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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


My story 8 years on

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My story 8 years on

Post  Sunflower82 on Fri Feb 17, 2012 10:34 am

Hi,

Have just joined the group. I have been suffering for the last 8 years but only been diagnosed for just over a year and a half. Like everyone I've seen so many health care professionals and not really getting anywhere. Ive used lodicaine, instillergel, steroid cream, must say lidocaine has saved my life on a few occasions but is not a long term solution. I've been on anti depressants for over a year, I didn't really think they were helping untill I stopped taking them then I realised how much pain I was in. I have been seeing a women health physio therapIist( very hard to find) she works on releasing my pelvic floor muscle, and often women have tension in their tummy muscles which put pressure on your pelvic floor muscles, initally it made the condition worse as I had to do internal massages everyday, which was so painful, after 6 months I was more or less pain free and just able to have sex. I've unfortunately had a Little relapse due to end of term stress( I work in a school) and a little to much trampolining. Trampolining can make things ten times worse. Hope this helps some one

Sunflower82

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Join date : 2012-02-17

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Re: My story 8 years on

Post  Rose86 on Sat Feb 18, 2012 12:43 pm

Hi and welcome to the forum! Can I just ask if you have generalised or localised provoked vulvodynia? Can you explain your symptoms a little more?

Thanks!

Rose

Rose86

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Join date : 2011-06-23

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Reply to Rosie

Post  Sunflower82 on Sat Feb 18, 2012 7:24 pm

Hi, I have generalised Vulvodynia. I suffer with a burning sensation and stabbing pains across my pubic bone. Generally pain all around the vulvar which is hard to pin point where the pain is coming from. I experience lots of burning after I go for a wee this can be an intense pain that can last for hours or just lasts for seconds. I have tension in my tummy muscles and muscles in my bottom which attach to the pelvic floor muscles. I also suffer from cystitis on a regular basis and find sex extremely painful. Physio has helped alot and till recently most of my symptoms had improved so much and most days I was pain free. Last week I have had a really bad relapse. I can only wear jogging bottoms as everything else is too painful.

Sunflower82

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Re: My story 8 years on

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