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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Vulvadynia ruining my life?

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Vulvadynia ruining my life?

Post  paigedanielle94 on Mon Jan 23, 2012 2:10 pm

Hi my name is paige im alomost 18 years old and i am very sure i have vulvadynia and wondered if any one would share their experiences with me? i have seen 3 consultants and had an internal scan from a gynocologist, I suffer from bacterial vaginosis after every period every month, i have had days where i am not in pain but for the past 5days everything seems impossible i live alone and it is very diffucult to speak to anyone about this. i am in costant pain now walking sitting down hurts, down below is very red i feel soso sore and itchy and uncomftable also i seem to have a whiteish discharge i have a doctors appointment later but today is the worst pain i have ever been in with this i have not been diagosed as of yet, is there anything important i should mention to the doctor
thanks for any answers xx What a Face

paigedanielle94

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Re: Vulvadynia ruining my life?

Post  shortstuff on Thu Jan 26, 2012 12:47 am

This is probably a stupid question seeing as you've had three consultations, but have they tested for a yeast infection?? I ask because of the whitish discharge and itchiness...

shortstuff

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Re: Vulvadynia ruining my life?

Post  fairyemma1980 on Thu Jan 26, 2012 9:18 pm

I've found that getting a diagnosis from a doctor or consultant is really difficult until they have exhausted all other possibilities. Make sure that your doctor checks out all the possible things it could be - such as yeast infections etc. - then go back armed with a bit of knowledge about vulvodynia and explain how your symptoms match up. Then you are less likely to get fobbed off with the usual answers of 'I can't find anything wrong' or worse 'its all in your head'.

This forum seems to be a good place to find others to talk to about negative experiences - even though you might feel alone with this I've discovered there are lots of other women who feel just the same. You'll definately find support through places like this.

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Re: Vulvadynia ruining my life?

Post  Young aussie girl on Thu Feb 02, 2012 10:45 pm

Be careful though. I know doctors have to exhaust all possibilities but the problem is IF you do have vulvodynia then testing for a yeast infection or STD or something will only irritate it more... using cream to get rid of it makes it worse etc. That was my experience anyway. It sucks because its a vicious cycle. Your damned if you do and damned if you don't. If you're looking for others' experiences look at my post.

Young aussie girl

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Re: Vulvadynia ruining my life?

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