Log in

I forgot my password

Similar topics
    Latest topics
    » What's next?
    Yesterday at 4:01 pm by jennyk2

    » Pain management - what works for me
    Yesterday at 3:41 pm by Jo44

    » Share your Vulvodynia Story and become a member of the Global Anthology!
    Mon Apr 23, 2018 10:44 pm by smyerskelley

    » If it helps anyone else
    Mon Apr 23, 2018 6:36 pm by VH7797

    » Cured, cyst in foot
    Mon Apr 23, 2018 4:06 pm by Guest

    » HELP!! Topical cream?
    Sun Apr 22, 2018 5:44 pm by emalita

    » The pain CAN get better - What's worked for me
    Sun Apr 22, 2018 5:32 pm by emalita

    » Custom made leggings?
    Sun Apr 22, 2018 4:52 am by CatJones

    » Please tell me this can get better
    Sun Apr 15, 2018 11:31 am by amf329

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 4

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 3

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 14

    Lidocaine with condoms?

    Wed Mar 21, 2018 10:44 pm by AEM1

    Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
    Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

    Comments: 1

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 23

    Recently Diagnosed which has motivated my research study

    Tue Mar 06, 2018 4:54 pm by ebclose2free

    Hi everyone,

    My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

    Comments: 0

    MAY HAVE FOUND A CURE- PLEASE READ

    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


    after having a vestibulectomy with no success, I decided to visit …

    Comments: 3

    New and desperate for advice

    Sat Mar 03, 2018 2:37 pm by srbry

    Hi everyone,

    I'm new here and was told to find a support group because this is all getting a bit much really...

    I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

    Comments: 3


    Devastated :(

    Go down

    Devastated :(

    Post  IcedTea on Sun Jan 29, 2012 2:25 am

    I'm a 22 year old university student and found out I have localized provoked vulvodynia about 2 months ago. I struggled with symptoms for about 2 years but was repeatedly told by numerous doctors that I just had a yeast infection. I began dating my first boyfriend about a year and a half ago, and completely new to sex, thought pain was normal. But after months of trying I realized something wasn't right. My boyfriend and I struggled for so long thinking it was psychological issues, I wasn't comfortable with him, I wasn't attracted to him even though I knew it wasn't anything like that...I'm completely in love with him. I met a wonderful gyno at my university who referred me to a physiotherapist and I've been working with both to improve my health and sex life. However, my boyfriend was getting increasingly frustrated. He would flip between being incredibly supportive and being extremely unsupportive. Our relationship was an emotional rollercoaster, he would be prince charming in the morning and frustrated, irritable, and angry that night. I think he was as supportive as he could have been but once I began treatment he avoided me at night, avoided intimacy, became very distant. He tells me he loves me but our dysfunctional sex life is consuming his life and tearing us apart. We broke up and got back together numerous times but broke up for good 2 days ago. I'm completely devastated...I feel like I did all I could but perhaps I should have done more? Is he being selfish or was I? I wish with all my heart this had turned out differently and I wouldnt have lost someone I love. I've never experienced a break up and as it was only 2 days ago I realize my thoughts are clouded with emotion but I feel completely devastated, defeated, and lost. I know this is probably for the best and I deserve someone who is willing to support me but I dont even know what good sex is, I didn't understand what our relationship was missing. I feel completely sick about it. I joined this forum to find someone I could relate to...my friends are all virgins or have never had bfs and I dont really have any guy friends to ask for advice. Someone please help me...my heart is in a million pieces!

    IcedTea

    Posts : 3
    Join date : 2012-01-29

    View user profile

    Back to top Go down

    Re: Devastated :(

    Post  mmorgan on Sun Jan 29, 2012 4:36 am

    Love isn't all about sex, if you arnt able to have it he should have respected that and accepted that. There was nothing you did wrong! Some men are just selfish. There are some out there who are supportive of this condition and of the women that have it. I would use this as fuel to the fire on keeping up with treatment plans and exploring all options to get better.

    Keep your head up,hun. Your a beautiful strong woman, don't ever let a man get you down. Smile
    avatar
    mmorgan

    Posts : 65
    Join date : 2011-07-14
    Age : 29
    Location : Texas

    View user profile

    Back to top Go down

    Re: Devastated :(

    Post  Young aussie girl on Thu Feb 02, 2012 12:51 pm

    Hi,

    I've had some similar experiences with vulvodynia (doctors saying its a yeast infection or whatever else suits them at the time) and similar experiences with my boyfriend. He remains supportive with me but I can see he thinks I am unattracted to him.

    What I believe is this: even the most supportive and understanding guy in the world won't comprehend what we're going through unless he (or she,a friend lover mother whatever) has been through something similar.

    Furthermore, men, while they will try to be supportive at the end of the day they have sexual needs that aren't being satisfied. Maybe this is cynical of me but I have seen how men are governed by their sexual impulses. It isn't our fault but maybe it isn't their fault either.

    Maybe this will be a good thing for you, while you may not see it right now. It gives you an opportunity to focus on helping yourself. Your dysfunctional relationship probably stressed you more emotionally and physically. Maybe when you are in a more positive state you guys can give it another go?

    Young aussie girl

    Posts : 7
    Join date : 2012-02-02

    View user profile

    Back to top Go down

    Things will look up

    Post  AroraNightfire on Thu Feb 02, 2012 9:20 pm

    I agree with Morgan. You will eventually get over him if you havent already. Men are pigs, and selfish! There are nice understanding ones out there. I have been with my bf for the past 5 yrs and he is very understanding about it. He never asks me for sex, instead he asks for a handjob. You will find the right one in time. A respectful man will never push sex on you. He will wait till you are ready. Never ever agree to do something unless your heart and body are telling you too. NEVER have sex with a man just because he wants it! Sex is ment to be enjoyable for both male and female. I dont meant to alarm you. Dont push yourself, you could potentially make it worst.
    avatar
    AroraNightfire

    Posts : 40
    Join date : 2012-01-20
    Location : Cape Cod Massachusetts

    View user profile

    Back to top Go down

    Re: Devastated :(

    Post  Sponsored content


    Sponsored content


    Back to top Go down

    Back to top

    - Similar topics

     
    Permissions in this forum:
    You cannot reply to topics in this forum