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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Will vulvodynia runied my life?

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Will vulvodynia runied my life?

Post  Chelsea1991 on Tue Jan 24, 2012 10:55 am

Hi, Im 20 and I have Just been told i got vulvodynia provoked even though for the past couple years i though i had vaginsmus, anyway i tell you a little about myself, I was three years old when the pain first started i was burning when i went to the toliect which was complety painfull and horribel, i notice as time got it started to get worst and i went to different hospitals and one doctor said " it in your head,relax" and i had a bad experience with a GP where he did a exam on me which ended up feeling like he was ripping me apart it was horribel and then when i was 18 i met someone who i though was nice and he ended up raping me- As i liked at the time i said yeah lets go for sex not realising that my body didnt want me and then once he went inside i almost felt like it was screaming at me and then just like that the pain HIT and i scream at him to get off me but he didnt (some people believes it wasnt rape even though i said no and a normal man would stop), as faith happens i meet the love of my life one month after we started to date but i couldnt get over what happen, but from what i could remember sex wasnt that bad but it all feel like a unreal anyway i started to think about it more and more n than the pain hit me again but this time i wouldnt go away, when i was younger i could never insert a tampon or have a exam done by the GP but i though that "was because i was young" guess i was wrong but i think the doctors might have caused this by giving me frequency use of antibiotic every three days because of the pain that i felt when i went to the toliect (I believe that could be Interstitial cystitis, im going for more test soon hopefully), im sorry about the post but i just needed someone to talk 2 Smile

I was woundering could some people answered my questions please, it would mean alot and i really dont no nothing about this conditional apart for it being a pain in my ass.
1)Can vulvodynia affect having children?
2)Have anyone been cured? could you have sex (i can't)
3)What can I do to relieve my pain?
4)Does anyone have IC?
5)Has anyone have surgery? is it successful for you? what have to had done in the surgery?

Thank You Smile Smile

Chelsea1991

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Re: Will vulvodynia runied my life?

Post  IcedTea on Sun Jan 29, 2012 1:51 am

Hey Chelsea,
I can't really give you much advice but I would like to talk because we are around the same age and I feel COMPLETELY alone! I just found out I have vulvodynia and have only been struggling with symptoms for about 2 years (doctors kept telling me it was a yeast infection, just found out 2 months ago it was vulvodynia). I can TRY to answer your questions although I'm still learning alot about vulvodynia and there are different types so we may be experiencing different things.
1) I was very worried about this. My gyno said I can but would need to take an epidermal.
2) I dont think there is a cure although it can be managed. I cannot have sex...my bf and I just broke up 2 days ago because of this and I am completely devastated. However, it severely impacted us pyschologically and we never tried after I began treatments so it may have been better and I just dont know Sad
3) I use a cream called xylocaine and visit a physiotherapist although you should really try to visit a professional to tell you what is best for you!
4)Not sure what IC stands for...
5)Definately haven't had the surgery
I hope that helps a little. And even if it doesnt maybe we could just talk. Also, do you have access to a sexual assault centre? I know that probably sounds scary but I hope you can talk to someone about what you experienced... if you wanted it in the beginning and asked him to stop when it hurt it still counts as assault, he should have stopped because you were no longer giving your consent Sad
All the best Smile

IcedTea

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Re: Will vulvodynia runied my life?

Post  Chelsea1991 on Sun Jan 29, 2012 4:57 pm

Hiya, I know how you feel; I always feel alone but im guess im lucky cos of my bf, maybe you two could get back together i bought up with mine "so he could find someone better" but we got back together within three days. I guess sex dont rule everything Smile maybe there a chance for u 2 just talk to him if u think he worth it. I no how it feels when you feel like crap all the time but you not alone Smile what meds r u on? Im on neurontin i have to increase my dose every 3 days and i can take up to 10 a day till i have "side effects" lol. Im currently on 3 a day and it seems okay, I also got some cream but i have no idea what to use with that because it says external even though she said to use it inside. Where you from? if you dont mind me asking Smile, If you got fb i could add if u want?

xx

Chelsea1991

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Re: Will vulvodynia runied my life?

Post  IcedTea on Mon Jan 30, 2012 4:29 am

I wish we could get back together. We've broken up probably 15 times and been back together in less than a day every time. But this time we have to let go Sad We have a lot of other issues (many messed up situations), we come from different racial, cultural and religious backgrounds, he is older, we both tried our best. We talked for 6 hours yesterday about everything... I love him but its time...we are both too hurt :'( Such a mess!!!! I wish with everything it had worked out!! Crying or Very sad
I'm not on any meds and I probably wont ever take them. I just use the cream and go to physio every couple of weeks.
I'm from Edmonton, Alberta. You?
And I do have FB...you could send your full name in a private message if you would like.

IcedTea

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Re: Will vulvodynia runied my life?

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