Log in

I forgot my password

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


new here...

View previous topic View next topic Go down

new here...

Post  missnik1 on Mon Jan 09, 2012 7:44 pm

hi my name is nikki. i just joined, im looking for support. hoping to find people who can relate and help me through this. I have had pelvic/vulva/vaginal pain for the past 2 years. when i first came down with the symptoms i had never heard the term 'vulvodynia' before. it wasnt until about a year ago most things had been ruled out by drs and i was diagnosed with this. i refuse to accept this as my diagnosis. because there is little known about this disorder, no known cause or cure?! i have many theories as to why i have this chronic pain disorder. but have been to several doctors and have yet to find a good who will sit down and listen to me. i feel like im just another patient to them, like they dont care and most have no real knowledge of vaginal issues. so this is very frustrating. i dont have much support in my life, its hard to explain to my boyfriend what i am feeling. ive become very angry/depressed since this all began. i feel i am too young to be having these kinds of problems and its just not fair Sad i wish there would be a breakthrough and doctors would figure out what the hell is wrong with us...it is a mystery. my urologist said they have seen this all across the boards. and from the looks of the onine forums it is affecting A LOT of women. this is not rare but it is unheard of to most. i have a hard time explaining to people. so i just say "im sick" or "dont feel good" i dont want to go on living my life like this i need to find relief i need to find answers so im really hoping this helps me to take charge of my health and to find people that are struggling as well.

missnik1

Posts : 2
Join date : 2012-01-09
Location : Oregon

View user profile

Back to top Go down

Re: new here...

Post  Sarah001 on Tue Jan 10, 2012 8:01 pm

The problem is vulvodynia just literally means "pain in the vulva" so it doesn't explain why it's there and as there are a variety of causes it's finding the correct one to treat it. You'll see lots of stories online about how vulvodynia can't be cured but it's really laziness on the doctors part for not investigating every cause. A good book to read is When Sex Hurts as it goes through the causes of V and helps you work out what's happening. Vulvodynia isn't a diagnosis as far as I'm concerned it's a doctor telling you what you've already told them, that you have pain in the vulva.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

View previous topic View next topic Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum