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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

New to the board

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New to the board

Post  yuffie623 on Thu Jan 05, 2012 4:52 am

TL;DR - My name is Heather, I'm 27, I developed vulvar problems when I was 21. I was afraid to deal with it until now, so now I'm seeking recovery, six years later. Yeah, yeah, I know.

Thanks for having me.


Long version:

Hi, my name is Heather. I'm 27 years old, and I've been dealing with vulvar pain since 2005. More like 2006, which is also when I was first diagnosed. But to be honest, it took me a while to really want to dive in and solve this issue.

I became sexually active as a teenager, and I was fine. I went on birth control when I was 18, around when I turned 19, which was back in 2003, and it wasn't until 2005 that I began to have unusual symptoms.

The gyno in 2006 was very matter-of-fact. She said I had "vulvodynia," and prescribed me Estrace, the estrogen cream, but being a stupid 21 year old, I very quickly dropped the regimen. And being a stupid doctor, she got the hint and didn't contact me back either. I'm not sure why I didn't care. I had just moved back to the States after living in England for my junior year, and I'd had a love affair with a freshman that was exclusively oral sex and outercourse. I had been with a guy I met on vacation as well and I guess I forgot the pain I'd had. Or it had not gotten as intense yet.

I hooked up with a friend of mine after seeing the gyno, and was immediately made aware something was wrong. Guys couldn't be rough with me anymore. I loaded up on Wet Platinum, but didn't seek further treatment.

So then I graduate undergrad, and that whole senior year, I had been dealing with what I would realize in 2011 was bipolar disorder. It was 2007. I went off birth control.

In 2008 I ended up with an ex of mine and a new flame - it was all very crazy on account of my bipolar, but I had been off hormonal birth control for months and months, and when I look back on 2008 now, I remember some very pleasurable sex. So I went back on birth control, as you do. After a few months, I started getting pain again, and with my mental difficulties mostly affecting things, me and the guy broke up.

I stayed on BC, though, but I was single for a long time and so I once again found an excuse to not see a doctor for a stretch of time. It got to be 2011, and I ended up with another ex of mine, and it was brutal, the pain, which he understood, because he remembered. I ended up moving to a new city for graduate school. I ended up, again, with a new flame, and we couldn't get it in. Too painful. He was flabbergasted.

After my own experience, and reading links online, I made an executive decision this past September and went off birth control pills again.

Finally I worked up the courage (and I'd been single and celibate for a few months, dealing with the bipolar, which finally had a name of its own), to see a new physician in my new city, and she heard this whole story, rambling and manic, nodding and not believing, then examined me and called it vulvodynia. She said we need to get started on a treatment plan, but her resources and knowledge were limited. She said I should go to New York City or Boston, those being closest to us. But too far for visits, for me, with full-time graduate school.

I've sort of obsessed over this. It bothers me a lot, because I actually am and always was almost as bad as a guy when it comes to how often I masturbate (because I have clitoral orgasms just fine, except when I'm drunk, high, or on an SSRI :-p ). And when I avoid that area, ok, I'm fine, but then I go further down there, and wow, man, is it discouraging. My own damn fingers give me stinging pain.

It came to the forefront of my mind again with a stupid half-assed romance with an old coworker of mine this Christmas. We got high and we were fooling around, you know, and he got three fingers in and I was fine, but it was uncomfortable, you know? When I'm high, the pain subsides. And he was stupid and high and begged me, pleaded, goaded me to have sex, and I said no, no, I won't, no. Only sober did he apologize and say he knows I have vulvodynia, he was acting like an idiot, and he wouldn't want to have intercourse with me while this is a problem. Blah.

Anyway, upwards and onwards with real solutions. There's a physical therapist that the doctor in my town thought I should see. Naturally, she's down in the Big Apple. Blah.


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Join date : 2012-01-05
Location : Boston, MA, USA

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Post  ButterflyLiz on Fri Jan 06, 2012 7:46 pm

Hi Heather *waves* welcome to the forum. Sorry to hear about your vulval pain issues but it’s good that you feel ready to start trying to get some treatment. There’s a great bunch of ladies here, always someone to chat stuff through with.

I have to ask, is your username a Final Fantasy reference? Smile

All the best,
Liz x

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Age : 32
Location : UK

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Re: New to the board

Post  noni on Thu Jan 19, 2012 2:08 am

Havent been on the forum for a long-ass time.

Us V ladies are cropping up like mushrooms everywhere, lol.

Anyways...welcome and it sucks that you had to find us in the first place, but atleast you know you're not alone.


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Location : Ontario

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Re: New to the board

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