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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


gyno suggests nerve dr out of state

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gyno suggests nerve dr out of state

Post  AroraNightfire on Thu Jan 26, 2012 12:24 am

I live in massachussetts. Today I went to see my pain gyno as I do every 3months. She told me that she's given me the names of some drs in new hampshire that are the heads of pudendal neuralgia. She said I need to see them. I told her I spoke to their office and they don't accept mass insurance. I spoke to my insurance company and they said they wont cover me to see him because I could see other drs in mass. To see him I would pay 500 dollars just talk and botox would cost 1000 dollars a shot. So she told me I need to make an appeal to my insurance company. She wouls write a letter as well. I really don't want to get on the phone with my insurance company because I know its going to be a fucking battle on the phone. I have been seeing another dr in mass who did a nerve block on me which did nothing for me, she isn't qualified for vaginal botox. What the fuck do I do? Im 27 and Ive been suffering for 9yrs now....frozen gelpacks are the only thing that helps me right away for a few minutes. Lyrica and cymbalta are becoming increasingly expensive. Help me please.

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AroraNightfire

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Re: gyno suggests nerve dr out of state

Post  BpCookie on Thu Jan 26, 2012 5:47 pm

Hun, I understand your frustration with your ins. company. Mine are a bunch of jerks who dont want to cover anything. I was supposed to get pelvic therapy but my ins. wont cover it because my LSC isnt acute. So I guess I have to wait until it becomes acute. Ins. company's are ridiculous.

I use the ice packs also. Have you tried Amatryptiline ointment yet? It numbs the skin. Its not perfect cause it doesnt numb it enough but its better than nothing. You could also try A and D ointment, Emu ointment, Tea tree oil, vitamin E oil, olive oil and any other kind of oil that you can think of. Just make sure you read the ingredience first to make sure there is no alcohol, fragrance or paraphen (sp) in it.

Good luck to you.
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i hate creams

Post  AroraNightfire on Tue Jan 31, 2012 6:49 pm

I used a skin thinning steroid cream for 2 yrs because I had a chronic itch the dr said it was vulvar dystrofy. Sept 2010 I had to stop the cream because the symptoms mutated from itch to constant burning pain. Since then I don't feel comfortable using anything that will damage my skin. I also had a pelvis mri with nerve imaging that showed I have scar tissue on my vulvar fat tissue. I often wonder if that cream was the culprit.

Rubbing the area causes an uncomfortable after sensation. Its as if my skin is still being touched and then it feels really raw. The only thing that helps is cold water and frozen gelpacks. Its a constantly project everytime I pee....the water then the gelpack. Its annoying but necessary. I really hope this dr in NH can help me.

I called his office yesterday and they told me for pain he does a consultation over the phone. In 2 to 4 weeks he's going to call me. Im thinking I should get my gyno to send him my pelvic mri and I should send him all my recorded drs appointments.
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Re: gyno suggests nerve dr out of state

Post  BpCookie on Wed Feb 01, 2012 4:03 pm

My Dr. gave me that steroid thinning ointment also. I have to use it twice a day. It worries me because Im afraid that the skin will become too thin and then I will have the opposite problem. Im going to have my Gyno do another skin biopsy because I want to make sure that nothing else is going on down there.

Good luck to you and I hope that nerve Dr. can help. I went to one and he said that he couldnt do anything for me. uuuggghhhh
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courage

Post  AroraNightfire on Wed Feb 01, 2012 9:30 pm

Ladies we all suffer and often encounter drs who don't know how to help. One thing I know is we all must have faith persistence and courage. Never loose hope that someday someone will have the solution to your problem. If the dr is a good one they will find the solution.

I went to my anastheseologist today. She begged for me to try the dmso gel. She told I could even put it in the fridge if the cold will help. She says its not harmful. Im putting my faith in her. I asked her to change my cymbalta to vicodine. So now im just on lyrica and vicodine. I have no idea how the vicodine will effect me. I just need something stronger.
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Re: gyno suggests nerve dr out of state

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