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    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 3

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 8

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

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    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 4

    Condoms Less Painful?

    Mon May 07, 2018 3:35 am by stillinpain

    I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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    Will there be an end?

    Fri Apr 27, 2018 12:06 am by Krista2828

    I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

    I am in my 20's.. it shouldn't be this way.

    Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

    Comments: 6

    you can be healed so easy and quite fast.

    Thu Apr 26, 2018 11:46 pm by pussycat

    Hello everyone,
    i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

    Comments: 4

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35


    Fibromyalgia

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    Fibromyalgia

    Post  Sarah001 on Wed Jun 30, 2010 1:21 pm

    Hi girls, I had to go to a Rheumatologist yesterday because I've had widespread pain for 6 years now and all my physios over the years have diagnosed Hypermobility Syndrome (faulty and weak connective tissue) which the Rheumatologist confirmed yesterday and I now have an official diagnosis however he threw a Fibromyalgia diagnosis in there too and I know from previous research vulvar problems are very common in Fibro. Does anyone else on here have Fibro?
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    Re: Fibromyalgia

    Post  Mouse on Sun Aug 14, 2011 7:09 am

    Yes Sarah apparently I do! I had a diagnosis this week for the pain in the back of my head, the random pains anywhere else, headaches and the burning hands.

    How does yours present and how do you treat it?

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    Re: Fibromyalgia

    Post  Sarah001 on Sun Aug 14, 2011 11:26 am

    Hey Mouse, see you're staff now! It's very difficult for me to know what's fibro pain and what's coming from the joint issues because both cause full body pain. I take Ami to help me get refreshing sleep which is a bit hit and miss if I'm honest because the Ami also makes me tired in the day! Lyrica is licenced to treat fibro but I'm having less luck with that than expected, it helped with the widespread V pain for a while but has since stopped being as effective and never helped much with the full body pain so I'm struggling to get any of my conditions under control. Some people with fibro have had good results with Malic Acid which can be bought in tablet form but I tried it and got no help from it at all. Magnesium is also recommended but I already take that and don't find it helps my muscular pain. What helps the most temporarily with everything is working on trigger points (they pop right back in because of my joints but I get about an hour of reduced pain) and core stability exercises but again the effects don't last because my rubbish joints spasm all the wrong muscles up. Moist heat is supposed to be good for fibro so hot baths, heated towels on the worst areas etc and I do get a bit of help from hot baths but have to be careful not to go too hot because of the V. It seems one condition either complicates or rules out proper treatment of the others for me, I just go round and round in circles getting nowhere fast.
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    Max GSL

    Post  Aussie on Tue Aug 16, 2011 1:43 am

    Sarah,

    Please look into the above product. It makes your body produce more of its natural anti inflamitory glutathione. Many people, 50-80% are born without the gene to produce this substance. My mum has been on this for 4 weeks and is considering coming off all meds aside from this suppliment.

    My mum has Lupus.

    Try it! xxxx

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    Re: Fibromyalgia

    Post  Aussie on Tue Aug 16, 2011 1:46 am

    Oh and she has no joint pain or swelling for the first time since she was 17....

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    Oh and one more thing

    Post  Aussie on Tue Aug 16, 2011 1:49 am

    the IC Network has a forum just for Fibro if you have not looked into that already Smile

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    Re: Fibromyalgia

    Post  Sarah001 on Tue Aug 16, 2011 7:28 pm

    Thanks Claire I'll look into that, I'm all for anything that could reduce my meds. I think my HMS is alot more painful than my fibro because it damages my joints and soft tissue every single day so nothing ever heals. I have a hip that pops in and out of the socket and both my shoulders do the same, my neck grinds if I move it and if I bend my knees anywhere near anyone squeamish it makes them feel sick because I sould like bubble wrap. My SI joints are their own private hell on earth and restrict me in so many ways you wouldn't believe and if they get locked in a misaligned position the pain is unbearable. Oh to be anything like normal. Sad But I will definitely look into it.
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    Re: Fibromyalgia

    Post  Mouse on Thu Aug 18, 2011 10:26 am

    Thanks for the info Sarah and Claire. I'm dealing a bit better now and may even leave the house tomorrow - it's been a week! Sad

