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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Lidocaine -- will it stop working?

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Lidocaine -- will it stop working?

Post  lolainslacks on Fri Jan 06, 2012 12:36 am

I was talking to someone recently (another vulvodynia sufferer) who told me that lidocaine is pretty much garunteed to stop working after about a year, and can even make things worse. Is this true? Lidocaine has been a godsend for me, as when I use it it completely removes my pain and I can have totally pain free sex. NOTHING ELSE WORKS. I am still trying meds with no success. The amitriptyline has taken the edge off, but hardly at all and I'm still nowhere close to pain free sex with just these pills. Raising the dosage has done nothing and I'm pretty much as high as I can go.

Do you think that if the lidocaine works so well with someone in the beginning, that it can still fail later? Or that persistent use can cause damage? I am only using 2% it seems like such a small amount. And only every three days or so at the very most. And when I use it I don't feel any burning like some women do.

Do you think that maybe this failure/damage only happens with women who apply it twice every single day? Because that's how my gyn suggested I use it. She said it would sort of train the nerves or kill them or something, and eventually they would stop hurting so much. But I didn't like doing that so I stopped very quickly and now only use it for pentration.

Please, your thoughts? Does anyone know of women who have had success with lidocaine and for whom it didn't stop working? I am so afraid now, I can't stop worrying.

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Re: Lidocaine -- will it stop working?

Post  Sarah001 on Fri Jan 06, 2012 1:30 pm

I've seen online conversations between women about this and some have long term results without it stopping working and others find it just stops helping out of the blue. Although it's easier said than done it really isn't something you can worry about because there's no way of knowing if it will stop working, it doesn't seem to be to do with frequency of use or strength of the ointment it's just down to whether your body gets used to it. It's the same with meds, some women find they can get full relief at a really low dose and others get relief for a while followed by their bodies geting used to that dose and having to increase and add other meds so it's one of those things you can't possibly guess about. My last WH Physio said it's a really outdated method and the best thing to do is try and figure out why you have the V in the first place or any factors that may be keeping the pain going such as PFD etc and working on those while it's helping if it does help. Sorry I can't be more help but there really is no way of knowing if it will continue to work or not.
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Re: Lidocaine -- will it stop working?

Post  lolainslacks on Fri Jan 06, 2012 3:17 pm

Oh God that's so scary. I am having a tough time dealing with this disorder on an emotional level at the moment. I don't understand why this is happening to me. Why do we have to deal with this? Its so cruel. And why aren't my meds working? My gyn won't see me again until June! So I'll have to wait until then to try something else. I can't stand the thought of lidocaine failing me.

EDIT: God I just read this back. It sounds so whiny, I'm sorry.

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Re: Lidocaine -- will it stop working?

Post  Sarah001 on Sat Jan 07, 2012 8:05 pm

It's ok to be a bit worried but don't let it take over your life. I personally found 300mg of Pregabalin a day helped quite a bit for a while then went to bed pleased about it and woke up the following day with it no longer working so I can understand exactly how anxious you might be. I upped the dose and again it's helping to a degree but I'm very aware of the fact I'm one dose away from the maximum so I'm putting alot of effort into physiotherapy in the hope I won't need to add more medication and perhaps could reduce the amount I'm on. I think if something works then great but don't forget to cover all angles and possible causes so hopefully we can dispense with whatever we're using.
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Re: Lidocaine -- will it stop working?

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