Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
great to find this support EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
great to find this support EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
great to find this support EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
great to find this support EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
great to find this support EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
great to find this support EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
great to find this support EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
great to find this support EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
great to find this support EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


great to find this support

3 posters

Go down

great to find this support Empty great to find this support

Post  unga Fri Feb 17, 2012 1:28 am

hello peoples. this all started after taking the pill three years ago. everything just sort of dried up and started hurting, and sex became something I did in the past. ((Much respect to my lovely boyfriend who has never once put any pressure on and is dealing with all this really well.))I've been recently diagnosed after three years of painful, tampon free, wondering about whether it was indeed 'in my head' as suggested by more than one doctor. I have only just found a doctor that not only diagnosed and helped me make positive forward steps, but also just made me realise that this is a common problem. Despite no-one really offering support I have been offered lidocaine, amytriptyline and now taking nortriptyline after feeling completely awful on the amytriptyline. Two doctors also offered me actual antidepressants when I mentioned I felt down...no words of comfort or diagnosis. I have been prodded and poked and ultimately ignored by 2 sexual health clinics, 2 gynecologists and 8 doctors and I have been utterly insulted by an acupuncturist. I am so glad to have found a doctor who seems to understand and has offered kind words and advice, and has referred me to a pychosexual therapist...is this helpful<?.phew. so far from being sorted but feel at last that at least I'm on the right tracks. Felt seriously disempowered for quite some time there. The worst thing for me is that it took three years for someone to understand that I actually had a problem, despite me going along to the doctors with a list of symptoms, and remaining calm and explaining my situation. and this affects 15% of women...?! more recognition please. Glad this forum exists and good luck to you all x

unga

Posts : 2
Join date : 2012-02-17

Back to top Go down

great to find this support Empty Re: great to find this support

Post  noni Fri Feb 17, 2012 2:57 am

Hello and welcome!

We're here for ya!
noni
noni

Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario

Back to top Go down

great to find this support Empty Re: great to find this support

Post  Aussie Fri Feb 17, 2012 3:23 am

Hello and welcome!

Doctors you will come to find will ignore you. I am suprised about the accupuncturist though. They are used to treating things western medicine ignore!

I too went through a fair few doctors before diagnosing myself! Then they went 'oh yeah that sounds like it' DUHHHHHHH

Smile you have to laugh somtimes at the utter stupidity of some doctors.

Anway just wanted to welcome you and say also get off the pill and any hormones if you haven't already. If it started it you simply can't stay on it. I started to feel better once I was off it. It was just part of the puzzle for me though!

xx

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

Back to top Go down

great to find this support Empty Re: great to find this support

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum