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» Please tell me this can get better
Today at 2:10 am by anon99

» Acupuncture advice please
Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

so.. its not a bladder infection..

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so.. its not a bladder infection..

Post  forever-blossoming on Sat Feb 25, 2012 7:32 am

im just a high school student trying my best to fit into the norms of the society, while doing my best in high school to one day reach the fashion industry until one day in my final year of year 11 i kept running to the bathroom to the point where i had to tell teachers 'i need a drink'...ironic huh? this became my excessive excuse until teachers began to notice it becoming a habit. the moment i had to start lying about going to the bathroom, i felt so embarrassed. i was convinved it was a bladder infection. i told the doctors about it and they were convinced too, but it didnt appear in urine tests that i had a bladder infection. the doctor said ' sometimes it doesnt show in tests, but your symptoms are compatible'. for me i was reliefed that i was give some tablets for releif .. until i didnt get relief.. this has carried on for 5 months. 5 days a week at school. 6 hours a day. i couldnt go on important excursions because i felt like i need to run to the bathroom. ive missed out on so much, and my grades have gone down abit cause of this too. now im so concerned for when im older and want to go to uni and got ajob... whos going to want to employ the girl with the peeing problem, when they could hire someone who can not go to the bathrom for 7 hours.
i have my mid term exams for my final year coming up and im already planning that im going to need 6 doctors certificates !
these past five months have been a roller coaster for me.. i had a friend who would sometimes forget bout my problem and tease me a bit, and then i had another one who is incrediably understanding and would ask me if i needed to go and wouldnt blame me if we missed a bus cause i need to go to the bathroom.
thats another thing. public transport. i cant travel for long then 10ish minutes without the sensation of needing to go. i always think to myself when is this going to stop ! i hate it ! i feel like this stupid problem is controlling my life . but them there are times where i just accept it and try my best to embrace it and that now its apart of who i am.


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Re: so.. its not a bladder infection..

Post  mmorgan on Sun Feb 26, 2012 5:35 am

Sounds like IC, you should check out the ic forum. On my phone so can't link you. But its really helpful.

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Re: so.. its not a bladder infection..

Post  junobug85 on Sun Apr 22, 2012 11:55 pm

you may have an overactive bladder, there are pills for that as well


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Re: so.. its not a bladder infection..

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