Log in

I forgot my password

Latest topics
» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


pain clinic

View previous topic View next topic Go down

pain clinic

Post  maggie on Fri Jun 25, 2010 10:04 pm

Hi, maggie here. Last year my GP refered me to a pain clinic at barts hospital, after a long wait my appointment finally came, i went along and saw the dr had a chat took all my papers with me, (not that it did much good.) I was given pregabalin 75mg to take, after being on them for a while they really did not make any differnce, the pain was still very much there,when i went back i told them this they said to stop taking them and that there not much more they could do , i was so disapointed, i then asked her about acupuncture, she said anything is worth a try,(so it's a good job i asked). so i'm now waiting for an appointment, already been waiting 4 months, will let you all no how i get on. I was told by my gyne to see a psychiatrist because when i saw her i was very tearful and low, i was'nt to please to go but u did never the less, which i'm glad i did because at the thime i was on amitriptyline, he told me to stop them and change to duloxetine, which i did , it's not helped with my pain but mentally i feel a lot better to cope with the pain, i still get bad days where i feel like pulling the hair out of my head where you just had enough. Another thing only had intercorse twice in neally three years, it's so painful, my gyne told me it would make me feel better if i did, how wrong was she, the only thing that will make me better is for ths pain to go away, thank god i've got a very understanding husband. At the mo i'm also using ovista cream which takes the dryness away but that does't always work. will it ever go away.))

maggie

Posts : 23
Join date : 2010-06-20

View user profile

Back to top Go down

Re: pain clinic

Post  Sarah001 on Sat Jun 26, 2010 11:29 am

Hi Maggie, that's a real shame about the pain clinic, some of them are better than others I think. Have you seen a vulvar dermatologist to rule out skin conditions? If you have a skin condition the pain relief angle won't be helpful because obviously the condition needs treating.

Also I'm told Sea Buckthorn Oil helps with dryness, you can either apply it directly to the skin or take capsules and they've found it helpful for dryness in the area. I haven't tried it yet myself but I've seen it mentioned on a variety of other sites and usually really positively.

The other thing I've seen mentioned alot is the use of testosterone cream along with oestrogen cream, apparently the two together work better than just oestrogen cream.

Another option is getting your pelvc flor checked out by a womens health physio, it can cause alot of problems if it's tight and weak so that's another option if you haven't already tried it.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: pain clinic

Post  Sebby (Admin) on Mon Jun 28, 2010 6:23 am


Hi Maggie

Im going to a pain clinic soon, I will be going to King Georges in Redbridge so if i find them more helpful I will let you know as it does depend on the consultant with how much help you get.

It seems daft to try you on just one medication and then say they can do no more for you! From what I have read they should be able to try you on other nerve blockers and I have also heard that sum anit-convulsants help with the pain.

Sarah's suggestions are great and I will be using them myself so thank you Sarah!

Have you tried a anesthetic cream for intercourse? I havnt tried it as Im not in a relationship but Ive heard it helps with the pain

I always have to google the word anesthetic! I soooo cant spell it, I should learn!

Please let us know how the accupuncture works

Take care and dont give up

Sebby
xxx

avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

maggie

Post  maggie on Mon Jun 28, 2010 9:04 pm


Hi, thanks for all your advice, i'm taking it all in, just a bit worried about using different creams after what
happered at the beggining.
I have tried the cream for intercorse, but it was still very painful, my husband not to keen on it either ha ha!,

King Georges hospital is not very far from me so i don't know why they sent me all the way to barts, (does anyone
on this nhs know what there doing).

I will try the acupunture, if no better i wii asked to go to king georges, thanks so much for that.

It would be interesting to no how others with vulvodynia are washing, i shower ,iv'e been told it's better then
having a bath, also i use nothing on my vulva but on my bottom i use aquous cream, also i would find it a big help if anyone has a sore bottom like me ( although it's normal skin when you look) would let me no what you use please.

All i can say is, Thank god for this forum and also to all of you who find the time to help others,
God bless you all,xxxxxxxxxx

ps.
I'm also a newbie with this computer hee hee! (still learning).

All take care, xxx maggie.

maggie

Posts : 23
Join date : 2010-06-20

View user profile

Back to top Go down

Re: pain clinic

Post  julia on Wed Aug 25, 2010 12:17 pm

hi maggie i realise i didn't get back to you about what I use on my bottom. it's either aqueous cream or good old water at present, i don't have any magic solutions but will let you know as soon as i find one!

julia

Posts : 31
Join date : 2010-07-21

View user profile

Back to top Go down

Re: pain clinic

Post  jules on Wed Aug 25, 2010 11:45 pm

Maggie, I am on the same medication that you went off of. Pregabalin (aka Lyrica). I didn't have much relief w/ 50 or 75 Mgs. so my pain clinic doc increased it to 150 mgs. that made a big difference. you can take up to 300 mgs of Lyrica. I think its sad they told you there is nothing more they can do for you. that is so not true. i'm glad you came up w/ the idea of acupuncture. studies show that that has been helpful for some. have you tried Neurontin (anti-convulsant)? i was up to 3000 mgs of that. I did not get relief until i started taking around 3000 mgs. the other option is physical therapy. that has been found to be very helpful as well. but you really need something for that nerve pain. can't help you w/ washing your bottom. I get to use soap there :-)

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: pain clinic

Post  Sarah001 on Thu Aug 26, 2010 10:16 am

I'm really interested to hear how the acupuncture turns out too, I've read alot of positive things about using it for vulvodynia online so fingers crossed!
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: pain clinic

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum