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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Return of my vulvodynia, maybe?

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Return of my vulvodynia, maybe?

Post  mmg2978 on Tue Feb 21, 2012 12:11 am

So here is my story. I was diagnosed with vulvodynia when I was 19 and spent about three years in agony. Was treated by a gyn with steroid creams which would help with itching but nothing else. Finally, it cleared up and went away. For the past 2 months I have been suffering with the feeling of swelling, rawness and itching on just the left side. I went to my doctor and was diagnosed with a bartholian gland cyst and treated with Keflex for 10 days. My symptoms resolved in two days but have now returned. I have been with my husband for 12 years now and doubt any STD would be possible. I have also had two vaginal births requiring suture repair on the left side both times. I am wondering if this damage has triggered this again. I know coffee can be a trigger and I have reduced my intake greatly. I also started taking Calcium citrate because it reduces oxalates. I have noticed some improvement where I will have pain free days and then it will return. I am starting to have a real complex about this as I did before. I do not want to go through years of this again. Anyone try the tricyclics for control? And has anyone had a flair up of this years after having it the first time? It has been 14 years since I was first diagnosed. I also have not been able to wear tampons for quite sometime due to pain when using. I also wonder if my bartholian gland duct has been damaged from the suturing after birth? I will take any help possible.

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Re: Return of my vulvodynia, maybe?

Post  mary jane on Sat Dec 07, 2013 5:10 pm

hi. Episiotomy scars are known to trigger pudendal nerve pain. I also have had issues with the stupid bartholin gland in the past
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PT

Post  907hopeful on Wed Jan 08, 2014 6:28 am

Have you tried physical therapy? After all the trauma your vaginal has been through w/ births and now the nervousness of your problem returning you may be stressing your vaginally muscles too much. I have read PT helps a lot if women. I have yet to try it, but it is on my list! I do find when I make myself relax my pain lessens...

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Re: Return of my vulvodynia, maybe?

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