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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


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Post  JemimaSurrender on Tue Jan 17, 2012 9:21 pm

Has anyone here ever used Instillagel?

I was given a bacth a few months ago from my GP, but I've not used it yet as my boyfriend doesn't like the idea of trying any sex before I'm better. But I've badgered him about it again today and have just said that it's something else I've been given to try, that's been successful for lots of other people, and if we've already got some we may aswell try, especially if it means we can have sex!!!

So I guess I was just wondering if anyone else has tried it, and what your experiences of it were?

I've been told to just squirt a tiny bit on my finger (it comes in massive syringes!), smooth it around my vestibule, leave it 15 minutes, then wash it off in the shower (so he doesn't get numb from it too!) and then go for it.

She said it should las around an hour, at the most I think. And I know I'll sound like I want to have my cake and eat it too, but that's not long enough! Haha. That's including the 15 minute wash off period too. And I'm just scared that it'll wear off during and I'll die a death of pain!

But my main reason for writing this is just because I wanted to know if it's worked for anyone? I can't even imagine what it's like now to have sex and it not hurt, so it's quite an exciting prospect, but I know not to get my hopes up.

For me it really is just the vestibule that hurts. Something going in/coming out or being turned inside hurts like hell, but actually inside feels perfectly normal so it does kinda make sense that just numbing the opening will make me pain free, whilst still not affecting and pleasure bits!

Any other advice on dryness would be nice too, haha! One of the things my boyfriend says is that I don't get as wet as I used to whenever we do other stuff. I can see why that would be the case, but at the same time I think that's me not the condition. I think I'm subconsciously so nervous worrying about what he's doing/going to do and waiting for the pain to start that that stops me getting as wet as usual, so I guess this gel would help.

But if there's any tips on that issue, let me know! Obviously lubricant's are always an option, but having to stop and squirt some on every few minutes isn't too nice haha.

That's it, the end of the essay! If anyone made it this far, thank you!!


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Re: Instillagel

Post  ButterflyLiz on Tue Jan 17, 2012 9:34 pm

Hiya! A few of us had a bit of a chat about instillagel recently here: http://www.vulvodyniasupportforum.com/t670-lidocaine-beginner-question#4425

As you can see it can help! Way back in the day I used something called xylocaine, which had the same basic ingredients, and that definitely helped with penetrative sex. As for lube I find sylk really good, it doesn't irritate me at all.

Hope it works out for you x

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Re: Instillagel

Post  JemimaSurrender on Wed Jan 18, 2012 12:25 pm

Thank youuu!x


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Re: Instillagel

Post  Sapphire21 on Mon Feb 13, 2012 12:16 am

Hi Jemima, I noticed that you said you were dryer than normal and that your pain is specifically at the entrance to your vagina. I just wrote a post about the possibilities of the pill causing pain and wondered if your pain started on or around the time you went on the pill? I have both the problems you mentioned, and I know that certain pills can affect free tesosterone levels (free, not just normal testosterone) which can cause pain specifically at the entrance. So yeah here is the link if you think this might apply to you! Even if it wasn't the pill, your levels may be low anyway causing the pain to be specifically there? I have no idea obviously, but thinking about all possibilites and getting tested for everything can only help! There are specific things that need to be tested and then a calculation is made from the results to figure out free tesosterone, it is all in the book that I reccommend on the post (which btw, has been a life saver for me!)

Good luck Smile



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Re: Instillagel

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