Vulvodynia Support
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» Hope to all my suffering ladies
I hate this. EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
I hate this. EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
I hate this. EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
I hate this. EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
I hate this. EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
I hate this. EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
I hate this. EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
I hate this. EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
I hate this. EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


I hate this.

5 posters

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Post  Sick Sat Feb 25, 2012 8:35 pm

Right now, I am totally pissed at my vagina, my boyfriend, guys in general, sex, guys wanting sex, me never having a boyfriend again because of that, vulvodynia ruining my life.

I am also very scared. I'm scared that I will be left alone forever, because no guy will want to be with a girl who cannot give and enjoy sex. I feel devalued. Crying or Very sad

My boyfriend says I don't realize how it is frustrating to him not having sex for 10 days. But WHAT AM I SUPPOSED TO DO? Everytime we try, it feels like rape to me. I'm sick of making myself to do it. So of course he's frustrated, and he's been so patient for the 4 past years, and he's going to leave me and it pisses me off. Why can't he just touch himself and leave me alone?


Sick

Posts : 5
Join date : 2012-02-25

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Post  lolainslacks Sun Feb 26, 2012 1:13 am

I'm sorry if this is blunt -- of course I don't know your boyfriend and perhaps he's a lovely guy, this is only my opinion.

You "don't know what it feels like to not be able to have sex for ten days"? Ten days of no sex? That is the problem he's dealing with?! How about the fucking agonising pain you feel in the most sensitive part of your body? Seriously, ten days of no sex is nothing. There are thousands of guys who would be happy having NO sex for months if it meant avoiding pain for their loved one. Your boyfriend sounds like a selfish douche.

I'm sorry, I just have no time for men like this. You are dealing with one of the most difficult medical conditions a woman can have, sex is so excruciating and traumatic for you that it feels like being abused, and his problem is that he hasn't had sex in ten days. Really, you need to excise him from your life. Being with a man who makes you feel like sex is something you are expected to endure in order to keep him satisfied, will damage you. You need to realise that sex is not the be all and end all of everything and that there are plenty of guys who would love to be with you despite your limitations. Difficulty with sex is not something that will prevent you from sustaining a normal and healthy relationship, because you are still a loveable person capable of pleasing in other ways. You just need to be with someone who puts your health and happiness above their need to stick their dick in something.

lolainslacks

Posts : 115
Join date : 2011-04-18

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Post  Sick Wed Feb 29, 2012 10:22 pm

Okay - First of all, thank you for your support, it really helps. To his defense, my boyfriend (which is now my ex-boyfriend, since yesterday) obviously didn't want to have sex and hurt me. He wanted to have the kind of sex that is not involving any penetration and pain. I understand this need, even though you're right that he doesn't quite understand the fact that this condition affects me psychologically...

Your message gave me hope, and I think you are right when you say that I can still have a healthy and happy relationship with a man. Thank you.

Sick

Posts : 5
Join date : 2012-02-25

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Post  naomi Thu Mar 01, 2012 10:58 am

Yep u def can! My last ex used to guilt trip me, wouldn't even talk about stuff. I used to say to my family I am faulty goods, no one will want me

My partner I've been with for over a year now, tom, is lovely. We've never had sexual intercourse, he's my rock and makes me laugh.

They are out there I promise u. I went on quite a few dates b4 tom and was brutely honest re vestibulitis /vulvodynia (spreading the word person by person!) And i felt liberated by being so homeland laying my cards on the table...it was surprising how many guys understood

Xxxx
naomi
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

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Post  naomi Thu Mar 01, 2012 11:00 am

*honest and not homeland! Bloody auto correct hehe!
naomi
naomi
Moderator

Posts : 262
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Location : Cheltenham

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Post  Sick Sun Mar 25, 2012 1:54 am

thank you, Naomi. It is a relief to know that there are guys out there who will still want to be with me even if sex makes me sick and just plain angry right now. I am curious - did you just tell everyone in your entourage about your condition? I am so uncomfortable right now about this and I am really picky on which people I share my problem with. But sometimes I feel like if everything was out in the open, I would kinda feel better. I don't know. How is it going for you?

Sick

Posts : 5
Join date : 2012-02-25

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Post  shortstuff Wed Mar 28, 2012 10:41 am

I am also with a wonderful guy who has been understanding about my condition. It does frustrate him at times, but he has never once tried to force me to engage in intercourse. We have very open communication and I've learned sometimes he just needs to vent about it (not yelling, just complaining) the same way I do. I don't take it personal (although at first I did, also feeling like damaged goods) - he's mad at the vulvodynia, not me. He's gone months without sex.

I personally have only told him and my sister. And I only told my sis because she lives with me and noticed I winced a lot when sitting and never wore underwear Very Happy She was not very understanding and that deterred me from divulging to anyone else. But then again, I don't have many close friends anyways.. I'm a very private person.

Are you on BC pill? Once I stopped that, the pain has gotten MUCH better. I'm almost back to normal. I was on it 5 years with no problems. I also just recently found out that I have herpes II as well (which is honestly not nearly as bad as the vulvodynia). I started taking Lysine for that and a multivitamin (can't take the viral suppressants, had side effects) and I don't know if that's linked with the decrease in vulvo pain. Lysine is a amino acid that your body can't produce, you get it through diet only, and it's given me crazy energy levels... I've never read anything about it in my vulvo research, but I don't know. The vulvodynia subsided after I started taking all my supplements and the doctors told me the pain issue was not related to the herpes. But, they could also be wrong.

I wonder if anyone else in this group has tried lysine?

Hang in there hun, you'll find a wonderful guy who loves you, vulvodynia aside. What I told myself was at least I know my partner isn't with me for the sex!

shortstuff

Posts : 41
Join date : 2012-01-22
Age : 36
Location : Florida, United States

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Post  JannyDoe Thu Mar 29, 2012 8:31 pm

Just hang in there and hopefully it will get better after time. Try pleasing him orally.

JannyDoe

Posts : 1
Join date : 2012-03-29

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