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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


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New member

Post  misstrish on Thu Jan 19, 2012 4:39 pm

Hi! I'm 21 and I've had vaginal itching consistently for the last 2 years. At first all the doctors I went to said it was a yeast infection, but since none of the treatments for yeast has worked my newest doctor thinks it's vulvodynia or something related to that. I've been suffering alone so it's nice to know there are other women out there who are experiencing the same thing. Here's hoping that we can all find a cure!

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Re: New member

Post  JemimaSurrender on Thu Jan 19, 2012 4:42 pm

Heyy.

It's nice to see someone else who has the itching! I get it on and off, along with the consistent pain, but it's not really recognised as one of the symptoms.

Check out some of the posts on here and see what you think. If you're like anyone else, just reading other people's experiences offers you some relief!


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Re: New member

Post  Sarah001 on Thu Jan 19, 2012 5:15 pm

Itching isn't usually a symptom of V, it can be but a skin condition should be ruled out first by a vulvar dermatologist so if you haven't seen one already ask for a referral before you accept the V diagnosis.
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Re: New member

Post  misstrish on Thu Jan 19, 2012 5:35 pm

Yeah I thought it was weird too, since every website ever says that pain is the number one sign of vulvodynia, and I've never had anything like that. But my doctor has looked a number of times and says it doesn't look like a yeast infection, and different people's sense receptors or whatever interpret signals from the brain differently, so it's possible that what would be pain for someone else is itching for me. I've been wanting to get in to see a dermatologist for a long time, but I don't really know where to find a vulvar one... it's also difficult because I'm at college right now and not very close to home, so it's difficult to see a doctor over a long period of time, and dermatologists are always booked months in advance. I'll definitely try to look into it though. My skin gets really dry in the winter, particularly on my hands (to the point where they crack and bleed pretty badly), so maybe it's possible that I have some kind of skin condition that's perpetuating it.
Although, I did have a biopsy done at one point and they didn't find anything wrong, except the skin was slightly thickened. I'm not sure if that means anything though.

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Re: New member

Post  Sarah001 on Thu Jan 19, 2012 8:50 pm

The way I got to see a vulval dermatologist was a referral through the GUM clinic at the same hospital, usually the ones who specialise in vulvar skin conditions travel around the various hospitals in their area and see women on a monthly basis. You could ring your nearest hospital and ask if they have one or if not where the next hospital that does is and go from there. Anyone with itching should get checked out by a dermatologist, I have a friend who gets eczema on her vulva and it causes lots of itching and thickened skin and she gets creams to use on each break out so it's no longer a constant thing and is mostly under control. It took me about 3 months to get the first appointment but after that she arranged to see me on a regular basis, mine wasn't a skin condition but most of the V dermos also deal with pain conditions in the vulvar so she was in charge of my medication. It's definitely something you should look into, if it was yeast it would show on a swab so that could easily be ruled out by who you see now or a GUM clinic. Let us know how you get on.
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Re: New member

Post  JemimaSurrender on Thu Jan 19, 2012 10:10 pm

Sarah001 wrote:The way I got to see a vulval dermatologist was a referral through the GUM clinic at the same hospital, usually the ones who specialise in vulvar skin conditions travel around the various hospitals in their area and see women on a monthly basis. You could ring your nearest hospital and ask if they have one or if not where the next hospital that does is and go from there. Anyone with itching should get checked out by a dermatologist, I have a friend who gets eczema on her vulva and it causes lots of itching and thickened skin and she gets creams to use on each break out so it's no longer a constant thing and is mostly under control. It took me about 3 months to get the first appointment but after that she arranged to see me on a regular basis, mine wasn't a skin condition but most of the V dermos also deal with pain conditions in the vulvar so she was in charge of my medication. It's definitely something you should look into, if it was yeast it would show on a swab so that could easily be ruled out by who you see now or a GUM clinic. Let us know how you get on.
How weird! I've just made a post about this under "Red Spots"!

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Words of advice

Post  AroraNightfire on Fri Jan 20, 2012 5:50 am

My Vulvodynia started at the age of 18, 9yrs ago in the form of a chronic itch all over the inside part of my vulva and vaginal opening. I was given yeast creams to use externally in the begining and it soothed it but didnt cure it long term. 3yrs ago I was given a skin thinning steroid cream that I used for this mysterious debilitating itch for 2yrs. It soothed it when I applied it but after about 1yr 1/2 of using it it started to feel slightly more raw when I used it. I ignored it and continued using it. I had to stop it about 1yr and some months ago because it felt like someone had took a blow drier to my groin. I started to not be able to wear pants and sitting down was impossible. NEVER EVER use a skin thinning steriod cream for itch longer than a few months even if the itch persists!!!!! Please dont!! Im trying to write a book about everything Ive gone through. I would talk about it all hear but Im not so sure.
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