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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 0


Sat Feb 10, 2018 12:18 am by rockylife


Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

great to find this support

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great to find this support

Post  unga on Fri Feb 17, 2012 1:28 am

hello peoples. this all started after taking the pill three years ago. everything just sort of dried up and started hurting, and sex became something I did in the past. ((Much respect to my lovely boyfriend who has never once put any pressure on and is dealing with all this really well.))I've been recently diagnosed after three years of painful, tampon free, wondering about whether it was indeed 'in my head' as suggested by more than one doctor. I have only just found a doctor that not only diagnosed and helped me make positive forward steps, but also just made me realise that this is a common problem. Despite no-one really offering support I have been offered lidocaine, amytriptyline and now taking nortriptyline after feeling completely awful on the amytriptyline. Two doctors also offered me actual antidepressants when I mentioned I felt down...no words of comfort or diagnosis. I have been prodded and poked and ultimately ignored by 2 sexual health clinics, 2 gynecologists and 8 doctors and I have been utterly insulted by an acupuncturist. I am so glad to have found a doctor who seems to understand and has offered kind words and advice, and has referred me to a pychosexual therapist...is this helpful<?.phew. so far from being sorted but feel at last that at least I'm on the right tracks. Felt seriously disempowered for quite some time there. The worst thing for me is that it took three years for someone to understand that I actually had a problem, despite me going along to the doctors with a list of symptoms, and remaining calm and explaining my situation. and this affects 15% of women...?! more recognition please. Glad this forum exists and good luck to you all x


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Re: great to find this support

Post  noni on Fri Feb 17, 2012 2:57 am

Hello and welcome!

We're here for ya!

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Re: great to find this support

Post  Aussie on Fri Feb 17, 2012 3:23 am

Hello and welcome!

Doctors you will come to find will ignore you. I am suprised about the accupuncturist though. They are used to treating things western medicine ignore!

I too went through a fair few doctors before diagnosing myself! Then they went 'oh yeah that sounds like it' DUHHHHHHH

Smile you have to laugh somtimes at the utter stupidity of some doctors.

Anway just wanted to welcome you and say also get off the pill and any hormones if you haven't already. If it started it you simply can't stay on it. I started to feel better once I was off it. It was just part of the puzzle for me though!



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Re: great to find this support

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