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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


My story 8 years on

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My story 8 years on

Post  Sunflower82 on Fri Feb 17, 2012 10:34 am

Hi,

Have just joined the group. I have been suffering for the last 8 years but only been diagnosed for just over a year and a half. Like everyone I've seen so many health care professionals and not really getting anywhere. Ive used lodicaine, instillergel, steroid cream, must say lidocaine has saved my life on a few occasions but is not a long term solution. I've been on anti depressants for over a year, I didn't really think they were helping untill I stopped taking them then I realised how much pain I was in. I have been seeing a women health physio therapIist( very hard to find) she works on releasing my pelvic floor muscle, and often women have tension in their tummy muscles which put pressure on your pelvic floor muscles, initally it made the condition worse as I had to do internal massages everyday, which was so painful, after 6 months I was more or less pain free and just able to have sex. I've unfortunately had a Little relapse due to end of term stress( I work in a school) and a little to much trampolining. Trampolining can make things ten times worse. Hope this helps some one

Sunflower82

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Join date : 2012-02-17

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Re: My story 8 years on

Post  Rose86 on Sat Feb 18, 2012 12:43 pm

Hi and welcome to the forum! Can I just ask if you have generalised or localised provoked vulvodynia? Can you explain your symptoms a little more?

Thanks!

Rose

Rose86

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Reply to Rosie

Post  Sunflower82 on Sat Feb 18, 2012 7:24 pm

Hi, I have generalised Vulvodynia. I suffer with a burning sensation and stabbing pains across my pubic bone. Generally pain all around the vulvar which is hard to pin point where the pain is coming from. I experience lots of burning after I go for a wee this can be an intense pain that can last for hours or just lasts for seconds. I have tension in my tummy muscles and muscles in my bottom which attach to the pelvic floor muscles. I also suffer from cystitis on a regular basis and find sex extremely painful. Physio has helped alot and till recently most of my symptoms had improved so much and most days I was pain free. Last week I have had a really bad relapse. I can only wear jogging bottoms as everything else is too painful.

Sunflower82

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Re: My story 8 years on

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