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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


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Post  Sebby (Admin) on Mon Feb 27, 2012 10:54 am

Just a quick post to apologise for being a missing person for the last few months. I am astounded to see how many members we have and am so grateful for all you wonderful women for keeping the forum alive in my absence.

I sunk quite deeply into depression and anxiety to which I am still recovering. This was due to several issues and not just relating to my health problems so I do not want you all to panic and think that having V will eventually lead you to a breakdown! I recieved and am still recieving support from the mental health service but am getting stronger each day. I also thank God that I have a wonderful man who has supported me through everything. He is amazing and I hope this can offer hope to anyone who thinks that with this condition you will remain single and alone. This was and is not the case for me and for this I count my blessings.

I will be in the process of going through the posts and messages and this will take me some time! I have also taken off all adds and renewed the domain name www.vulvodyniasupportforum.com - this is in the process of being acepted again by forumotion. in the meantime you can still access the forum via www.vulvodyniasupport.forumotion.net

I will inform you all when the renewal of the new domain name has been accepted

I will also be accessing our facebook group to say hello to the memebers on there...

A big thank you to you all for making this forum a success, I could not have done this without you all and I again count my blessings for having such active members....and a huge welcome to all new members that I have not met yet x

Godbless and speak soon


Sebby (Admin)

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Re: Apologies

Post  Sarah001 on Mon Feb 27, 2012 12:42 pm

Hi Sebby and welcome back! We all missed you and it's wonderful to see you back on here leading the forum. xx

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Re: Apologies

Post  ButterflyLiz on Mon Feb 27, 2012 5:49 pm

Hi Sebby,

I'm one of the newbies who joined since you were last here, I saw you started the forum (thanks and kudos for that!) and was hoping that you were OK. It's great to "meet" you Smile

Oh and I gotta say, I'm just loving that picture of Gerard Way *grins*

Glad to hear you are on the road to recovery.


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Re: Apologies

Post  naomi on Sat Mar 03, 2012 4:35 pm

missed you Sebby!

glad you're on the up and looking forward to catching up with you!


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Ciao! :-)

Post  Aida Blanchett on Mon Mar 05, 2012 1:10 pm

Hi Sebby, I'm a newby here, I write from Rome. Smile
I'm glad that you're recovering. Never quit fighting, I wish you the best for all.
A big hug,
Aida cat
Aida Blanchett

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Re: Apologies

Post  pepper7 on Wed Mar 14, 2012 11:27 pm


Bit of newbie. Im sorry for your troubles, I hope you are ok. Keep your chin up Hon.



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Re: Apologies

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