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» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» What's next?
Sat Apr 14, 2018 4:28 pm by sally_jane

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


SEX!! For the first time in 13 months!

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SEX!! For the first time in 13 months!

Post  JemimaSurrender on Mon Jan 30, 2012 11:35 am

My, oh my! After 13 months of celebacy, my boyfriend and I finally managed to have sex over the weekend!

I am SO excited!! We've always done everything else we can (in the bedroom) so have always got by, but nothing beats the real thing, does it?

I've no idea how it was possible either. Sex has been completely off limits (mostly inforced by him!) until I was better, but it just kind of happened this time round.

Usually even with oral sex it can sometimes burn a bit, but never too much, and certainly not to the point where it's unbearable, nowhere near infact, so sex was completely out of the question as it's nothing short of agony. Sometimes I'm near to tears it hurts so much and it's just not worth it.

But amazingly it just seemed to be okay, even without me using the Instillagel which I don't understand at all. I'm sure the symptoms are no better, and I've no doubt it was still hurting somewhat, but I think the adrenaline took over and I didn't feel it. It was utterly fantastic and I'm still on such a high from it!

I am sooooooo happy. I'm a bit nervous that it was just a one off, and that now the excitement of being able to do it will wear thin and that next time I'll just be thinking the whole time "Oo is it going to hurt this time" and thus it will hurt as a result of me thinking and worrying. But even if it was a one off, one in 13 months is nothing to scoff at!

Absolute elation!

JemimaSurrender

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Re: SEX!! For the first time in 13 months!

Post  BpCookie on Mon Jan 30, 2012 5:11 pm

That is wonderful news, it truly is. I know how you feel cause I was just able to have sex again also. I had this amazing high afterwards. I was so happy. It kinda happened like yours did, just out of the blue. I used a boat load of lube and I was the one in control. I figured if it started to hurt then we could stop. It did burn a little but not much and there was a very slight slicing pain but nothing major. I was brave enough to try it again this weekend and once again I was able to do it. Its like a miracle huh?

Try not to worry about it hurting the next time. You be the one in control, go slow and explain to your b/f that if it hurts then you will have to stop. You may want to get a syringe/plunger type thingy, the kind you use when your inserting YI cream and put KY in that and insert a bunch of it inside, that may help also.

Im very happy for you and I know that its a big deal. *Cookie jumps up and down, cheers, shoots off fire works*. Good luck next time. Very Happy hugs
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Re: SEX!! For the first time in 13 months!

Post  JemimaSurrender on Tue Jan 31, 2012 1:31 am

Ahhh, it's all so exciting! Even if it's a one off (which will be annoying) I'm still so pleased to have had one shot at it. You forget how much of it you've missed!

I'll keep my fingers crossed for the both of us, and all you others who are missing it at the minute too!

JemimaSurrender

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Re: SEX!! For the first time in 13 months!

Post  BpCookie on Tue Jan 31, 2012 3:48 pm

Hey, I just noticed that your in the UK. My husband is from Coventry England, do you know it? We met on line in a chat room when he was living in England and I was living in the states.
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Re: SEX!! For the first time in 13 months!

Post  JemimaSurrender on Tue Jan 31, 2012 4:15 pm

Yeah it's not far from me! It's about a 40 minute drive actually. Did he move over to the States for you? Fairy tale!

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Re: SEX!! For the first time in 13 months!

Post  BpCookie on Wed Feb 01, 2012 4:27 pm

yup, he moved over here for me. We fell in love over the internet before we had even seen each other. When he flew over to see me for the first time, we went on a little vacation and he asked me to marry him three days later. Unfortunately he had to fly back to England and stay there for quite a long time. But eventually he was able to move here and we married and have been married now for 12 yrs. Very fairy tale story-ish Very Happy
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Re: SEX!! For the first time in 13 months!

Post  JemimaSurrender on Wed Feb 01, 2012 7:08 pm

Aww, that's lovely! It's so rare to find too, you're so lucky.

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Re: SEX!! For the first time in 13 months!

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