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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Cymbalta withdrawal hell?

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Cymbalta withdrawal hell?

Post  notavfan on Thu Jan 12, 2012 7:24 pm

It has been 3 days! 3 days since I have been in hell! Stopping Cymbalta has made me not be able to function. I am constantly dizzy, nauseous, have hot flashes, anxiety, and vertigo whenever I stand up. It hasn't gotten better. 3 days I have mostly spent in bed. I almost went to the ER last night because I feel so awful and couldn't sleep and I keep crying because this is so frustrating. I can't even imagine how crack/heroine/meth addicts feel when detoxing, because I am going crazy. I can't just lay in bed forever! I have a job that I must do or they will surely do away with me.

I have been scouring the internet and this seems to be a common hell shared by others weening off. Apparently I probably weened off too quickly and since Cymbalta does not have less than a 30mg capsule here, it is hard to properly ween. Some people have been switched to Prozac at a smaller dose and weened down from there because it has a longer half life. Others have opened the Cymbalta capsules and fashioned their own smaller doses to ween off. The question is, do I try these methods or just suffer and hope it goes away? I think I already know the answer to that, because this suffering is making me want to die and make me bed bound so I cannot live my life. I will see what the doctor says when I get there in a few hours....

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Re: Cymbalta withdrawal hell?

Post  ButterflyLiz on Thu Jan 12, 2012 7:48 pm

:-( I am so sorry, that sounds so horrible. I can't really help cos I don't know anything about cymbalta but just wanted to say I'm thinking of you and hope you get relief from these horrid symptoms soon xx
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Re: Cymbalta withdrawal hell?

Post  notavfan on Sat Jan 14, 2012 9:19 pm

Just updating because I like to read updates from other people to know how things are going Smile

I went to the doctor Thursday and told him something had to be done or I would have to quit my job and lay in bed all day gaining weight. lol. I really had enough! Turns out my doc has only ever prescribed Cymbalta to like 5 or 6 people and none of them have had to go off it yet. I am the guinea pig. Yay? lol. Since the lowest dose it comes in here is 30mg, I told him to prescribe me more and I would open the capsules (which contains many tiny balls) and divvy them up. I divided the little balls into roughly 15mg doses. So far, I am slightly dizzy, but like 90-95 percent better than the miserable 3 days I had. I think I will wait a week or so and then go down to like 10mg, etc. I have researched that other people weaned off this way, so fingers crossed!!!

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You will be fine!

Post  sadone on Mon Jan 16, 2012 10:47 pm

I am so sorry that I didn't see your post until now. I was on Cymbalta a couple of years ago. It made me kind of nuts- hyper and ridiculously happy and sleepless. It was fun at first, and it did relieve my pain, but the insomnia was horrible. Anyway, I was able to wean off of it very easily. I'm guessing that what happened with you, was that you went off "cold turkey"- a big no no with this drug. Here's what I did, and I had no problems at all. I was on 60 mg. I went down to 40 mg everyday for a week. Then I went down to 20 mg for two weeks. At that point, I just stopped because 20 was the lowest dose I had available. You may need to break the capsules apart and go more slowly. I'm sure the slower you wean, the less withdrawal effects you'll have. I've been off of Cymbalta for two years, and I've been fine. You will be too. Just take your time, and don't rush the tapering. If you start feeling badly after cutting the dose, then just go back up until you stabilize again. There is no reason to rush. It will work. Just take it slowly, and be patient. Hope you're doing okay! Wink

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Re: Cymbalta withdrawal hell?

Post  notavfan on Wed Jan 18, 2012 6:25 pm

Are you in the US? I know you aren't in Canada because the lowest dose here is 30mg. I have split my capsules into 15mg and will ween down to 10mg soon and so on and so forth. Even on the 15mg I feel dizzy/nauseous. I really just want to lay in bed and sleep til its all over. BLAH!

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Re: Cymbalta withdrawal hell?

Post  sadone on Thu Jan 19, 2012 3:04 pm

I am in the U.S. So sorry you're having difficulty with the tapering. Just keep going slow and don't reduce your dose until you're feeling stable at the current dose. How long were you on Cymbalta? I was only on it for a few months, so perhaps that's why it was easy to taper. I couldn't wait to get off of it, because the insomnia was too intense. You'll get there- don't worry!!

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Re: Cymbalta withdrawal hell?

Post  notavfan on Fri Jan 20, 2012 4:44 pm

I was only on it for not quite 2 months when i decided to get off it since it didn't help. I am thinking that it has to do with me being on venlafaxine before it for anxiety and I was on that for a few years. I tapered off that and then started Cymbalta the next day, so I never felt any withdrawal. Honestly, I have been wondering lately if I should just tell the doc that I want to go back on venlafaxine. Then I could stop the Cymbalta, though I'd probably then be stuck on venlafaxine. lol. But I would prefer that, as I think Cymbalta is also making me have crazy vivid dreams. I'm still kind of dizzy and nauseous. I like to be in bed a lot!

