Vulvodynia Support
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» Hope to all my suffering ladies
New to the board EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
New to the board EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
New to the board EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
New to the board EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
New to the board EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
New to the board EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
New to the board EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
New to the board EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
New to the board EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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3 posters

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Post  yuffie623 Thu Jan 05, 2012 4:52 am

TL;DR - My name is Heather, I'm 27, I developed vulvar problems when I was 21. I was afraid to deal with it until now, so now I'm seeking recovery, six years later. Yeah, yeah, I know.

Thanks for having me.

Heather

--
Long version:


Hi, my name is Heather. I'm 27 years old, and I've been dealing with vulvar pain since 2005. More like 2006, which is also when I was first diagnosed. But to be honest, it took me a while to really want to dive in and solve this issue.

I became sexually active as a teenager, and I was fine. I went on birth control when I was 18, around when I turned 19, which was back in 2003, and it wasn't until 2005 that I began to have unusual symptoms.

The gyno in 2006 was very matter-of-fact. She said I had "vulvodynia," and prescribed me Estrace, the estrogen cream, but being a stupid 21 year old, I very quickly dropped the regimen. And being a stupid doctor, she got the hint and didn't contact me back either. I'm not sure why I didn't care. I had just moved back to the States after living in England for my junior year, and I'd had a love affair with a freshman that was exclusively oral sex and outercourse. I had been with a guy I met on vacation as well and I guess I forgot the pain I'd had. Or it had not gotten as intense yet.

I hooked up with a friend of mine after seeing the gyno, and was immediately made aware something was wrong. Guys couldn't be rough with me anymore. I loaded up on Wet Platinum, but didn't seek further treatment.

So then I graduate undergrad, and that whole senior year, I had been dealing with what I would realize in 2011 was bipolar disorder. It was 2007. I went off birth control.

In 2008 I ended up with an ex of mine and a new flame - it was all very crazy on account of my bipolar, but I had been off hormonal birth control for months and months, and when I look back on 2008 now, I remember some very pleasurable sex. So I went back on birth control, as you do. After a few months, I started getting pain again, and with my mental difficulties mostly affecting things, me and the guy broke up.

I stayed on BC, though, but I was single for a long time and so I once again found an excuse to not see a doctor for a stretch of time. It got to be 2011, and I ended up with another ex of mine, and it was brutal, the pain, which he understood, because he remembered. I ended up moving to a new city for graduate school. I ended up, again, with a new flame, and we couldn't get it in. Too painful. He was flabbergasted.

After my own experience, and reading links online, I made an executive decision this past September and went off birth control pills again.

Finally I worked up the courage (and I'd been single and celibate for a few months, dealing with the bipolar, which finally had a name of its own), to see a new physician in my new city, and she heard this whole story, rambling and manic, nodding and not believing, then examined me and called it vulvodynia. She said we need to get started on a treatment plan, but her resources and knowledge were limited. She said I should go to New York City or Boston, those being closest to us. But too far for visits, for me, with full-time graduate school.

I've sort of obsessed over this. It bothers me a lot, because I actually am and always was almost as bad as a guy when it comes to how often I masturbate (because I have clitoral orgasms just fine, except when I'm drunk, high, or on an SSRI :-p ). And when I avoid that area, ok, I'm fine, but then I go further down there, and wow, man, is it discouraging. My own damn fingers give me stinging pain.

It came to the forefront of my mind again with a stupid half-assed romance with an old coworker of mine this Christmas. We got high and we were fooling around, you know, and he got three fingers in and I was fine, but it was uncomfortable, you know? When I'm high, the pain subsides. And he was stupid and high and begged me, pleaded, goaded me to have sex, and I said no, no, I won't, no. Only sober did he apologize and say he knows I have vulvodynia, he was acting like an idiot, and he wouldn't want to have intercourse with me while this is a problem. Blah.

Anyway, upwards and onwards with real solutions. There's a physical therapist that the doctor in my town thought I should see. Naturally, she's down in the Big Apple. Blah.


yuffie623

Posts : 8
Join date : 2012-01-05
Location : Boston, MA, USA

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New to the board Empty Welcome!

Post  ButterflyLiz Fri Jan 06, 2012 7:46 pm

Hi Heather *waves* welcome to the forum. Sorry to hear about your vulval pain issues but it’s good that you feel ready to start trying to get some treatment. There’s a great bunch of ladies here, always someone to chat stuff through with.

I have to ask, is your username a Final Fantasy reference? Smile

All the best,
Liz x
ButterflyLiz
ButterflyLiz

Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK

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Post  noni Thu Jan 19, 2012 2:08 am

Havent been on the forum for a long-ass time.

Us V ladies are cropping up like mushrooms everywhere, lol.

Anyways...welcome and it sucks that you had to find us in the first place, but atleast you know you're not alone.

noni
noni

Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario

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