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    » Acupuncture advice please
    Today at 2:25 am by ryn207

    » New and need some help
    Today at 12:49 am by Sad

    » Please tell me this can get better
    Mon Feb 19, 2018 2:10 am by anon99

    » Lichen Sclerosus
    Fri Feb 16, 2018 2:47 am by ryn207

    » MAY HAVE FOUND A CURE- PLEASE READ
    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    » my rock bottom, psychological effects of vulvodynia, I told him he can leave me
    Wed Feb 14, 2018 6:43 am by renegade_magdalena

    » Some interesting information about nerve pain in general
    Wed Feb 14, 2018 3:58 am by Athena

    » Sore after using dilator for first time in a year
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    » What helped me
    Wed Feb 14, 2018 3:38 am by Athena

    New and need some help

    Wed Feb 21, 2018 4:30 pm by LindafromNJ

    New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

    Comments: 1

    MAY HAVE FOUND A CURE- PLEASE READ

    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


    after having a vestibulectomy with no success, I decided to visit …

    Comments: 0

    NO PAIN DURING SEX

    Sat Feb 10, 2018 12:18 am by rockylife

    I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

    Comments: 2

    Newby not sure where to turn

    Thu Feb 01, 2018 3:32 pm by Cerjo87

    Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



    Comments: 8

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 4

    Vulvodynia from #metoo media coverage

    Thu Jan 25, 2018 9:01 pm by dooleyhornberg

    I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

    Comments: 0

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4


    Devastated :(

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    Devastated :(

    Post  IcedTea on Sun Jan 29, 2012 2:25 am

    I'm a 22 year old university student and found out I have localized provoked vulvodynia about 2 months ago. I struggled with symptoms for about 2 years but was repeatedly told by numerous doctors that I just had a yeast infection. I began dating my first boyfriend about a year and a half ago, and completely new to sex, thought pain was normal. But after months of trying I realized something wasn't right. My boyfriend and I struggled for so long thinking it was psychological issues, I wasn't comfortable with him, I wasn't attracted to him even though I knew it wasn't anything like that...I'm completely in love with him. I met a wonderful gyno at my university who referred me to a physiotherapist and I've been working with both to improve my health and sex life. However, my boyfriend was getting increasingly frustrated. He would flip between being incredibly supportive and being extremely unsupportive. Our relationship was an emotional rollercoaster, he would be prince charming in the morning and frustrated, irritable, and angry that night. I think he was as supportive as he could have been but once I began treatment he avoided me at night, avoided intimacy, became very distant. He tells me he loves me but our dysfunctional sex life is consuming his life and tearing us apart. We broke up and got back together numerous times but broke up for good 2 days ago. I'm completely devastated...I feel like I did all I could but perhaps I should have done more? Is he being selfish or was I? I wish with all my heart this had turned out differently and I wouldnt have lost someone I love. I've never experienced a break up and as it was only 2 days ago I realize my thoughts are clouded with emotion but I feel completely devastated, defeated, and lost. I know this is probably for the best and I deserve someone who is willing to support me but I dont even know what good sex is, I didn't understand what our relationship was missing. I feel completely sick about it. I joined this forum to find someone I could relate to...my friends are all virgins or have never had bfs and I dont really have any guy friends to ask for advice. Someone please help me...my heart is in a million pieces!

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    Re: Devastated :(

    Post  mmorgan on Sun Jan 29, 2012 4:36 am

    Love isn't all about sex, if you arnt able to have it he should have respected that and accepted that. There was nothing you did wrong! Some men are just selfish. There are some out there who are supportive of this condition and of the women that have it. I would use this as fuel to the fire on keeping up with treatment plans and exploring all options to get better.

    Keep your head up,hun. Your a beautiful strong woman, don't ever let a man get you down. Smile
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    Re: Devastated :(

    Post  Young aussie girl on Thu Feb 02, 2012 12:51 pm

    Hi,

    I've had some similar experiences with vulvodynia (doctors saying its a yeast infection or whatever else suits them at the time) and similar experiences with my boyfriend. He remains supportive with me but I can see he thinks I am unattracted to him.

    What I believe is this: even the most supportive and understanding guy in the world won't comprehend what we're going through unless he (or she,a friend lover mother whatever) has been through something similar.

    Furthermore, men, while they will try to be supportive at the end of the day they have sexual needs that aren't being satisfied. Maybe this is cynical of me but I have seen how men are governed by their sexual impulses. It isn't our fault but maybe it isn't their fault either.

    Maybe this will be a good thing for you, while you may not see it right now. It gives you an opportunity to focus on helping yourself. Your dysfunctional relationship probably stressed you more emotionally and physically. Maybe when you are in a more positive state you guys can give it another go?

    Young aussie girl

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    Things will look up

    Post  AroraNightfire on Thu Feb 02, 2012 9:20 pm

    I agree with Morgan. You will eventually get over him if you havent already. Men are pigs, and selfish! There are nice understanding ones out there. I have been with my bf for the past 5 yrs and he is very understanding about it. He never asks me for sex, instead he asks for a handjob. You will find the right one in time. A respectful man will never push sex on you. He will wait till you are ready. Never ever agree to do something unless your heart and body are telling you too. NEVER have sex with a man just because he wants it! Sex is ment to be enjoyable for both male and female. I dont meant to alarm you. Dont push yourself, you could potentially make it worst.
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    Re: Devastated :(

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