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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Come & Go Vulvdoynia

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Come & Go Vulvdoynia

Post  mmorgan on Wed Jan 25, 2012 6:51 pm

Looks like we are getting new members by the truck load lately. Finally doctors are putting a name to the face (sort to speak) to this awful condition. I just wanted to share my story in hopes to maybe 'click' with some of the newly diagnosed or even some of the older members.

My one year of dealing with the 'V' is coming up (such a said thing when you "celebrate" anniversarys to such an awful thing as this). In August of 2010 I started birth control for the first time and was given Microgestin FE 1.5 to start taking. A few months later in November, I was diagnosed with Herpes (HSV-1). I continued to take my birth control pills but due to breakthrough bleeding Planned Parenthood changed my dosage and I began taking Microgestin 3.0 in February of 2011. April 19,2011 I went to PP(Planned Parenthood) because I thought I was having another herpes outbreak due to some bumps on my vulva, turned out it was just bumps from shaving and was prescribed Metronidazole for BV. I had been overly cleaning and stupidly using anti-bacterial wash on my lady parts along with using body powder to keep the bumps dry which caused the BV. I finished my antibiotics on the 26 of April.
This may seem crazy but I remember the first day this burning sensation began, after a vigorous love making session the next day I was all burny; May 11th is the day hell began (my burning felt like a lighter was to my vulva). I waited a week to see if it would go away on it's own and after to my dismay it didn't I took another trip to PP and she had no clue what was going on, she didn't take a swab she didn't think I had bacteria or yeast, said there was no redness or inflammation. So this dumb lady gave me Phenazopyridine which is just like the pills you take when you have a UTI that turns your pee TOXIC ORANGE in color. Though it did help while taking them, the pills have aspirin in them and my burning usually started after my morning void so when I peed I'm guessing the medicine would soak into my vuvla skin and help me find some relief? So after finishing the 3 pills she gave me for that and the burning still didn't stop I decided to discontinue my birth control usage.
Fast forward to 2 doctors later and both of them trying to give me yeast infection medicine (I declined) after they did not even wait for swab results. I had done tons of research so I already sort of knew what to expect. So about 2 months tops of being off birth control my pain dropped to around 2-3 pain level. (YAY no more lighter feeling!)
November of 2011 I find out I'm pregnant (we were trying), for the first two weeks of my pregnancy I felt so normal. Now my pain returns every once in a while throughout the day. I can't understand how it can just come and go like this. I'm so thankful my pain isn't like it was in the beginning.
So my treatment plan was just to let my body "heal" on it's own, of course everyone's cause is different so what may have worked for me won't for others. After this pregnancy I hope to work off the pain level 2-3 by taking Amtrip. and feel normal again. There is hope and I guarantee just by reading all the stories that are here on this board help me when I'm feeling depressed about Firecrotch. Rolling Eyes
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Re: Come & Go Vulvdoynia

Post  BpCookie on Thu Jan 26, 2012 5:11 pm

Hello Morgan, First I wanted to say that I love your avatar, In a way its similar to mine.

It pains me that your so young and your having to go through this. Its bad enough to have it when your older but when your so young, it must be terrible. So Im wondering and please correct me if Im wrong, the fire crotch thing started to calm down after you became pregnant? If thats the case then perhaps the change in your hormone levels is what helped you. Right now Im perimenopausal and Ive just started using hormone replacement stuff. Im hoping it will help.

By any chance do you have a thyroid issue and or an autoimmune disease? Im trying to figure out what could be causing this and I have read that many women have these other issues along with the vaginosis.

Stay strong and keep well.
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Re: Come & Go Vulvdoynia

Post  mmorgan on Thu Jan 26, 2012 5:56 pm

Yeah times like this sometimes the furry ones help keep the smile going. Smile What's your dogs name?

I stopped the birth control in May a week after the V started, I noticed the pain subside after a month and a half. My date I conceived was in early November so I doubt the initial surge of relief was due to being pregnant as I wasn't yet. After I took my pregnancy test that week and the week before where PAIN FREE, I'm guessing mine really does have to deal with hormones. I would find the most relief when I was on my period, which most ladies here find that the opposite.

I don't have insurance at all but now that I'm pregnant I have medicaid so I had to pay all doctor pills in full before my pregnancy. I haven't had my thyroid checked and as far as I know I don't have any autoimmune disorders. I was perfectly healthy before the herpes and the V. I'm fortunate that I only had the one outbreak, I couldn't imagine what it would be like with an outbreak and the V.

I also found I would get BV if I let my partner cum in me so we cut that out and now so far I'm BV free. KNOCK ON WOOD. The things females have to go through, it's tough! Really tough.

Also my pain spot tends to jump from place to place, it's never in the same place but for a day. I find my V way different then anyone elses here. Sad I have like no one to connect with but I do like supporting those who also feel alone.
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Re: Come & Go Vulvdoynia

Post  BpCookie on Thu Jan 26, 2012 6:52 pm

my fur baby is named Chewy. Whats your babies name? When Im really upset and crying my eyes out my little dog will jump on my lap and give me kisses. Its nice to have something so loving.

About 10 yrs ago I had vaginal warts and had to have them burned off three times. The last time they appeared I asked my Dr. to burn them much deeper and it seemed to work. I do have scaring from it though.

Im so sorry that you feel alone. Its such a tough thing to deal with because its not like we can tell ppl "My vagina burns like Hell so I need to go sit on an ice pack". Ive become a very good actress. When Im around ppl I will TRY to pretend that nothing is wrong but the entire time Im in pain. Sometimes I feel like running down the road naked and screaming "My vagina is killing me!!!!!!! All you men who whine and moan about little things dont know what misery is. So SHUT up!!!". I do still have a sense of humor in all of this. I am also Bipolar so it doesnt help with the depression at all.

We can be a support to each other. Im pretty used to supporting ppl. I have belong to a Bipolar online support group for over 4 years now. It helps me to be able to help others.

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Re: Come & Go Vulvdoynia

Post  mmorgan on Fri Jan 27, 2012 11:18 pm

My squishy faced handsome man's name is Punkie. Smile Sometimes my boyfriend gets upset and jealous of him but hey he was here before he was. LOL.

How far along after the removal before things started?
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Re: Come & Go Vulvdoynia

Post  BpCookie on Sat Jan 28, 2012 4:33 pm

Oh I had the warts removed years before this all started. I would guess I had them removed about 10 yrs ago.
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Re: Come & Go Vulvdoynia

Post  penfebruary on Sat Feb 04, 2012 10:54 am

Hi mmorgan, just wanted to say you're not the only one - I think my V started on about May 20th! And mine also moves around and chops and changes and comes and goes so that its ridiculously exhausting even beginning to try to work out what on earth it's doing!
Anyway was just nice to see a similar person, in a way. Take care x
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Re: Come & Go Vulvdoynia

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