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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Vulvadynia ruining my life?

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Vulvadynia ruining my life?

Post  paigedanielle94 on Mon Jan 23, 2012 2:10 pm

Hi my name is paige im alomost 18 years old and i am very sure i have vulvadynia and wondered if any one would share their experiences with me? i have seen 3 consultants and had an internal scan from a gynocologist, I suffer from bacterial vaginosis after every period every month, i have had days where i am not in pain but for the past 5days everything seems impossible i live alone and it is very diffucult to speak to anyone about this. i am in costant pain now walking sitting down hurts, down below is very red i feel soso sore and itchy and uncomftable also i seem to have a whiteish discharge i have a doctors appointment later but today is the worst pain i have ever been in with this i have not been diagosed as of yet, is there anything important i should mention to the doctor
thanks for any answers xx What a Face


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Re: Vulvadynia ruining my life?

Post  shortstuff on Thu Jan 26, 2012 12:47 am

This is probably a stupid question seeing as you've had three consultations, but have they tested for a yeast infection?? I ask because of the whitish discharge and itchiness...


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Re: Vulvadynia ruining my life?

Post  fairyemma1980 on Thu Jan 26, 2012 9:18 pm

I've found that getting a diagnosis from a doctor or consultant is really difficult until they have exhausted all other possibilities. Make sure that your doctor checks out all the possible things it could be - such as yeast infections etc. - then go back armed with a bit of knowledge about vulvodynia and explain how your symptoms match up. Then you are less likely to get fobbed off with the usual answers of 'I can't find anything wrong' or worse 'its all in your head'.

This forum seems to be a good place to find others to talk to about negative experiences - even though you might feel alone with this I've discovered there are lots of other women who feel just the same. You'll definately find support through places like this.


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Re: Vulvadynia ruining my life?

Post  Young aussie girl on Thu Feb 02, 2012 10:45 pm

Be careful though. I know doctors have to exhaust all possibilities but the problem is IF you do have vulvodynia then testing for a yeast infection or STD or something will only irritate it more... using cream to get rid of it makes it worse etc. That was my experience anyway. It sucks because its a vicious cycle. Your damned if you do and damned if you don't. If you're looking for others' experiences look at my post.

Young aussie girl

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Re: Vulvadynia ruining my life?

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