Log in

I forgot my password

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 12

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

New member... so glad to find others like me!!

Go down

New member... so glad to find others like me!!

Post  fairyemma1980 on Sun Jan 08, 2012 5:35 pm

Hi I'm Emma, and I've just found this forum online. I'm 31 and been suffering from vulvodynia for about ten years now, but was only diagnosed about 8 months ago when I went to the doctor having discovered the info online and asked her if that was what I had. Over the years I've seen more specialists than I care to remember - about 5 different GPs, gyno at the hospital, GUM clinic, had keyhole surgery to test for endometriois, counselling, pyschotherapy etc. I now find it far too painful to have sex and to be honest the thought of sex terrifies me; plus I have very little libido left now anyway.
Over the years I've kept trying to get something to help me ease the pain but generally I find that doctors and specialists are either lacking in knowledge or are just not bothered.
When I found out about vulvodynia about a year and a half ago I spent months plucking up the courage to go back to the doctors and demand that they try to help me again. Since then I've gone onto 100mg of amitrypline a day but I don't really know if its helping that much. I've also been referred to a supposed 'vulval specialist' at my local hospital but she has been very negative so far and basically as good as said there's not much she can do. She is part of the dermatology dept. and has booked me in for patch testing in February, but to be honest I don't know whether its worth going. I'm already well aware of how lotions and potions affect me and only ever use acqueous cream to wash down there anyway.
I've also been referred to a physiotherapist in the gynocology dept at my local hospital and she seems to be the only ray of hope at the moment. Have already seen her twice in a month and she is the most positive person I've met in a long while - very patient and understanding. She is trying to train me to do pelvic floor exercises as my vulval pain has caused my pelvis to become very tight, which obviously affects any sexual contact I try to have.
I have been with my husband ever since my vulvodynia began, and we married in summer 2010, although we have not yet had sex as a married couple. I'd like to have a baby this year but I'm scared that a)I can't have sex to conceive and b) Delivery would be too painful. My husband is really understanding about it all but I always feel such a disappointment and worry constantly that he will go off with someone else to get what I cannot give him.
Is there anyone on this forum who has conceived and given birth whilst having vulvodynia? I'd really like to hear from you about the experience.


Posts : 3
Join date : 2012-01-08
Age : 37
Location : Sheffield UK

View user profile

Back to top Go down

Re: New member... so glad to find others like me!!

Post  Sarah001 on Tue Jan 10, 2012 8:08 pm

Hi and welcome. I've also done the vulval specialist who's actually a vulval dermatologist route, mine was in charge of medication so it might be worth going back to get her to request your GP gives you something different. I'm also on Ami and it didn't help so I've had 450mg of Lyrica added which helps a bit. I've also just started with a positive physio but I have a very unstable pelvis along with my super tight pelvic floor so I have to start with exercises to stabilise that before we even look at the PF issues. Fingers crossed physio works for us!

Posts : 1164
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum