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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Anyone going to VPS London workshop?
3 posters
Page 1 of 1
Anyone going to VPS London workshop?
Hi all,
Just wondering if anyone else is going to the VPS workshop in London on 10th December? I’ve never been to one before but my partner & I are booked to go and really looking forward to it. Would be cool to meet up if anyone is going to be there. I think my bf is looking forward to meeting other blokes who’s girlfriends are affected too as sometimes he feels just as alone as I do.
If anyone fancies it, noon at 2nd December is the deadline for booking. It’s £20, there’s various speakers and workshops, and lunch! There is further info including a timetable on the vulval pain society website under "meetings & workshops".
xx
Just wondering if anyone else is going to the VPS workshop in London on 10th December? I’ve never been to one before but my partner & I are booked to go and really looking forward to it. Would be cool to meet up if anyone is going to be there. I think my bf is looking forward to meeting other blokes who’s girlfriends are affected too as sometimes he feels just as alone as I do.
If anyone fancies it, noon at 2nd December is the deadline for booking. It’s £20, there’s various speakers and workshops, and lunch! There is further info including a timetable on the vulval pain society website under "meetings & workshops".
xx
ButterflyLiz- Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK
Re: Anyone going to VPS London workshop?
Hi there! Ive been before, very useful for vulvodynia. I have vestibulitis, wasnt as useful. still good to meet Dr Nunns though and other girls in this situation xxx
naomi- Moderator
- Posts : 262
Join date : 2010-04-09
Location : Cheltenham
Re: Anyone going to VPS London workshop?
Hi Naomi, I'm glad you got something out of the workshop even though it wasn't particularly helpful for vestibulitis. Oooo David Nunns is nice isn't he, met him years ago at a Birmingham V meet!
xx
xx
ButterflyLiz- Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK
Re: Anyone going to VPS London workshop?
Ahh, I had no idea about this. Where can you get the latest info about these upcoming type of things?
JemimaSurrender- Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK
Re: Anyone going to VPS London workshop?
If you can make this one, you could try emailing them just on the offchance that they could still fit you in. It says they need to know numbers for catering, but I would have thought there'd be some flexibility?
I first heard about these big workshops from my consultant. The VPS seem to put them on at this time every year. The VPS workshop page is here - http://vulvalpainsociety.org/index.php?page=meetings-workshops but annoyingly they don't seem to have a mailing list you can sign up to so I just keep checking it all the time!
If you can't come, they do put up quite comprehensive notes after the event (you can read about all the talks at past events). In fact I heard about the lady I'm now having CBT with by reading the notes of last years' meeting.
xx
I first heard about these big workshops from my consultant. The VPS seem to put them on at this time every year. The VPS workshop page is here - http://vulvalpainsociety.org/index.php?page=meetings-workshops but annoyingly they don't seem to have a mailing list you can sign up to so I just keep checking it all the time!
If you can't come, they do put up quite comprehensive notes after the event (you can read about all the talks at past events). In fact I heard about the lady I'm now having CBT with by reading the notes of last years' meeting.
xx
ButterflyLiz- Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK
Re: Anyone going to VPS London workshop?
That's great, thanks very much! I can't make this one, annoyingly, but I'll be sure to check up on the notes and keep my eye on the page for future events.
How does everyone seem to get appointments with these people? The only person I see (and have ever seen with any kind of consistency) is my GP. Other than that I've seen three gynaecologists over the whole of my time suffering! I've made a note of a few names from this forum and intend to take them to my GP and beg her to fix me up! Haha.
How does everyone seem to get appointments with these people? The only person I see (and have ever seen with any kind of consistency) is my GP. Other than that I've seen three gynaecologists over the whole of my time suffering! I've made a note of a few names from this forum and intend to take them to my GP and beg her to fix me up! Haha.
JemimaSurrender- Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK
Re: Anyone going to VPS London workshop?
Oh I must have seen a billion clueless doctors before finally getting referred to my marvellous consultant (put more details in my reply to your other topic ) And that was only down to my local consultant admitting he was all out of ideas. Absolutely, insist on a referral to someone who has a clue. We all deserve the best advice & treatment possible xx
ButterflyLiz- Posts : 137
Join date : 2011-11-18
Age : 38
Location : UK
Re: Anyone going to VPS London workshop?
yeh dr nunns is hot although didnt really listen to me and i didnt really gel to him. easy on the eye though
def do go to the meet up on 10th...its worth it.
xxxxxxxxx
def do go to the meet up on 10th...its worth it.
xxxxxxxxx
naomi- Moderator
- Posts : 262
Join date : 2010-04-09
Location : Cheltenham
Similar topics
» Forth coming Vulval pain workshop in December 2010 - London
» is anyone going to the VPS Super Workshop 2013 -
» physiotherapists in london
» is anyone going to the VPS Super Workshop 2013 -
» physiotherapists in london
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer