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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Where are you from?

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Where are you from?

Post  mmorgan on Sun Jan 22, 2012 2:14 am

Just curious to see where everyone is from? Hopefully some can connect in real life and provide support concerning doctors and such.

I'm from San Antonio, Texas (USA).
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Re: Where are you from?

Post  lolainslacks on Sun Jan 22, 2012 2:20 am

Scotland. c:

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Re: Where are you from?

Post  ButterflyLiz on Sun Jan 22, 2012 11:36 am

Watford, UK & sometimes Northampton, UK. And sometimes am in Liverpool Smile
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Re: Where are you from?

Post  SimplyBelle on Sat Feb 04, 2012 8:28 am

Prince Geore, British Columbia...
Gotta love dealing with a health problem in a northern community. Razz

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Re: Where are you from?

Post  Sarah001 on Sat Feb 04, 2012 1:13 pm

East Midlands, UK. None of us are close yet!
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Re: Where are you from?

Post  notavfan on Sat Feb 04, 2012 6:38 pm

Nova Scotia, Canada!!!

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Re: Where are you from?

Post  Kam10 on Tue Feb 07, 2012 12:49 am

Michigan, U.S.
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Re: Where are you from?

Post  Aussie on Tue Feb 07, 2012 1:23 am

Originally Warrington Uk

Now Sunshine Coast, QLD, Australia

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i'm from....

Post  smile22 on Wed Feb 08, 2012 12:04 am

West Midlands, UK

This post is such a good idea - it is nice to see where others are from as I feel like I am the only one in the world going through it sometimes!

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Re: Where are you from?

Post  pepper7 on Wed Feb 08, 2012 12:11 am

London UK and sometimes Liverpool

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Re: Where are you from?

Post  mmorgan on Wed Feb 08, 2012 3:57 am

Lots of UK people, hopefully y'all can connect somehow.
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Re: Where are you from?

Post  Alana3 on Thu Oct 11, 2012 4:46 pm

It's a little late, but Boynton Beach, Florida. I wish someone were here so I'd have someone close to understand! Oh well!

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Re: Where are you from?

Post  Kate1981 on Fri Oct 12, 2012 3:23 pm

Cheshire, UK

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Re: Where are you from?

Post  Char29 on Wed Oct 24, 2012 6:14 am

Perth - Australia

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Re: Where are you from?

Post  kukubadi1987 on Wed Oct 24, 2012 7:35 am

London uk

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Where are you from?

Post  Michele in CA on Thu Oct 25, 2012 12:32 am

California
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Re: Where are you from?

Post  Alana3 on Thu Oct 25, 2012 7:45 pm

Florida

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Re: Where are you from?

Post  Kathye10 on Sat Apr 06, 2013 9:00 pm

Los Angeles.
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Re: Where are you from?

Post  sassy26 on Sun Apr 07, 2013 12:21 am

Seattle

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Re: Where are you from?

Post  jen007 on Sun Apr 07, 2013 3:15 am

New Jersey

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Re: Where are you from?

Post  BpCookie on Mon Apr 08, 2013 7:16 pm

Arizona. 1000 miles from water and 2 feet from Hell
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Re: Where are you from?

Post  Applejax on Thu Apr 11, 2013 5:06 pm

South Carolina

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Re: Where are you from?

Post  tinkerbelle2 on Mon Sep 30, 2013 10:45 am

Brighton, UK (South East England)
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Re: Where are you from?

Post  EviE°Bee on Fri Oct 25, 2013 10:13 pm

Crap, I just made another post about locations, I'm dumb lol.

Palmdale, Ca

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Re: Where are you from?

Post  Leslieg on Sat Oct 26, 2013 12:12 am

New Hampshire

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Re: Where are you from?

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