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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Feels like theres no help out there!!!!

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Feels like theres no help out there!!!!

Post  laura224 on Tue Dec 20, 2011 1:40 pm

I am a 28 year old female, who has been suffering for the past two years, with endless visits to my doctor, gynaecologist, GU clinic ect. my partner ended up having an affair and leaving me because of this, it also affects my social and work life.
Sex has always been painful for me and i would be in pain for days after it and also bleed, I then got a yellow/green discharge and chronic stabbing/burning pains in my vaginal area, my partner had admitted to having an affair and thought he had given me an STD, so have had swabs done on at least 10 different occasions by different people, but they come back negative but sometimes says there are abnormal white cells.
I had a laperoscopy where mild endometriosis was found and lasered off and was told that this was only the cause for painful sex, not for my other pain and discharge, i then had a hysteroscopy where i was told my womb and vagina looked fine and they couldnt find a cause for the discharge!! i have had my bloods and urine tested which also come back clear, and also had my urethra looked at which was also normal.
My doctor told me i could be suffering from vulvodynia and prescribed me amitryptelene, which sometimes gives me some relief, however it doesnt last long!
It is really affecting my everyday life, sometimes the pain gets so bad i cant walk, i feel stressed and depressed and have not had much support offered to me, does anyone have similar symptoms? or can offer anything else to try???

laura224

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Re: Feels like theres no help out there!!!!

Post  stephsue on Sun Dec 25, 2011 5:46 pm

Hi Laura -
Sorry to hear you've had so many medical issues! That is so tough. Have you gotten a chance to see someone who specializes in vulvar or vulvovaginal disorders? That is a good starting off point for you. Unfortunately even many OBGYN's still aren't terrifically knowledgable about these things. Fortunately, there are many MANY other things you can try besides amiptryptiline, but seeing a good specialist would be the best way to determine which would make sense for you.

If the pain is all burning/stinging then it could be a skin issue (sometimes people even are treated by dermatologists, but again, not all may know that much about VV). For this people will try topical steroids, topical estrogen and/or testosterone cream if there is a hormone imbalance contributing to things - I also try to follow an anti-inflammatory diet (google Dr. Weil anti-inflammatory food pyramid for a good reference), and while I'm unsure how much it is helping the VV, it definitely improves my health overall!

You might also have some pelvic muscle issues, which I would imagine would be even more likely since you've had a few surgeries. Again, you would need someone knowledgeable to diagnose this and refer you to a PT, who might then help work out some of those muscles and do biofeedback to teach you to relax them. There are also other drugs that you could probably try if the amitryptiline is not doing much for you.

It can be hard to find a good specialist depending on what area of the country you are in - I have lived in Boston and NY and could recommend people there if you want to PM me, and I'm sure members of the forum from other areas could make recommendations too. You can also go talk to some doctors and see how much they know about vulvodynia/vulvar vestibulitis/pelvic floor dysfunction. If they are familiar with all of these things then that is a good starting off point and they may be able to help, or at least refer you to someone who knows about them! Hope that you are able to find some relief and a good clinician to help you!
-S

stephsue

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