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» What's next?
Fri Apr 20, 2018 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


New to the board

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New to the board

Post  yuffie623 on Thu Jan 05, 2012 4:52 am

TL;DR - My name is Heather, I'm 27, I developed vulvar problems when I was 21. I was afraid to deal with it until now, so now I'm seeking recovery, six years later. Yeah, yeah, I know.

Thanks for having me.

Heather

--
Long version:


Hi, my name is Heather. I'm 27 years old, and I've been dealing with vulvar pain since 2005. More like 2006, which is also when I was first diagnosed. But to be honest, it took me a while to really want to dive in and solve this issue.

I became sexually active as a teenager, and I was fine. I went on birth control when I was 18, around when I turned 19, which was back in 2003, and it wasn't until 2005 that I began to have unusual symptoms.

The gyno in 2006 was very matter-of-fact. She said I had "vulvodynia," and prescribed me Estrace, the estrogen cream, but being a stupid 21 year old, I very quickly dropped the regimen. And being a stupid doctor, she got the hint and didn't contact me back either. I'm not sure why I didn't care. I had just moved back to the States after living in England for my junior year, and I'd had a love affair with a freshman that was exclusively oral sex and outercourse. I had been with a guy I met on vacation as well and I guess I forgot the pain I'd had. Or it had not gotten as intense yet.

I hooked up with a friend of mine after seeing the gyno, and was immediately made aware something was wrong. Guys couldn't be rough with me anymore. I loaded up on Wet Platinum, but didn't seek further treatment.

So then I graduate undergrad, and that whole senior year, I had been dealing with what I would realize in 2011 was bipolar disorder. It was 2007. I went off birth control.

In 2008 I ended up with an ex of mine and a new flame - it was all very crazy on account of my bipolar, but I had been off hormonal birth control for months and months, and when I look back on 2008 now, I remember some very pleasurable sex. So I went back on birth control, as you do. After a few months, I started getting pain again, and with my mental difficulties mostly affecting things, me and the guy broke up.

I stayed on BC, though, but I was single for a long time and so I once again found an excuse to not see a doctor for a stretch of time. It got to be 2011, and I ended up with another ex of mine, and it was brutal, the pain, which he understood, because he remembered. I ended up moving to a new city for graduate school. I ended up, again, with a new flame, and we couldn't get it in. Too painful. He was flabbergasted.

After my own experience, and reading links online, I made an executive decision this past September and went off birth control pills again.

Finally I worked up the courage (and I'd been single and celibate for a few months, dealing with the bipolar, which finally had a name of its own), to see a new physician in my new city, and she heard this whole story, rambling and manic, nodding and not believing, then examined me and called it vulvodynia. She said we need to get started on a treatment plan, but her resources and knowledge were limited. She said I should go to New York City or Boston, those being closest to us. But too far for visits, for me, with full-time graduate school.

I've sort of obsessed over this. It bothers me a lot, because I actually am and always was almost as bad as a guy when it comes to how often I masturbate (because I have clitoral orgasms just fine, except when I'm drunk, high, or on an SSRI :-p ). And when I avoid that area, ok, I'm fine, but then I go further down there, and wow, man, is it discouraging. My own damn fingers give me stinging pain.

It came to the forefront of my mind again with a stupid half-assed romance with an old coworker of mine this Christmas. We got high and we were fooling around, you know, and he got three fingers in and I was fine, but it was uncomfortable, you know? When I'm high, the pain subsides. And he was stupid and high and begged me, pleaded, goaded me to have sex, and I said no, no, I won't, no. Only sober did he apologize and say he knows I have vulvodynia, he was acting like an idiot, and he wouldn't want to have intercourse with me while this is a problem. Blah.

Anyway, upwards and onwards with real solutions. There's a physical therapist that the doctor in my town thought I should see. Naturally, she's down in the Big Apple. Blah.


yuffie623

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Join date : 2012-01-05
Location : Boston, MA, USA

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Welcome!

Post  ButterflyLiz on Fri Jan 06, 2012 7:46 pm

Hi Heather *waves* welcome to the forum. Sorry to hear about your vulval pain issues but it’s good that you feel ready to start trying to get some treatment. There’s a great bunch of ladies here, always someone to chat stuff through with.

I have to ask, is your username a Final Fantasy reference? Smile

All the best,
Liz x
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ButterflyLiz

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Re: New to the board

Post  noni on Thu Jan 19, 2012 2:08 am

Havent been on the forum for a long-ass time.

Us V ladies are cropping up like mushrooms everywhere, lol.

Anyways...welcome and it sucks that you had to find us in the first place, but atleast you know you're not alone.

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Re: New to the board

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