testosterone cream if there is a hormone imbalance contributing to things - I also try to follow an anti-inflammatory diet (google Dr. Weil anti-inflammatory food pyramid for a good reference), and while I'm unsure how much it is helping the VV, it definitely improves my health overall!

You might also have some pelvic muscle issues, which I would imagine would be even more likely since you've had a few surgeries. Again, you would need someone knowledgeable to diagnose this and refer you to a PT, who might then help work out some of those muscles and do biofeedback to teach you to relax them. There are also other drugs that you could probably try if the amitryptiline is not doing much for you.

It can be hard to find a good specialist depending on what area of the country you are in - I have lived in Boston and NY and could recommend people there if you want to PM me, and I'm sure members of the forum from other areas could make recommendations too. You can also go talk to some doctors and see how much they know about vulvodynia/vulvar vestibulitis/pelvic floor dysfunction. If they are familiar with all of these things then that is a good starting off point and they may be able to help, or at least refer you to someone who knows about them! Hope that you are able to find some relief and a good clinician to help you!


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Location : Boston

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