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cymbaltas a stupid but necessary bandaid

Post  AroraNightfire on Fri Jan 20, 2012 8:18 pm

I don't like taking meds but its the only way I can function at work without phocusing on my pain. I take lyrica 600mg a day 2 doses of 300mg 5hrs apart. Cymbalta I take along with it when I work. I tapper off slowly the cymbalta my my days off because it wont work the following week if I keep taking it without a small break. I've been told I shouldn't do that but I refuse to take it consistently without a break once a week. I also have trouble sleeping when I take cymbalta a few days in a row. Each tablet is 20mg...and I try never to take 60mg a day....I wont sleep with that dose.

All I have is bandaids....its an ongoing struggle to live with as little pain as possible. Thank God for medications or else I would want to curl up and die because the severity is just to crippling.
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lyrica and cymbalta

Post  sadone on Sat Jan 21, 2012 9:13 pm

I had the same problem at 60 mg of cymbalta- couldn't sleep much and weird dreams when I did sleep.
Lyrica really helped me- 150 -300 mg. I was supposed to take it twice a day (slowly working up to 150 BID-twice a day), but I ended up taking it all at night because it made me feel kind of drunk. Not unpleasant tho!

I suggest tapering off of the cymbalta and going on ven (? on the spelling). Cymbalta is known for nausea. I have a friend who had lots of nausea tapering off of it, but it did go away. My advice would be to get off that drug. It works for some people, but for others the side effects suck! The sooner you're off of it, the sooner the withdrawal effects will disappear. Still don't go off it cold turkey. Get on a tapering schedule and stick with it. I WAS SO HAPPY once I got that drug out of my system. I did have slight nausea, but it was the insomnia that was pushing me over the edge into the loony bin lol.

Wecome to the forum, arora! Hope you get as much relief from the Lyrica as I did. It really really helped me a lot! I was on Gabapentin too. It didn't help my pain even at the high doses. It did nothing for me. No side effects. Perhaps a little pain relief, but I don't think much...

Now I'm off all the meds and just take the Lyrica as needed. I've been able to manage my pain by making lifestyle changes- sitting on a cushion, not wearing tight pants... wanted to get off of meds. As long as I keep the vestibular area from being touched, I am painfree. I know that's not true for everyone, but I thought I'd share what's worked for me.

Hang in there girls- it WILL get better!

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Re: Cymbalta withdrawal hell?

Post  notavfan on Thu Jan 26, 2012 2:30 am

Just updating that I stayed on 15mg for about 2 weeks. Felt some dizzyness/nausea. Finally got to feeling pretty normal so now I am doing 10mg. I will throw in that drinking while on this is scary. I did the other night and turned into a psycho biotch. I could not control my thoughts at all! Was angry/paranoid/jealous. I promised myself I will not drink again til I am off that. And then I will definitely have a celebratory drink!

sadone, I am glad that you wrote because I have been really paying attention to my pain and a few days with hardly sitting make me feel great and normal. Sitting is what really does it. Since you seem to have the similar situation, you have made me hopeful that Lyrica will help! Gapapentin never did and the doc thought that since those 2 are related that the Lyrica may not help.


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Down to 5mg!!

Post  notavfan on Sat Feb 04, 2012 6:33 pm

I got myself down to 5mg. Not feeling too bad physically. Maybe kind of tired. I find I am having anxiety. I am thinking too too too much about how I appear to others. Scared to not be funny enough/say the wrong thing. VERY self conscious and want to hide in my room. I think I probably have a social anxiety and being on anxiety meds before this for years and now just coming off this is like a shock to my brain and punch to my self esteem. I'm going to get off this completely though before considering going on another anxiety med. Also my doc wants me to wait til I try buying a cushion for sitting before I try the Lyrica. I just need to find a cushion and have not found one locally yet. My doc gave me a name of a cushion to look for but it turns out it is for people in wheelchairs and is $500. Not what I want, obviously, or the amount I want to pay. lol.

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Re: Cymbalta withdrawal hell?

Post  katinstras on Fri Feb 14, 2014 12:01 am

Hello,

I've dug up this old thread to say that I basically have the same symptoms as the author of the thread - I weaned myself off of Cymbalta in a week after taking it for 1.5 months but maybe that was too quick. Anyway, my question is: now that I haven't been taking cymbalta for 2 weeks but have the withdrawal symptoms at their worst, should I go back to the drug? My dose was 60mg but maybe I should go to 30? I'm at my wits' end...

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Re: Cymbalta withdrawal hell?

Post  Nelsonhs30 on Sun Feb 23, 2014 11:37 pm

Sadone, are you even able to have sex? I feel like all I'll never find happiness if I can never have sex again.

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Re: Cymbalta withdrawal hell?

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