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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


SEX!! For the first time in 13 months!

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SEX!! For the first time in 13 months!

Post  JemimaSurrender on Mon Jan 30, 2012 11:35 am

My, oh my! After 13 months of celebacy, my boyfriend and I finally managed to have sex over the weekend!

I am SO excited!! We've always done everything else we can (in the bedroom) so have always got by, but nothing beats the real thing, does it?

I've no idea how it was possible either. Sex has been completely off limits (mostly inforced by him!) until I was better, but it just kind of happened this time round.

Usually even with oral sex it can sometimes burn a bit, but never too much, and certainly not to the point where it's unbearable, nowhere near infact, so sex was completely out of the question as it's nothing short of agony. Sometimes I'm near to tears it hurts so much and it's just not worth it.

But amazingly it just seemed to be okay, even without me using the Instillagel which I don't understand at all. I'm sure the symptoms are no better, and I've no doubt it was still hurting somewhat, but I think the adrenaline took over and I didn't feel it. It was utterly fantastic and I'm still on such a high from it!

I am sooooooo happy. I'm a bit nervous that it was just a one off, and that now the excitement of being able to do it will wear thin and that next time I'll just be thinking the whole time "Oo is it going to hurt this time" and thus it will hurt as a result of me thinking and worrying. But even if it was a one off, one in 13 months is nothing to scoff at!

Absolute elation!

JemimaSurrender

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Re: SEX!! For the first time in 13 months!

Post  BpCookie on Mon Jan 30, 2012 5:11 pm

That is wonderful news, it truly is. I know how you feel cause I was just able to have sex again also. I had this amazing high afterwards. I was so happy. It kinda happened like yours did, just out of the blue. I used a boat load of lube and I was the one in control. I figured if it started to hurt then we could stop. It did burn a little but not much and there was a very slight slicing pain but nothing major. I was brave enough to try it again this weekend and once again I was able to do it. Its like a miracle huh?

Try not to worry about it hurting the next time. You be the one in control, go slow and explain to your b/f that if it hurts then you will have to stop. You may want to get a syringe/plunger type thingy, the kind you use when your inserting YI cream and put KY in that and insert a bunch of it inside, that may help also.

Im very happy for you and I know that its a big deal. *Cookie jumps up and down, cheers, shoots off fire works*. Good luck next time. Very Happy hugs
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Re: SEX!! For the first time in 13 months!

Post  JemimaSurrender on Tue Jan 31, 2012 1:31 am

Ahhh, it's all so exciting! Even if it's a one off (which will be annoying) I'm still so pleased to have had one shot at it. You forget how much of it you've missed!

I'll keep my fingers crossed for the both of us, and all you others who are missing it at the minute too!

JemimaSurrender

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Re: SEX!! For the first time in 13 months!

Post  BpCookie on Tue Jan 31, 2012 3:48 pm

Hey, I just noticed that your in the UK. My husband is from Coventry England, do you know it? We met on line in a chat room when he was living in England and I was living in the states.
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Re: SEX!! For the first time in 13 months!

Post  JemimaSurrender on Tue Jan 31, 2012 4:15 pm

Yeah it's not far from me! It's about a 40 minute drive actually. Did he move over to the States for you? Fairy tale!

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Re: SEX!! For the first time in 13 months!

Post  BpCookie on Wed Feb 01, 2012 4:27 pm

yup, he moved over here for me. We fell in love over the internet before we had even seen each other. When he flew over to see me for the first time, we went on a little vacation and he asked me to marry him three days later. Unfortunately he had to fly back to England and stay there for quite a long time. But eventually he was able to move here and we married and have been married now for 12 yrs. Very fairy tale story-ish Very Happy
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Re: SEX!! For the first time in 13 months!

Post  JemimaSurrender on Wed Feb 01, 2012 7:08 pm

Aww, that's lovely! It's so rare to find too, you're so lucky.

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Re: SEX!! For the first time in 13 months!

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