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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


New member

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New member

Post  misstrish on Thu Jan 19, 2012 4:39 pm

Hi! I'm 21 and I've had vaginal itching consistently for the last 2 years. At first all the doctors I went to said it was a yeast infection, but since none of the treatments for yeast has worked my newest doctor thinks it's vulvodynia or something related to that. I've been suffering alone so it's nice to know there are other women out there who are experiencing the same thing. Here's hoping that we can all find a cure!

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Re: New member

Post  JemimaSurrender on Thu Jan 19, 2012 4:42 pm

Heyy.

It's nice to see someone else who has the itching! I get it on and off, along with the consistent pain, but it's not really recognised as one of the symptoms.

Check out some of the posts on here and see what you think. If you're like anyone else, just reading other people's experiences offers you some relief!


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Re: New member

Post  Sarah001 on Thu Jan 19, 2012 5:15 pm

Itching isn't usually a symptom of V, it can be but a skin condition should be ruled out first by a vulvar dermatologist so if you haven't seen one already ask for a referral before you accept the V diagnosis.
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Re: New member

Post  misstrish on Thu Jan 19, 2012 5:35 pm

Yeah I thought it was weird too, since every website ever says that pain is the number one sign of vulvodynia, and I've never had anything like that. But my doctor has looked a number of times and says it doesn't look like a yeast infection, and different people's sense receptors or whatever interpret signals from the brain differently, so it's possible that what would be pain for someone else is itching for me. I've been wanting to get in to see a dermatologist for a long time, but I don't really know where to find a vulvar one... it's also difficult because I'm at college right now and not very close to home, so it's difficult to see a doctor over a long period of time, and dermatologists are always booked months in advance. I'll definitely try to look into it though. My skin gets really dry in the winter, particularly on my hands (to the point where they crack and bleed pretty badly), so maybe it's possible that I have some kind of skin condition that's perpetuating it.
Although, I did have a biopsy done at one point and they didn't find anything wrong, except the skin was slightly thickened. I'm not sure if that means anything though.

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Re: New member

Post  Sarah001 on Thu Jan 19, 2012 8:50 pm

The way I got to see a vulval dermatologist was a referral through the GUM clinic at the same hospital, usually the ones who specialise in vulvar skin conditions travel around the various hospitals in their area and see women on a monthly basis. You could ring your nearest hospital and ask if they have one or if not where the next hospital that does is and go from there. Anyone with itching should get checked out by a dermatologist, I have a friend who gets eczema on her vulva and it causes lots of itching and thickened skin and she gets creams to use on each break out so it's no longer a constant thing and is mostly under control. It took me about 3 months to get the first appointment but after that she arranged to see me on a regular basis, mine wasn't a skin condition but most of the V dermos also deal with pain conditions in the vulvar so she was in charge of my medication. It's definitely something you should look into, if it was yeast it would show on a swab so that could easily be ruled out by who you see now or a GUM clinic. Let us know how you get on.
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Re: New member

Post  JemimaSurrender on Thu Jan 19, 2012 10:10 pm

Sarah001 wrote:The way I got to see a vulval dermatologist was a referral through the GUM clinic at the same hospital, usually the ones who specialise in vulvar skin conditions travel around the various hospitals in their area and see women on a monthly basis. You could ring your nearest hospital and ask if they have one or if not where the next hospital that does is and go from there. Anyone with itching should get checked out by a dermatologist, I have a friend who gets eczema on her vulva and it causes lots of itching and thickened skin and she gets creams to use on each break out so it's no longer a constant thing and is mostly under control. It took me about 3 months to get the first appointment but after that she arranged to see me on a regular basis, mine wasn't a skin condition but most of the V dermos also deal with pain conditions in the vulvar so she was in charge of my medication. It's definitely something you should look into, if it was yeast it would show on a swab so that could easily be ruled out by who you see now or a GUM clinic. Let us know how you get on.
How weird! I've just made a post about this under "Red Spots"!

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Words of advice

Post  AroraNightfire on Fri Jan 20, 2012 5:50 am

My Vulvodynia started at the age of 18, 9yrs ago in the form of a chronic itch all over the inside part of my vulva and vaginal opening. I was given yeast creams to use externally in the begining and it soothed it but didnt cure it long term. 3yrs ago I was given a skin thinning steroid cream that I used for this mysterious debilitating itch for 2yrs. It soothed it when I applied it but after about 1yr 1/2 of using it it started to feel slightly more raw when I used it. I ignored it and continued using it. I had to stop it about 1yr and some months ago because it felt like someone had took a blow drier to my groin. I started to not be able to wear pants and sitting down was impossible. NEVER EVER use a skin thinning steriod cream for itch longer than a few months even if the itch persists!!!!! Please dont!! Im trying to write a book about everything Ive gone through. I would talk about it all hear but Im not so sure.
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Re: New member

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