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Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Laser Hair Removal??

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Laser Hair Removal??

Post  JemimaSurrender on Wed Feb 08, 2012 3:37 pm

Has anyone ever had IPL/VPL/Laser Hair Removal on their bikini area before?

I've wanted it for years but, as it was £130 per session (and you need 6-8 sessions!) I figured it was just a pipe dream.

However... My local beauty therapists have a special on and are now offering it at £40 a session! Crazy!

Anyway, I was just about to call up and book myself in for my first session when I started to panic. I know it's supposed to be 100% safe, but... Is it Vestibulodynia 100% safe?? I only worry because I'm unsure about the laser part and how it may affect nerve endings. Plus, it's permanent, so if something does go wrong/it makes it worse, then I'm stuck with it forever.

Am I just being dramatic? Ha ha. I really want it done, I have for a long time, but I just don't want to do anything to make things worse, and talking to my GP is no help as it will take days to even get a 2 minute phone conversation with her.

Any suggestions guys? I may pop in tonight and enquire but, as always, they won't be up on their V knowledge!

JemimaSurrender

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Re: Laser Hair Removal??

Post  lolainslacks on Wed Feb 08, 2012 5:13 pm

I can't speak from experience and I haven't a lot of knowledge in this area, but I would think that it would be completely fine, because the hair is external. The hair only grows on the outer labia, and that part is not affected by V-pain, so I don't imagine it could possibly cause problems.

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Re: Laser Hair Removal??

Post  pepper7 on Wed Feb 08, 2012 11:03 pm

Just dont use veet for the Love of God avoid veet! No

the regrowth is torture especially with V pain.

pepper7

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Re: Laser Hair Removal??

Post  Sarah001 on Fri Feb 10, 2012 9:12 pm

Can't say for sure but for those women with diffuse pain that also have problems with the outer areas I wouldn't advise it.
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Re: Laser Hair Removal??

Post  noni on Fri Feb 10, 2012 9:16 pm

YIKES!

I have generalised vulvodynia - pain inside, outside and in the bikini area.
I wouldnt even consider laser hair removal. Kinda makes me cringe.

Well, venture at your own risk. :/
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Re: Laser Hair Removal??

Post  JemimaSurrender on Sat Feb 11, 2012 2:40 pm

I didn't go for it in the end.

I booked an appointment and was already to go, then rang up and changed it to just a standard wax appt. instead!

I did have a chat with the lady though and she's reassured me on some of the other aspects I was concerned about, so I think I will give it a go. I reckon I'll have a chat with my GP next time I go in though and see what she says about it too, just incase I get every doctor for the next 5 years telling me that's the reason why I'm still in pain.

I'll keep you all posted!

JemimaSurrender

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Re: Laser Hair Removal??

Post  peter1brown on Tue Jul 03, 2012 1:01 pm

Laser hair removal is the effective and popular method for removing unwanted hairs from body and this is in trend especailly at spa centers. IPL lasers are used in this therapy but the success of such treatment depends on patient's contribution in following the precautions points also as prescribed by the expert.

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Laser hair removal

Post  jasonsmith9019 on Thu Dec 06, 2012 5:00 am

Laser hair removal and IPL both are totally safe methods. Both the treatments are done with total care and if you are being treated by an expert dermatologist than he would take total care of vulvodynia.

jasonsmith9019

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Re: Laser Hair Removal??

Post  Karen818 on Sun Dec 09, 2012 10:48 pm

I have been getting laser hair removal on my bikini area for a year now and I can't figure if there's a correlation between my pain and the laser, but it hasn't made anything worse, I think it has done the opposite because constant shaving and waxing seems to irritate my vulva much more than laser...

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RE: Laser Hair Removal

Post  dueywag on Thu Jan 10, 2013 4:00 am

I've had lingerie, full leg, underarm, and lip laser hair removal. Although it hurts like crazy having it done, it did not affect my vulvar vestibulitis pain at all...and I love not having to shave anymore! (And it's just for me, because there is, obviously, no man in my life.) I don't regret it one bit.

For legs, it is almost a 2 year process, and it does hurt (at least when I had it done in 2004-2006). I understand there are more advanced lasers now that chill the area first and aren't as painful. I would suggest finding a place that has licensed nurses providing the services. You can tell them how far into the bikini area you want the hair removed. I would, however, not recommend full area hair removal. I think that having no "cushion" between your delicate parts and your clothing would not be a good idea. In addition, according to the nurses who performed the laser procedures, full removal promotes vaginal infections.

Good luck!

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Re: Laser Hair Removal??

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