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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Will vulvodynia runied my life?

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Will vulvodynia runied my life?

Post  Chelsea1991 on Tue Jan 24, 2012 10:55 am

Hi, Im 20 and I have Just been told i got vulvodynia provoked even though for the past couple years i though i had vaginsmus, anyway i tell you a little about myself, I was three years old when the pain first started i was burning when i went to the toliect which was complety painfull and horribel, i notice as time got it started to get worst and i went to different hospitals and one doctor said " it in your head,relax" and i had a bad experience with a GP where he did a exam on me which ended up feeling like he was ripping me apart it was horribel and then when i was 18 i met someone who i though was nice and he ended up raping me- As i liked at the time i said yeah lets go for sex not realising that my body didnt want me and then once he went inside i almost felt like it was screaming at me and then just like that the pain HIT and i scream at him to get off me but he didnt (some people believes it wasnt rape even though i said no and a normal man would stop), as faith happens i meet the love of my life one month after we started to date but i couldnt get over what happen, but from what i could remember sex wasnt that bad but it all feel like a unreal anyway i started to think about it more and more n than the pain hit me again but this time i wouldnt go away, when i was younger i could never insert a tampon or have a exam done by the GP but i though that "was because i was young" guess i was wrong but i think the doctors might have caused this by giving me frequency use of antibiotic every three days because of the pain that i felt when i went to the toliect (I believe that could be Interstitial cystitis, im going for more test soon hopefully), im sorry about the post but i just needed someone to talk 2 Smile

I was woundering could some people answered my questions please, it would mean alot and i really dont no nothing about this conditional apart for it being a pain in my ass.
1)Can vulvodynia affect having children?
2)Have anyone been cured? could you have sex (i can't)
3)What can I do to relieve my pain?
4)Does anyone have IC?
5)Has anyone have surgery? is it successful for you? what have to had done in the surgery?

Thank You Smile Smile


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Re: Will vulvodynia runied my life?

Post  IcedTea on Sun Jan 29, 2012 1:51 am

Hey Chelsea,
I can't really give you much advice but I would like to talk because we are around the same age and I feel COMPLETELY alone! I just found out I have vulvodynia and have only been struggling with symptoms for about 2 years (doctors kept telling me it was a yeast infection, just found out 2 months ago it was vulvodynia). I can TRY to answer your questions although I'm still learning alot about vulvodynia and there are different types so we may be experiencing different things.
1) I was very worried about this. My gyno said I can but would need to take an epidermal.
2) I dont think there is a cure although it can be managed. I cannot have sex...my bf and I just broke up 2 days ago because of this and I am completely devastated. However, it severely impacted us pyschologically and we never tried after I began treatments so it may have been better and I just dont know Sad
3) I use a cream called xylocaine and visit a physiotherapist although you should really try to visit a professional to tell you what is best for you!
4)Not sure what IC stands for...
5)Definately haven't had the surgery
I hope that helps a little. And even if it doesnt maybe we could just talk. Also, do you have access to a sexual assault centre? I know that probably sounds scary but I hope you can talk to someone about what you experienced... if you wanted it in the beginning and asked him to stop when it hurt it still counts as assault, he should have stopped because you were no longer giving your consent Sad
All the best Smile


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Re: Will vulvodynia runied my life?

Post  Chelsea1991 on Sun Jan 29, 2012 4:57 pm

Hiya, I know how you feel; I always feel alone but im guess im lucky cos of my bf, maybe you two could get back together i bought up with mine "so he could find someone better" but we got back together within three days. I guess sex dont rule everything Smile maybe there a chance for u 2 just talk to him if u think he worth it. I no how it feels when you feel like crap all the time but you not alone Smile what meds r u on? Im on neurontin i have to increase my dose every 3 days and i can take up to 10 a day till i have "side effects" lol. Im currently on 3 a day and it seems okay, I also got some cream but i have no idea what to use with that because it says external even though she said to use it inside. Where you from? if you dont mind me asking Smile, If you got fb i could add if u want?



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Re: Will vulvodynia runied my life?

Post  IcedTea on Mon Jan 30, 2012 4:29 am

I wish we could get back together. We've broken up probably 15 times and been back together in less than a day every time. But this time we have to let go Sad We have a lot of other issues (many messed up situations), we come from different racial, cultural and religious backgrounds, he is older, we both tried our best. We talked for 6 hours yesterday about everything... I love him but its time...we are both too hurt :'( Such a mess!!!! I wish with everything it had worked out!! Crying or Very sad
I'm not on any meds and I probably wont ever take them. I just use the cream and go to physio every couple of weeks.
I'm from Edmonton, Alberta. You?
And I do have FB...you could send your full name in a private message if you would like.


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Re: Will vulvodynia runied my life?

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