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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Will vulvodynia runied my life?

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Will vulvodynia runied my life?

Post  Chelsea1991 on Tue Jan 24, 2012 10:55 am

Hi, Im 20 and I have Just been told i got vulvodynia provoked even though for the past couple years i though i had vaginsmus, anyway i tell you a little about myself, I was three years old when the pain first started i was burning when i went to the toliect which was complety painfull and horribel, i notice as time got it started to get worst and i went to different hospitals and one doctor said " it in your head,relax" and i had a bad experience with a GP where he did a exam on me which ended up feeling like he was ripping me apart it was horribel and then when i was 18 i met someone who i though was nice and he ended up raping me- As i liked at the time i said yeah lets go for sex not realising that my body didnt want me and then once he went inside i almost felt like it was screaming at me and then just like that the pain HIT and i scream at him to get off me but he didnt (some people believes it wasnt rape even though i said no and a normal man would stop), as faith happens i meet the love of my life one month after we started to date but i couldnt get over what happen, but from what i could remember sex wasnt that bad but it all feel like a unreal anyway i started to think about it more and more n than the pain hit me again but this time i wouldnt go away, when i was younger i could never insert a tampon or have a exam done by the GP but i though that "was because i was young" guess i was wrong but i think the doctors might have caused this by giving me frequency use of antibiotic every three days because of the pain that i felt when i went to the toliect (I believe that could be Interstitial cystitis, im going for more test soon hopefully), im sorry about the post but i just needed someone to talk 2 Smile

I was woundering could some people answered my questions please, it would mean alot and i really dont no nothing about this conditional apart for it being a pain in my ass.
1)Can vulvodynia affect having children?
2)Have anyone been cured? could you have sex (i can't)
3)What can I do to relieve my pain?
4)Does anyone have IC?
5)Has anyone have surgery? is it successful for you? what have to had done in the surgery?

Thank You Smile Smile


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Re: Will vulvodynia runied my life?

Post  IcedTea on Sun Jan 29, 2012 1:51 am

Hey Chelsea,
I can't really give you much advice but I would like to talk because we are around the same age and I feel COMPLETELY alone! I just found out I have vulvodynia and have only been struggling with symptoms for about 2 years (doctors kept telling me it was a yeast infection, just found out 2 months ago it was vulvodynia). I can TRY to answer your questions although I'm still learning alot about vulvodynia and there are different types so we may be experiencing different things.
1) I was very worried about this. My gyno said I can but would need to take an epidermal.
2) I dont think there is a cure although it can be managed. I cannot have sex...my bf and I just broke up 2 days ago because of this and I am completely devastated. However, it severely impacted us pyschologically and we never tried after I began treatments so it may have been better and I just dont know Sad
3) I use a cream called xylocaine and visit a physiotherapist although you should really try to visit a professional to tell you what is best for you!
4)Not sure what IC stands for...
5)Definately haven't had the surgery
I hope that helps a little. And even if it doesnt maybe we could just talk. Also, do you have access to a sexual assault centre? I know that probably sounds scary but I hope you can talk to someone about what you experienced... if you wanted it in the beginning and asked him to stop when it hurt it still counts as assault, he should have stopped because you were no longer giving your consent Sad
All the best Smile


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Re: Will vulvodynia runied my life?

Post  Chelsea1991 on Sun Jan 29, 2012 4:57 pm

Hiya, I know how you feel; I always feel alone but im guess im lucky cos of my bf, maybe you two could get back together i bought up with mine "so he could find someone better" but we got back together within three days. I guess sex dont rule everything Smile maybe there a chance for u 2 just talk to him if u think he worth it. I no how it feels when you feel like crap all the time but you not alone Smile what meds r u on? Im on neurontin i have to increase my dose every 3 days and i can take up to 10 a day till i have "side effects" lol. Im currently on 3 a day and it seems okay, I also got some cream but i have no idea what to use with that because it says external even though she said to use it inside. Where you from? if you dont mind me asking Smile, If you got fb i could add if u want?



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Re: Will vulvodynia runied my life?

Post  IcedTea on Mon Jan 30, 2012 4:29 am

I wish we could get back together. We've broken up probably 15 times and been back together in less than a day every time. But this time we have to let go Sad We have a lot of other issues (many messed up situations), we come from different racial, cultural and religious backgrounds, he is older, we both tried our best. We talked for 6 hours yesterday about everything... I love him but its time...we are both too hurt :'( Such a mess!!!! I wish with everything it had worked out!! Crying or Very sad
I'm not on any meds and I probably wont ever take them. I just use the cream and go to physio every couple of weeks.
I'm from Edmonton, Alberta. You?
And I do have FB...you could send your full name in a private message if you would like.


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