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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

Vulvadynia ruining my life?

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Vulvadynia ruining my life?

Post  paigedanielle94 on Mon Jan 23, 2012 2:10 pm

Hi my name is paige im alomost 18 years old and i am very sure i have vulvadynia and wondered if any one would share their experiences with me? i have seen 3 consultants and had an internal scan from a gynocologist, I suffer from bacterial vaginosis after every period every month, i have had days where i am not in pain but for the past 5days everything seems impossible i live alone and it is very diffucult to speak to anyone about this. i am in costant pain now walking sitting down hurts, down below is very red i feel soso sore and itchy and uncomftable also i seem to have a whiteish discharge i have a doctors appointment later but today is the worst pain i have ever been in with this i have not been diagosed as of yet, is there anything important i should mention to the doctor
thanks for any answers xx What a Face


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Re: Vulvadynia ruining my life?

Post  shortstuff on Thu Jan 26, 2012 12:47 am

This is probably a stupid question seeing as you've had three consultations, but have they tested for a yeast infection?? I ask because of the whitish discharge and itchiness...


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Re: Vulvadynia ruining my life?

Post  fairyemma1980 on Thu Jan 26, 2012 9:18 pm

I've found that getting a diagnosis from a doctor or consultant is really difficult until they have exhausted all other possibilities. Make sure that your doctor checks out all the possible things it could be - such as yeast infections etc. - then go back armed with a bit of knowledge about vulvodynia and explain how your symptoms match up. Then you are less likely to get fobbed off with the usual answers of 'I can't find anything wrong' or worse 'its all in your head'.

This forum seems to be a good place to find others to talk to about negative experiences - even though you might feel alone with this I've discovered there are lots of other women who feel just the same. You'll definately find support through places like this.


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Re: Vulvadynia ruining my life?

Post  Young aussie girl on Thu Feb 02, 2012 10:45 pm

Be careful though. I know doctors have to exhaust all possibilities but the problem is IF you do have vulvodynia then testing for a yeast infection or STD or something will only irritate it more... using cream to get rid of it makes it worse etc. That was my experience anyway. It sucks because its a vicious cycle. Your damned if you do and damned if you don't. If you're looking for others' experiences look at my post.

Young aussie girl

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Re: Vulvadynia ruining my life?

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