    Sarah how did your hyper mobility start? I have clicky shoulders - have we had this talk before? That started about six months ago, they click when I roll over in bed and my knees click as well. I'm hoping you are going to say that's just what happens Surprised

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    Re: Fibromyalgia

    Post  Sarah001 on Thu Aug 18, 2011 1:00 pm

    Mine's a genetic condition so I've got faulty collagen which means I have lax ligaments and have had all my life so it doesn't so much start somewhere as is always there. I had a hip that would dislocate in and out of the socket from when I was about 9 years old so it's royally knackered! A physio could tell you if you are hypermobile but lots of people have clicking shoulders, knees, hips etc because of a lack of core strength and not HMS so it may well be you need to work on some of those muscles like your lower traps, quads, Transversus Abs and glutes to stabilise areas. If you've seen a physio and they've never mentioned hypermobility to you it's unlikely you are and while it does go hand in hand with fibro so do alot of other things so I wouldn't panic just yet! Some people get what they call acquired hypermobility from too much stretching like dancers and gymnasts etc but that's not faulty collagen and can be reversed alot of the time with less stretching and more strengthening. HMS (the S is the difference between Hympermobility and Hypermobility Syndrome) means it's painful so it's become a syndrome whereas some people are hypermobile and never get pain. It's usually very easy for a physio to spot it though and is not something doctors know alot about so they frequently miss it. With pelvic floor issues it may well be you actually just have a weaker core than you need and the spasm in other muscles is snapping and creating noise so I'd start with getting your core strength tested, again the job of a physio Rolling Eyes everything to do with this seems to come back to physio doesn't it?!
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    Re: Fibromyalgia

    Post  Zazu on Thu Aug 18, 2011 1:21 pm

    Hey, I just posted this on the fb group. Not sure if it will be helpful at all but figured it would be better to put it up than not. It's about the supplement 5-HTP. Thought you guys might at least want to look up the research to see if it might be a good option. Vicki, I know you might be interested in trying a natural route first. This is from Health Canada.

    Common name(s): L-5-Hydroxytryptophan, L-5-HTP (O'Neil et al. 2001)

    Source material(s): Isolated from Griffonia (Griffonia simplicifolia (Vahl ex DC) Baill. (Fabaceae)) seed

    Use(s) or Purpose(s): Statement(s) to the effect of:

    Helps to promote healthy mood balance (Pöldinger et al. 1991; Zmilacher et al. 1988; Nakajima et al. 1978).
    Helps to relieve symptoms of fibromyalgia (Nicolodi and Sicuteri 1996; Sarzi Puttini and Caruso 1992; Caruso et al. 1990).
    Helps to reduce the severity and duration of migraine headaches when taken as a prophylactic (Titus et al. 1986; Bono et al. 1984; Sicuteri 1973).
    To be used with a program of reduced intake of dietary calories and increased physical activity (if possible) to help in weight management by reducing carbohydrate cravings (Cangiano et al. 1998; Cangiano et al. 1992; Ceci et al. 1989).
    Used as a sleep aid (Soulairac and Lambinet 1977; Wyatt et al. 1971).
    Dose(s):

    Healthy mood balance: 50 (Nakajima et al. 1978) - 100 mg (Pöldinger et al. 1991), 3 times per day

    Relief of symptoms of fibromyalgia:
    100 mg, 3 - 4 times per day (Nicolodi and Sicuteri 1996; Caruso et al. 1990)

    Migraine prophylaxis: 100 - 200 mg, 2 - 3 times per day (Titus et al. 1986; Sicuteri 1973)

    Weight management: 250 - 300 mg, 3 times per day (Cangiano et al. 1998; Cangiano et al. 1992; Ceci et al. 1989)

    Sleep aid: 100 - 200 mg per day (Soulairac and Lambinet 1988; Soulairac and Lambinet 1977; Wyatt et al. 1971)
    Directions for use:

    All uses (excluding sleep aid):

    Statement(s) to the effect of:
    To minimize the risk of gastrointestinal side effects, start dosing at 50 - 100 mg, 2 - 3 times per day and slowly increase to effective dose over 2 week period (Birdsall 1998).

