Vulvodynia Support
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» Hope to all my suffering ladies
My story 8 years on  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
My story 8 years on  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
My story 8 years on  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
My story 8 years on  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
My story 8 years on  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
My story 8 years on  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
My story 8 years on  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
My story 8 years on  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
My story 8 years on  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


My story 8 years on

2 posters

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Post  Sunflower82 Fri Feb 17, 2012 10:34 am

Hi,

Have just joined the group. I have been suffering for the last 8 years but only been diagnosed for just over a year and a half. Like everyone I've seen so many health care professionals and not really getting anywhere. Ive used lodicaine, instillergel, steroid cream, must say lidocaine has saved my life on a few occasions but is not a long term solution. I've been on anti depressants for over a year, I didn't really think they were helping untill I stopped taking them then I realised how much pain I was in. I have been seeing a women health physio therapIist( very hard to find) she works on releasing my pelvic floor muscle, and often women have tension in their tummy muscles which put pressure on your pelvic floor muscles, initally it made the condition worse as I had to do internal massages everyday, which was so painful, after 6 months I was more or less pain free and just able to have sex. I've unfortunately had a Little relapse due to end of term stress( I work in a school) and a little to much trampolining. Trampolining can make things ten times worse. Hope this helps some one

Sunflower82

Posts : 82
Join date : 2012-02-17

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Post  Rose86 Sat Feb 18, 2012 12:43 pm

Hi and welcome to the forum! Can I just ask if you have generalised or localised provoked vulvodynia? Can you explain your symptoms a little more?

Thanks!

Rose

Rose86

Posts : 51
Join date : 2011-06-23

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Post  Sunflower82 Sat Feb 18, 2012 7:24 pm

Hi, I have generalised Vulvodynia. I suffer with a burning sensation and stabbing pains across my pubic bone. Generally pain all around the vulvar which is hard to pin point where the pain is coming from. I experience lots of burning after I go for a wee this can be an intense pain that can last for hours or just lasts for seconds. I have tension in my tummy muscles and muscles in my bottom which attach to the pelvic floor muscles. I also suffer from cystitis on a regular basis and find sex extremely painful. Physio has helped alot and till recently most of my symptoms had improved so much and most days I was pain free. Last week I have had a really bad relapse. I can only wear jogging bottoms as everything else is too painful.

Sunflower82

Posts : 82
Join date : 2012-02-17

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