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Sat May 26, 2018 5:21 pm by Aquaben

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» Cleveland Clinic - Pain Management, Weston, FL
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Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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Finally gone after 5 years

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Finally gone after 5 years

Post  Lara on Wed Feb 15, 2012 2:12 pm

I suffered with this for 5 years. Take Fluconazole for 1 to 2 weeks and then take one when/if symptoms reappear. A few months after doing this week of treatment it went away forever. Over the years I had tried everything else. Nothing else worked and I am so glad that hell is over. Be skeptical of homeopathic remedies.

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Re: Finally gone after 5 years

Post  JemimaSurrender on Wed Feb 15, 2012 3:19 pm

That's really good news Lara!

I had Fluconazole as a thrush treatment for a good few months. I would take it for a week, then take one tablet at the start of every week to ward off any more thrush outbursts. It worked great for a good while and I stopped taking it with no further trouble. My recurrent thrush then came back, and after taking Fluconazole again for a few weeks I was still suffering, and thus the story of V starts!

It's really interesting that this worked for you though. I think I'll have to look into it again. I'm willing to try anything!

Thanks for the heads up Lara!

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Re: Finally gone after 5 years

Post  Lara on Wed Feb 15, 2012 4:02 pm

Yeah so I took 1 and a half 100mg tablets daily. Apparently it was a sub-clinical yeast infection. I had ruled out that it had anything to do with yeast/thrush because I did not have any visible symptoms and the over-the-counter yeast treatments (Monistat etc) didn't help at all. But it was definitely related to yeast, at least in my case.

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Re: Finally gone after 5 years

Post  pepper7 on Tue Feb 28, 2012 11:32 pm

Wow that sounds amazing! Ill ask my doctor about it. How long have you been pain free?

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Re: Finally gone after 5 years

Post  Lara on Thu Mar 15, 2012 6:24 pm

10 months so far. And not even a hint of it! Smile

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Re: Finally gone after 5 years

Post  ButterflyLiz on Thu Mar 15, 2012 6:37 pm

OK so I'm being a bit thick but how long did you take it for? Every day for a week once a month? Thanks!
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Re: Finally gone after 5 years

Post  penfebruary on Fri Mar 16, 2012 12:13 am

Could you tell us a bit more about your story?
As Liz said, how and when did you take the medication etc? And what were your V symptoms? Thanks and I'm really pleased for you!!
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Re: Finally gone after 5 years

Post  blessed on Sat Mar 17, 2012 6:16 pm

after waiting forever to see a gyne, she said she 'thinks' its a yeast, even though i have undoubtedly all the symptoms of V. she put me on fluconzoale which i had taken when all this hell first started. well it never worked and so when i went back to see her the second time, she said well it could be endometriosis. i know it isn't because i had this 9 years ago and had surgery done for it. the pain i had back then is absolutely in no way what i am having now.. nevertheless, being so desperate for some reprieve, i thought, i should just listen to her and go on whatever medication she was about to give me. anyways, she did not prescribe it that day and told me to come again. so this week, for the 3rd time i saw her and thinking she was going to talk about endometriosis, she completely forgot about that, never brought it up and now said maybe its a hernia. so she sent me for another ultrasound, and said if that comes back normal then she cannot help me. this is a very hopeless situation and i'd rather die that go through another day. today i was just lying down in my living room with my husband watching tv.. and i just began to visualize taking all my codeine pills, mashing up them to powder and drinking them down with a glass of juice. but then i had to remind myself, that though it seems i would never ever be able to live a normal life again, God is able to make a way where there is none.. and even if He didn't, well atleast His grace will take me through, ONE DAY AT A TIME. i am glad the fluconzaole worked for you. and maybe something else would work for me.

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Re: Finally gone after 5 years

Post  Lara on Wed Mar 21, 2012 1:09 pm

I took 1 and a half 100mg Fluconazole tablets daily for one week. And then I took one pill a week for about 3 weeks after.

