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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


SEX!! For the first time in 13 months!

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SEX!! For the first time in 13 months!

Post  JemimaSurrender on Mon Jan 30, 2012 11:35 am

My, oh my! After 13 months of celebacy, my boyfriend and I finally managed to have sex over the weekend!

I am SO excited!! We've always done everything else we can (in the bedroom) so have always got by, but nothing beats the real thing, does it?

I've no idea how it was possible either. Sex has been completely off limits (mostly inforced by him!) until I was better, but it just kind of happened this time round.

Usually even with oral sex it can sometimes burn a bit, but never too much, and certainly not to the point where it's unbearable, nowhere near infact, so sex was completely out of the question as it's nothing short of agony. Sometimes I'm near to tears it hurts so much and it's just not worth it.

But amazingly it just seemed to be okay, even without me using the Instillagel which I don't understand at all. I'm sure the symptoms are no better, and I've no doubt it was still hurting somewhat, but I think the adrenaline took over and I didn't feel it. It was utterly fantastic and I'm still on such a high from it!

I am sooooooo happy. I'm a bit nervous that it was just a one off, and that now the excitement of being able to do it will wear thin and that next time I'll just be thinking the whole time "Oo is it going to hurt this time" and thus it will hurt as a result of me thinking and worrying. But even if it was a one off, one in 13 months is nothing to scoff at!

Absolute elation!

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Re: SEX!! For the first time in 13 months!

Post  BpCookie on Mon Jan 30, 2012 5:11 pm

That is wonderful news, it truly is. I know how you feel cause I was just able to have sex again also. I had this amazing high afterwards. I was so happy. It kinda happened like yours did, just out of the blue. I used a boat load of lube and I was the one in control. I figured if it started to hurt then we could stop. It did burn a little but not much and there was a very slight slicing pain but nothing major. I was brave enough to try it again this weekend and once again I was able to do it. Its like a miracle huh?

Try not to worry about it hurting the next time. You be the one in control, go slow and explain to your b/f that if it hurts then you will have to stop. You may want to get a syringe/plunger type thingy, the kind you use when your inserting YI cream and put KY in that and insert a bunch of it inside, that may help also.

Im very happy for you and I know that its a big deal. *Cookie jumps up and down, cheers, shoots off fire works*. Good luck next time. Very Happy hugs
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Re: SEX!! For the first time in 13 months!

Post  JemimaSurrender on Tue Jan 31, 2012 1:31 am

Ahhh, it's all so exciting! Even if it's a one off (which will be annoying) I'm still so pleased to have had one shot at it. You forget how much of it you've missed!

I'll keep my fingers crossed for the both of us, and all you others who are missing it at the minute too!

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Re: SEX!! For the first time in 13 months!

Post  BpCookie on Tue Jan 31, 2012 3:48 pm

Hey, I just noticed that your in the UK. My husband is from Coventry England, do you know it? We met on line in a chat room when he was living in England and I was living in the states.
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Re: SEX!! For the first time in 13 months!

Post  JemimaSurrender on Tue Jan 31, 2012 4:15 pm

Yeah it's not far from me! It's about a 40 minute drive actually. Did he move over to the States for you? Fairy tale!

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Re: SEX!! For the first time in 13 months!

Post  BpCookie on Wed Feb 01, 2012 4:27 pm

yup, he moved over here for me. We fell in love over the internet before we had even seen each other. When he flew over to see me for the first time, we went on a little vacation and he asked me to marry him three days later. Unfortunately he had to fly back to England and stay there for quite a long time. But eventually he was able to move here and we married and have been married now for 12 yrs. Very fairy tale story-ish Very Happy
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Re: SEX!! For the first time in 13 months!

Post  JemimaSurrender on Wed Feb 01, 2012 7:08 pm

Aww, that's lovely! It's so rare to find too, you're so lucky.

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Re: SEX!! For the first time in 13 months!

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