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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Crohn's Disease

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Crohn's Disease

Post  joannebond360 on Wed Dec 28, 2011 7:53 pm

Just thought i would share my story encase anyone can relate to it and doesnt miss a diagnosis like i have for 15 months.

I have swelling and severe inflammation of the vulva, 15 months ago i stupidly left a tampax in for too long and thought this was all a reaction to that. Was on lots of antibiotics in hospital and was really poorly from what they thought was an infection.

Came out of hospital and continued to have this swelling and inflammation to the point of not being able to walk or sit. Would burn, throb and itch. I have seen various doctors and was finally refered to a vulval specialist at guys and st thomas's in June of this year. She put me on antibiotics thinking it was a low grade celulitis still lingering from the tampax. After 3 visits with her she refered me then to st georges to a lymphedema specialist who deals with swellings. After a few visits with him he started asking questions about having bowel problems, loose stools etc (which i dont) and mentioned crohn's disease but ruled it out because i didnt have loose stools. When i got home i looked into it and every other symptom i have, flu like aches, growling tummy, extreme tiredness and have the urge to go to no 2's also which comes in bouts, got to the point now where i am ill and exhausted every day now. I told this info on my last appointment and he seems to think this is what i have. Also had a biopsy of the skin down there which just came back with the tissue being full of fluid. He doesnt think it is anything to do with the tampax or infection.

Crohns disease can cause this irritation down below and in the back passage also. It is a immune system problem which attacks the bowel and causes irritation which can continue into the skin of the vagina, vulva and perinium.

So if anyone has any of the symptoms i have mentioned it might be worth looking into it. Cant beleive a problem in the bowel could cause this awful pain in my vulva!

Just wanted to share this to be able to help anyone.

I am now awaiting a treatment plan with drugs to supress the immune system and hopefully this will stop all the irritation and swelling.

Living with anything ongoing and long term is definitely a challenge....... but have to keep strong and keep smiling Very Happy


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best to you!

Post  sadone on Wed Dec 28, 2011 8:21 pm

I have a friend with Chrohn's, and he has been able to successfully manage his condition. He has flare-ups and then long periods (years) with no symptoms. So, it makes sense to go on the meds to get your symptoms to calm down. This is what he has done during flare-ups. Just wanted to let you know that once you get the symptoms to calm themselves, you may be able to go off the meds for a while until the next flare-up. Have you been tested (q-tip test) for vulvodynia? Wishing the best for you!


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Re: Crohn's Disease

Post  joannebond360 on Thu Dec 29, 2011 2:39 pm

Oh wow thats promising! Thank you for that. Heard the same from a few people, didnt realise how many people live with it.

Yes had the q tip test and was ok. The skin is sensitive due to the inflammation and swelling but dont have the pain there when touched like alot of people mention.

Know it wouldnt relate to alot of people on here but i read an article to say that people with conditions and pain there shouldnt rule out Crohn's. I didnt have any bowel symptoms until the last two months just this swelling and inflammation and periods of feeling a bit flu like. Very strange!


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keep us posted!

Post  sadone on Fri Dec 30, 2011 8:01 pm

Hi Joanne, That's really good news that you didn't respond to the q-tip test! I've heard from the pain doc I saw for a while that a lot of these conditions are related, and he thinks are expressed on a certain gene: fibromyalgia, TMJ, vulvodynia, migraines, ibs... just to name a few, so it could very well be that Chrohn's may be intertwined as well. Good advice to get tested for that, if symptoms warrant it. I really hope you get some relief soon, and the meds start to kick in quickly for you. Take care!!


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Re: Crohn's Disease

Post  joannebond360 on Mon Jan 02, 2012 8:07 pm

Thank you for your advice and support.

Just amazes me how many people are suffering with conditions down there! When i sit in the waiting room at the hospital to see the vulval specialist i cant beleive the amount of people waiting and how long you have to wait for an appointment! Shocked Surely there needs to be more specialists and more recognition! Crazy.....


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Having similar issues

Post  rhiannon75 on Sun Jan 13, 2013 12:26 am

I am finally putting two and two together about the relationship between Crohn's Disease and female health. There are tons of gynecological manifestations, especially if its missed for years like mine may have been.


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Re: Crohn's Disease

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