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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Vulvadynia ruining my life?

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Vulvadynia ruining my life?

Post  paigedanielle94 on Mon Jan 23, 2012 2:10 pm

Hi my name is paige im alomost 18 years old and i am very sure i have vulvadynia and wondered if any one would share their experiences with me? i have seen 3 consultants and had an internal scan from a gynocologist, I suffer from bacterial vaginosis after every period every month, i have had days where i am not in pain but for the past 5days everything seems impossible i live alone and it is very diffucult to speak to anyone about this. i am in costant pain now walking sitting down hurts, down below is very red i feel soso sore and itchy and uncomftable also i seem to have a whiteish discharge i have a doctors appointment later but today is the worst pain i have ever been in with this i have not been diagosed as of yet, is there anything important i should mention to the doctor
thanks for any answers xx What a Face

paigedanielle94

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Re: Vulvadynia ruining my life?

Post  shortstuff on Thu Jan 26, 2012 12:47 am

This is probably a stupid question seeing as you've had three consultations, but have they tested for a yeast infection?? I ask because of the whitish discharge and itchiness...

shortstuff

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Re: Vulvadynia ruining my life?

Post  fairyemma1980 on Thu Jan 26, 2012 9:18 pm

I've found that getting a diagnosis from a doctor or consultant is really difficult until they have exhausted all other possibilities. Make sure that your doctor checks out all the possible things it could be - such as yeast infections etc. - then go back armed with a bit of knowledge about vulvodynia and explain how your symptoms match up. Then you are less likely to get fobbed off with the usual answers of 'I can't find anything wrong' or worse 'its all in your head'.

This forum seems to be a good place to find others to talk to about negative experiences - even though you might feel alone with this I've discovered there are lots of other women who feel just the same. You'll definately find support through places like this.

fairyemma1980

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Re: Vulvadynia ruining my life?

Post  Young aussie girl on Thu Feb 02, 2012 10:45 pm

Be careful though. I know doctors have to exhaust all possibilities but the problem is IF you do have vulvodynia then testing for a yeast infection or STD or something will only irritate it more... using cream to get rid of it makes it worse etc. That was my experience anyway. It sucks because its a vicious cycle. Your damned if you do and damned if you don't. If you're looking for others' experiences look at my post.

Young aussie girl

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Re: Vulvadynia ruining my life?

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