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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

great to find this support

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great to find this support

Post  unga on Fri Feb 17, 2012 1:28 am

hello peoples. this all started after taking the pill three years ago. everything just sort of dried up and started hurting, and sex became something I did in the past. ((Much respect to my lovely boyfriend who has never once put any pressure on and is dealing with all this really well.))I've been recently diagnosed after three years of painful, tampon free, wondering about whether it was indeed 'in my head' as suggested by more than one doctor. I have only just found a doctor that not only diagnosed and helped me make positive forward steps, but also just made me realise that this is a common problem. Despite no-one really offering support I have been offered lidocaine, amytriptyline and now taking nortriptyline after feeling completely awful on the amytriptyline. Two doctors also offered me actual antidepressants when I mentioned I felt down...no words of comfort or diagnosis. I have been prodded and poked and ultimately ignored by 2 sexual health clinics, 2 gynecologists and 8 doctors and I have been utterly insulted by an acupuncturist. I am so glad to have found a doctor who seems to understand and has offered kind words and advice, and has referred me to a pychosexual therapist...is this helpful<?.phew. so far from being sorted but feel at last that at least I'm on the right tracks. Felt seriously disempowered for quite some time there. The worst thing for me is that it took three years for someone to understand that I actually had a problem, despite me going along to the doctors with a list of symptoms, and remaining calm and explaining my situation. and this affects 15% of women...?! more recognition please. Glad this forum exists and good luck to you all x


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Re: great to find this support

Post  noni on Fri Feb 17, 2012 2:57 am

Hello and welcome!

We're here for ya!

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Re: great to find this support

Post  Aussie on Fri Feb 17, 2012 3:23 am

Hello and welcome!

Doctors you will come to find will ignore you. I am suprised about the accupuncturist though. They are used to treating things western medicine ignore!

I too went through a fair few doctors before diagnosing myself! Then they went 'oh yeah that sounds like it' DUHHHHHHH

Smile you have to laugh somtimes at the utter stupidity of some doctors.

Anway just wanted to welcome you and say also get off the pill and any hormones if you haven't already. If it started it you simply can't stay on it. I started to feel better once I was off it. It was just part of the puzzle for me though!



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Re: great to find this support

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