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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
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» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Instillagel

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Instillagel

Post  JemimaSurrender on Tue Jan 17, 2012 9:21 pm

Has anyone here ever used Instillagel?

I was given a bacth a few months ago from my GP, but I've not used it yet as my boyfriend doesn't like the idea of trying any sex before I'm better. But I've badgered him about it again today and have just said that it's something else I've been given to try, that's been successful for lots of other people, and if we've already got some we may aswell try, especially if it means we can have sex!!!

So I guess I was just wondering if anyone else has tried it, and what your experiences of it were?

I've been told to just squirt a tiny bit on my finger (it comes in massive syringes!), smooth it around my vestibule, leave it 15 minutes, then wash it off in the shower (so he doesn't get numb from it too!) and then go for it.

She said it should las around an hour, at the most I think. And I know I'll sound like I want to have my cake and eat it too, but that's not long enough! Haha. That's including the 15 minute wash off period too. And I'm just scared that it'll wear off during and I'll die a death of pain!

But my main reason for writing this is just because I wanted to know if it's worked for anyone? I can't even imagine what it's like now to have sex and it not hurt, so it's quite an exciting prospect, but I know not to get my hopes up.

For me it really is just the vestibule that hurts. Something going in/coming out or being turned inside hurts like hell, but actually inside feels perfectly normal so it does kinda make sense that just numbing the opening will make me pain free, whilst still not affecting and pleasure bits!

Any other advice on dryness would be nice too, haha! One of the things my boyfriend says is that I don't get as wet as I used to whenever we do other stuff. I can see why that would be the case, but at the same time I think that's me not the condition. I think I'm subconsciously so nervous worrying about what he's doing/going to do and waiting for the pain to start that that stops me getting as wet as usual, so I guess this gel would help.

But if there's any tips on that issue, let me know! Obviously lubricant's are always an option, but having to stop and squirt some on every few minutes isn't too nice haha.

That's it, the end of the essay! If anyone made it this far, thank you!!

JemimaSurrender

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Age : 28
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Re: Instillagel

Post  ButterflyLiz on Tue Jan 17, 2012 9:34 pm

Hiya! A few of us had a bit of a chat about instillagel recently here: http://www.vulvodyniasupportforum.com/t670-lidocaine-beginner-question#4425

As you can see it can help! Way back in the day I used something called xylocaine, which had the same basic ingredients, and that definitely helped with penetrative sex. As for lube I find sylk really good, it doesn't irritate me at all.

Hope it works out for you x
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ButterflyLiz

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Re: Instillagel

Post  JemimaSurrender on Wed Jan 18, 2012 12:25 pm

Thank youuu!x

JemimaSurrender

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Re: Instillagel

Post  Sapphire21 on Mon Feb 13, 2012 12:16 am

Hi Jemima, I noticed that you said you were dryer than normal and that your pain is specifically at the entrance to your vagina. I just wrote a post about the possibilities of the pill causing pain and wondered if your pain started on or around the time you went on the pill? I have both the problems you mentioned, and I know that certain pills can affect free tesosterone levels (free, not just normal testosterone) which can cause pain specifically at the entrance. So yeah here is the link if you think this might apply to you! Even if it wasn't the pill, your levels may be low anyway causing the pain to be specifically there? I have no idea obviously, but thinking about all possibilites and getting tested for everything can only help! There are specific things that need to be tested and then a calculation is made from the results to figure out free tesosterone, it is all in the book that I reccommend on the post (which btw, has been a life saver for me!)

Good luck Smile

http://www.vulvodyniasupportforum.com/t725-when-sex-hurts-a-book-that-will-literally-change-your-life-using-instillagel-and-beware-of-the-contraceptive-pill#4800

Sapphire21

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Re: Instillagel

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