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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Feels like theres no help out there!!!!

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Feels like theres no help out there!!!!

Post  laura224 on Tue Dec 20, 2011 1:40 pm

I am a 28 year old female, who has been suffering for the past two years, with endless visits to my doctor, gynaecologist, GU clinic ect. my partner ended up having an affair and leaving me because of this, it also affects my social and work life.
Sex has always been painful for me and i would be in pain for days after it and also bleed, I then got a yellow/green discharge and chronic stabbing/burning pains in my vaginal area, my partner had admitted to having an affair and thought he had given me an STD, so have had swabs done on at least 10 different occasions by different people, but they come back negative but sometimes says there are abnormal white cells.
I had a laperoscopy where mild endometriosis was found and lasered off and was told that this was only the cause for painful sex, not for my other pain and discharge, i then had a hysteroscopy where i was told my womb and vagina looked fine and they couldnt find a cause for the discharge!! i have had my bloods and urine tested which also come back clear, and also had my urethra looked at which was also normal.
My doctor told me i could be suffering from vulvodynia and prescribed me amitryptelene, which sometimes gives me some relief, however it doesnt last long!
It is really affecting my everyday life, sometimes the pain gets so bad i cant walk, i feel stressed and depressed and have not had much support offered to me, does anyone have similar symptoms? or can offer anything else to try???

laura224

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Join date : 2011-12-20

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Re: Feels like theres no help out there!!!!

Post  stephsue on Sun Dec 25, 2011 5:46 pm

Hi Laura -
Sorry to hear you've had so many medical issues! That is so tough. Have you gotten a chance to see someone who specializes in vulvar or vulvovaginal disorders? That is a good starting off point for you. Unfortunately even many OBGYN's still aren't terrifically knowledgable about these things. Fortunately, there are many MANY other things you can try besides amiptryptiline, but seeing a good specialist would be the best way to determine which would make sense for you.

If the pain is all burning/stinging then it could be a skin issue (sometimes people even are treated by dermatologists, but again, not all may know that much about VV). For this people will try topical steroids, topical estrogen and/or testosterone cream if there is a hormone imbalance contributing to things - I also try to follow an anti-inflammatory diet (google Dr. Weil anti-inflammatory food pyramid for a good reference), and while I'm unsure how much it is helping the VV, it definitely improves my health overall!

You might also have some pelvic muscle issues, which I would imagine would be even more likely since you've had a few surgeries. Again, you would need someone knowledgeable to diagnose this and refer you to a PT, who might then help work out some of those muscles and do biofeedback to teach you to relax them. There are also other drugs that you could probably try if the amitryptiline is not doing much for you.

It can be hard to find a good specialist depending on what area of the country you are in - I have lived in Boston and NY and could recommend people there if you want to PM me, and I'm sure members of the forum from other areas could make recommendations too. You can also go talk to some doctors and see how much they know about vulvodynia/vulvar vestibulitis/pelvic floor dysfunction. If they are familiar with all of these things then that is a good starting off point and they may be able to help, or at least refer you to someone who knows about them! Hope that you are able to find some relief and a good clinician to help you!
-S

stephsue

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Join date : 2011-12-24
Location : Boston

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