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» I don't know what to do anymore
Yesterday at 5:05 am by SinclairSassy

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Lidocaine -- will it stop working?

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Lidocaine -- will it stop working?

Post  lolainslacks on Fri Jan 06, 2012 12:36 am

I was talking to someone recently (another vulvodynia sufferer) who told me that lidocaine is pretty much garunteed to stop working after about a year, and can even make things worse. Is this true? Lidocaine has been a godsend for me, as when I use it it completely removes my pain and I can have totally pain free sex. NOTHING ELSE WORKS. I am still trying meds with no success. The amitriptyline has taken the edge off, but hardly at all and I'm still nowhere close to pain free sex with just these pills. Raising the dosage has done nothing and I'm pretty much as high as I can go.

Do you think that if the lidocaine works so well with someone in the beginning, that it can still fail later? Or that persistent use can cause damage? I am only using 2% it seems like such a small amount. And only every three days or so at the very most. And when I use it I don't feel any burning like some women do.

Do you think that maybe this failure/damage only happens with women who apply it twice every single day? Because that's how my gyn suggested I use it. She said it would sort of train the nerves or kill them or something, and eventually they would stop hurting so much. But I didn't like doing that so I stopped very quickly and now only use it for pentration.

Please, your thoughts? Does anyone know of women who have had success with lidocaine and for whom it didn't stop working? I am so afraid now, I can't stop worrying.

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Re: Lidocaine -- will it stop working?

Post  Sarah001 on Fri Jan 06, 2012 1:30 pm

I've seen online conversations between women about this and some have long term results without it stopping working and others find it just stops helping out of the blue. Although it's easier said than done it really isn't something you can worry about because there's no way of knowing if it will stop working, it doesn't seem to be to do with frequency of use or strength of the ointment it's just down to whether your body gets used to it. It's the same with meds, some women find they can get full relief at a really low dose and others get relief for a while followed by their bodies geting used to that dose and having to increase and add other meds so it's one of those things you can't possibly guess about. My last WH Physio said it's a really outdated method and the best thing to do is try and figure out why you have the V in the first place or any factors that may be keeping the pain going such as PFD etc and working on those while it's helping if it does help. Sorry I can't be more help but there really is no way of knowing if it will continue to work or not.
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Re: Lidocaine -- will it stop working?

Post  lolainslacks on Fri Jan 06, 2012 3:17 pm

Oh God that's so scary. I am having a tough time dealing with this disorder on an emotional level at the moment. I don't understand why this is happening to me. Why do we have to deal with this? Its so cruel. And why aren't my meds working? My gyn won't see me again until June! So I'll have to wait until then to try something else. I can't stand the thought of lidocaine failing me.

EDIT: God I just read this back. It sounds so whiny, I'm sorry.

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Re: Lidocaine -- will it stop working?

Post  Sarah001 on Sat Jan 07, 2012 8:05 pm

It's ok to be a bit worried but don't let it take over your life. I personally found 300mg of Pregabalin a day helped quite a bit for a while then went to bed pleased about it and woke up the following day with it no longer working so I can understand exactly how anxious you might be. I upped the dose and again it's helping to a degree but I'm very aware of the fact I'm one dose away from the maximum so I'm putting alot of effort into physiotherapy in the hope I won't need to add more medication and perhaps could reduce the amount I'm on. I think if something works then great but don't forget to cover all angles and possible causes so hopefully we can dispense with whatever we're using.
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Re: Lidocaine -- will it stop working?

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