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» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Vulvadynia ruining my life?

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Vulvadynia ruining my life?

Post  paigedanielle94 on Mon Jan 23, 2012 2:10 pm

Hi my name is paige im alomost 18 years old and i am very sure i have vulvadynia and wondered if any one would share their experiences with me? i have seen 3 consultants and had an internal scan from a gynocologist, I suffer from bacterial vaginosis after every period every month, i have had days where i am not in pain but for the past 5days everything seems impossible i live alone and it is very diffucult to speak to anyone about this. i am in costant pain now walking sitting down hurts, down below is very red i feel soso sore and itchy and uncomftable also i seem to have a whiteish discharge i have a doctors appointment later but today is the worst pain i have ever been in with this i have not been diagosed as of yet, is there anything important i should mention to the doctor
thanks for any answers xx What a Face

paigedanielle94

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Re: Vulvadynia ruining my life?

Post  shortstuff on Thu Jan 26, 2012 12:47 am

This is probably a stupid question seeing as you've had three consultations, but have they tested for a yeast infection?? I ask because of the whitish discharge and itchiness...

shortstuff

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Re: Vulvadynia ruining my life?

Post  fairyemma1980 on Thu Jan 26, 2012 9:18 pm

I've found that getting a diagnosis from a doctor or consultant is really difficult until they have exhausted all other possibilities. Make sure that your doctor checks out all the possible things it could be - such as yeast infections etc. - then go back armed with a bit of knowledge about vulvodynia and explain how your symptoms match up. Then you are less likely to get fobbed off with the usual answers of 'I can't find anything wrong' or worse 'its all in your head'.

This forum seems to be a good place to find others to talk to about negative experiences - even though you might feel alone with this I've discovered there are lots of other women who feel just the same. You'll definately find support through places like this.

fairyemma1980

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Re: Vulvadynia ruining my life?

Post  Young aussie girl on Thu Feb 02, 2012 10:45 pm

Be careful though. I know doctors have to exhaust all possibilities but the problem is IF you do have vulvodynia then testing for a yeast infection or STD or something will only irritate it more... using cream to get rid of it makes it worse etc. That was my experience anyway. It sucks because its a vicious cycle. Your damned if you do and damned if you don't. If you're looking for others' experiences look at my post.

Young aussie girl

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Re: Vulvadynia ruining my life?

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