Vulvodynia Support
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» Hope to all my suffering ladies
Devastated :( EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Devastated :( EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Devastated :( EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Devastated :( EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Devastated :( EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Devastated :( EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Devastated :( EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Devastated :( EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Devastated :( EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  IcedTea Sun Jan 29, 2012 2:25 am

I'm a 22 year old university student and found out I have localized provoked vulvodynia about 2 months ago. I struggled with symptoms for about 2 years but was repeatedly told by numerous doctors that I just had a yeast infection. I began dating my first boyfriend about a year and a half ago, and completely new to sex, thought pain was normal. But after months of trying I realized something wasn't right. My boyfriend and I struggled for so long thinking it was psychological issues, I wasn't comfortable with him, I wasn't attracted to him even though I knew it wasn't anything like that...I'm completely in love with him. I met a wonderful gyno at my university who referred me to a physiotherapist and I've been working with both to improve my health and sex life. However, my boyfriend was getting increasingly frustrated. He would flip between being incredibly supportive and being extremely unsupportive. Our relationship was an emotional rollercoaster, he would be prince charming in the morning and frustrated, irritable, and angry that night. I think he was as supportive as he could have been but once I began treatment he avoided me at night, avoided intimacy, became very distant. He tells me he loves me but our dysfunctional sex life is consuming his life and tearing us apart. We broke up and got back together numerous times but broke up for good 2 days ago. I'm completely devastated...I feel like I did all I could but perhaps I should have done more? Is he being selfish or was I? I wish with all my heart this had turned out differently and I wouldnt have lost someone I love. I've never experienced a break up and as it was only 2 days ago I realize my thoughts are clouded with emotion but I feel completely devastated, defeated, and lost. I know this is probably for the best and I deserve someone who is willing to support me but I dont even know what good sex is, I didn't understand what our relationship was missing. I feel completely sick about it. I joined this forum to find someone I could relate to...my friends are all virgins or have never had bfs and I dont really have any guy friends to ask for advice. Someone please help me...my heart is in a million pieces!

IcedTea

Posts : 3
Join date : 2012-01-29

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Post  mmorgan Sun Jan 29, 2012 4:36 am

Love isn't all about sex, if you arnt able to have it he should have respected that and accepted that. There was nothing you did wrong! Some men are just selfish. There are some out there who are supportive of this condition and of the women that have it. I would use this as fuel to the fire on keeping up with treatment plans and exploring all options to get better.

Keep your head up,hun. Your a beautiful strong woman, don't ever let a man get you down. Smile
mmorgan
mmorgan

Posts : 65
Join date : 2011-07-14
Age : 35
Location : Texas

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Post  Young aussie girl Thu Feb 02, 2012 12:51 pm

Hi,

I've had some similar experiences with vulvodynia (doctors saying its a yeast infection or whatever else suits them at the time) and similar experiences with my boyfriend. He remains supportive with me but I can see he thinks I am unattracted to him.

What I believe is this: even the most supportive and understanding guy in the world won't comprehend what we're going through unless he (or she,a friend lover mother whatever) has been through something similar.

Furthermore, men, while they will try to be supportive at the end of the day they have sexual needs that aren't being satisfied. Maybe this is cynical of me but I have seen how men are governed by their sexual impulses. It isn't our fault but maybe it isn't their fault either.

Maybe this will be a good thing for you, while you may not see it right now. It gives you an opportunity to focus on helping yourself. Your dysfunctional relationship probably stressed you more emotionally and physically. Maybe when you are in a more positive state you guys can give it another go?

Young aussie girl

Posts : 7
Join date : 2012-02-02

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Post  AroraNightfire Thu Feb 02, 2012 9:20 pm

I agree with Morgan. You will eventually get over him if you havent already. Men are pigs, and selfish! There are nice understanding ones out there. I have been with my bf for the past 5 yrs and he is very understanding about it. He never asks me for sex, instead he asks for a handjob. You will find the right one in time. A respectful man will never push sex on you. He will wait till you are ready. Never ever agree to do something unless your heart and body are telling you too. NEVER have sex with a man just because he wants it! Sex is ment to be enjoyable for both male and female. I dont meant to alarm you. Dont push yourself, you could potentially make it worst.
AroraNightfire
AroraNightfire

Posts : 40
Join date : 2012-01-20
Location : Cape Cod Massachusetts

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