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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


New member... so glad to find others like me!!

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New member... so glad to find others like me!!

Post  fairyemma1980 on Sun Jan 08, 2012 5:35 pm

Hi I'm Emma, and I've just found this forum online. I'm 31 and been suffering from vulvodynia for about ten years now, but was only diagnosed about 8 months ago when I went to the doctor having discovered the info online and asked her if that was what I had. Over the years I've seen more specialists than I care to remember - about 5 different GPs, gyno at the hospital, GUM clinic, had keyhole surgery to test for endometriois, counselling, pyschotherapy etc. I now find it far too painful to have sex and to be honest the thought of sex terrifies me; plus I have very little libido left now anyway.
Over the years I've kept trying to get something to help me ease the pain but generally I find that doctors and specialists are either lacking in knowledge or are just not bothered.
When I found out about vulvodynia about a year and a half ago I spent months plucking up the courage to go back to the doctors and demand that they try to help me again. Since then I've gone onto 100mg of amitrypline a day but I don't really know if its helping that much. I've also been referred to a supposed 'vulval specialist' at my local hospital but she has been very negative so far and basically as good as said there's not much she can do. She is part of the dermatology dept. and has booked me in for patch testing in February, but to be honest I don't know whether its worth going. I'm already well aware of how lotions and potions affect me and only ever use acqueous cream to wash down there anyway.
I've also been referred to a physiotherapist in the gynocology dept at my local hospital and she seems to be the only ray of hope at the moment. Have already seen her twice in a month and she is the most positive person I've met in a long while - very patient and understanding. She is trying to train me to do pelvic floor exercises as my vulval pain has caused my pelvis to become very tight, which obviously affects any sexual contact I try to have.
I have been with my husband ever since my vulvodynia began, and we married in summer 2010, although we have not yet had sex as a married couple. I'd like to have a baby this year but I'm scared that a)I can't have sex to conceive and b) Delivery would be too painful. My husband is really understanding about it all but I always feel such a disappointment and worry constantly that he will go off with someone else to get what I cannot give him.
Is there anyone on this forum who has conceived and given birth whilst having vulvodynia? I'd really like to hear from you about the experience.
Thanks.

fairyemma1980

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Re: New member... so glad to find others like me!!

Post  Sarah001 on Tue Jan 10, 2012 8:08 pm

Hi and welcome. I've also done the vulval specialist who's actually a vulval dermatologist route, mine was in charge of medication so it might be worth going back to get her to request your GP gives you something different. I'm also on Ami and it didn't help so I've had 450mg of Lyrica added which helps a bit. I've also just started with a positive physio but I have a very unstable pelvis along with my super tight pelvic floor so I have to start with exercises to stabilise that before we even look at the PF issues. Fingers crossed physio works for us!
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Sarah001

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