Log in

I forgot my password

Latest topics
» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


new here...

Go down

new here...

Post  missnik1 on Mon Jan 09, 2012 7:44 pm

hi my name is nikki. i just joined, im looking for support. hoping to find people who can relate and help me through this. I have had pelvic/vulva/vaginal pain for the past 2 years. when i first came down with the symptoms i had never heard the term 'vulvodynia' before. it wasnt until about a year ago most things had been ruled out by drs and i was diagnosed with this. i refuse to accept this as my diagnosis. because there is little known about this disorder, no known cause or cure?! i have many theories as to why i have this chronic pain disorder. but have been to several doctors and have yet to find a good who will sit down and listen to me. i feel like im just another patient to them, like they dont care and most have no real knowledge of vaginal issues. so this is very frustrating. i dont have much support in my life, its hard to explain to my boyfriend what i am feeling. ive become very angry/depressed since this all began. i feel i am too young to be having these kinds of problems and its just not fair Sad i wish there would be a breakthrough and doctors would figure out what the hell is wrong with us...it is a mystery. my urologist said they have seen this all across the boards. and from the looks of the onine forums it is affecting A LOT of women. this is not rare but it is unheard of to most. i have a hard time explaining to people. so i just say "im sick" or "dont feel good" i dont want to go on living my life like this i need to find relief i need to find answers so im really hoping this helps me to take charge of my health and to find people that are struggling as well.

missnik1

Posts : 2
Join date : 2012-01-09
Location : Oregon

View user profile

Back to top Go down

Re: new here...

Post  Sarah001 on Tue Jan 10, 2012 8:01 pm

The problem is vulvodynia just literally means "pain in the vulva" so it doesn't explain why it's there and as there are a variety of causes it's finding the correct one to treat it. You'll see lots of stories online about how vulvodynia can't be cured but it's really laziness on the doctors part for not investigating every cause. A good book to read is When Sex Hurts as it goes through the causes of V and helps you work out what's happening. Vulvodynia isn't a diagnosis as far as I'm concerned it's a doctor telling you what you've already told them, that you have pain in the vulva.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum