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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Should I See a Specialist ($$$$)

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Should I See a Specialist ($$$$)

Post  Chase C on Sun Feb 12, 2012 3:38 pm

Hi Everyone!

I am a 43-year old who has been suffering from varying levels of burning and irritation for the last six months. I was recently diagnosed with vulvar vestibulitis after multiple tests and cultures for yeast and STD's. This was appropriate as I stupidly engaged in unprotected sex Sad and there was some tearing involved. I have been to mulitple doctors and the only thing that has shown up in blood tests is HSV-1. The vaginal culture was negative - indicating that like 80% of the population I have been exposed the cold sore virus. I feel lucky, but am still beating myself up about being such an idiot. My symptoms are worst @ Day 7 of my cycle (the house is on fire) with inflammation and swelling of the lower vulvar area. I am contemplating going to see a specialist who deals with vulvar disorders, but the initial consult is $1500! I have been prescribed Mycalog (steroid/yeast cream) and Estrace, but neither have really provided any relief. I am appreciative of your thoughts, and am grateful to the people who built and maintain this forum! THANKS!

Chase C

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Re: Should I See a Specialist ($$$$)

Post  Sarah001 on Sun Feb 12, 2012 7:39 pm

I would say get your pelvic floor checked, that frequently shows up as problems in the lower section of the vulva.
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Re: Should I See a Specialist ($$$$)

Post  Aussie on Tue Feb 14, 2012 1:53 am

I would suggest getting ALL your hormones tested and don't use creams down there at all please.

You will want your E1, E2 E3 Progesterone testoserone SHBG, LH, FSH etc etc just see if anything comes out even slightly out of wack. Estrogen is the biggy. Vulva pain can be caused by lack of it which is frequent in women over 40.

A couple of ladies on the IC network forum found estrogen cream helped their IC and VV.

Smile

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Re: Should I See a Specialist ($$$$)

Post  noni on Wed Feb 15, 2012 3:42 am

Hi - im sorry you had to find us. But its great we can be here for one another.

I would suggest doing some research about drugs used for V. Like; amitriptyline, gabapentin, neurontin, lyrica etc etc....

Then go to you regular doctor/family doctor with the information in hand, and ask for a treatment plan. Hopefully, your doctor will be willing to listen and help you.

If not, then you may have to see a ''specialist''. These too are sometimes not helpful. Mine was terrible.

Its most important to receive a diagnosis, which is the first hurdle, then you can look inot options for treatments. Its hit or miss with this disorder.

Be patient. Have faith.

I wish you luck Smile
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Thanks!

Post  Chase C on Thu Feb 16, 2012 11:24 am

I had an appt with my regular Ob-Gyn and have decided to go ahead and see a specialist. We have a center in our area that specializes in vulvo-vaginal disorders and my appt is in 3 weeks. I will keep you posted. Thanks for your feedback and support! I love you

Chase C

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Re: Should I See a Specialist ($$$$)

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