gyno suggests nerve dr out of state

I live in massachussetts. Today I went to see my pain gyno as I do every 3months. She told me that she's given me the names of some drs in new hampshire that are the heads of pudendal neuralgia. She said I need to see them. I told her I spoke to their office and they don't accept mass insurance. I spoke to my insurance company and they said they wont cover me to see him because I could see other drs in mass. To see him I would pay 500 dollars just talk and botox would cost 1000 dollars a shot. So she told me I need to make an appeal to my insurance company. She wouls write a letter as well. I really don't want to get on the phone with my insurance company because I know its going to be a fucking battle on the phone. I have been seeing another dr in mass who did a nerve block on me which did nothing for me, she isn't qualified for vaginal botox. What the fuck do I do? Im 27 and Ive been suffering for 9yrs now....frozen gelpacks are the only thing that helps me right away for a few minutes. Lyrica and cymbalta are becoming increasingly expensive. Help me please.

Hun, I understand your frustration with your ins. company. Mine are a bunch of jerks who dont want to cover anything. I was supposed to get pelvic therapy but my ins. wont cover it because my LSC isnt acute. So I guess I have to wait until it becomes acute. Ins. company's are ridiculous.

I use the ice packs also. Have you tried Amatryptiline ointment yet? It numbs the skin. Its not perfect cause it doesnt numb it enough but its better than nothing. You could also try A and D ointment, Emu ointment, Tea tree oil, vitamin E oil, olive oil and any other kind of oil that you can think of. Just make sure you read the ingredience first to make sure there is no alcohol, fragrance or paraphen (sp) in it.

Good luck to you.

I used a skin thinning steroid cream for 2 yrs because I had a chronic itch the dr said it was vulvar dystrofy. Sept 2010 I had to stop the cream because the symptoms mutated from itch to constant burning pain. Since then I don't feel comfortable using anything that will damage my skin. I also had a pelvis mri with nerve imaging that showed I have scar tissue on my vulvar fat tissue. I often wonder if that cream was the culprit.

Rubbing the area causes an uncomfortable after sensation. Its as if my skin is still being touched and then it feels really raw. The only thing that helps is cold water and frozen gelpacks. Its a constantly project everytime I pee....the water then the gelpack. Its annoying but necessary. I really hope this dr in NH can help me.

I called his office yesterday and they told me for pain he does a consultation over the phone. In 2 to 4 weeks he's going to call me. Im thinking I should get my gyno to send him my pelvic mri and I should send him all my recorded drs appointments.

My Dr. gave me that steroid thinning ointment also. I have to use it twice a day. It worries me because Im afraid that the skin will become too thin and then I will have the opposite problem. Im going to have my Gyno do another skin biopsy because I want to make sure that nothing else is going on down there.

Good luck to you and I hope that nerve Dr. can help. I went to one and he said that he couldnt do anything for me. uuuggghhhh

Ladies we all suffer and often encounter drs who don't know how to help. One thing I know is we all must have faith persistence and courage. Never loose hope that someday someone will have the solution to your problem. If the dr is a good one they will find the solution.

I went to my anastheseologist today. She begged for me to try the dmso gel. She told I could even put it in the fridge if the cold will help. She says its not harmful. Im putting my faith in her. I asked her to change my cymbalta to vicodine. So now im just on lyrica and vicodine. I have no idea how the vicodine will effect me. I just need something stronger.