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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


so.. its not a bladder infection..

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so.. its not a bladder infection..

Post  forever-blossoming on Sat Feb 25, 2012 7:32 am

im just a high school student trying my best to fit into the norms of the society, while doing my best in high school to one day reach the fashion industry until one day in my final year of year 11 i kept running to the bathroom to the point where i had to tell teachers 'i need a drink'...ironic huh? this became my excessive excuse until teachers began to notice it becoming a habit. the moment i had to start lying about going to the bathroom, i felt so embarrassed. i was convinved it was a bladder infection. i told the doctors about it and they were convinced too, but it didnt appear in urine tests that i had a bladder infection. the doctor said ' sometimes it doesnt show in tests, but your symptoms are compatible'. for me i was reliefed that i was give some tablets for releif .. until i didnt get relief.. this has carried on for 5 months. 5 days a week at school. 6 hours a day. i couldnt go on important excursions because i felt like i need to run to the bathroom. ive missed out on so much, and my grades have gone down abit cause of this too. now im so concerned for when im older and want to go to uni and got ajob... whos going to want to employ the girl with the peeing problem, when they could hire someone who can not go to the bathrom for 7 hours.
i have my mid term exams for my final year coming up and im already planning that im going to need 6 doctors certificates !
these past five months have been a roller coaster for me.. i had a friend who would sometimes forget bout my problem and tease me a bit, and then i had another one who is incrediably understanding and would ask me if i needed to go and wouldnt blame me if we missed a bus cause i need to go to the bathroom.
thats another thing. public transport. i cant travel for long then 10ish minutes without the sensation of needing to go. i always think to myself when is this going to stop ! i hate it ! i feel like this stupid problem is controlling my life . but them there are times where i just accept it and try my best to embrace it and that now its apart of who i am.

forever-blossoming

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Re: so.. its not a bladder infection..

Post  mmorgan on Sun Feb 26, 2012 5:35 am

Sounds like IC, you should check out the ic forum. On my phone so can't link you. But its really helpful.
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mmorgan

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Re: so.. its not a bladder infection..

Post  junobug85 on Sun Apr 22, 2012 11:55 pm

you may have an overactive bladder, there are pills for that as well

junobug85

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Re: so.. its not a bladder infection..

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