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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

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New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

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Meet up?

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Meet up?

Post  naomi on Tue Jul 13, 2010 9:04 pm

Arrange a meet up sometime folks?

I haven't got Skype and wouldn't have a clue how to set it up or use it!

I love this site thanks Sebby for creating it. Feels like a little family, so supportive

xxx
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Re: Meet up?

Post  Sebby (Admin) on Tue Jul 13, 2010 9:31 pm


Thanks Naomi, A meet up would be fantastic.

Where are all you girls from??? Im in Dagenham Essex (poor me lol) near London tho

Sebby
xxxx
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Re: Meet up?

Post  naomi on Tue Jul 13, 2010 9:37 pm

I'm Cheltenham in Gloucestershire (nr Bristol). Can drive anywhere though as long as my trusty sat nav is with me Very Happy

bed for me, night all xx
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meet up.

Post  maggie on Wed Jul 14, 2010 11:31 pm

Hi, i'm in forest gate east london, i,m not far from you sebby, your all welcome to meet at my place.
maggie xxx

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Re: Meet up?

Post  Sebby (Admin) on Thu Jul 15, 2010 7:16 am


Oh wow Maggie your not far at all! I work for Newham Council organising the special needs transport.
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Re: Meet up?

Post  Sarah001 on Thu Jul 15, 2010 11:34 am

Well I'm miles from all of you and badly restricted by my other health issues so I'll have to pass!
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Re: Meet up?

Post  julia on Wed Jul 28, 2010 5:40 pm

Just thought I'd re-open this post.. I live in Kettering, Northamptonshire and would love to meet up with some of you, either here there or anywhere!

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Re: Meet up?

Post  naomi on Wed Jul 28, 2010 5:48 pm

Me too I'm easy! Love a good road trip! (with this condition it means I have to stop for more Costa coffee stops!!)

People ok to meet up in say a months time ish?

We could do a random day in London? or meet at a stately home? or someones local cosy pub?

Be warned...I will arrive with my big level arch file of gynae information...do not be afraid!
xxx Very Happy
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Re: Meet up?

Post  julia on Sat Jul 31, 2010 3:45 pm

Shall we try to confirm a day soon? I work Monday to Friday, so a Saturday during the day in London would be perfect for me.... what you all reckon?

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Re: Meet up?

Post  Sebby (Admin) on Sun Aug 01, 2010 3:25 pm


Yes a Saturday is perfect for me as I also work Monday to Friday and can get to London no problem

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Re: Meet up?

Post  naomi on Sun Aug 01, 2010 5:48 pm

hows about a sat near the end of aug? and near to Sebby and maggie? where do you guys live again? I'm up for crashing at a travelodge (people are welcome to share a room to keep costs down, I dont snore!) and having a night out if anyone fancies it? might as well throw a meal in there too if anyones up for that?...just something to look forward to then Smile
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Re: Meet up?

Post  naomi on Tue Aug 10, 2010 7:12 pm

Sat 11th Sept...meet up then ladies?!!
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Re: Meet up?

Post  Sebby (Admin) on Tue Aug 10, 2010 7:56 pm


Ok Sat 11th sounds good to me xxx
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Re: Meet up?

Post  naomi on Tue Aug 10, 2010 8:08 pm

ace! thought id just throw a date in there! I'm happy to come down to ur and maggies part of the country! xxx
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Re: Meet up?

Post  Sarah001 on Mon Sep 20, 2010 12:44 pm

Did you girls meet up? How was it meeting other board members face to face?
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Re: Meet up?

Post  jules on Tue Sep 21, 2010 2:54 am

Hey...I feel left out. No road trips from the U.S. did you all meet? If so, how did it go?

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Re: Meet up?

Post  Sebby (Admin) on Tue Sep 21, 2010 7:07 pm


Hey Sarah, yeah me and Naomi met up!

It was a random and fun nite!!

We went up to London and got chatted up by two American fellas! lol We can't remember their names now!!

It was great to meet up face to face...its wonderful to get to know and speak to those who understand you condition as it really makes you feel less alone with it!

Sebby
xxx
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Re: Meet up?

Post  Sebby (Admin) on Tue Sep 21, 2010 7:08 pm


Oh Jules its you!!

I got confused with the name change! lol

Laughing
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Re: Meet up?

Post  jules on Sat Sep 25, 2010 5:05 pm

Yes, I changed my profile name. I didn't want some of the identifying info. I had included w/ my profile name (my initials). so glad you met and you were hit on by American men. Must not have been too memorable if you can't remember your names. Hope everyone is hanging in there.

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Re: Meet up?

Post  Sebby (Admin) on Wed Sep 29, 2010 9:15 pm


Well I got a friend request from one of em on facebook!! lol Aparently he is called Andrew!! Lmao
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Re: Meet up?

Post  jules on Thu Sep 30, 2010 3:29 am

ha ha! that's great. i'm not your only American facebook friend, huh?

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Re: Meet up?

Post  naomi on Sun Oct 03, 2010 9:33 pm

hello all!

back from hol with my folks it was so relaxing just going to the beach and BBQ's in portugal. Def what the doctor ordered!

Yeh meet up was funny!! I remember he had tinsey hands/arms?...or am i making that up??! he couldnt touch his shoulders?! And some random mini festival on the banks of the river thames! Glad we didnt go off clubbing with them though as I would not have been able to drive back home the next day.

Ooooooowa Sad I really wished we lived close to each other and could met up regularly. Its so random how u meet people!! Ur ace company though Sebby, felt like Ive known u forever!!

We need to arrange another meet up! If anyone has any suggestions as to where? Im always up for a road trip and dont mind driving, only thing is I need a few weeks to save up pennies....benefits dont really add up to much. Unforch we cant cross the ocean though to visit u guys in the US Sad
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Re: Meet up?

Post  jules on Mon Oct 04, 2010 1:01 am

Naomi, it sounds like you had a great time. I would love to go to Portugal. It hear there is a high alert for Americans to travel in Europe and the UK. Also the British are being warned about traveling. Those damn terrorist. Get a life!!! I would really have to save up my pennies to come and see you all. Naomi, how long of a drive is it for you to meet w/ Sebby? It sounds like you two are pretty close in distance?

Hope you all are w/out pain today. One day at a time. I went to a big event last night...dinner/dancing/drinks etc. I could barely sit. However after three Martinis...or so, i was feeling pretty good.

Let me know how your meeting is...it would be great to meet you all in person. If you are ever in the U.S. in my state..i would love to meet you. Not sure if i will ever get my husband to travel to England, unless of course, you all have casinos, then maybe :-)

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Re: Meet up?

Post  Sebby (Admin) on Tue Oct 05, 2010 6:51 am


Yes Naomi he did have little hands and arms!! haha
Laughing

Yeah it does feel like we have known each other for ages!

Would be great to go on a road trip and meet up with you other girls.

My mums disabled so as long as I can make sure she is ok and has someone else to hand if she feels unwell then im up for it!

Sebby
xxx
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Re: Meet up?

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