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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Finally gone after 5 years

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Finally gone after 5 years

Post  Lara on Wed Feb 15, 2012 2:12 pm

I suffered with this for 5 years. Take Fluconazole for 1 to 2 weeks and then take one when/if symptoms reappear. A few months after doing this week of treatment it went away forever. Over the years I had tried everything else. Nothing else worked and I am so glad that hell is over. Be skeptical of homeopathic remedies.

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Re: Finally gone after 5 years

Post  JemimaSurrender on Wed Feb 15, 2012 3:19 pm

That's really good news Lara!

I had Fluconazole as a thrush treatment for a good few months. I would take it for a week, then take one tablet at the start of every week to ward off any more thrush outbursts. It worked great for a good while and I stopped taking it with no further trouble. My recurrent thrush then came back, and after taking Fluconazole again for a few weeks I was still suffering, and thus the story of V starts!

It's really interesting that this worked for you though. I think I'll have to look into it again. I'm willing to try anything!

Thanks for the heads up Lara!

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Re: Finally gone after 5 years

Post  Lara on Wed Feb 15, 2012 4:02 pm

Yeah so I took 1 and a half 100mg tablets daily. Apparently it was a sub-clinical yeast infection. I had ruled out that it had anything to do with yeast/thrush because I did not have any visible symptoms and the over-the-counter yeast treatments (Monistat etc) didn't help at all. But it was definitely related to yeast, at least in my case.

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Re: Finally gone after 5 years

Post  pepper7 on Tue Feb 28, 2012 11:32 pm

Wow that sounds amazing! Ill ask my doctor about it. How long have you been pain free?

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Re: Finally gone after 5 years

Post  Lara on Thu Mar 15, 2012 6:24 pm

10 months so far. And not even a hint of it! Smile

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Re: Finally gone after 5 years

Post  ButterflyLiz on Thu Mar 15, 2012 6:37 pm

OK so I'm being a bit thick but how long did you take it for? Every day for a week once a month? Thanks!
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Re: Finally gone after 5 years

Post  penfebruary on Fri Mar 16, 2012 12:13 am

Could you tell us a bit more about your story?
As Liz said, how and when did you take the medication etc? And what were your V symptoms? Thanks and I'm really pleased for you!!
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Re: Finally gone after 5 years

Post  blessed on Sat Mar 17, 2012 6:16 pm

after waiting forever to see a gyne, she said she 'thinks' its a yeast, even though i have undoubtedly all the symptoms of V. she put me on fluconzoale which i had taken when all this hell first started. well it never worked and so when i went back to see her the second time, she said well it could be endometriosis. i know it isn't because i had this 9 years ago and had surgery done for it. the pain i had back then is absolutely in no way what i am having now.. nevertheless, being so desperate for some reprieve, i thought, i should just listen to her and go on whatever medication she was about to give me. anyways, she did not prescribe it that day and told me to come again. so this week, for the 3rd time i saw her and thinking she was going to talk about endometriosis, she completely forgot about that, never brought it up and now said maybe its a hernia. so she sent me for another ultrasound, and said if that comes back normal then she cannot help me. this is a very hopeless situation and i'd rather die that go through another day. today i was just lying down in my living room with my husband watching tv.. and i just began to visualize taking all my codeine pills, mashing up them to powder and drinking them down with a glass of juice. but then i had to remind myself, that though it seems i would never ever be able to live a normal life again, God is able to make a way where there is none.. and even if He didn't, well atleast His grace will take me through, ONE DAY AT A TIME. i am glad the fluconzaole worked for you. and maybe something else would work for me.

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Re: Finally gone after 5 years

Post  Lara on Wed Mar 21, 2012 1:09 pm

I took 1 and a half 100mg Fluconazole tablets daily for one week. And then I took one pill a week for about 3 weeks after.

