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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New to the board

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New to the board

Post  yuffie623 on Thu Jan 05, 2012 4:52 am

TL;DR - My name is Heather, I'm 27, I developed vulvar problems when I was 21. I was afraid to deal with it until now, so now I'm seeking recovery, six years later. Yeah, yeah, I know.

Thanks for having me.


Long version:

Hi, my name is Heather. I'm 27 years old, and I've been dealing with vulvar pain since 2005. More like 2006, which is also when I was first diagnosed. But to be honest, it took me a while to really want to dive in and solve this issue.

I became sexually active as a teenager, and I was fine. I went on birth control when I was 18, around when I turned 19, which was back in 2003, and it wasn't until 2005 that I began to have unusual symptoms.

The gyno in 2006 was very matter-of-fact. She said I had "vulvodynia," and prescribed me Estrace, the estrogen cream, but being a stupid 21 year old, I very quickly dropped the regimen. And being a stupid doctor, she got the hint and didn't contact me back either. I'm not sure why I didn't care. I had just moved back to the States after living in England for my junior year, and I'd had a love affair with a freshman that was exclusively oral sex and outercourse. I had been with a guy I met on vacation as well and I guess I forgot the pain I'd had. Or it had not gotten as intense yet.

I hooked up with a friend of mine after seeing the gyno, and was immediately made aware something was wrong. Guys couldn't be rough with me anymore. I loaded up on Wet Platinum, but didn't seek further treatment.

So then I graduate undergrad, and that whole senior year, I had been dealing with what I would realize in 2011 was bipolar disorder. It was 2007. I went off birth control.

In 2008 I ended up with an ex of mine and a new flame - it was all very crazy on account of my bipolar, but I had been off hormonal birth control for months and months, and when I look back on 2008 now, I remember some very pleasurable sex. So I went back on birth control, as you do. After a few months, I started getting pain again, and with my mental difficulties mostly affecting things, me and the guy broke up.

I stayed on BC, though, but I was single for a long time and so I once again found an excuse to not see a doctor for a stretch of time. It got to be 2011, and I ended up with another ex of mine, and it was brutal, the pain, which he understood, because he remembered. I ended up moving to a new city for graduate school. I ended up, again, with a new flame, and we couldn't get it in. Too painful. He was flabbergasted.

After my own experience, and reading links online, I made an executive decision this past September and went off birth control pills again.

Finally I worked up the courage (and I'd been single and celibate for a few months, dealing with the bipolar, which finally had a name of its own), to see a new physician in my new city, and she heard this whole story, rambling and manic, nodding and not believing, then examined me and called it vulvodynia. She said we need to get started on a treatment plan, but her resources and knowledge were limited. She said I should go to New York City or Boston, those being closest to us. But too far for visits, for me, with full-time graduate school.

I've sort of obsessed over this. It bothers me a lot, because I actually am and always was almost as bad as a guy when it comes to how often I masturbate (because I have clitoral orgasms just fine, except when I'm drunk, high, or on an SSRI :-p ). And when I avoid that area, ok, I'm fine, but then I go further down there, and wow, man, is it discouraging. My own damn fingers give me stinging pain.

It came to the forefront of my mind again with a stupid half-assed romance with an old coworker of mine this Christmas. We got high and we were fooling around, you know, and he got three fingers in and I was fine, but it was uncomfortable, you know? When I'm high, the pain subsides. And he was stupid and high and begged me, pleaded, goaded me to have sex, and I said no, no, I won't, no. Only sober did he apologize and say he knows I have vulvodynia, he was acting like an idiot, and he wouldn't want to have intercourse with me while this is a problem. Blah.

Anyway, upwards and onwards with real solutions. There's a physical therapist that the doctor in my town thought I should see. Naturally, she's down in the Big Apple. Blah.


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Join date : 2012-01-05
Location : Boston, MA, USA

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Post  ButterflyLiz on Fri Jan 06, 2012 7:46 pm

Hi Heather *waves* welcome to the forum. Sorry to hear about your vulval pain issues but it’s good that you feel ready to start trying to get some treatment. There’s a great bunch of ladies here, always someone to chat stuff through with.

I have to ask, is your username a Final Fantasy reference? Smile

All the best,
Liz x

Posts : 137
Join date : 2011-11-18
Age : 31
Location : UK

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Re: New to the board

Post  noni on Thu Jan 19, 2012 2:08 am

Havent been on the forum for a long-ass time.

Us V ladies are cropping up like mushrooms everywhere, lol.

Anyways...welcome and it sucks that you had to find us in the first place, but atleast you know you're not alone.


Posts : 242
Join date : 2011-01-10
Age : 29
Location : Ontario

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Re: New to the board

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