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» UK Vulvodynia Clinics
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» 8 years and struggling
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Meet up?

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Meet up?

Post  naomi on Tue Jul 13, 2010 9:04 pm

Arrange a meet up sometime folks?

I haven't got Skype and wouldn't have a clue how to set it up or use it!

I love this site thanks Sebby for creating it. Feels like a little family, so supportive

xxx
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Re: Meet up?

Post  Sebby (Admin) on Tue Jul 13, 2010 9:31 pm


Thanks Naomi, A meet up would be fantastic.

Where are all you girls from??? Im in Dagenham Essex (poor me lol) near London tho

Sebby
xxxx
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Re: Meet up?

Post  naomi on Tue Jul 13, 2010 9:37 pm

I'm Cheltenham in Gloucestershire (nr Bristol). Can drive anywhere though as long as my trusty sat nav is with me Very Happy

bed for me, night all xx
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meet up.

Post  maggie on Wed Jul 14, 2010 11:31 pm

Hi, i'm in forest gate east london, i,m not far from you sebby, your all welcome to meet at my place.
maggie xxx

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Re: Meet up?

Post  Sebby (Admin) on Thu Jul 15, 2010 7:16 am


Oh wow Maggie your not far at all! I work for Newham Council organising the special needs transport.
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Re: Meet up?

Post  Sarah001 on Thu Jul 15, 2010 11:34 am

Well I'm miles from all of you and badly restricted by my other health issues so I'll have to pass!
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Re: Meet up?

Post  julia on Wed Jul 28, 2010 5:40 pm

Just thought I'd re-open this post.. I live in Kettering, Northamptonshire and would love to meet up with some of you, either here there or anywhere!

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Re: Meet up?

Post  naomi on Wed Jul 28, 2010 5:48 pm

Me too I'm easy! Love a good road trip! (with this condition it means I have to stop for more Costa coffee stops!!)

People ok to meet up in say a months time ish?

We could do a random day in London? or meet at a stately home? or someones local cosy pub?

Be warned...I will arrive with my big level arch file of gynae information...do not be afraid!
xxx Very Happy
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Re: Meet up?

Post  julia on Sat Jul 31, 2010 3:45 pm

Shall we try to confirm a day soon? I work Monday to Friday, so a Saturday during the day in London would be perfect for me.... what you all reckon?

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Re: Meet up?

Post  Sebby (Admin) on Sun Aug 01, 2010 3:25 pm


Yes a Saturday is perfect for me as I also work Monday to Friday and can get to London no problem

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Re: Meet up?

Post  naomi on Sun Aug 01, 2010 5:48 pm

hows about a sat near the end of aug? and near to Sebby and maggie? where do you guys live again? I'm up for crashing at a travelodge (people are welcome to share a room to keep costs down, I dont snore!) and having a night out if anyone fancies it? might as well throw a meal in there too if anyones up for that?...just something to look forward to then Smile
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Re: Meet up?

Post  naomi on Tue Aug 10, 2010 7:12 pm

Sat 11th Sept...meet up then ladies?!!
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Re: Meet up?

Post  Sebby (Admin) on Tue Aug 10, 2010 7:56 pm


Ok Sat 11th sounds good to me xxx
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Re: Meet up?

Post  naomi on Tue Aug 10, 2010 8:08 pm

ace! thought id just throw a date in there! I'm happy to come down to ur and maggies part of the country! xxx
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Re: Meet up?

Post  Sarah001 on Mon Sep 20, 2010 12:44 pm

Did you girls meet up? How was it meeting other board members face to face?
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Re: Meet up?

Post  jules on Tue Sep 21, 2010 2:54 am

Hey...I feel left out. No road trips from the U.S. did you all meet? If so, how did it go?

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Re: Meet up?

Post  Sebby (Admin) on Tue Sep 21, 2010 7:07 pm


Hey Sarah, yeah me and Naomi met up!

It was a random and fun nite!!

We went up to London and got chatted up by two American fellas! lol We can't remember their names now!!

It was great to meet up face to face...its wonderful to get to know and speak to those who understand you condition as it really makes you feel less alone with it!

Sebby
xxx
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Re: Meet up?

Post  Sebby (Admin) on Tue Sep 21, 2010 7:08 pm


Oh Jules its you!!

I got confused with the name change! lol

Laughing
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Re: Meet up?

Post  jules on Sat Sep 25, 2010 5:05 pm

Yes, I changed my profile name. I didn't want some of the identifying info. I had included w/ my profile name (my initials). so glad you met and you were hit on by American men. Must not have been too memorable if you can't remember your names. Hope everyone is hanging in there.

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Re: Meet up?

Post  Sebby (Admin) on Wed Sep 29, 2010 9:15 pm


Well I got a friend request from one of em on facebook!! lol Aparently he is called Andrew!! Lmao
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Re: Meet up?

Post  jules on Thu Sep 30, 2010 3:29 am

ha ha! that's great. i'm not your only American facebook friend, huh?

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Re: Meet up?

Post  naomi on Sun Oct 03, 2010 9:33 pm

hello all!

back from hol with my folks it was so relaxing just going to the beach and BBQ's in portugal. Def what the doctor ordered!

Yeh meet up was funny!! I remember he had tinsey hands/arms?...or am i making that up??! he couldnt touch his shoulders?! And some random mini festival on the banks of the river thames! Glad we didnt go off clubbing with them though as I would not have been able to drive back home the next day.

Ooooooowa Sad I really wished we lived close to each other and could met up regularly. Its so random how u meet people!! Ur ace company though Sebby, felt like Ive known u forever!!

We need to arrange another meet up! If anyone has any suggestions as to where? Im always up for a road trip and dont mind driving, only thing is I need a few weeks to save up pennies....benefits dont really add up to much. Unforch we cant cross the ocean though to visit u guys in the US Sad
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Re: Meet up?

Post  jules on Mon Oct 04, 2010 1:01 am

Naomi, it sounds like you had a great time. I would love to go to Portugal. It hear there is a high alert for Americans to travel in Europe and the UK. Also the British are being warned about traveling. Those damn terrorist. Get a life!!! I would really have to save up my pennies to come and see you all. Naomi, how long of a drive is it for you to meet w/ Sebby? It sounds like you two are pretty close in distance?

Hope you all are w/out pain today. One day at a time. I went to a big event last night...dinner/dancing/drinks etc. I could barely sit. However after three Martinis...or so, i was feeling pretty good.

Let me know how your meeting is...it would be great to meet you all in person. If you are ever in the U.S. in my state..i would love to meet you. Not sure if i will ever get my husband to travel to England, unless of course, you all have casinos, then maybe :-)

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Re: Meet up?

Post  Sebby (Admin) on Tue Oct 05, 2010 6:51 am


Yes Naomi he did have little hands and arms!! haha
Laughing

Yeah it does feel like we have known each other for ages!

Would be great to go on a road trip and meet up with you other girls.

My mums disabled so as long as I can make sure she is ok and has someone else to hand if she feels unwell then im up for it!

Sebby
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Re: Meet up?

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