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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Newly diagnosed and praying!

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Newly diagnosed and praying!

Post  Lauren. on Wed Feb 15, 2012 4:32 pm

Hi I'm Lauren and a newbie!

I was diagnosed with Vulvodynia about 2 weeks ago and within those 2 weeks I guess I've tried to convince myself that I'm fine, have no pain, and haven't got this condition, which is definitely not the case. I'm so glad that I came across this forum, because it's so comforting to see that other people are going through the exact same thing I am, I thought I was the only one. It’s so refreshing seeing women stand by and advise each other. I've been feeling the burning, aching and irritation symptoms for about 6 months now and am so scared. I never thought that there would be anything wrong with me. I’m scared that I’ll never be cured and won’t be able to feel comfortable in myself again. I’ve tried Aveeno cream, Lidocaine Gel and a numbing cream but I don’t really understand why they give us that seeing as it’s only temporary, it almost builds up your hopes but when the pain comes back it crushes them again. I have physio – therapy in a few weeks so hopefully that will help a lot. If anyone has any tips or anything at all that has remotely helped them please share I would be so so grateful, a day without pain or stress would be bliss!



Lauren.

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Re: Newly diagnosed and praying!

Post  noni on Wed Feb 15, 2012 11:41 pm

Hey Lauren!

So glad we can be here for you. And for one another.

Honestly, the biggest thing for me was acceptance that I have had this condition for 1.5 years now and it took me atleast 8 months to accept that I have this and that I may have to live with it for the rest of my life. Hopefully not, but Im thankful my meds are working and I have minimal pain, most days.

The ladies on here have found things that really work for them:physio, diet modifications, lidocaine, meds...etc etc....its all about whatever works for you, or what combo works for you.

I am on Amitriptyline and I dont experience the nasty side-effects alot of the other women have had with this particular med, such as: drowsiness and becoming ''zombie-like''....

Anyways, welcome!!
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noni

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Re: Newly diagnosed and praying!

Post  Lauren. on Thu Feb 16, 2012 10:43 pm

Hey Noni!

Thank you for your reply, it means a lot Smile I know it was literally such a shock, and still is. That's so good that you have reduced pain now, was there anything in particular that helped you the most?

It's such a nuisance that there isn't just one cure, life would be so much simpler! Some days are good but then other days the pain just won't stop, it's constantly on my mind. I feel that it's affecting my emotions as well, usually I'm such an upbeat happy girl, but even reading some of the messages in the forum caused me to well up and cry, I know how silly!

Anyway thank you for your welcome!

Lauren.

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Hi Lauren!!

Post  sadone on Thu Feb 16, 2012 11:13 pm

Hi and welcome!!

You have found a great group of wonderful caring ladies here. I just posted a response, but it didn't take I don't think. Anyway, at the risk of repeating myself lol... I wanted to tell you that Lyrica is a medication that worked well for me (150 mg at bedtime). I also sit on a donut cushion in the car and wear loose clothing. I was burning all the time when this first started 3 years ago, but I'm much better now! I have tried numerous treatments and would be happy to write more if you'd like feel free to msg me. You will get better- it does take time and some trial and error. You're in the right place- this forum is great! Take care and keep us posted and ask away with any questions! Smile

sadone

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Re: Newly diagnosed and praying!

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