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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

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Post  JemimaSurrender on Tue Jan 17, 2012 9:21 pm

Has anyone here ever used Instillagel?

I was given a bacth a few months ago from my GP, but I've not used it yet as my boyfriend doesn't like the idea of trying any sex before I'm better. But I've badgered him about it again today and have just said that it's something else I've been given to try, that's been successful for lots of other people, and if we've already got some we may aswell try, especially if it means we can have sex!!!

So I guess I was just wondering if anyone else has tried it, and what your experiences of it were?

I've been told to just squirt a tiny bit on my finger (it comes in massive syringes!), smooth it around my vestibule, leave it 15 minutes, then wash it off in the shower (so he doesn't get numb from it too!) and then go for it.

She said it should las around an hour, at the most I think. And I know I'll sound like I want to have my cake and eat it too, but that's not long enough! Haha. That's including the 15 minute wash off period too. And I'm just scared that it'll wear off during and I'll die a death of pain!

But my main reason for writing this is just because I wanted to know if it's worked for anyone? I can't even imagine what it's like now to have sex and it not hurt, so it's quite an exciting prospect, but I know not to get my hopes up.

For me it really is just the vestibule that hurts. Something going in/coming out or being turned inside hurts like hell, but actually inside feels perfectly normal so it does kinda make sense that just numbing the opening will make me pain free, whilst still not affecting and pleasure bits!

Any other advice on dryness would be nice too, haha! One of the things my boyfriend says is that I don't get as wet as I used to whenever we do other stuff. I can see why that would be the case, but at the same time I think that's me not the condition. I think I'm subconsciously so nervous worrying about what he's doing/going to do and waiting for the pain to start that that stops me getting as wet as usual, so I guess this gel would help.

But if there's any tips on that issue, let me know! Obviously lubricant's are always an option, but having to stop and squirt some on every few minutes isn't too nice haha.

That's it, the end of the essay! If anyone made it this far, thank you!!


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Re: Instillagel

Post  ButterflyLiz on Tue Jan 17, 2012 9:34 pm

Hiya! A few of us had a bit of a chat about instillagel recently here: http://www.vulvodyniasupportforum.com/t670-lidocaine-beginner-question#4425

As you can see it can help! Way back in the day I used something called xylocaine, which had the same basic ingredients, and that definitely helped with penetrative sex. As for lube I find sylk really good, it doesn't irritate me at all.

Hope it works out for you x

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Re: Instillagel

Post  JemimaSurrender on Wed Jan 18, 2012 12:25 pm

Thank youuu!x


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Re: Instillagel

Post  Sapphire21 on Mon Feb 13, 2012 12:16 am

Hi Jemima, I noticed that you said you were dryer than normal and that your pain is specifically at the entrance to your vagina. I just wrote a post about the possibilities of the pill causing pain and wondered if your pain started on or around the time you went on the pill? I have both the problems you mentioned, and I know that certain pills can affect free tesosterone levels (free, not just normal testosterone) which can cause pain specifically at the entrance. So yeah here is the link if you think this might apply to you! Even if it wasn't the pill, your levels may be low anyway causing the pain to be specifically there? I have no idea obviously, but thinking about all possibilites and getting tested for everything can only help! There are specific things that need to be tested and then a calculation is made from the results to figure out free tesosterone, it is all in the book that I reccommend on the post (which btw, has been a life saver for me!)

Good luck Smile



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Re: Instillagel

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