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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

so.. its not a bladder infection..

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so.. its not a bladder infection..

Post  forever-blossoming on Sat Feb 25, 2012 7:32 am

im just a high school student trying my best to fit into the norms of the society, while doing my best in high school to one day reach the fashion industry until one day in my final year of year 11 i kept running to the bathroom to the point where i had to tell teachers 'i need a drink'...ironic huh? this became my excessive excuse until teachers began to notice it becoming a habit. the moment i had to start lying about going to the bathroom, i felt so embarrassed. i was convinved it was a bladder infection. i told the doctors about it and they were convinced too, but it didnt appear in urine tests that i had a bladder infection. the doctor said ' sometimes it doesnt show in tests, but your symptoms are compatible'. for me i was reliefed that i was give some tablets for releif .. until i didnt get relief.. this has carried on for 5 months. 5 days a week at school. 6 hours a day. i couldnt go on important excursions because i felt like i need to run to the bathroom. ive missed out on so much, and my grades have gone down abit cause of this too. now im so concerned for when im older and want to go to uni and got ajob... whos going to want to employ the girl with the peeing problem, when they could hire someone who can not go to the bathrom for 7 hours.
i have my mid term exams for my final year coming up and im already planning that im going to need 6 doctors certificates !
these past five months have been a roller coaster for me.. i had a friend who would sometimes forget bout my problem and tease me a bit, and then i had another one who is incrediably understanding and would ask me if i needed to go and wouldnt blame me if we missed a bus cause i need to go to the bathroom.
thats another thing. public transport. i cant travel for long then 10ish minutes without the sensation of needing to go. i always think to myself when is this going to stop ! i hate it ! i feel like this stupid problem is controlling my life . but them there are times where i just accept it and try my best to embrace it and that now its apart of who i am.


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Re: so.. its not a bladder infection..

Post  mmorgan on Sun Feb 26, 2012 5:35 am

Sounds like IC, you should check out the ic forum. On my phone so can't link you. But its really helpful.

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Re: so.. its not a bladder infection..

Post  junobug85 on Sun Apr 22, 2012 11:55 pm

you may have an overactive bladder, there are pills for that as well


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Re: so.. its not a bladder infection..

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