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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

so.. its not a bladder infection..

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so.. its not a bladder infection..

Post  forever-blossoming on Sat Feb 25, 2012 7:32 am

im just a high school student trying my best to fit into the norms of the society, while doing my best in high school to one day reach the fashion industry until one day in my final year of year 11 i kept running to the bathroom to the point where i had to tell teachers 'i need a drink'...ironic huh? this became my excessive excuse until teachers began to notice it becoming a habit. the moment i had to start lying about going to the bathroom, i felt so embarrassed. i was convinved it was a bladder infection. i told the doctors about it and they were convinced too, but it didnt appear in urine tests that i had a bladder infection. the doctor said ' sometimes it doesnt show in tests, but your symptoms are compatible'. for me i was reliefed that i was give some tablets for releif .. until i didnt get relief.. this has carried on for 5 months. 5 days a week at school. 6 hours a day. i couldnt go on important excursions because i felt like i need to run to the bathroom. ive missed out on so much, and my grades have gone down abit cause of this too. now im so concerned for when im older and want to go to uni and got ajob... whos going to want to employ the girl with the peeing problem, when they could hire someone who can not go to the bathrom for 7 hours.
i have my mid term exams for my final year coming up and im already planning that im going to need 6 doctors certificates !
these past five months have been a roller coaster for me.. i had a friend who would sometimes forget bout my problem and tease me a bit, and then i had another one who is incrediably understanding and would ask me if i needed to go and wouldnt blame me if we missed a bus cause i need to go to the bathroom.
thats another thing. public transport. i cant travel for long then 10ish minutes without the sensation of needing to go. i always think to myself when is this going to stop ! i hate it ! i feel like this stupid problem is controlling my life . but them there are times where i just accept it and try my best to embrace it and that now its apart of who i am.


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Re: so.. its not a bladder infection..

Post  mmorgan on Sun Feb 26, 2012 5:35 am

Sounds like IC, you should check out the ic forum. On my phone so can't link you. But its really helpful.

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Re: so.. its not a bladder infection..

Post  junobug85 on Sun Apr 22, 2012 11:55 pm

you may have an overactive bladder, there are pills for that as well


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Re: so.. its not a bladder infection..

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