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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Newly diagnosed and praying!

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Newly diagnosed and praying!

Post  Lauren. on Wed Feb 15, 2012 4:32 pm

Hi I'm Lauren and a newbie!

I was diagnosed with Vulvodynia about 2 weeks ago and within those 2 weeks I guess I've tried to convince myself that I'm fine, have no pain, and haven't got this condition, which is definitely not the case. I'm so glad that I came across this forum, because it's so comforting to see that other people are going through the exact same thing I am, I thought I was the only one. It’s so refreshing seeing women stand by and advise each other. I've been feeling the burning, aching and irritation symptoms for about 6 months now and am so scared. I never thought that there would be anything wrong with me. I’m scared that I’ll never be cured and won’t be able to feel comfortable in myself again. I’ve tried Aveeno cream, Lidocaine Gel and a numbing cream but I don’t really understand why they give us that seeing as it’s only temporary, it almost builds up your hopes but when the pain comes back it crushes them again. I have physio – therapy in a few weeks so hopefully that will help a lot. If anyone has any tips or anything at all that has remotely helped them please share I would be so so grateful, a day without pain or stress would be bliss!



Lauren.

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Re: Newly diagnosed and praying!

Post  noni on Wed Feb 15, 2012 11:41 pm

Hey Lauren!

So glad we can be here for you. And for one another.

Honestly, the biggest thing for me was acceptance that I have had this condition for 1.5 years now and it took me atleast 8 months to accept that I have this and that I may have to live with it for the rest of my life. Hopefully not, but Im thankful my meds are working and I have minimal pain, most days.

The ladies on here have found things that really work for them:physio, diet modifications, lidocaine, meds...etc etc....its all about whatever works for you, or what combo works for you.

I am on Amitriptyline and I dont experience the nasty side-effects alot of the other women have had with this particular med, such as: drowsiness and becoming ''zombie-like''....

Anyways, welcome!!
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noni

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Re: Newly diagnosed and praying!

Post  Lauren. on Thu Feb 16, 2012 10:43 pm

Hey Noni!

Thank you for your reply, it means a lot Smile I know it was literally such a shock, and still is. That's so good that you have reduced pain now, was there anything in particular that helped you the most?

It's such a nuisance that there isn't just one cure, life would be so much simpler! Some days are good but then other days the pain just won't stop, it's constantly on my mind. I feel that it's affecting my emotions as well, usually I'm such an upbeat happy girl, but even reading some of the messages in the forum caused me to well up and cry, I know how silly!

Anyway thank you for your welcome!

Lauren.

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Hi Lauren!!

Post  sadone on Thu Feb 16, 2012 11:13 pm

Hi and welcome!!

You have found a great group of wonderful caring ladies here. I just posted a response, but it didn't take I don't think. Anyway, at the risk of repeating myself lol... I wanted to tell you that Lyrica is a medication that worked well for me (150 mg at bedtime). I also sit on a donut cushion in the car and wear loose clothing. I was burning all the time when this first started 3 years ago, but I'm much better now! I have tried numerous treatments and would be happy to write more if you'd like feel free to msg me. You will get better- it does take time and some trial and error. You're in the right place- this forum is great! Take care and keep us posted and ask away with any questions! Smile

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Re: Newly diagnosed and praying!

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