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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


My story 8 years on

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My story 8 years on

Post  Sunflower82 on Fri Feb 17, 2012 10:34 am

Hi,

Have just joined the group. I have been suffering for the last 8 years but only been diagnosed for just over a year and a half. Like everyone I've seen so many health care professionals and not really getting anywhere. Ive used lodicaine, instillergel, steroid cream, must say lidocaine has saved my life on a few occasions but is not a long term solution. I've been on anti depressants for over a year, I didn't really think they were helping untill I stopped taking them then I realised how much pain I was in. I have been seeing a women health physio therapIist( very hard to find) she works on releasing my pelvic floor muscle, and often women have tension in their tummy muscles which put pressure on your pelvic floor muscles, initally it made the condition worse as I had to do internal massages everyday, which was so painful, after 6 months I was more or less pain free and just able to have sex. I've unfortunately had a Little relapse due to end of term stress( I work in a school) and a little to much trampolining. Trampolining can make things ten times worse. Hope this helps some one

Sunflower82

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Re: My story 8 years on

Post  Rose86 on Sat Feb 18, 2012 12:43 pm

Hi and welcome to the forum! Can I just ask if you have generalised or localised provoked vulvodynia? Can you explain your symptoms a little more?

Thanks!

Rose

Rose86

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Reply to Rosie

Post  Sunflower82 on Sat Feb 18, 2012 7:24 pm

Hi, I have generalised Vulvodynia. I suffer with a burning sensation and stabbing pains across my pubic bone. Generally pain all around the vulvar which is hard to pin point where the pain is coming from. I experience lots of burning after I go for a wee this can be an intense pain that can last for hours or just lasts for seconds. I have tension in my tummy muscles and muscles in my bottom which attach to the pelvic floor muscles. I also suffer from cystitis on a regular basis and find sex extremely painful. Physio has helped alot and till recently most of my symptoms had improved so much and most days I was pain free. Last week I have had a really bad relapse. I can only wear jogging bottoms as everything else is too painful.

Sunflower82

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Re: My story 8 years on

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