The plan was to take it for 2 weeks because the study my doctor was referring to had participants take it for 2 weeks. But I couldn't tolerate the side effects and I wasn't sure it would work anyway. I don't remember exactly what the side effects were, they weren't too bad but I just wasn't too motivated as I thought it was a shot in the dark. But I have never had any symptoms since, as was the case for a significant proportion of participants in the study.

My V symptoms were, ughh I don't even want to think about it... but, well they were achy V, very painful if not impossible to have intercourse, it felt like my vulva secreted tabasco sauce, achy ovaries, hurt to sit, made me lethargic when it flared up - which was for about a week or more at a time and then it disapated for 1 - 3 weeks. The cycle was not related to my mentrual cycle. Throbbing. Burning. No visible signs, though sometimes had tears like small paper-cuts.

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Re: Finally gone after 5 years

Post  ButterflyLiz on Wed Mar 21, 2012 7:08 pm

Thanks Lara, that's really interesting. I'm thinking of taking the idea to my doctor, would love to find that study. Do you know any more about it e.g. did it focus just on people with subclinical infections or all types of yeast? Thanks for your help xx
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Re: Finally gone after 5 years

Post  Lara on Wed Mar 21, 2012 8:00 pm

I wish I had the study, but I do not. I also moved, so I no longer see that doctor. The study focused on people with vulodynia, not specifically with any recognized yeast infection. You're very welcome! I just read once that V success stories are rarely posted because once the individual is all better, they are less inclined to revisit these sites. So I wanted to make the effort to let you all know. It was horrible to suffer through and after 5 years I almost resigned to the idea that it would never end. But I'm so relieved and so grateful to scientific research studies like these. Best of luck to you!

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Re: Finally gone after 5 years

Post  naomi on Wed Mar 21, 2012 9:32 pm

Gutted! I tried this idea...150mg fluconazole DAILY for 3 months...did nothing apart from stop the white discharge...was so upset when it didn't cure me
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Re: Finally gone after 5 years

Post  naomi on Wed Mar 21, 2012 9:34 pm

If I ever can have sex again though I will def take the weekly dose of fluconazole, as I'm so prone to yeast infections xx
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Re: Finally gone after 5 years

Post  ButterflyLiz on Fri Mar 30, 2012 7:49 pm

Hm, it's proving difficult to find! This is the only study I can find that mentions vulvodynia & diflucan. I don't think it's the right one cos they do specifically look for yeast, but it's interesting nonetheless cos it shows colposcopy can show up yeast even when a culture doesn't - and in those patients, long-term yeast treatment had a 60% success rate.

http://www.ncbi.nlm.nih.gov/pubmed/17286065
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Re: Finally gone after 5 years

Post  pepper7 on Sun Apr 29, 2012 9:44 pm

So I tried this.... and it seems to have worked not 100% but 85% at least! Iv not had any pain since I last posted which was a month ago (maybe more, maybe less) I still have slight pain but nothing like what I had previously. Im just hoping and praying it continues

Fingers crossed
Px

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Re: Finally gone after 5 years

Post  Kallista on Wed May 02, 2012 1:21 pm

Candida (yeast) can be systemic as well. A blood test will tell. I tested positive and my doctor, who is not a gyn, but specializes in integrative medicine is treating me with 100 mg Diflucan twice daily. I tried 200 mg once daily, but that way the die-off reaction was so bad I could hardly function. I`m on it for 2 weeks, off for one week. The theory is that the yeast spores, which the Diflucan does not get, can develop during that week off into yeast to be then killed by the meds. We are planning to do this until I have no longer a reaction to the meds, which will tell that the yeast is dead. At the same time I went on a low-carb diet to literally starve the yeast. The only carbs I eat come from veggies. No starches whatsoever. I do have other food issues as well (I posted the histamine topic yesterday), so I`m on a very restricted diet.
There is another yeast though, Candida glabrata, which does not respond to Fuoconazole at all.

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Re: Finally gone after 5 years

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