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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Will vulvodynia runied my life?

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Will vulvodynia runied my life?

Post  Chelsea1991 on Tue Jan 24, 2012 10:55 am

Hi, Im 20 and I have Just been told i got vulvodynia provoked even though for the past couple years i though i had vaginsmus, anyway i tell you a little about myself, I was three years old when the pain first started i was burning when i went to the toliect which was complety painfull and horribel, i notice as time got it started to get worst and i went to different hospitals and one doctor said " it in your head,relax" and i had a bad experience with a GP where he did a exam on me which ended up feeling like he was ripping me apart it was horribel and then when i was 18 i met someone who i though was nice and he ended up raping me- As i liked at the time i said yeah lets go for sex not realising that my body didnt want me and then once he went inside i almost felt like it was screaming at me and then just like that the pain HIT and i scream at him to get off me but he didnt (some people believes it wasnt rape even though i said no and a normal man would stop), as faith happens i meet the love of my life one month after we started to date but i couldnt get over what happen, but from what i could remember sex wasnt that bad but it all feel like a unreal anyway i started to think about it more and more n than the pain hit me again but this time i wouldnt go away, when i was younger i could never insert a tampon or have a exam done by the GP but i though that "was because i was young" guess i was wrong but i think the doctors might have caused this by giving me frequency use of antibiotic every three days because of the pain that i felt when i went to the toliect (I believe that could be Interstitial cystitis, im going for more test soon hopefully), im sorry about the post but i just needed someone to talk 2 Smile

I was woundering could some people answered my questions please, it would mean alot and i really dont no nothing about this conditional apart for it being a pain in my ass.
1)Can vulvodynia affect having children?
2)Have anyone been cured? could you have sex (i can't)
3)What can I do to relieve my pain?
4)Does anyone have IC?
5)Has anyone have surgery? is it successful for you? what have to had done in the surgery?

Thank You Smile Smile


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Re: Will vulvodynia runied my life?

Post  IcedTea on Sun Jan 29, 2012 1:51 am

Hey Chelsea,
I can't really give you much advice but I would like to talk because we are around the same age and I feel COMPLETELY alone! I just found out I have vulvodynia and have only been struggling with symptoms for about 2 years (doctors kept telling me it was a yeast infection, just found out 2 months ago it was vulvodynia). I can TRY to answer your questions although I'm still learning alot about vulvodynia and there are different types so we may be experiencing different things.
1) I was very worried about this. My gyno said I can but would need to take an epidermal.
2) I dont think there is a cure although it can be managed. I cannot have sex...my bf and I just broke up 2 days ago because of this and I am completely devastated. However, it severely impacted us pyschologically and we never tried after I began treatments so it may have been better and I just dont know Sad
3) I use a cream called xylocaine and visit a physiotherapist although you should really try to visit a professional to tell you what is best for you!
4)Not sure what IC stands for...
5)Definately haven't had the surgery
I hope that helps a little. And even if it doesnt maybe we could just talk. Also, do you have access to a sexual assault centre? I know that probably sounds scary but I hope you can talk to someone about what you experienced... if you wanted it in the beginning and asked him to stop when it hurt it still counts as assault, he should have stopped because you were no longer giving your consent Sad
All the best Smile


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Re: Will vulvodynia runied my life?

Post  Chelsea1991 on Sun Jan 29, 2012 4:57 pm

Hiya, I know how you feel; I always feel alone but im guess im lucky cos of my bf, maybe you two could get back together i bought up with mine "so he could find someone better" but we got back together within three days. I guess sex dont rule everything Smile maybe there a chance for u 2 just talk to him if u think he worth it. I no how it feels when you feel like crap all the time but you not alone Smile what meds r u on? Im on neurontin i have to increase my dose every 3 days and i can take up to 10 a day till i have "side effects" lol. Im currently on 3 a day and it seems okay, I also got some cream but i have no idea what to use with that because it says external even though she said to use it inside. Where you from? if you dont mind me asking Smile, If you got fb i could add if u want?



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Re: Will vulvodynia runied my life?

Post  IcedTea on Mon Jan 30, 2012 4:29 am

I wish we could get back together. We've broken up probably 15 times and been back together in less than a day every time. But this time we have to let go Sad We have a lot of other issues (many messed up situations), we come from different racial, cultural and religious backgrounds, he is older, we both tried our best. We talked for 6 hours yesterday about everything... I love him but its time...we are both too hurt :'( Such a mess!!!! I wish with everything it had worked out!! Crying or Very sad
I'm not on any meds and I probably wont ever take them. I just use the cream and go to physio every couple of weeks.
I'm from Edmonton, Alberta. You?
And I do have FB...you could send your full name in a private message if you would like.


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