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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

My story, do you think it's vulvodynia?

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My story, do you think it's vulvodynia?

Post  Sheilah311 on Fri Jan 20, 2012 3:42 am

First of all, I'm new. Hi Smile
I'm not quite sure what is wrong with me and my first internet community posting really didn't yield many answers so I thought I'd try this forum. I feel like every one here is pretty knowledgeable and might be able to offer some good thoughts.

On December 16th I went home early from work because I had really uncomfortable vulva burning.
I'm pretty sure I kind of experienced this when I was around 15 (my memory is horrible), which is when I first found the term vulvodynia on the internet. But it happened maybe once a week, never for more than an hour and after a couple useless visits to the doctor, it kind of just went away and hasn't really affected me much in life. & the very few times it has since then, it has been the same-going away very quickly that I don't even really remember.
I do know that it was the worst it had ever been, but I expected to go home and have it go away. It never did! I have not been 100% since then.
I've been to two doctor visits. After a week of pain I went and was told that there seemed to be nothing wrong with me, but he sent out some cultures & prescribed me lotrisone. Almost three weeks later, I was back at the doctors not feeling any better. He told me there seemed to now be white blood cells/blood in the my urine, though I still physically looked fine. I left with prescriptions for Microbid (just finished last night), Phenazopyrid (though I have NO burning while urinating) and betamethasone dipropionate cream.

I'm still about the same. Besides the medicines I briefly tried a blander diet (low oxalate kind of), going without underwear at night, washing underwear in just hot water, applying vaseline...
I do have the feeling of ALWAYS having to urinate. Even after I have just went. It doesn't burn when I go, and I don't have any trouble with that. I have noticed that it hurts more after I use the bathroom, and I've realised it is somewhat because of wiping. I've started spraying myself with water and then gently patting myself dry. Which I totally don't feel clean enough after doing, but I guess it is better then badly burning.
I feel like my urethra is burny feeling, and I don't know if that is spreading to my vulva or vice versa.
Not wiping has helped the vulva burning feeling, I don't feel like crying from the pain as much but it has not completely stopped and then just feeling my urethra burning is uncomfortable.
My vagina basically feels fine, I had no problems with tampons during my period. If I press a finger on my vulva, it burns a little but it goes away quickly and really doesn't leave me in pain.
I think that is about all I have to say!

Any suggestions? I'm going to call the doctor's office tomorrow if I get the chance to check up on my urinalysis, and I have an appointment on the 6th of February where I am going to just confuse him more! I also don't have insurance so I am limited to who I can see, and I really can't afford many more visits.

Thank you for any suggestions!

Last edited by Sheilah311 on Tue Jan 24, 2012 10:33 pm; edited 1 time in total


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some advice

Post  AroraNightfire on Sat Jan 21, 2012 8:25 pm

Whenever I use the bathroom I fill a spray bottle with cold water and after im done peeing I pour the water over my vulvar lips and vaginal opening. I cup my left hand over it with my fingers gently touching the urethra and behind the vaginal opening. I can't stand wiping myself, I feel raw after and it wont go away and I just feel miserable. Another thing that might help is a frozen gelpack. You can buy them at a pharmacy or grocery store. You refreeze them after they defrost. I place 2 papertowels around it. I squeeze it into the shape I need it to be in and I spread my vulvar lips and press it against my urethra and v opening. I keep it there for maybe 10min and then very slowly pull it off. If you don't want to try a frozen gelpack then after the cold water rinse use a fan. Lay on your bed with a fan between your legs. I hope my advice has been helpful. These are some things I do on a daily basis for releif.

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