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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 0


Sat Feb 10, 2018 12:18 am by rockylife


Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


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Post  Sebby (Admin) on Mon Feb 27, 2012 10:54 am

Just a quick post to apologise for being a missing person for the last few months. I am astounded to see how many members we have and am so grateful for all you wonderful women for keeping the forum alive in my absence.

I sunk quite deeply into depression and anxiety to which I am still recovering. This was due to several issues and not just relating to my health problems so I do not want you all to panic and think that having V will eventually lead you to a breakdown! I recieved and am still recieving support from the mental health service but am getting stronger each day. I also thank God that I have a wonderful man who has supported me through everything. He is amazing and I hope this can offer hope to anyone who thinks that with this condition you will remain single and alone. This was and is not the case for me and for this I count my blessings.

I will be in the process of going through the posts and messages and this will take me some time! I have also taken off all adds and renewed the domain name www.vulvodyniasupportforum.com - this is in the process of being acepted again by forumotion. in the meantime you can still access the forum via www.vulvodyniasupport.forumotion.net

I will inform you all when the renewal of the new domain name has been accepted

I will also be accessing our facebook group to say hello to the memebers on there...

A big thank you to you all for making this forum a success, I could not have done this without you all and I again count my blessings for having such active members....and a huge welcome to all new members that I have not met yet x

Godbless and speak soon


Sebby (Admin)

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Re: Apologies

Post  Sarah001 on Mon Feb 27, 2012 12:42 pm

Hi Sebby and welcome back! We all missed you and it's wonderful to see you back on here leading the forum. xx

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Re: Apologies

Post  ButterflyLiz on Mon Feb 27, 2012 5:49 pm

Hi Sebby,

I'm one of the newbies who joined since you were last here, I saw you started the forum (thanks and kudos for that!) and was hoping that you were OK. It's great to "meet" you Smile

Oh and I gotta say, I'm just loving that picture of Gerard Way *grins*

Glad to hear you are on the road to recovery.


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Re: Apologies

Post  naomi on Sat Mar 03, 2012 4:35 pm

missed you Sebby!

glad you're on the up and looking forward to catching up with you!


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Ciao! :-)

Post  Aida Blanchett on Mon Mar 05, 2012 1:10 pm

Hi Sebby, I'm a newby here, I write from Rome. Smile
I'm glad that you're recovering. Never quit fighting, I wish you the best for all.
A big hug,
Aida cat
Aida Blanchett

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Re: Apologies

Post  pepper7 on Wed Mar 14, 2012 11:27 pm


Bit of newbie. Im sorry for your troubles, I hope you are ok. Keep your chin up Hon.



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Re: Apologies

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