Log in

I forgot my password

Latest topics
» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


New member... so glad to find others like me!!

View previous topic View next topic Go down

New member... so glad to find others like me!!

Post  fairyemma1980 on Sun Jan 08, 2012 5:35 pm

Hi I'm Emma, and I've just found this forum online. I'm 31 and been suffering from vulvodynia for about ten years now, but was only diagnosed about 8 months ago when I went to the doctor having discovered the info online and asked her if that was what I had. Over the years I've seen more specialists than I care to remember - about 5 different GPs, gyno at the hospital, GUM clinic, had keyhole surgery to test for endometriois, counselling, pyschotherapy etc. I now find it far too painful to have sex and to be honest the thought of sex terrifies me; plus I have very little libido left now anyway.
Over the years I've kept trying to get something to help me ease the pain but generally I find that doctors and specialists are either lacking in knowledge or are just not bothered.
When I found out about vulvodynia about a year and a half ago I spent months plucking up the courage to go back to the doctors and demand that they try to help me again. Since then I've gone onto 100mg of amitrypline a day but I don't really know if its helping that much. I've also been referred to a supposed 'vulval specialist' at my local hospital but she has been very negative so far and basically as good as said there's not much she can do. She is part of the dermatology dept. and has booked me in for patch testing in February, but to be honest I don't know whether its worth going. I'm already well aware of how lotions and potions affect me and only ever use acqueous cream to wash down there anyway.
I've also been referred to a physiotherapist in the gynocology dept at my local hospital and she seems to be the only ray of hope at the moment. Have already seen her twice in a month and she is the most positive person I've met in a long while - very patient and understanding. She is trying to train me to do pelvic floor exercises as my vulval pain has caused my pelvis to become very tight, which obviously affects any sexual contact I try to have.
I have been with my husband ever since my vulvodynia began, and we married in summer 2010, although we have not yet had sex as a married couple. I'd like to have a baby this year but I'm scared that a)I can't have sex to conceive and b) Delivery would be too painful. My husband is really understanding about it all but I always feel such a disappointment and worry constantly that he will go off with someone else to get what I cannot give him.
Is there anyone on this forum who has conceived and given birth whilst having vulvodynia? I'd really like to hear from you about the experience.
Thanks.

fairyemma1980

Posts : 3
Join date : 2012-01-08
Age : 36
Location : Sheffield UK

View user profile

Back to top Go down

Re: New member... so glad to find others like me!!

Post  Sarah001 on Tue Jan 10, 2012 8:08 pm

Hi and welcome. I've also done the vulval specialist who's actually a vulval dermatologist route, mine was in charge of medication so it might be worth going back to get her to request your GP gives you something different. I'm also on Ami and it didn't help so I've had 450mg of Lyrica added which helps a bit. I've also just started with a positive physio but I have a very unstable pelvis along with my super tight pelvic floor so I have to start with exercises to stabilise that before we even look at the PF issues. Fingers crossed physio works for us!
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum