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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

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you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Come & Go Vulvdoynia

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Come & Go Vulvdoynia

Post  mmorgan on Wed Jan 25, 2012 6:51 pm

Looks like we are getting new members by the truck load lately. Finally doctors are putting a name to the face (sort to speak) to this awful condition. I just wanted to share my story in hopes to maybe 'click' with some of the newly diagnosed or even some of the older members.

My one year of dealing with the 'V' is coming up (such a said thing when you "celebrate" anniversarys to such an awful thing as this). In August of 2010 I started birth control for the first time and was given Microgestin FE 1.5 to start taking. A few months later in November, I was diagnosed with Herpes (HSV-1). I continued to take my birth control pills but due to breakthrough bleeding Planned Parenthood changed my dosage and I began taking Microgestin 3.0 in February of 2011. April 19,2011 I went to PP(Planned Parenthood) because I thought I was having another herpes outbreak due to some bumps on my vulva, turned out it was just bumps from shaving and was prescribed Metronidazole for BV. I had been overly cleaning and stupidly using anti-bacterial wash on my lady parts along with using body powder to keep the bumps dry which caused the BV. I finished my antibiotics on the 26 of April.
This may seem crazy but I remember the first day this burning sensation began, after a vigorous love making session the next day I was all burny; May 11th is the day hell began (my burning felt like a lighter was to my vulva). I waited a week to see if it would go away on it's own and after to my dismay it didn't I took another trip to PP and she had no clue what was going on, she didn't take a swab she didn't think I had bacteria or yeast, said there was no redness or inflammation. So this dumb lady gave me Phenazopyridine which is just like the pills you take when you have a UTI that turns your pee TOXIC ORANGE in color. Though it did help while taking them, the pills have aspirin in them and my burning usually started after my morning void so when I peed I'm guessing the medicine would soak into my vuvla skin and help me find some relief? So after finishing the 3 pills she gave me for that and the burning still didn't stop I decided to discontinue my birth control usage.
Fast forward to 2 doctors later and both of them trying to give me yeast infection medicine (I declined) after they did not even wait for swab results. I had done tons of research so I already sort of knew what to expect. So about 2 months tops of being off birth control my pain dropped to around 2-3 pain level. (YAY no more lighter feeling!)
November of 2011 I find out I'm pregnant (we were trying), for the first two weeks of my pregnancy I felt so normal. Now my pain returns every once in a while throughout the day. I can't understand how it can just come and go like this. I'm so thankful my pain isn't like it was in the beginning.
So my treatment plan was just to let my body "heal" on it's own, of course everyone's cause is different so what may have worked for me won't for others. After this pregnancy I hope to work off the pain level 2-3 by taking Amtrip. and feel normal again. There is hope and I guarantee just by reading all the stories that are here on this board help me when I'm feeling depressed about Firecrotch. Rolling Eyes
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Re: Come & Go Vulvdoynia

Post  BpCookie on Thu Jan 26, 2012 5:11 pm

Hello Morgan, First I wanted to say that I love your avatar, In a way its similar to mine.

It pains me that your so young and your having to go through this. Its bad enough to have it when your older but when your so young, it must be terrible. So Im wondering and please correct me if Im wrong, the fire crotch thing started to calm down after you became pregnant? If thats the case then perhaps the change in your hormone levels is what helped you. Right now Im perimenopausal and Ive just started using hormone replacement stuff. Im hoping it will help.

By any chance do you have a thyroid issue and or an autoimmune disease? Im trying to figure out what could be causing this and I have read that many women have these other issues along with the vaginosis.

Stay strong and keep well.
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Re: Come & Go Vulvdoynia

Post  mmorgan on Thu Jan 26, 2012 5:56 pm

Yeah times like this sometimes the furry ones help keep the smile going. Smile What's your dogs name?

I stopped the birth control in May a week after the V started, I noticed the pain subside after a month and a half. My date I conceived was in early November so I doubt the initial surge of relief was due to being pregnant as I wasn't yet. After I took my pregnancy test that week and the week before where PAIN FREE, I'm guessing mine really does have to deal with hormones. I would find the most relief when I was on my period, which most ladies here find that the opposite.

I don't have insurance at all but now that I'm pregnant I have medicaid so I had to pay all doctor pills in full before my pregnancy. I haven't had my thyroid checked and as far as I know I don't have any autoimmune disorders. I was perfectly healthy before the herpes and the V. I'm fortunate that I only had the one outbreak, I couldn't imagine what it would be like with an outbreak and the V.

I also found I would get BV if I let my partner cum in me so we cut that out and now so far I'm BV free. KNOCK ON WOOD. The things females have to go through, it's tough! Really tough.

Also my pain spot tends to jump from place to place, it's never in the same place but for a day. I find my V way different then anyone elses here. Sad I have like no one to connect with but I do like supporting those who also feel alone.
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Re: Come & Go Vulvdoynia

Post  BpCookie on Thu Jan 26, 2012 6:52 pm

my fur baby is named Chewy. Whats your babies name? When Im really upset and crying my eyes out my little dog will jump on my lap and give me kisses. Its nice to have something so loving.

About 10 yrs ago I had vaginal warts and had to have them burned off three times. The last time they appeared I asked my Dr. to burn them much deeper and it seemed to work. I do have scaring from it though.

Im so sorry that you feel alone. Its such a tough thing to deal with because its not like we can tell ppl "My vagina burns like Hell so I need to go sit on an ice pack". Ive become a very good actress. When Im around ppl I will TRY to pretend that nothing is wrong but the entire time Im in pain. Sometimes I feel like running down the road naked and screaming "My vagina is killing me!!!!!!! All you men who whine and moan about little things dont know what misery is. So SHUT up!!!". I do still have a sense of humor in all of this. I am also Bipolar so it doesnt help with the depression at all.

We can be a support to each other. Im pretty used to supporting ppl. I have belong to a Bipolar online support group for over 4 years now. It helps me to be able to help others.

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Re: Come & Go Vulvdoynia

Post  mmorgan on Fri Jan 27, 2012 11:18 pm

My squishy faced handsome man's name is Punkie. Smile Sometimes my boyfriend gets upset and jealous of him but hey he was here before he was. LOL.

How far along after the removal before things started?
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Re: Come & Go Vulvdoynia

Post  BpCookie on Sat Jan 28, 2012 4:33 pm

Oh I had the warts removed years before this all started. I would guess I had them removed about 10 yrs ago.
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Re: Come & Go Vulvdoynia

Post  penfebruary on Sat Feb 04, 2012 10:54 am

Hi mmorgan, just wanted to say you're not the only one - I think my V started on about May 20th! And mine also moves around and chops and changes and comes and goes so that its ridiculously exhausting even beginning to try to work out what on earth it's doing!
Anyway was just nice to see a similar person, in a way. Take care x
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Re: Come & Go Vulvdoynia

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