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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Should I See a Specialist ($$$$)

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Should I See a Specialist ($$$$)

Post  Chase C on Sun Feb 12, 2012 3:38 pm

Hi Everyone!

I am a 43-year old who has been suffering from varying levels of burning and irritation for the last six months. I was recently diagnosed with vulvar vestibulitis after multiple tests and cultures for yeast and STD's. This was appropriate as I stupidly engaged in unprotected sex Sad and there was some tearing involved. I have been to mulitple doctors and the only thing that has shown up in blood tests is HSV-1. The vaginal culture was negative - indicating that like 80% of the population I have been exposed the cold sore virus. I feel lucky, but am still beating myself up about being such an idiot. My symptoms are worst @ Day 7 of my cycle (the house is on fire) with inflammation and swelling of the lower vulvar area. I am contemplating going to see a specialist who deals with vulvar disorders, but the initial consult is $1500! I have been prescribed Mycalog (steroid/yeast cream) and Estrace, but neither have really provided any relief. I am appreciative of your thoughts, and am grateful to the people who built and maintain this forum! THANKS!

Chase C

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Re: Should I See a Specialist ($$$$)

Post  Sarah001 on Sun Feb 12, 2012 7:39 pm

I would say get your pelvic floor checked, that frequently shows up as problems in the lower section of the vulva.
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Re: Should I See a Specialist ($$$$)

Post  Aussie on Tue Feb 14, 2012 1:53 am

I would suggest getting ALL your hormones tested and don't use creams down there at all please.

You will want your E1, E2 E3 Progesterone testoserone SHBG, LH, FSH etc etc just see if anything comes out even slightly out of wack. Estrogen is the biggy. Vulva pain can be caused by lack of it which is frequent in women over 40.

A couple of ladies on the IC network forum found estrogen cream helped their IC and VV.

Smile

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Re: Should I See a Specialist ($$$$)

Post  noni on Wed Feb 15, 2012 3:42 am

Hi - im sorry you had to find us. But its great we can be here for one another.

I would suggest doing some research about drugs used for V. Like; amitriptyline, gabapentin, neurontin, lyrica etc etc....

Then go to you regular doctor/family doctor with the information in hand, and ask for a treatment plan. Hopefully, your doctor will be willing to listen and help you.

If not, then you may have to see a ''specialist''. These too are sometimes not helpful. Mine was terrible.

Its most important to receive a diagnosis, which is the first hurdle, then you can look inot options for treatments. Its hit or miss with this disorder.

Be patient. Have faith.

I wish you luck Smile
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Thanks!

Post  Chase C on Thu Feb 16, 2012 11:24 am

I had an appt with my regular Ob-Gyn and have decided to go ahead and see a specialist. We have a center in our area that specializes in vulvo-vaginal disorders and my appt is in 3 weeks. I will keep you posted. Thanks for your feedback and support! I love you

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Re: Should I See a Specialist ($$$$)

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