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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

new here...

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new here...

Post  missnik1 on Mon Jan 09, 2012 7:44 pm

hi my name is nikki. i just joined, im looking for support. hoping to find people who can relate and help me through this. I have had pelvic/vulva/vaginal pain for the past 2 years. when i first came down with the symptoms i had never heard the term 'vulvodynia' before. it wasnt until about a year ago most things had been ruled out by drs and i was diagnosed with this. i refuse to accept this as my diagnosis. because there is little known about this disorder, no known cause or cure?! i have many theories as to why i have this chronic pain disorder. but have been to several doctors and have yet to find a good who will sit down and listen to me. i feel like im just another patient to them, like they dont care and most have no real knowledge of vaginal issues. so this is very frustrating. i dont have much support in my life, its hard to explain to my boyfriend what i am feeling. ive become very angry/depressed since this all began. i feel i am too young to be having these kinds of problems and its just not fair Sad i wish there would be a breakthrough and doctors would figure out what the hell is wrong with us...it is a mystery. my urologist said they have seen this all across the boards. and from the looks of the onine forums it is affecting A LOT of women. this is not rare but it is unheard of to most. i have a hard time explaining to people. so i just say "im sick" or "dont feel good" i dont want to go on living my life like this i need to find relief i need to find answers so im really hoping this helps me to take charge of my health and to find people that are struggling as well.


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Location : Oregon

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Re: new here...

Post  Sarah001 on Tue Jan 10, 2012 8:01 pm

The problem is vulvodynia just literally means "pain in the vulva" so it doesn't explain why it's there and as there are a variety of causes it's finding the correct one to treat it. You'll see lots of stories online about how vulvodynia can't be cured but it's really laziness on the doctors part for not investigating every cause. A good book to read is When Sex Hurts as it goes through the causes of V and helps you work out what's happening. Vulvodynia isn't a diagnosis as far as I'm concerned it's a doctor telling you what you've already told them, that you have pain in the vulva.

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