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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


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Post  JemimaSurrender on Tue Jan 17, 2012 9:21 pm

Has anyone here ever used Instillagel?

I was given a bacth a few months ago from my GP, but I've not used it yet as my boyfriend doesn't like the idea of trying any sex before I'm better. But I've badgered him about it again today and have just said that it's something else I've been given to try, that's been successful for lots of other people, and if we've already got some we may aswell try, especially if it means we can have sex!!!

So I guess I was just wondering if anyone else has tried it, and what your experiences of it were?

I've been told to just squirt a tiny bit on my finger (it comes in massive syringes!), smooth it around my vestibule, leave it 15 minutes, then wash it off in the shower (so he doesn't get numb from it too!) and then go for it.

She said it should las around an hour, at the most I think. And I know I'll sound like I want to have my cake and eat it too, but that's not long enough! Haha. That's including the 15 minute wash off period too. And I'm just scared that it'll wear off during and I'll die a death of pain!

But my main reason for writing this is just because I wanted to know if it's worked for anyone? I can't even imagine what it's like now to have sex and it not hurt, so it's quite an exciting prospect, but I know not to get my hopes up.

For me it really is just the vestibule that hurts. Something going in/coming out or being turned inside hurts like hell, but actually inside feels perfectly normal so it does kinda make sense that just numbing the opening will make me pain free, whilst still not affecting and pleasure bits!

Any other advice on dryness would be nice too, haha! One of the things my boyfriend says is that I don't get as wet as I used to whenever we do other stuff. I can see why that would be the case, but at the same time I think that's me not the condition. I think I'm subconsciously so nervous worrying about what he's doing/going to do and waiting for the pain to start that that stops me getting as wet as usual, so I guess this gel would help.

But if there's any tips on that issue, let me know! Obviously lubricant's are always an option, but having to stop and squirt some on every few minutes isn't too nice haha.

That's it, the end of the essay! If anyone made it this far, thank you!!


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Re: Instillagel

Post  ButterflyLiz on Tue Jan 17, 2012 9:34 pm

Hiya! A few of us had a bit of a chat about instillagel recently here: http://www.vulvodyniasupportforum.com/t670-lidocaine-beginner-question#4425

As you can see it can help! Way back in the day I used something called xylocaine, which had the same basic ingredients, and that definitely helped with penetrative sex. As for lube I find sylk really good, it doesn't irritate me at all.

Hope it works out for you x

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Re: Instillagel

Post  JemimaSurrender on Wed Jan 18, 2012 12:25 pm

Thank youuu!x


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Re: Instillagel

Post  Sapphire21 on Mon Feb 13, 2012 12:16 am

Hi Jemima, I noticed that you said you were dryer than normal and that your pain is specifically at the entrance to your vagina. I just wrote a post about the possibilities of the pill causing pain and wondered if your pain started on or around the time you went on the pill? I have both the problems you mentioned, and I know that certain pills can affect free tesosterone levels (free, not just normal testosterone) which can cause pain specifically at the entrance. So yeah here is the link if you think this might apply to you! Even if it wasn't the pill, your levels may be low anyway causing the pain to be specifically there? I have no idea obviously, but thinking about all possibilites and getting tested for everything can only help! There are specific things that need to be tested and then a calculation is made from the results to figure out free tesosterone, it is all in the book that I reccommend on the post (which btw, has been a life saver for me!)

Good luck Smile



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Re: Instillagel

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