    Sleep aid: Take 30 - 45 minutes before bedtime (Pizzorno and Murray 2006).

    All uses (excluding weight management): Take with food (Pöldinger et al. 1991).

    Weight management: Take 30 minutes prior to a meal (Cangiano et al. 1998; Cangiano et al. 1992; Ceci et al. 1989).

    Duration of use:

    Healthy mood balance:

    Use for a minimum of 1 week to see beneficial effects (Nakajima et al. 1978).
    Consult a health care practitioner for use beyond one year (Nicolodi and Sicuteri 1996).
    Relief of symptoms of fibromyalgia:

    Use for a minimum of 2 weeks to see beneficial effects (Caruso et al. 1990).
    Consult a health care practitioner for use beyond one year (Nicolodi and Sicuteri 1996).
    Migraine prophylaxis: Use for a minimum of 2 - 3 weeks to see beneficial effects (Sicuteri 1973).

    Products providing 200 - 400 mg per day: Consult a health care practitioner for use beyond one year (Nicolodi and Sicuteri 1996).

    Products providing > 400 mg per day: Consult a health care practitioner for use beyond 6 months (Titus et al. 1986).

    Weight management: Consult a health care practitioner for use beyond 12 weeks (Cangiano et al. 1992).

    Sleep aid: No statement required.

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    Re: Fibromyalgia

    Post  Sarah001 on Thu Aug 18, 2011 7:08 pm

    I was very interested in 5-HTP a while ago but I'm sure there was something I was taking that ruled me out of being able to take it, can't remember what it was now, perhaps Ami? If I hadn't started on Ami I would definitely have chosen to try 5-HTP, anyone who gives it a go please do post results.
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    Re: Fibromyalgia

    Post  Heidi on Fri Aug 19, 2011 3:40 am

    Yes, I had fibromyalgia, but I've been symptom-free for about ten years now.
    I was diagnosed with fibromyalgia about fifteen years ago after basically living on my parent's couch for two years in severe pain with no life (had minor symptoms for years before this). I had severe aches in my shoulders, back and knees (muscles and joints), plus "brain fog" and severe chronic fatigue. I went on Dr. St. Amand's guaifenisin protocol (I had started the low oxalate diet about two years before this). About a year into the guai treatment I also started a controlled carbohydrate diet (similar to the Zone Diet) for hypoglycemia at Dr. St. Amand's suggestion. Within three weeks of starting the controlled carb diet my "brain fog" and fatigue were gone, so those may have been hypoglycemia related, not FM symptoms. Over the next few years the rest of my pain disappeared slowly. I do not know if it was the guaifenesin or the low oxalate diet that helped the fibro, or perhaps some combination. Some doctors are starting to believe that what gets diagnosed with fibromyalgia actually has numerous root causes in the body. A few researchers have suggested that the hard lumps in the muscles of some fibromyalgia patients might be oxalate deposits and the guaifenesin breaks them up and helps them leave the body. This would make sense in my case, since I have genetic hyperoxaluria and it has been shown (in kidney stone patients) that people with hyperoxaluria store excess oxalates all over their body and often in the muscles/joints. I'm not sure what treatment actually cured me, but my doctor was completely dumbfounded. He says that FM doesn't just "go into remission" but after years of symptoms, I was symptom-free (and have been now for over ten years). My only treatments at the time were the guaifenesin, the low oxalate diet, the controlled carb diet, and timed calcium citrate. I also was very physically active and practiced daily meditation.

    Heidi

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    Re: Fibromyalgia

    Post  Heidi on Fri Aug 19, 2011 3:58 am

    Hey, Mouse. I also had burning hands (and burning mouth syndrome and burning eyes (like acid tears) and burning rectum along with a really flaming vulva . . .). Those also have all gone away over the years. Again, I can't say what did it for sure, but I was only on the four treatments listed above. I personally believe oxalates are the key, and that gauifenisin somehow made the diet work faster or more effectively. I hope you find some relief soon. I remember how horrible it was to be house-bound. Sometimes I just had to make myself go out to keep feeling like I was connected with the rest of the world and life.
    Take care,
    Heidi

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    Re: Fibromyalgia

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