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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


gyno suggests nerve dr out of state

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gyno suggests nerve dr out of state

Post  AroraNightfire on Thu Jan 26, 2012 12:24 am

I live in massachussetts. Today I went to see my pain gyno as I do every 3months. She told me that she's given me the names of some drs in new hampshire that are the heads of pudendal neuralgia. She said I need to see them. I told her I spoke to their office and they don't accept mass insurance. I spoke to my insurance company and they said they wont cover me to see him because I could see other drs in mass. To see him I would pay 500 dollars just talk and botox would cost 1000 dollars a shot. So she told me I need to make an appeal to my insurance company. She wouls write a letter as well. I really don't want to get on the phone with my insurance company because I know its going to be a fucking battle on the phone. I have been seeing another dr in mass who did a nerve block on me which did nothing for me, she isn't qualified for vaginal botox. What the fuck do I do? Im 27 and Ive been suffering for 9yrs now....frozen gelpacks are the only thing that helps me right away for a few minutes. Lyrica and cymbalta are becoming increasingly expensive. Help me please.

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Re: gyno suggests nerve dr out of state

Post  BpCookie on Thu Jan 26, 2012 5:47 pm

Hun, I understand your frustration with your ins. company. Mine are a bunch of jerks who dont want to cover anything. I was supposed to get pelvic therapy but my ins. wont cover it because my LSC isnt acute. So I guess I have to wait until it becomes acute. Ins. company's are ridiculous.

I use the ice packs also. Have you tried Amatryptiline ointment yet? It numbs the skin. Its not perfect cause it doesnt numb it enough but its better than nothing. You could also try A and D ointment, Emu ointment, Tea tree oil, vitamin E oil, olive oil and any other kind of oil that you can think of. Just make sure you read the ingredience first to make sure there is no alcohol, fragrance or paraphen (sp) in it.

Good luck to you.
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i hate creams

Post  AroraNightfire on Tue Jan 31, 2012 6:49 pm

I used a skin thinning steroid cream for 2 yrs because I had a chronic itch the dr said it was vulvar dystrofy. Sept 2010 I had to stop the cream because the symptoms mutated from itch to constant burning pain. Since then I don't feel comfortable using anything that will damage my skin. I also had a pelvis mri with nerve imaging that showed I have scar tissue on my vulvar fat tissue. I often wonder if that cream was the culprit.

Rubbing the area causes an uncomfortable after sensation. Its as if my skin is still being touched and then it feels really raw. The only thing that helps is cold water and frozen gelpacks. Its a constantly project everytime I pee....the water then the gelpack. Its annoying but necessary. I really hope this dr in NH can help me.

I called his office yesterday and they told me for pain he does a consultation over the phone. In 2 to 4 weeks he's going to call me. Im thinking I should get my gyno to send him my pelvic mri and I should send him all my recorded drs appointments.
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Re: gyno suggests nerve dr out of state

Post  BpCookie on Wed Feb 01, 2012 4:03 pm

My Dr. gave me that steroid thinning ointment also. I have to use it twice a day. It worries me because Im afraid that the skin will become too thin and then I will have the opposite problem. Im going to have my Gyno do another skin biopsy because I want to make sure that nothing else is going on down there.

Good luck to you and I hope that nerve Dr. can help. I went to one and he said that he couldnt do anything for me. uuuggghhhh
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courage

Post  AroraNightfire on Wed Feb 01, 2012 9:30 pm

Ladies we all suffer and often encounter drs who don't know how to help. One thing I know is we all must have faith persistence and courage. Never loose hope that someday someone will have the solution to your problem. If the dr is a good one they will find the solution.

I went to my anastheseologist today. She begged for me to try the dmso gel. She told I could even put it in the fridge if the cold will help. She says its not harmful. Im putting my faith in her. I asked her to change my cymbalta to vicodine. So now im just on lyrica and vicodine. I have no idea how the vicodine will effect me. I just need something stronger.
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