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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Laser Hair Removal??

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Laser Hair Removal??

Post  JemimaSurrender on Wed Feb 08, 2012 3:37 pm

Has anyone ever had IPL/VPL/Laser Hair Removal on their bikini area before?

I've wanted it for years but, as it was £130 per session (and you need 6-8 sessions!) I figured it was just a pipe dream.

However... My local beauty therapists have a special on and are now offering it at £40 a session! Crazy!

Anyway, I was just about to call up and book myself in for my first session when I started to panic. I know it's supposed to be 100% safe, but... Is it Vestibulodynia 100% safe?? I only worry because I'm unsure about the laser part and how it may affect nerve endings. Plus, it's permanent, so if something does go wrong/it makes it worse, then I'm stuck with it forever.

Am I just being dramatic? Ha ha. I really want it done, I have for a long time, but I just don't want to do anything to make things worse, and talking to my GP is no help as it will take days to even get a 2 minute phone conversation with her.

Any suggestions guys? I may pop in tonight and enquire but, as always, they won't be up on their V knowledge!


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Re: Laser Hair Removal??

Post  lolainslacks on Wed Feb 08, 2012 5:13 pm

I can't speak from experience and I haven't a lot of knowledge in this area, but I would think that it would be completely fine, because the hair is external. The hair only grows on the outer labia, and that part is not affected by V-pain, so I don't imagine it could possibly cause problems.


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Re: Laser Hair Removal??

Post  pepper7 on Wed Feb 08, 2012 11:03 pm

Just dont use veet for the Love of God avoid veet! No

the regrowth is torture especially with V pain.


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Re: Laser Hair Removal??

Post  Sarah001 on Fri Feb 10, 2012 9:12 pm

Can't say for sure but for those women with diffuse pain that also have problems with the outer areas I wouldn't advise it.

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Re: Laser Hair Removal??

Post  noni on Fri Feb 10, 2012 9:16 pm


I have generalised vulvodynia - pain inside, outside and in the bikini area.
I wouldnt even consider laser hair removal. Kinda makes me cringe.

Well, venture at your own risk. :/

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Re: Laser Hair Removal??

Post  JemimaSurrender on Sat Feb 11, 2012 2:40 pm

I didn't go for it in the end.

I booked an appointment and was already to go, then rang up and changed it to just a standard wax appt. instead!

I did have a chat with the lady though and she's reassured me on some of the other aspects I was concerned about, so I think I will give it a go. I reckon I'll have a chat with my GP next time I go in though and see what she says about it too, just incase I get every doctor for the next 5 years telling me that's the reason why I'm still in pain.

I'll keep you all posted!


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Re: Laser Hair Removal??

Post  peter1brown on Tue Jul 03, 2012 1:01 pm

Laser hair removal is the effective and popular method for removing unwanted hairs from body and this is in trend especailly at spa centers. IPL lasers are used in this therapy but the success of such treatment depends on patient's contribution in following the precautions points also as prescribed by the expert.


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Laser hair removal

Post  jasonsmith9019 on Thu Dec 06, 2012 5:00 am

Laser hair removal and IPL both are totally safe methods. Both the treatments are done with total care and if you are being treated by an expert dermatologist than he would take total care of vulvodynia.


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Re: Laser Hair Removal??

Post  Karen818 on Sun Dec 09, 2012 10:48 pm

I have been getting laser hair removal on my bikini area for a year now and I can't figure if there's a correlation between my pain and the laser, but it hasn't made anything worse, I think it has done the opposite because constant shaving and waxing seems to irritate my vulva much more than laser...


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RE: Laser Hair Removal

Post  dueywag on Thu Jan 10, 2013 4:00 am

I've had lingerie, full leg, underarm, and lip laser hair removal. Although it hurts like crazy having it done, it did not affect my vulvar vestibulitis pain at all...and I love not having to shave anymore! (And it's just for me, because there is, obviously, no man in my life.) I don't regret it one bit.

For legs, it is almost a 2 year process, and it does hurt (at least when I had it done in 2004-2006). I understand there are more advanced lasers now that chill the area first and aren't as painful. I would suggest finding a place that has licensed nurses providing the services. You can tell them how far into the bikini area you want the hair removed. I would, however, not recommend full area hair removal. I think that having no "cushion" between your delicate parts and your clothing would not be a good idea. In addition, according to the nurses who performed the laser procedures, full removal promotes vaginal infections.

Good luck!


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Re: Laser Hair Removal??

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