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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Will vulvodynia runied my life?

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Will vulvodynia runied my life?

Post  Chelsea1991 on Tue Jan 24, 2012 10:55 am

Hi, Im 20 and I have Just been told i got vulvodynia provoked even though for the past couple years i though i had vaginsmus, anyway i tell you a little about myself, I was three years old when the pain first started i was burning when i went to the toliect which was complety painfull and horribel, i notice as time got it started to get worst and i went to different hospitals and one doctor said " it in your head,relax" and i had a bad experience with a GP where he did a exam on me which ended up feeling like he was ripping me apart it was horribel and then when i was 18 i met someone who i though was nice and he ended up raping me- As i liked at the time i said yeah lets go for sex not realising that my body didnt want me and then once he went inside i almost felt like it was screaming at me and then just like that the pain HIT and i scream at him to get off me but he didnt (some people believes it wasnt rape even though i said no and a normal man would stop), as faith happens i meet the love of my life one month after we started to date but i couldnt get over what happen, but from what i could remember sex wasnt that bad but it all feel like a unreal anyway i started to think about it more and more n than the pain hit me again but this time i wouldnt go away, when i was younger i could never insert a tampon or have a exam done by the GP but i though that "was because i was young" guess i was wrong but i think the doctors might have caused this by giving me frequency use of antibiotic every three days because of the pain that i felt when i went to the toliect (I believe that could be Interstitial cystitis, im going for more test soon hopefully), im sorry about the post but i just needed someone to talk 2 Smile

I was woundering could some people answered my questions please, it would mean alot and i really dont no nothing about this conditional apart for it being a pain in my ass.
1)Can vulvodynia affect having children?
2)Have anyone been cured? could you have sex (i can't)
3)What can I do to relieve my pain?
4)Does anyone have IC?
5)Has anyone have surgery? is it successful for you? what have to had done in the surgery?

Thank You Smile Smile


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Re: Will vulvodynia runied my life?

Post  IcedTea on Sun Jan 29, 2012 1:51 am

Hey Chelsea,
I can't really give you much advice but I would like to talk because we are around the same age and I feel COMPLETELY alone! I just found out I have vulvodynia and have only been struggling with symptoms for about 2 years (doctors kept telling me it was a yeast infection, just found out 2 months ago it was vulvodynia). I can TRY to answer your questions although I'm still learning alot about vulvodynia and there are different types so we may be experiencing different things.
1) I was very worried about this. My gyno said I can but would need to take an epidermal.
2) I dont think there is a cure although it can be managed. I cannot have sex...my bf and I just broke up 2 days ago because of this and I am completely devastated. However, it severely impacted us pyschologically and we never tried after I began treatments so it may have been better and I just dont know Sad
3) I use a cream called xylocaine and visit a physiotherapist although you should really try to visit a professional to tell you what is best for you!
4)Not sure what IC stands for...
5)Definately haven't had the surgery
I hope that helps a little. And even if it doesnt maybe we could just talk. Also, do you have access to a sexual assault centre? I know that probably sounds scary but I hope you can talk to someone about what you experienced... if you wanted it in the beginning and asked him to stop when it hurt it still counts as assault, he should have stopped because you were no longer giving your consent Sad
All the best Smile


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Re: Will vulvodynia runied my life?

Post  Chelsea1991 on Sun Jan 29, 2012 4:57 pm

Hiya, I know how you feel; I always feel alone but im guess im lucky cos of my bf, maybe you two could get back together i bought up with mine "so he could find someone better" but we got back together within three days. I guess sex dont rule everything Smile maybe there a chance for u 2 just talk to him if u think he worth it. I no how it feels when you feel like crap all the time but you not alone Smile what meds r u on? Im on neurontin i have to increase my dose every 3 days and i can take up to 10 a day till i have "side effects" lol. Im currently on 3 a day and it seems okay, I also got some cream but i have no idea what to use with that because it says external even though she said to use it inside. Where you from? if you dont mind me asking Smile, If you got fb i could add if u want?



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Re: Will vulvodynia runied my life?

Post  IcedTea on Mon Jan 30, 2012 4:29 am

I wish we could get back together. We've broken up probably 15 times and been back together in less than a day every time. But this time we have to let go Sad We have a lot of other issues (many messed up situations), we come from different racial, cultural and religious backgrounds, he is older, we both tried our best. We talked for 6 hours yesterday about everything... I love him but its time...we are both too hurt :'( Such a mess!!!! I wish with everything it had worked out!! Crying or Very sad
I'm not on any meds and I probably wont ever take them. I just use the cream and go to physio every couple of weeks.
I'm from Edmonton, Alberta. You?
And I do have FB...you could send your full name in a private message if you would like.


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