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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
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» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
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» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

My story, do you think it's vulvodynia?

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My story, do you think it's vulvodynia?

Post  Sheilah311 on Fri Jan 20, 2012 3:42 am

First of all, I'm new. Hi Smile
I'm not quite sure what is wrong with me and my first internet community posting really didn't yield many answers so I thought I'd try this forum. I feel like every one here is pretty knowledgeable and might be able to offer some good thoughts.

On December 16th I went home early from work because I had really uncomfortable vulva burning.
I'm pretty sure I kind of experienced this when I was around 15 (my memory is horrible), which is when I first found the term vulvodynia on the internet. But it happened maybe once a week, never for more than an hour and after a couple useless visits to the doctor, it kind of just went away and hasn't really affected me much in life. & the very few times it has since then, it has been the same-going away very quickly that I don't even really remember.
I do know that it was the worst it had ever been, but I expected to go home and have it go away. It never did! I have not been 100% since then.
I've been to two doctor visits. After a week of pain I went and was told that there seemed to be nothing wrong with me, but he sent out some cultures & prescribed me lotrisone. Almost three weeks later, I was back at the doctors not feeling any better. He told me there seemed to now be white blood cells/blood in the my urine, though I still physically looked fine. I left with prescriptions for Microbid (just finished last night), Phenazopyrid (though I have NO burning while urinating) and betamethasone dipropionate cream.

I'm still about the same. Besides the medicines I briefly tried a blander diet (low oxalate kind of), going without underwear at night, washing underwear in just hot water, applying vaseline...
I do have the feeling of ALWAYS having to urinate. Even after I have just went. It doesn't burn when I go, and I don't have any trouble with that. I have noticed that it hurts more after I use the bathroom, and I've realised it is somewhat because of wiping. I've started spraying myself with water and then gently patting myself dry. Which I totally don't feel clean enough after doing, but I guess it is better then badly burning.
I feel like my urethra is burny feeling, and I don't know if that is spreading to my vulva or vice versa.
Not wiping has helped the vulva burning feeling, I don't feel like crying from the pain as much but it has not completely stopped and then just feeling my urethra burning is uncomfortable.
My vagina basically feels fine, I had no problems with tampons during my period. If I press a finger on my vulva, it burns a little but it goes away quickly and really doesn't leave me in pain.
I think that is about all I have to say!

Any suggestions? I'm going to call the doctor's office tomorrow if I get the chance to check up on my urinalysis, and I have an appointment on the 6th of February where I am going to just confuse him more! I also don't have insurance so I am limited to who I can see, and I really can't afford many more visits.

Thank you for any suggestions!

Last edited by Sheilah311 on Tue Jan 24, 2012 10:33 pm; edited 1 time in total


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some advice

Post  AroraNightfire on Sat Jan 21, 2012 8:25 pm

Whenever I use the bathroom I fill a spray bottle with cold water and after im done peeing I pour the water over my vulvar lips and vaginal opening. I cup my left hand over it with my fingers gently touching the urethra and behind the vaginal opening. I can't stand wiping myself, I feel raw after and it wont go away and I just feel miserable. Another thing that might help is a frozen gelpack. You can buy them at a pharmacy or grocery store. You refreeze them after they defrost. I place 2 papertowels around it. I squeeze it into the shape I need it to be in and I spread my vulvar lips and press it against my urethra and v opening. I keep it there for maybe 10min and then very slowly pull it off. If you don't want to try a frozen gelpack then after the cold water rinse use a fan. Lay on your bed with a fan between your legs. I hope my advice has been helpful. These are some things I do on a daily basis for releif.

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