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» Change in birth control question
Yesterday at 7:34 pm by Jo44

» Weird Reactions to Natural Remedies
Yesterday at 4:38 pm by emalita

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Should I See a Specialist ($$$$)

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Should I See a Specialist ($$$$)

Post  Chase C on Sun Feb 12, 2012 3:38 pm

Hi Everyone!

I am a 43-year old who has been suffering from varying levels of burning and irritation for the last six months. I was recently diagnosed with vulvar vestibulitis after multiple tests and cultures for yeast and STD's. This was appropriate as I stupidly engaged in unprotected sex Sad and there was some tearing involved. I have been to mulitple doctors and the only thing that has shown up in blood tests is HSV-1. The vaginal culture was negative - indicating that like 80% of the population I have been exposed the cold sore virus. I feel lucky, but am still beating myself up about being such an idiot. My symptoms are worst @ Day 7 of my cycle (the house is on fire) with inflammation and swelling of the lower vulvar area. I am contemplating going to see a specialist who deals with vulvar disorders, but the initial consult is $1500! I have been prescribed Mycalog (steroid/yeast cream) and Estrace, but neither have really provided any relief. I am appreciative of your thoughts, and am grateful to the people who built and maintain this forum! THANKS!

Chase C

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Re: Should I See a Specialist ($$$$)

Post  Sarah001 on Sun Feb 12, 2012 7:39 pm

I would say get your pelvic floor checked, that frequently shows up as problems in the lower section of the vulva.

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Re: Should I See a Specialist ($$$$)

Post  Aussie on Tue Feb 14, 2012 1:53 am

I would suggest getting ALL your hormones tested and don't use creams down there at all please.

You will want your E1, E2 E3 Progesterone testoserone SHBG, LH, FSH etc etc just see if anything comes out even slightly out of wack. Estrogen is the biggy. Vulva pain can be caused by lack of it which is frequent in women over 40.

A couple of ladies on the IC network forum found estrogen cream helped their IC and VV.



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Re: Should I See a Specialist ($$$$)

Post  noni on Wed Feb 15, 2012 3:42 am

Hi - im sorry you had to find us. But its great we can be here for one another.

I would suggest doing some research about drugs used for V. Like; amitriptyline, gabapentin, neurontin, lyrica etc etc....

Then go to you regular doctor/family doctor with the information in hand, and ask for a treatment plan. Hopefully, your doctor will be willing to listen and help you.

If not, then you may have to see a ''specialist''. These too are sometimes not helpful. Mine was terrible.

Its most important to receive a diagnosis, which is the first hurdle, then you can look inot options for treatments. Its hit or miss with this disorder.

Be patient. Have faith.

I wish you luck Smile

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Post  Chase C on Thu Feb 16, 2012 11:24 am

I had an appt with my regular Ob-Gyn and have decided to go ahead and see a specialist. We have a center in our area that specializes in vulvo-vaginal disorders and my appt is in 3 weeks. I will keep you posted. Thanks for your feedback and support! I love you

Chase C

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Re: Should I See a Specialist ($$$$)

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