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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


great to find this support

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great to find this support

Post  unga on Fri Feb 17, 2012 1:28 am

hello peoples. this all started after taking the pill three years ago. everything just sort of dried up and started hurting, and sex became something I did in the past. ((Much respect to my lovely boyfriend who has never once put any pressure on and is dealing with all this really well.))I've been recently diagnosed after three years of painful, tampon free, wondering about whether it was indeed 'in my head' as suggested by more than one doctor. I have only just found a doctor that not only diagnosed and helped me make positive forward steps, but also just made me realise that this is a common problem. Despite no-one really offering support I have been offered lidocaine, amytriptyline and now taking nortriptyline after feeling completely awful on the amytriptyline. Two doctors also offered me actual antidepressants when I mentioned I felt down...no words of comfort or diagnosis. I have been prodded and poked and ultimately ignored by 2 sexual health clinics, 2 gynecologists and 8 doctors and I have been utterly insulted by an acupuncturist. I am so glad to have found a doctor who seems to understand and has offered kind words and advice, and has referred me to a pychosexual therapist...is this helpful<?.phew. so far from being sorted but feel at last that at least I'm on the right tracks. Felt seriously disempowered for quite some time there. The worst thing for me is that it took three years for someone to understand that I actually had a problem, despite me going along to the doctors with a list of symptoms, and remaining calm and explaining my situation. and this affects 15% of women...?! more recognition please. Glad this forum exists and good luck to you all x

unga

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Join date : 2012-02-17

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Re: great to find this support

Post  noni on Fri Feb 17, 2012 2:57 am

Hello and welcome!

We're here for ya!
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noni

Posts : 242
Join date : 2011-01-10
Age : 29
Location : Ontario

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Re: great to find this support

Post  Aussie on Fri Feb 17, 2012 3:23 am

Hello and welcome!

Doctors you will come to find will ignore you. I am suprised about the accupuncturist though. They are used to treating things western medicine ignore!

I too went through a fair few doctors before diagnosing myself! Then they went 'oh yeah that sounds like it' DUHHHHHHH

Smile you have to laugh somtimes at the utter stupidity of some doctors.

Anway just wanted to welcome you and say also get off the pill and any hormones if you haven't already. If it started it you simply can't stay on it. I started to feel better once I was off it. It was just part of the puzzle for me though!

xx

Aussie

Posts : 227
Join date : 2011-03-15
Age : 28
Location : Queensland, Australia

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Re: great to find this support

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