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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

Newly diagnosed and praying!

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Newly diagnosed and praying!

Post  Lauren. on Wed Feb 15, 2012 4:32 pm

Hi I'm Lauren and a newbie!

I was diagnosed with Vulvodynia about 2 weeks ago and within those 2 weeks I guess I've tried to convince myself that I'm fine, have no pain, and haven't got this condition, which is definitely not the case. I'm so glad that I came across this forum, because it's so comforting to see that other people are going through the exact same thing I am, I thought I was the only one. It’s so refreshing seeing women stand by and advise each other. I've been feeling the burning, aching and irritation symptoms for about 6 months now and am so scared. I never thought that there would be anything wrong with me. I’m scared that I’ll never be cured and won’t be able to feel comfortable in myself again. I’ve tried Aveeno cream, Lidocaine Gel and a numbing cream but I don’t really understand why they give us that seeing as it’s only temporary, it almost builds up your hopes but when the pain comes back it crushes them again. I have physio – therapy in a few weeks so hopefully that will help a lot. If anyone has any tips or anything at all that has remotely helped them please share I would be so so grateful, a day without pain or stress would be bliss!


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Re: Newly diagnosed and praying!

Post  noni on Wed Feb 15, 2012 11:41 pm

Hey Lauren!

So glad we can be here for you. And for one another.

Honestly, the biggest thing for me was acceptance that I have had this condition for 1.5 years now and it took me atleast 8 months to accept that I have this and that I may have to live with it for the rest of my life. Hopefully not, but Im thankful my meds are working and I have minimal pain, most days.

The ladies on here have found things that really work for them:physio, diet modifications, lidocaine, meds...etc etc....its all about whatever works for you, or what combo works for you.

I am on Amitriptyline and I dont experience the nasty side-effects alot of the other women have had with this particular med, such as: drowsiness and becoming ''zombie-like''....

Anyways, welcome!!

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Location : Ontario

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Re: Newly diagnosed and praying!

Post  Lauren. on Thu Feb 16, 2012 10:43 pm

Hey Noni!

Thank you for your reply, it means a lot Smile I know it was literally such a shock, and still is. That's so good that you have reduced pain now, was there anything in particular that helped you the most?

It's such a nuisance that there isn't just one cure, life would be so much simpler! Some days are good but then other days the pain just won't stop, it's constantly on my mind. I feel that it's affecting my emotions as well, usually I'm such an upbeat happy girl, but even reading some of the messages in the forum caused me to well up and cry, I know how silly!

Anyway thank you for your welcome!


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Hi Lauren!!

Post  sadone on Thu Feb 16, 2012 11:13 pm

Hi and welcome!!

You have found a great group of wonderful caring ladies here. I just posted a response, but it didn't take I don't think. Anyway, at the risk of repeating myself lol... I wanted to tell you that Lyrica is a medication that worked well for me (150 mg at bedtime). I also sit on a donut cushion in the car and wear loose clothing. I was burning all the time when this first started 3 years ago, but I'm much better now! I have tried numerous treatments and would be happy to write more if you'd like feel free to msg me. You will get better- it does take time and some trial and error. You're in the right place- this forum is great! Take care and keep us posted and ask away with any questions! Smile


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Re: Newly diagnosed and praying!

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