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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Devastated :(

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Devastated :(

Post  IcedTea on Sun Jan 29, 2012 2:25 am

I'm a 22 year old university student and found out I have localized provoked vulvodynia about 2 months ago. I struggled with symptoms for about 2 years but was repeatedly told by numerous doctors that I just had a yeast infection. I began dating my first boyfriend about a year and a half ago, and completely new to sex, thought pain was normal. But after months of trying I realized something wasn't right. My boyfriend and I struggled for so long thinking it was psychological issues, I wasn't comfortable with him, I wasn't attracted to him even though I knew it wasn't anything like that...I'm completely in love with him. I met a wonderful gyno at my university who referred me to a physiotherapist and I've been working with both to improve my health and sex life. However, my boyfriend was getting increasingly frustrated. He would flip between being incredibly supportive and being extremely unsupportive. Our relationship was an emotional rollercoaster, he would be prince charming in the morning and frustrated, irritable, and angry that night. I think he was as supportive as he could have been but once I began treatment he avoided me at night, avoided intimacy, became very distant. He tells me he loves me but our dysfunctional sex life is consuming his life and tearing us apart. We broke up and got back together numerous times but broke up for good 2 days ago. I'm completely devastated...I feel like I did all I could but perhaps I should have done more? Is he being selfish or was I? I wish with all my heart this had turned out differently and I wouldnt have lost someone I love. I've never experienced a break up and as it was only 2 days ago I realize my thoughts are clouded with emotion but I feel completely devastated, defeated, and lost. I know this is probably for the best and I deserve someone who is willing to support me but I dont even know what good sex is, I didn't understand what our relationship was missing. I feel completely sick about it. I joined this forum to find someone I could relate to...my friends are all virgins or have never had bfs and I dont really have any guy friends to ask for advice. Someone please help me...my heart is in a million pieces!

IcedTea

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Re: Devastated :(

Post  mmorgan on Sun Jan 29, 2012 4:36 am

Love isn't all about sex, if you arnt able to have it he should have respected that and accepted that. There was nothing you did wrong! Some men are just selfish. There are some out there who are supportive of this condition and of the women that have it. I would use this as fuel to the fire on keeping up with treatment plans and exploring all options to get better.

Keep your head up,hun. Your a beautiful strong woman, don't ever let a man get you down. Smile
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Re: Devastated :(

Post  Young aussie girl on Thu Feb 02, 2012 12:51 pm

Hi,

I've had some similar experiences with vulvodynia (doctors saying its a yeast infection or whatever else suits them at the time) and similar experiences with my boyfriend. He remains supportive with me but I can see he thinks I am unattracted to him.

What I believe is this: even the most supportive and understanding guy in the world won't comprehend what we're going through unless he (or she,a friend lover mother whatever) has been through something similar.

Furthermore, men, while they will try to be supportive at the end of the day they have sexual needs that aren't being satisfied. Maybe this is cynical of me but I have seen how men are governed by their sexual impulses. It isn't our fault but maybe it isn't their fault either.

Maybe this will be a good thing for you, while you may not see it right now. It gives you an opportunity to focus on helping yourself. Your dysfunctional relationship probably stressed you more emotionally and physically. Maybe when you are in a more positive state you guys can give it another go?

Young aussie girl

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Things will look up

Post  AroraNightfire on Thu Feb 02, 2012 9:20 pm

I agree with Morgan. You will eventually get over him if you havent already. Men are pigs, and selfish! There are nice understanding ones out there. I have been with my bf for the past 5 yrs and he is very understanding about it. He never asks me for sex, instead he asks for a handjob. You will find the right one in time. A respectful man will never push sex on you. He will wait till you are ready. Never ever agree to do something unless your heart and body are telling you too. NEVER have sex with a man just because he wants it! Sex is ment to be enjoyable for both male and female. I dont meant to alarm you. Dont push yourself, you could potentially make it worst.
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Re: Devastated :(

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