Log in

I forgot my password

Latest topics
» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


New member

View previous topic View next topic Go down

New member

Post  misstrish on Thu Jan 19, 2012 4:39 pm

Hi! I'm 21 and I've had vaginal itching consistently for the last 2 years. At first all the doctors I went to said it was a yeast infection, but since none of the treatments for yeast has worked my newest doctor thinks it's vulvodynia or something related to that. I've been suffering alone so it's nice to know there are other women out there who are experiencing the same thing. Here's hoping that we can all find a cure!

misstrish

Posts : 2
Join date : 2012-01-19

View user profile

Back to top Go down

Re: New member

Post  JemimaSurrender on Thu Jan 19, 2012 4:42 pm

Heyy.

It's nice to see someone else who has the itching! I get it on and off, along with the consistent pain, but it's not really recognised as one of the symptoms.

Check out some of the posts on here and see what you think. If you're like anyone else, just reading other people's experiences offers you some relief!


JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 28
Location : Staffordshire, UK

View user profile

Back to top Go down

Re: New member

Post  Sarah001 on Thu Jan 19, 2012 5:15 pm

Itching isn't usually a symptom of V, it can be but a skin condition should be ruled out first by a vulvar dermatologist so if you haven't seen one already ask for a referral before you accept the V diagnosis.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: New member

Post  misstrish on Thu Jan 19, 2012 5:35 pm

Yeah I thought it was weird too, since every website ever says that pain is the number one sign of vulvodynia, and I've never had anything like that. But my doctor has looked a number of times and says it doesn't look like a yeast infection, and different people's sense receptors or whatever interpret signals from the brain differently, so it's possible that what would be pain for someone else is itching for me. I've been wanting to get in to see a dermatologist for a long time, but I don't really know where to find a vulvar one... it's also difficult because I'm at college right now and not very close to home, so it's difficult to see a doctor over a long period of time, and dermatologists are always booked months in advance. I'll definitely try to look into it though. My skin gets really dry in the winter, particularly on my hands (to the point where they crack and bleed pretty badly), so maybe it's possible that I have some kind of skin condition that's perpetuating it.
Although, I did have a biopsy done at one point and they didn't find anything wrong, except the skin was slightly thickened. I'm not sure if that means anything though.

misstrish

Posts : 2
Join date : 2012-01-19

View user profile

Back to top Go down

Re: New member

Post  Sarah001 on Thu Jan 19, 2012 8:50 pm

The way I got to see a vulval dermatologist was a referral through the GUM clinic at the same hospital, usually the ones who specialise in vulvar skin conditions travel around the various hospitals in their area and see women on a monthly basis. You could ring your nearest hospital and ask if they have one or if not where the next hospital that does is and go from there. Anyone with itching should get checked out by a dermatologist, I have a friend who gets eczema on her vulva and it causes lots of itching and thickened skin and she gets creams to use on each break out so it's no longer a constant thing and is mostly under control. It took me about 3 months to get the first appointment but after that she arranged to see me on a regular basis, mine wasn't a skin condition but most of the V dermos also deal with pain conditions in the vulvar so she was in charge of my medication. It's definitely something you should look into, if it was yeast it would show on a swab so that could easily be ruled out by who you see now or a GUM clinic. Let us know how you get on.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: New member

Post  JemimaSurrender on Thu Jan 19, 2012 10:10 pm

Sarah001 wrote:The way I got to see a vulval dermatologist was a referral through the GUM clinic at the same hospital, usually the ones who specialise in vulvar skin conditions travel around the various hospitals in their area and see women on a monthly basis. You could ring your nearest hospital and ask if they have one or if not where the next hospital that does is and go from there. Anyone with itching should get checked out by a dermatologist, I have a friend who gets eczema on her vulva and it causes lots of itching and thickened skin and she gets creams to use on each break out so it's no longer a constant thing and is mostly under control. It took me about 3 months to get the first appointment but after that she arranged to see me on a regular basis, mine wasn't a skin condition but most of the V dermos also deal with pain conditions in the vulvar so she was in charge of my medication. It's definitely something you should look into, if it was yeast it would show on a swab so that could easily be ruled out by who you see now or a GUM clinic. Let us know how you get on.
How weird! I've just made a post about this under "Red Spots"!

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 28
Location : Staffordshire, UK

View user profile

Back to top Go down

Words of advice

Post  AroraNightfire on Fri Jan 20, 2012 5:50 am

My Vulvodynia started at the age of 18, 9yrs ago in the form of a chronic itch all over the inside part of my vulva and vaginal opening. I was given yeast creams to use externally in the begining and it soothed it but didnt cure it long term. 3yrs ago I was given a skin thinning steroid cream that I used for this mysterious debilitating itch for 2yrs. It soothed it when I applied it but after about 1yr 1/2 of using it it started to feel slightly more raw when I used it. I ignored it and continued using it. I had to stop it about 1yr and some months ago because it felt like someone had took a blow drier to my groin. I started to not be able to wear pants and sitting down was impossible. NEVER EVER use a skin thinning steriod cream for itch longer than a few months even if the itch persists!!!!! Please dont!! Im trying to write a book about everything Ive gone through. I would talk about it all hear but Im not so sure.
avatar
AroraNightfire

Posts : 40
Join date : 2012-01-20
Location : Cape Cod Massachusetts

View user profile

Back to top Go down

Re: New member

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum