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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Lidocaine -- will it stop working?

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Lidocaine -- will it stop working?

Post  lolainslacks on Fri Jan 06, 2012 12:36 am

I was talking to someone recently (another vulvodynia sufferer) who told me that lidocaine is pretty much garunteed to stop working after about a year, and can even make things worse. Is this true? Lidocaine has been a godsend for me, as when I use it it completely removes my pain and I can have totally pain free sex. NOTHING ELSE WORKS. I am still trying meds with no success. The amitriptyline has taken the edge off, but hardly at all and I'm still nowhere close to pain free sex with just these pills. Raising the dosage has done nothing and I'm pretty much as high as I can go.

Do you think that if the lidocaine works so well with someone in the beginning, that it can still fail later? Or that persistent use can cause damage? I am only using 2% it seems like such a small amount. And only every three days or so at the very most. And when I use it I don't feel any burning like some women do.

Do you think that maybe this failure/damage only happens with women who apply it twice every single day? Because that's how my gyn suggested I use it. She said it would sort of train the nerves or kill them or something, and eventually they would stop hurting so much. But I didn't like doing that so I stopped very quickly and now only use it for pentration.

Please, your thoughts? Does anyone know of women who have had success with lidocaine and for whom it didn't stop working? I am so afraid now, I can't stop worrying.

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Re: Lidocaine -- will it stop working?

Post  Sarah001 on Fri Jan 06, 2012 1:30 pm

I've seen online conversations between women about this and some have long term results without it stopping working and others find it just stops helping out of the blue. Although it's easier said than done it really isn't something you can worry about because there's no way of knowing if it will stop working, it doesn't seem to be to do with frequency of use or strength of the ointment it's just down to whether your body gets used to it. It's the same with meds, some women find they can get full relief at a really low dose and others get relief for a while followed by their bodies geting used to that dose and having to increase and add other meds so it's one of those things you can't possibly guess about. My last WH Physio said it's a really outdated method and the best thing to do is try and figure out why you have the V in the first place or any factors that may be keeping the pain going such as PFD etc and working on those while it's helping if it does help. Sorry I can't be more help but there really is no way of knowing if it will continue to work or not.
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Re: Lidocaine -- will it stop working?

Post  lolainslacks on Fri Jan 06, 2012 3:17 pm

Oh God that's so scary. I am having a tough time dealing with this disorder on an emotional level at the moment. I don't understand why this is happening to me. Why do we have to deal with this? Its so cruel. And why aren't my meds working? My gyn won't see me again until June! So I'll have to wait until then to try something else. I can't stand the thought of lidocaine failing me.

EDIT: God I just read this back. It sounds so whiny, I'm sorry.

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Re: Lidocaine -- will it stop working?

Post  Sarah001 on Sat Jan 07, 2012 8:05 pm

It's ok to be a bit worried but don't let it take over your life. I personally found 300mg of Pregabalin a day helped quite a bit for a while then went to bed pleased about it and woke up the following day with it no longer working so I can understand exactly how anxious you might be. I upped the dose and again it's helping to a degree but I'm very aware of the fact I'm one dose away from the maximum so I'm putting alot of effort into physiotherapy in the hope I won't need to add more medication and perhaps could reduce the amount I'm on. I think if something works then great but don't forget to cover all angles and possible causes so hopefully we can dispense with whatever we're using.
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Re: Lidocaine -- will it stop working?

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