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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Apologies

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Apologies

Post  Sebby (Admin) on Mon Feb 27, 2012 10:54 am

Just a quick post to apologise for being a missing person for the last few months. I am astounded to see how many members we have and am so grateful for all you wonderful women for keeping the forum alive in my absence.

I sunk quite deeply into depression and anxiety to which I am still recovering. This was due to several issues and not just relating to my health problems so I do not want you all to panic and think that having V will eventually lead you to a breakdown! I recieved and am still recieving support from the mental health service but am getting stronger each day. I also thank God that I have a wonderful man who has supported me through everything. He is amazing and I hope this can offer hope to anyone who thinks that with this condition you will remain single and alone. This was and is not the case for me and for this I count my blessings.

I will be in the process of going through the posts and messages and this will take me some time! I have also taken off all adds and renewed the domain name www.vulvodyniasupportforum.com - this is in the process of being acepted again by forumotion. in the meantime you can still access the forum via www.vulvodyniasupport.forumotion.net

I will inform you all when the renewal of the new domain name has been accepted

I will also be accessing our facebook group to say hello to the memebers on there...

A big thank you to you all for making this forum a success, I could not have done this without you all and I again count my blessings for having such active members....and a huge welcome to all new members that I have not met yet x

Godbless and speak soon




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Re: Apologies

Post  Sarah001 on Mon Feb 27, 2012 12:42 pm

Hi Sebby and welcome back! We all missed you and it's wonderful to see you back on here leading the forum. xx
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Re: Apologies

Post  ButterflyLiz on Mon Feb 27, 2012 5:49 pm

Hi Sebby,

I'm one of the newbies who joined since you were last here, I saw you started the forum (thanks and kudos for that!) and was hoping that you were OK. It's great to "meet" you Smile

Oh and I gotta say, I'm just loving that picture of Gerard Way *grins*

Glad to hear you are on the road to recovery.

xx
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Re: Apologies

Post  naomi on Sat Mar 03, 2012 4:35 pm

missed you Sebby!

glad you're on the up and looking forward to catching up with you!

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Ciao! :-)

Post  Aida Blanchett on Mon Mar 05, 2012 1:10 pm

Hi Sebby, I'm a newby here, I write from Rome. Smile
I'm glad that you're recovering. Never quit fighting, I wish you the best for all.
A big hug,
Aida cat
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Re: Apologies

Post  pepper7 on Wed Mar 14, 2012 11:27 pm

Hi,

Bit of newbie. Im sorry for your troubles, I hope you are ok. Keep your chin up Hon.

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Re: Apologies

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