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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

New to the board

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New to the board

Post  yuffie623 on Thu Jan 05, 2012 4:52 am

TL;DR - My name is Heather, I'm 27, I developed vulvar problems when I was 21. I was afraid to deal with it until now, so now I'm seeking recovery, six years later. Yeah, yeah, I know.

Thanks for having me.


Long version:

Hi, my name is Heather. I'm 27 years old, and I've been dealing with vulvar pain since 2005. More like 2006, which is also when I was first diagnosed. But to be honest, it took me a while to really want to dive in and solve this issue.

I became sexually active as a teenager, and I was fine. I went on birth control when I was 18, around when I turned 19, which was back in 2003, and it wasn't until 2005 that I began to have unusual symptoms.

The gyno in 2006 was very matter-of-fact. She said I had "vulvodynia," and prescribed me Estrace, the estrogen cream, but being a stupid 21 year old, I very quickly dropped the regimen. And being a stupid doctor, she got the hint and didn't contact me back either. I'm not sure why I didn't care. I had just moved back to the States after living in England for my junior year, and I'd had a love affair with a freshman that was exclusively oral sex and outercourse. I had been with a guy I met on vacation as well and I guess I forgot the pain I'd had. Or it had not gotten as intense yet.

I hooked up with a friend of mine after seeing the gyno, and was immediately made aware something was wrong. Guys couldn't be rough with me anymore. I loaded up on Wet Platinum, but didn't seek further treatment.

So then I graduate undergrad, and that whole senior year, I had been dealing with what I would realize in 2011 was bipolar disorder. It was 2007. I went off birth control.

In 2008 I ended up with an ex of mine and a new flame - it was all very crazy on account of my bipolar, but I had been off hormonal birth control for months and months, and when I look back on 2008 now, I remember some very pleasurable sex. So I went back on birth control, as you do. After a few months, I started getting pain again, and with my mental difficulties mostly affecting things, me and the guy broke up.

I stayed on BC, though, but I was single for a long time and so I once again found an excuse to not see a doctor for a stretch of time. It got to be 2011, and I ended up with another ex of mine, and it was brutal, the pain, which he understood, because he remembered. I ended up moving to a new city for graduate school. I ended up, again, with a new flame, and we couldn't get it in. Too painful. He was flabbergasted.

After my own experience, and reading links online, I made an executive decision this past September and went off birth control pills again.

Finally I worked up the courage (and I'd been single and celibate for a few months, dealing with the bipolar, which finally had a name of its own), to see a new physician in my new city, and she heard this whole story, rambling and manic, nodding and not believing, then examined me and called it vulvodynia. She said we need to get started on a treatment plan, but her resources and knowledge were limited. She said I should go to New York City or Boston, those being closest to us. But too far for visits, for me, with full-time graduate school.

I've sort of obsessed over this. It bothers me a lot, because I actually am and always was almost as bad as a guy when it comes to how often I masturbate (because I have clitoral orgasms just fine, except when I'm drunk, high, or on an SSRI :-p ). And when I avoid that area, ok, I'm fine, but then I go further down there, and wow, man, is it discouraging. My own damn fingers give me stinging pain.

It came to the forefront of my mind again with a stupid half-assed romance with an old coworker of mine this Christmas. We got high and we were fooling around, you know, and he got three fingers in and I was fine, but it was uncomfortable, you know? When I'm high, the pain subsides. And he was stupid and high and begged me, pleaded, goaded me to have sex, and I said no, no, I won't, no. Only sober did he apologize and say he knows I have vulvodynia, he was acting like an idiot, and he wouldn't want to have intercourse with me while this is a problem. Blah.

Anyway, upwards and onwards with real solutions. There's a physical therapist that the doctor in my town thought I should see. Naturally, she's down in the Big Apple. Blah.


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Join date : 2012-01-05
Location : Boston, MA, USA

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Post  ButterflyLiz on Fri Jan 06, 2012 7:46 pm

Hi Heather *waves* welcome to the forum. Sorry to hear about your vulval pain issues but it’s good that you feel ready to start trying to get some treatment. There’s a great bunch of ladies here, always someone to chat stuff through with.

I have to ask, is your username a Final Fantasy reference? Smile

All the best,
Liz x

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Age : 32
Location : UK

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Re: New to the board

Post  noni on Thu Jan 19, 2012 2:08 am

Havent been on the forum for a long-ass time.

Us V ladies are cropping up like mushrooms everywhere, lol.

Anyways...welcome and it sucks that you had to find us in the first place, but atleast you know you're not alone.


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Location : Ontario

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Re: New to the board

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