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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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SEX!! For the first time in 13 months!

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SEX!! For the first time in 13 months!

Post  JemimaSurrender on Mon Jan 30, 2012 11:35 am

My, oh my! After 13 months of celebacy, my boyfriend and I finally managed to have sex over the weekend!

I am SO excited!! We've always done everything else we can (in the bedroom) so have always got by, but nothing beats the real thing, does it?

I've no idea how it was possible either. Sex has been completely off limits (mostly inforced by him!) until I was better, but it just kind of happened this time round.

Usually even with oral sex it can sometimes burn a bit, but never too much, and certainly not to the point where it's unbearable, nowhere near infact, so sex was completely out of the question as it's nothing short of agony. Sometimes I'm near to tears it hurts so much and it's just not worth it.

But amazingly it just seemed to be okay, even without me using the Instillagel which I don't understand at all. I'm sure the symptoms are no better, and I've no doubt it was still hurting somewhat, but I think the adrenaline took over and I didn't feel it. It was utterly fantastic and I'm still on such a high from it!

I am sooooooo happy. I'm a bit nervous that it was just a one off, and that now the excitement of being able to do it will wear thin and that next time I'll just be thinking the whole time "Oo is it going to hurt this time" and thus it will hurt as a result of me thinking and worrying. But even if it was a one off, one in 13 months is nothing to scoff at!

Absolute elation!

JemimaSurrender

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Re: SEX!! For the first time in 13 months!

Post  BpCookie on Mon Jan 30, 2012 5:11 pm

That is wonderful news, it truly is. I know how you feel cause I was just able to have sex again also. I had this amazing high afterwards. I was so happy. It kinda happened like yours did, just out of the blue. I used a boat load of lube and I was the one in control. I figured if it started to hurt then we could stop. It did burn a little but not much and there was a very slight slicing pain but nothing major. I was brave enough to try it again this weekend and once again I was able to do it. Its like a miracle huh?

Try not to worry about it hurting the next time. You be the one in control, go slow and explain to your b/f that if it hurts then you will have to stop. You may want to get a syringe/plunger type thingy, the kind you use when your inserting YI cream and put KY in that and insert a bunch of it inside, that may help also.

Im very happy for you and I know that its a big deal. *Cookie jumps up and down, cheers, shoots off fire works*. Good luck next time. Very Happy hugs
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Re: SEX!! For the first time in 13 months!

Post  JemimaSurrender on Tue Jan 31, 2012 1:31 am

Ahhh, it's all so exciting! Even if it's a one off (which will be annoying) I'm still so pleased to have had one shot at it. You forget how much of it you've missed!

I'll keep my fingers crossed for the both of us, and all you others who are missing it at the minute too!

JemimaSurrender

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Re: SEX!! For the first time in 13 months!

Post  BpCookie on Tue Jan 31, 2012 3:48 pm

Hey, I just noticed that your in the UK. My husband is from Coventry England, do you know it? We met on line in a chat room when he was living in England and I was living in the states.
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BpCookie

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Re: SEX!! For the first time in 13 months!

Post  JemimaSurrender on Tue Jan 31, 2012 4:15 pm

Yeah it's not far from me! It's about a 40 minute drive actually. Did he move over to the States for you? Fairy tale!

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Re: SEX!! For the first time in 13 months!

Post  BpCookie on Wed Feb 01, 2012 4:27 pm

yup, he moved over here for me. We fell in love over the internet before we had even seen each other. When he flew over to see me for the first time, we went on a little vacation and he asked me to marry him three days later. Unfortunately he had to fly back to England and stay there for quite a long time. But eventually he was able to move here and we married and have been married now for 12 yrs. Very fairy tale story-ish Very Happy
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Re: SEX!! For the first time in 13 months!

Post  JemimaSurrender on Wed Feb 01, 2012 7:08 pm

Aww, that's lovely! It's so rare to find too, you're so lucky.

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Re: SEX!! For the first time in 13 months!

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