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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
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» Hello. In Need of Advice, Please and Thank You. Long Read.
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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

My story, do you think it's vulvodynia?

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My story, do you think it's vulvodynia?

Post  Sheilah311 on Fri Jan 20, 2012 3:42 am

First of all, I'm new. Hi Smile
I'm not quite sure what is wrong with me and my first internet community posting really didn't yield many answers so I thought I'd try this forum. I feel like every one here is pretty knowledgeable and might be able to offer some good thoughts.

On December 16th I went home early from work because I had really uncomfortable vulva burning.
I'm pretty sure I kind of experienced this when I was around 15 (my memory is horrible), which is when I first found the term vulvodynia on the internet. But it happened maybe once a week, never for more than an hour and after a couple useless visits to the doctor, it kind of just went away and hasn't really affected me much in life. & the very few times it has since then, it has been the same-going away very quickly that I don't even really remember.
I do know that it was the worst it had ever been, but I expected to go home and have it go away. It never did! I have not been 100% since then.
I've been to two doctor visits. After a week of pain I went and was told that there seemed to be nothing wrong with me, but he sent out some cultures & prescribed me lotrisone. Almost three weeks later, I was back at the doctors not feeling any better. He told me there seemed to now be white blood cells/blood in the my urine, though I still physically looked fine. I left with prescriptions for Microbid (just finished last night), Phenazopyrid (though I have NO burning while urinating) and betamethasone dipropionate cream.

I'm still about the same. Besides the medicines I briefly tried a blander diet (low oxalate kind of), going without underwear at night, washing underwear in just hot water, applying vaseline...
I do have the feeling of ALWAYS having to urinate. Even after I have just went. It doesn't burn when I go, and I don't have any trouble with that. I have noticed that it hurts more after I use the bathroom, and I've realised it is somewhat because of wiping. I've started spraying myself with water and then gently patting myself dry. Which I totally don't feel clean enough after doing, but I guess it is better then badly burning.
I feel like my urethra is burny feeling, and I don't know if that is spreading to my vulva or vice versa.
Not wiping has helped the vulva burning feeling, I don't feel like crying from the pain as much but it has not completely stopped and then just feeling my urethra burning is uncomfortable.
My vagina basically feels fine, I had no problems with tampons during my period. If I press a finger on my vulva, it burns a little but it goes away quickly and really doesn't leave me in pain.
I think that is about all I have to say!

Any suggestions? I'm going to call the doctor's office tomorrow if I get the chance to check up on my urinalysis, and I have an appointment on the 6th of February where I am going to just confuse him more! I also don't have insurance so I am limited to who I can see, and I really can't afford many more visits.

Thank you for any suggestions!

Last edited by Sheilah311 on Tue Jan 24, 2012 10:33 pm; edited 1 time in total


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some advice

Post  AroraNightfire on Sat Jan 21, 2012 8:25 pm

Whenever I use the bathroom I fill a spray bottle with cold water and after im done peeing I pour the water over my vulvar lips and vaginal opening. I cup my left hand over it with my fingers gently touching the urethra and behind the vaginal opening. I can't stand wiping myself, I feel raw after and it wont go away and I just feel miserable. Another thing that might help is a frozen gelpack. You can buy them at a pharmacy or grocery store. You refreeze them after they defrost. I place 2 papertowels around it. I squeeze it into the shape I need it to be in and I spread my vulvar lips and press it against my urethra and v opening. I keep it there for maybe 10min and then very slowly pull it off. If you don't want to try a frozen gelpack then after the cold water rinse use a fan. Lay on your bed with a fan between your legs. I hope my advice has been helpful. These are some things I do on a daily basis for releif.

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