Vulvodynia Support
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» Hope to all my suffering ladies
New member EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
New member EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
New member EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
New member EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
New member EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
New member EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
New member EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
New member EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
New member EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  misstrish Thu Jan 19, 2012 4:39 pm

Hi! I'm 21 and I've had vaginal itching consistently for the last 2 years. At first all the doctors I went to said it was a yeast infection, but since none of the treatments for yeast has worked my newest doctor thinks it's vulvodynia or something related to that. I've been suffering alone so it's nice to know there are other women out there who are experiencing the same thing. Here's hoping that we can all find a cure!

misstrish

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Post  JemimaSurrender Thu Jan 19, 2012 4:42 pm

Heyy.

It's nice to see someone else who has the itching! I get it on and off, along with the consistent pain, but it's not really recognised as one of the symptoms.

Check out some of the posts on here and see what you think. If you're like anyone else, just reading other people's experiences offers you some relief!


JemimaSurrender

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Location : Staffordshire, UK

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Post  Sarah001 Thu Jan 19, 2012 5:15 pm

Itching isn't usually a symptom of V, it can be but a skin condition should be ruled out first by a vulvar dermatologist so if you haven't seen one already ask for a referral before you accept the V diagnosis.
Sarah001
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Post  misstrish Thu Jan 19, 2012 5:35 pm

Yeah I thought it was weird too, since every website ever says that pain is the number one sign of vulvodynia, and I've never had anything like that. But my doctor has looked a number of times and says it doesn't look like a yeast infection, and different people's sense receptors or whatever interpret signals from the brain differently, so it's possible that what would be pain for someone else is itching for me. I've been wanting to get in to see a dermatologist for a long time, but I don't really know where to find a vulvar one... it's also difficult because I'm at college right now and not very close to home, so it's difficult to see a doctor over a long period of time, and dermatologists are always booked months in advance. I'll definitely try to look into it though. My skin gets really dry in the winter, particularly on my hands (to the point where they crack and bleed pretty badly), so maybe it's possible that I have some kind of skin condition that's perpetuating it.
Although, I did have a biopsy done at one point and they didn't find anything wrong, except the skin was slightly thickened. I'm not sure if that means anything though.

misstrish

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Post  Sarah001 Thu Jan 19, 2012 8:50 pm

The way I got to see a vulval dermatologist was a referral through the GUM clinic at the same hospital, usually the ones who specialise in vulvar skin conditions travel around the various hospitals in their area and see women on a monthly basis. You could ring your nearest hospital and ask if they have one or if not where the next hospital that does is and go from there. Anyone with itching should get checked out by a dermatologist, I have a friend who gets eczema on her vulva and it causes lots of itching and thickened skin and she gets creams to use on each break out so it's no longer a constant thing and is mostly under control. It took me about 3 months to get the first appointment but after that she arranged to see me on a regular basis, mine wasn't a skin condition but most of the V dermos also deal with pain conditions in the vulvar so she was in charge of my medication. It's definitely something you should look into, if it was yeast it would show on a swab so that could easily be ruled out by who you see now or a GUM clinic. Let us know how you get on.
Sarah001
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Post  JemimaSurrender Thu Jan 19, 2012 10:10 pm

Sarah001 wrote:The way I got to see a vulval dermatologist was a referral through the GUM clinic at the same hospital, usually the ones who specialise in vulvar skin conditions travel around the various hospitals in their area and see women on a monthly basis. You could ring your nearest hospital and ask if they have one or if not where the next hospital that does is and go from there. Anyone with itching should get checked out by a dermatologist, I have a friend who gets eczema on her vulva and it causes lots of itching and thickened skin and she gets creams to use on each break out so it's no longer a constant thing and is mostly under control. It took me about 3 months to get the first appointment but after that she arranged to see me on a regular basis, mine wasn't a skin condition but most of the V dermos also deal with pain conditions in the vulvar so she was in charge of my medication. It's definitely something you should look into, if it was yeast it would show on a swab so that could easily be ruled out by who you see now or a GUM clinic. Let us know how you get on.
How weird! I've just made a post about this under "Red Spots"!

JemimaSurrender

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Post  AroraNightfire Fri Jan 20, 2012 5:50 am

My Vulvodynia started at the age of 18, 9yrs ago in the form of a chronic itch all over the inside part of my vulva and vaginal opening. I was given yeast creams to use externally in the begining and it soothed it but didnt cure it long term. 3yrs ago I was given a skin thinning steroid cream that I used for this mysterious debilitating itch for 2yrs. It soothed it when I applied it but after about 1yr 1/2 of using it it started to feel slightly more raw when I used it. I ignored it and continued using it. I had to stop it about 1yr and some months ago because it felt like someone had took a blow drier to my groin. I started to not be able to wear pants and sitting down was impossible. NEVER EVER use a skin thinning steriod cream for itch longer than a few months even if the itch persists!!!!! Please dont!! Im trying to write a book about everything Ive gone through. I would talk about it all hear but Im not so sure.
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