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Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
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» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


great to find this support

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great to find this support

Post  unga on Fri Feb 17, 2012 1:28 am

hello peoples. this all started after taking the pill three years ago. everything just sort of dried up and started hurting, and sex became something I did in the past. ((Much respect to my lovely boyfriend who has never once put any pressure on and is dealing with all this really well.))I've been recently diagnosed after three years of painful, tampon free, wondering about whether it was indeed 'in my head' as suggested by more than one doctor. I have only just found a doctor that not only diagnosed and helped me make positive forward steps, but also just made me realise that this is a common problem. Despite no-one really offering support I have been offered lidocaine, amytriptyline and now taking nortriptyline after feeling completely awful on the amytriptyline. Two doctors also offered me actual antidepressants when I mentioned I felt down...no words of comfort or diagnosis. I have been prodded and poked and ultimately ignored by 2 sexual health clinics, 2 gynecologists and 8 doctors and I have been utterly insulted by an acupuncturist. I am so glad to have found a doctor who seems to understand and has offered kind words and advice, and has referred me to a pychosexual therapist...is this helpful<?.phew. so far from being sorted but feel at last that at least I'm on the right tracks. Felt seriously disempowered for quite some time there. The worst thing for me is that it took three years for someone to understand that I actually had a problem, despite me going along to the doctors with a list of symptoms, and remaining calm and explaining my situation. and this affects 15% of women...?! more recognition please. Glad this forum exists and good luck to you all x

unga

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Re: great to find this support

Post  noni on Fri Feb 17, 2012 2:57 am

Hello and welcome!

We're here for ya!
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noni

Posts : 242
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Age : 30
Location : Ontario

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Re: great to find this support

Post  Aussie on Fri Feb 17, 2012 3:23 am

Hello and welcome!

Doctors you will come to find will ignore you. I am suprised about the accupuncturist though. They are used to treating things western medicine ignore!

I too went through a fair few doctors before diagnosing myself! Then they went 'oh yeah that sounds like it' DUHHHHHHH

Smile you have to laugh somtimes at the utter stupidity of some doctors.

Anway just wanted to welcome you and say also get off the pill and any hormones if you haven't already. If it started it you simply can't stay on it. I started to feel better once I was off it. It was just part of the puzzle for me though!

xx

Aussie

Posts : 227
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

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Re: great to find this support

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