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    » Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
    Yesterday at 8:15 pm by WVR00

    » What helped (and practically cured) my Vulvodynia
    Yesterday at 4:43 pm by Katiej

    » How I cured my Vulvodynia!
    Yesterday at 8:24 am by Katiej

    » Amitriptyline given for vulvodyina pain
    Sat Nov 18, 2017 11:33 pm by WVR00

    » Needing some reassurance
    Sat Nov 18, 2017 12:28 pm by Katiej

    » Amitriptyline Success and new-found love
    Sat Nov 18, 2017 12:24 pm by Katiej

    » New diagnosis, any advice whilst I wait for a specialist
    Sat Nov 18, 2017 3:57 am by jungleclover

    » Vestibulectomy today and no pain
    Fri Nov 17, 2017 3:28 pm by Dsrt16

    » vestibulectomy success
    Thu Nov 16, 2017 12:41 am by Hopeitworks

    Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

    Mon Nov 20, 2017 8:15 pm by WVR00

    Hello,
    Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

    Comments: 0

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 3

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules

    Hi,

    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 1

    Vulvodynia help

    Tue Nov 14, 2017 4:27 pm by Katiej

    Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

    Comments: 3

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 4

    Newly diagnosed

    Tue Oct 10, 2017 8:37 pm by Brevispink

    Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

    Comments: 9

    Recent "Poke" Pain - So Confused/Losing My Mind

    Thu Oct 12, 2017 9:26 am by kelseybeth23

    Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

    Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

    Comments: 5

    Does anyone else experience this?

    Sat Oct 14, 2017 5:21 pm by Angelmegs

    Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

    Comments: 0

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 4


    Devastated :(

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    Devastated :(

    Post  IcedTea on Sun Jan 29, 2012 2:25 am

    I'm a 22 year old university student and found out I have localized provoked vulvodynia about 2 months ago. I struggled with symptoms for about 2 years but was repeatedly told by numerous doctors that I just had a yeast infection. I began dating my first boyfriend about a year and a half ago, and completely new to sex, thought pain was normal. But after months of trying I realized something wasn't right. My boyfriend and I struggled for so long thinking it was psychological issues, I wasn't comfortable with him, I wasn't attracted to him even though I knew it wasn't anything like that...I'm completely in love with him. I met a wonderful gyno at my university who referred me to a physiotherapist and I've been working with both to improve my health and sex life. However, my boyfriend was getting increasingly frustrated. He would flip between being incredibly supportive and being extremely unsupportive. Our relationship was an emotional rollercoaster, he would be prince charming in the morning and frustrated, irritable, and angry that night. I think he was as supportive as he could have been but once I began treatment he avoided me at night, avoided intimacy, became very distant. He tells me he loves me but our dysfunctional sex life is consuming his life and tearing us apart. We broke up and got back together numerous times but broke up for good 2 days ago. I'm completely devastated...I feel like I did all I could but perhaps I should have done more? Is he being selfish or was I? I wish with all my heart this had turned out differently and I wouldnt have lost someone I love. I've never experienced a break up and as it was only 2 days ago I realize my thoughts are clouded with emotion but I feel completely devastated, defeated, and lost. I know this is probably for the best and I deserve someone who is willing to support me but I dont even know what good sex is, I didn't understand what our relationship was missing. I feel completely sick about it. I joined this forum to find someone I could relate to...my friends are all virgins or have never had bfs and I dont really have any guy friends to ask for advice. Someone please help me...my heart is in a million pieces!

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    Re: Devastated :(

    Post  mmorgan on Sun Jan 29, 2012 4:36 am

    Love isn't all about sex, if you arnt able to have it he should have respected that and accepted that. There was nothing you did wrong! Some men are just selfish. There are some out there who are supportive of this condition and of the women that have it. I would use this as fuel to the fire on keeping up with treatment plans and exploring all options to get better.

    Keep your head up,hun. Your a beautiful strong woman, don't ever let a man get you down. Smile
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    Re: Devastated :(

    Post  Young aussie girl on Thu Feb 02, 2012 12:51 pm

    Hi,

    I've had some similar experiences with vulvodynia (doctors saying its a yeast infection or whatever else suits them at the time) and similar experiences with my boyfriend. He remains supportive with me but I can see he thinks I am unattracted to him.

    What I believe is this: even the most supportive and understanding guy in the world won't comprehend what we're going through unless he (or she,a friend lover mother whatever) has been through something similar.

    Furthermore, men, while they will try to be supportive at the end of the day they have sexual needs that aren't being satisfied. Maybe this is cynical of me but I have seen how men are governed by their sexual impulses. It isn't our fault but maybe it isn't their fault either.

    Maybe this will be a good thing for you, while you may not see it right now. It gives you an opportunity to focus on helping yourself. Your dysfunctional relationship probably stressed you more emotionally and physically. Maybe when you are in a more positive state you guys can give it another go?

    Young aussie girl

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    Things will look up

    Post  AroraNightfire on Thu Feb 02, 2012 9:20 pm

    I agree with Morgan. You will eventually get over him if you havent already. Men are pigs, and selfish! There are nice understanding ones out there. I have been with my bf for the past 5 yrs and he is very understanding about it. He never asks me for sex, instead he asks for a handjob. You will find the right one in time. A respectful man will never push sex on you. He will wait till you are ready. Never ever agree to do something unless your heart and body are telling you too. NEVER have sex with a man just because he wants it! Sex is ment to be enjoyable for both male and female. I dont meant to alarm you. Dont push yourself, you could potentially make it worst.
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    Re: Devastated :(

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