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» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Newly diagnosed and shell shocked

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Newly diagnosed and shell shocked

Post  Lindilou on Tue Feb 14, 2012 4:20 pm

Hello, I'm Lindilou, got diagnosed with Vulvodynia yesterday, can't take it all in yet, printed off info, and I'm scheduled for a biopsy next month which I believe rules out underlying skin conditions. Scared rigid I'll scream the walls down when the doctor injects local anaesthetic and that I'll be in agony for weeks afterwards.
How can it not be agonising when it hurts to be prodded with a cotton bud?!
Feel ridiculous, deformed, stupid, and I hate my vagina and wish I could just have it removed. No sex unless I want burning and stabbing pain in clitoris, seams on pants irritate me, sanitary towels irritate me, right now just existing seems to irritate. I hate the fact that the clinic is in the sexual health building so I keep thinking anyone who sees me walk in will assume I've got an STI.
My skin 'splits' at the base entrance of my vagina but apparently I'm deep set so the skin there is a bit web like, can't see how anything can be done to change my anatomy.
I feel angry wretched and stupid stupid stupid.

Lindilou

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Re: Newly diagnosed and shell shocked

Post  ButterflyLiz on Tue Feb 14, 2012 6:35 pm

Hi Lindilou, welcome to the forum. Sorry to hear you are suffering. I remember how it feels to be so overwhelmed with information. Looking on the bright side at least you have managed to receive a diagnosis so you can start to work with your doctors into looking at treatments, and you have found this forum for support. It really is a wealth of info from people who understand what you’re going through.

Again, though, it can be a lot to take in and everyone’s case is different so have a read through at your own pace and see if anything strikes a chord.

We’re always here if you want to ask questions or have a rant. There’s also a “secret” facebook group set up if you’re on there, Naomi on here can add you if you PM her.

You are not alone and there are many things to try which might help you. Sending good wishes your way.
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ButterflyLiz

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Re: Newly diagnosed and shell shocked

Post  Lindilou on Tue Feb 14, 2012 7:05 pm

Thank you ButterflyLiz, I'm not on FB, I'm a bit older, I'm ancient lol in my 40's so the technological revolution passed me by, it's amazing I can email..I would very much like to hear from anyone who has had this biopsy under local anaesthetic. What was it like, is it survivable? Did it help?


Lindilou

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Re: Newly diagnosed and shell shocked

Post  Aussie on Wed Feb 15, 2012 4:57 am

Biopsy won't help the situation. If you have vv it will irritate it!

It sounds like you have it to me. If there is no visible change in the skin I doubt a biopsy is required. Doctors just like to test things so they look like they are doing a decent job.

This forum is the best place for info. I would suggest a less invasive test - get your serum (blood) hormone levels tested - ALL of them. See what comes up.

Get proactive about your condition - if you look at it in the right way it can empower you. There are so many things to try and if you don't keep posititive and focused you can really get down in the dumps.

Here if you want to talk (search the celebrating the positive forum) Smile

Aussie

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Re: Newly diagnosed and shell shocked

Post  Lindilou on Wed Feb 15, 2012 11:04 am

Thanks Aussie this is my increasing feeling

Lindilou

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Re: Newly diagnosed and shell shocked

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