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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Lidocaine -- will it stop working?

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Lidocaine -- will it stop working?

Post  lolainslacks on Fri Jan 06, 2012 12:36 am

I was talking to someone recently (another vulvodynia sufferer) who told me that lidocaine is pretty much garunteed to stop working after about a year, and can even make things worse. Is this true? Lidocaine has been a godsend for me, as when I use it it completely removes my pain and I can have totally pain free sex. NOTHING ELSE WORKS. I am still trying meds with no success. The amitriptyline has taken the edge off, but hardly at all and I'm still nowhere close to pain free sex with just these pills. Raising the dosage has done nothing and I'm pretty much as high as I can go.

Do you think that if the lidocaine works so well with someone in the beginning, that it can still fail later? Or that persistent use can cause damage? I am only using 2% it seems like such a small amount. And only every three days or so at the very most. And when I use it I don't feel any burning like some women do.

Do you think that maybe this failure/damage only happens with women who apply it twice every single day? Because that's how my gyn suggested I use it. She said it would sort of train the nerves or kill them or something, and eventually they would stop hurting so much. But I didn't like doing that so I stopped very quickly and now only use it for pentration.

Please, your thoughts? Does anyone know of women who have had success with lidocaine and for whom it didn't stop working? I am so afraid now, I can't stop worrying.

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Re: Lidocaine -- will it stop working?

Post  Sarah001 on Fri Jan 06, 2012 1:30 pm

I've seen online conversations between women about this and some have long term results without it stopping working and others find it just stops helping out of the blue. Although it's easier said than done it really isn't something you can worry about because there's no way of knowing if it will stop working, it doesn't seem to be to do with frequency of use or strength of the ointment it's just down to whether your body gets used to it. It's the same with meds, some women find they can get full relief at a really low dose and others get relief for a while followed by their bodies geting used to that dose and having to increase and add other meds so it's one of those things you can't possibly guess about. My last WH Physio said it's a really outdated method and the best thing to do is try and figure out why you have the V in the first place or any factors that may be keeping the pain going such as PFD etc and working on those while it's helping if it does help. Sorry I can't be more help but there really is no way of knowing if it will continue to work or not.
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Re: Lidocaine -- will it stop working?

Post  lolainslacks on Fri Jan 06, 2012 3:17 pm

Oh God that's so scary. I am having a tough time dealing with this disorder on an emotional level at the moment. I don't understand why this is happening to me. Why do we have to deal with this? Its so cruel. And why aren't my meds working? My gyn won't see me again until June! So I'll have to wait until then to try something else. I can't stand the thought of lidocaine failing me.

EDIT: God I just read this back. It sounds so whiny, I'm sorry.

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Re: Lidocaine -- will it stop working?

Post  Sarah001 on Sat Jan 07, 2012 8:05 pm

It's ok to be a bit worried but don't let it take over your life. I personally found 300mg of Pregabalin a day helped quite a bit for a while then went to bed pleased about it and woke up the following day with it no longer working so I can understand exactly how anxious you might be. I upped the dose and again it's helping to a degree but I'm very aware of the fact I'm one dose away from the maximum so I'm putting alot of effort into physiotherapy in the hope I won't need to add more medication and perhaps could reduce the amount I'm on. I think if something works then great but don't forget to cover all angles and possible causes so hopefully we can dispense with whatever we're using.
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