The plan was to take it for 2 weeks because the study my doctor was referring to had participants take it for 2 weeks. But I couldn't tolerate the side effects and I wasn't sure it would work anyway. I don't remember exactly what the side effects were, they weren't too bad but I just wasn't too motivated as I thought it was a shot in the dark. But I have never had any symptoms since, as was the case for a significant proportion of participants in the study.

My V symptoms were, ughh I don't even want to think about it... but, well they were achy V, very painful if not impossible to have intercourse, it felt like my vulva secreted tabasco sauce, achy ovaries, hurt to sit, made me lethargic when it flared up - which was for about a week or more at a time and then it disapated for 1 - 3 weeks. The cycle was not related to my mentrual cycle. Throbbing. Burning. No visible signs, though sometimes had tears like small paper-cuts.

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Re: Finally gone after 5 years

Post  ButterflyLiz on Wed Mar 21, 2012 7:08 pm

Thanks Lara, that's really interesting. I'm thinking of taking the idea to my doctor, would love to find that study. Do you know any more about it e.g. did it focus just on people with subclinical infections or all types of yeast? Thanks for your help xx
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Re: Finally gone after 5 years

Post  Lara on Wed Mar 21, 2012 8:00 pm

I wish I had the study, but I do not. I also moved, so I no longer see that doctor. The study focused on people with vulodynia, not specifically with any recognized yeast infection. You're very welcome! I just read once that V success stories are rarely posted because once the individual is all better, they are less inclined to revisit these sites. So I wanted to make the effort to let you all know. It was horrible to suffer through and after 5 years I almost resigned to the idea that it would never end. But I'm so relieved and so grateful to scientific research studies like these. Best of luck to you!

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Re: Finally gone after 5 years

Post  naomi on Wed Mar 21, 2012 9:32 pm

Gutted! I tried this idea...150mg fluconazole DAILY for 3 months...did nothing apart from stop the white discharge...was so upset when it didn't cure me
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Re: Finally gone after 5 years

Post  naomi on Wed Mar 21, 2012 9:34 pm

If I ever can have sex again though I will def take the weekly dose of fluconazole, as I'm so prone to yeast infections xx
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Re: Finally gone after 5 years

Post  ButterflyLiz on Fri Mar 30, 2012 7:49 pm

Hm, it's proving difficult to find! This is the only study I can find that mentions vulvodynia & diflucan. I don't think it's the right one cos they do specifically look for yeast, but it's interesting nonetheless cos it shows colposcopy can show up yeast even when a culture doesn't - and in those patients, long-term yeast treatment had a 60% success rate.

http://www.ncbi.nlm.nih.gov/pubmed/17286065
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Re: Finally gone after 5 years

Post  pepper7 on Sun Apr 29, 2012 9:44 pm

So I tried this.... and it seems to have worked not 100% but 85% at least! Iv not had any pain since I last posted which was a month ago (maybe more, maybe less) I still have slight pain but nothing like what I had previously. Im just hoping and praying it continues

Fingers crossed
Px

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Re: Finally gone after 5 years

Post  Kallista on Wed May 02, 2012 1:21 pm

Candida (yeast) can be systemic as well. A blood test will tell. I tested positive and my doctor, who is not a gyn, but specializes in integrative medicine is treating me with 100 mg Diflucan twice daily. I tried 200 mg once daily, but that way the die-off reaction was so bad I could hardly function. I`m on it for 2 weeks, off for one week. The theory is that the yeast spores, which the Diflucan does not get, can develop during that week off into yeast to be then killed by the meds. We are planning to do this until I have no longer a reaction to the meds, which will tell that the yeast is dead. At the same time I went on a low-carb diet to literally starve the yeast. The only carbs I eat come from veggies. No starches whatsoever. I do have other food issues as well (I posted the histamine topic yesterday), so I`m on a very restricted diet.
There is another yeast though, Candida glabrata, which does not respond to Fuoconazole at all.

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Re: Finally gone after 5 years

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