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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Post  Sebby (Admin) on Mon Feb 27, 2012 10:54 am

Just a quick post to apologise for being a missing person for the last few months. I am astounded to see how many members we have and am so grateful for all you wonderful women for keeping the forum alive in my absence.

I sunk quite deeply into depression and anxiety to which I am still recovering. This was due to several issues and not just relating to my health problems so I do not want you all to panic and think that having V will eventually lead you to a breakdown! I recieved and am still recieving support from the mental health service but am getting stronger each day. I also thank God that I have a wonderful man who has supported me through everything. He is amazing and I hope this can offer hope to anyone who thinks that with this condition you will remain single and alone. This was and is not the case for me and for this I count my blessings.

I will be in the process of going through the posts and messages and this will take me some time! I have also taken off all adds and renewed the domain name www.vulvodyniasupportforum.com - this is in the process of being acepted again by forumotion. in the meantime you can still access the forum via www.vulvodyniasupport.forumotion.net

I will inform you all when the renewal of the new domain name has been accepted

I will also be accessing our facebook group to say hello to the memebers on there...

A big thank you to you all for making this forum a success, I could not have done this without you all and I again count my blessings for having such active members....and a huge welcome to all new members that I have not met yet x

Godbless and speak soon


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Re: Apologies

Post  Sarah001 on Mon Feb 27, 2012 12:42 pm

Hi Sebby and welcome back! We all missed you and it's wonderful to see you back on here leading the forum. xx

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Re: Apologies

Post  ButterflyLiz on Mon Feb 27, 2012 5:49 pm

Hi Sebby,

I'm one of the newbies who joined since you were last here, I saw you started the forum (thanks and kudos for that!) and was hoping that you were OK. It's great to "meet" you Smile

Oh and I gotta say, I'm just loving that picture of Gerard Way *grins*

Glad to hear you are on the road to recovery.


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Re: Apologies

Post  naomi on Sat Mar 03, 2012 4:35 pm

missed you Sebby!

glad you're on the up and looking forward to catching up with you!


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Ciao! :-)

Post  Aida Blanchett on Mon Mar 05, 2012 1:10 pm

Hi Sebby, I'm a newby here, I write from Rome. Smile
I'm glad that you're recovering. Never quit fighting, I wish you the best for all.
A big hug,
Aida cat
Aida Blanchett

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Re: Apologies

Post  pepper7 on Wed Mar 14, 2012 11:27 pm


Bit of newbie. Im sorry for your troubles, I hope you are ok. Keep your chin up Hon.



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Re: Apologies

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