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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

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New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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Return of my vulvodynia, maybe?

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Return of my vulvodynia, maybe?

Post  mmg2978 on Tue Feb 21, 2012 12:11 am

So here is my story. I was diagnosed with vulvodynia when I was 19 and spent about three years in agony. Was treated by a gyn with steroid creams which would help with itching but nothing else. Finally, it cleared up and went away. For the past 2 months I have been suffering with the feeling of swelling, rawness and itching on just the left side. I went to my doctor and was diagnosed with a bartholian gland cyst and treated with Keflex for 10 days. My symptoms resolved in two days but have now returned. I have been with my husband for 12 years now and doubt any STD would be possible. I have also had two vaginal births requiring suture repair on the left side both times. I am wondering if this damage has triggered this again. I know coffee can be a trigger and I have reduced my intake greatly. I also started taking Calcium citrate because it reduces oxalates. I have noticed some improvement where I will have pain free days and then it will return. I am starting to have a real complex about this as I did before. I do not want to go through years of this again. Anyone try the tricyclics for control? And has anyone had a flair up of this years after having it the first time? It has been 14 years since I was first diagnosed. I also have not been able to wear tampons for quite sometime due to pain when using. I also wonder if my bartholian gland duct has been damaged from the suturing after birth? I will take any help possible.


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Re: Return of my vulvodynia, maybe?

Post  mary jane on Sat Dec 07, 2013 5:10 pm

hi. Episiotomy scars are known to trigger pudendal nerve pain. I also have had issues with the stupid bartholin gland in the past
mary jane

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Post  907hopeful on Wed Jan 08, 2014 6:28 am

Have you tried physical therapy? After all the trauma your vaginal has been through w/ births and now the nervousness of your problem returning you may be stressing your vaginally muscles too much. I have read PT helps a lot if women. I have yet to try it, but it is on my list! I do find when I make myself relax my pain lessens...


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Re: Return of my vulvodynia, maybe?

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