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Today at 2:10 am by anon99

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Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Anyone Else More Tense on One side?

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Anyone Else More Tense on One side?

Post  Kam10 on Sun Mar 04, 2012 4:21 am

Hi everyone, I have a few phsycial theraphy questions. I've been getting pelvic floor physcial theraphy since late Nov. Whenever I go into the office, I'm always tense on my right side. My left side is tense too, but not nearly as bad. Is anyone else usually more tense on one side? Anyone have any ideas on how to get my right side to relax?

At home when I do my stretches I can feel the difference in how far I'm able to pull my left side up vs. my right, and I also notice I release my left side more. I'm using dialotors and they have been helping. Last time I was in the office and not having swelling issues my left side felt normal, but my right side was still really tense. I know theraphy takes time, but I wish I could just figure out how to relax already! Esepcially my right side.

Also, anyone know how long I can expect to be in therapy? My therapist didn't want to give me a definant answer since everyone is different. I know it takes time, but the trail and error nature of treating V is driving me crazy! I just want to get my resting tension to normal ASAP so I know if it will help or not. Overall, I can't notice a different in the pain, but my resting tension is still high, so I keep telling myself not to panic yet.

Basically, I'm just feeling a little anxious right now and need reassurance that not noticing a diffrence yet and still being tense is normal.
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Re: Anyone Else More Tense on One side?

Post  Sarah001 on Sun Mar 04, 2012 1:41 pm

Yes, everyone I've spoken to about their pelvic floor has one side tighter than the other. On me it's the left side that is tighter and I tend to massage it out a bit more on that side to help even them up. There's no way of knowing how long physio will take, it takes as long as it takes to get a normal resting tone and no trigger points so could be a few months could be a year. Anxiety will hamper progress so as hard as it sounds try not to get anxious about it all and just keep going with the homework and sessions.
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Re tension on one side

Post  Sunflower82 on Sun Mar 04, 2012 7:52 pm

Hi,
I've been seeing a women's physiotherapist for about 8 months I have more tension on my left side. I also have tension in my tummy muscles and also a muscle in my bottom which also attaches to my pelvic floor muscle. During a session my physio will have a look to see how much tension are in those muscles as well as muscles internally. She had also suggested I take up yoga as this may have to stretch and relax my muscles.


Hope this helps
Kt

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Re: Anyone Else More Tense on One side?

Post  Kam10 on Mon Mar 05, 2012 12:16 am

Thanks for the comments. That makes me feel better knowing most women are tenser on one side. I know it's silly, but I often don't feel normal with all of these V issues. I'm know better than to think that, but the thoughts still pop in my head.

Sarah, it's so hard to stop worring sometimes, but you are right. I know I shouldn't stress out. It will just make me tense up more. Thanks for reminding me to relax and not worry so much. It's great to get reassurance that progress can be slow and to just stick with it.

Sunflower, my physical therapist also suggested yoga. Do you do yoga? If so what type? My thearpist didn't recommended a particular type, just to stay away from intense yoga pratices like power yoga. I started doing Yin yoga. You hold the positions for a long time, up to 5 minutes. I think it's supposed to stretch you connective tissue and help you relax your muscles. It's pretty mediative, which I need since I'm always thinking and feeling rushed. I just started it, so I expect it to take a while to notice any positive affects.

My therapist also recommended getting messages, but my bugdet is so tight right now. Theraphy is pretty expensive until I meet my insurance deductable, which is fairly high.
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Re: Anyone Else More Tense on One side?

Post  Sarah001 on Mon Mar 05, 2012 6:08 pm

Just a word of caution about yoga, if your muscles are tense due to pelvic instability don't whatever you do do yoga!! Your therapists will be able to advise and should know if there's any underlying instability. According to my physio there frequently is and yoga will make that worse and lead to more tensing.

Kam I use tennis balls, spikey massage balls, a foam roller and a couple of other knobbly massage tools on external muscles, it's not as good as a massage but better than nothing.
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Re: Anyone Else More Tense on One side?

Post  Kam10 on Thu Mar 08, 2012 1:46 am

Sarah, thanks for the heads up. I would hope my PT wouldn't have recommended yoga if she thought it would make things worse, but you never know. I haven't found it doing any damage, so plan on sticking with it, but I'll be sure to back off if I start getting tenser or just feel bad in general. I do apprieciate you speaking up. Also niced

I should start giving myself massages as well, or make my husband do them. I have a back massager I've completely forgotten about. I think I should dig that out of the closet. Not the same as a pelvic message, but I think releasing any tension will help.
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Re: Anyone Else More Tense on One side?

Post  londonlady on Fri May 04, 2012 9:33 pm

hello,

I just wanted to add my comments re yoga and physio, and uneven pain! It's really good to be able to talk about this, when I usually feel very alone.

I have been seeing a women's physiotherapist for about 8 months now with pelvic pain. I think its really normal to have different types of tension on different sides. I certainly do!

So far I found physiotherapy really useful, and with amitryptaline I can now have gentle sex, and only feel a bit achey afterwards, but I feel like I have reached a plateau now though - and I have never used biofeedback. How does it work and how do you do it?

My physio encouraged me to do gentle pilates and yoga - she said that anything to keep flexing the muscles in that area was good, and to help with general relaxation. At first I was very nervous about it and timid about causing myself any pain, but I do Hatha yoga once a week now and always feel good afterwards. It gives me my confidence back in my body for a little while which is great, and we always do a bit of meditation at the end, which helps me get through the week. I always feel much more tense and in pain when I'm stressed, so anything to relax is good. I wish I could go more than once a week! It also helps stretch my back out - and as I always sit with my pelvis tilted forward, or back curved out, my poor back needs it!

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Re: Anyone Else More Tense on One side?

Post  Sarah001 on Sat May 05, 2012 12:13 pm

Biofeedback involves a vaginal probe that shows you on a screen what your muscles are doing so you get used to how it feels to have them relaxed. It's normally done before trigger points are taken out so you keep the muscles relaxed afterwards and don't just tense up and encourage the trigger points right back in. Ask your physio about it as it's well worth knowing how to relax the muscles.
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Re: Anyone Else More Tense on One side?

Post  penfebruary on Sun May 06, 2012 5:14 pm

Hi there, I'm just wondering if anyone could explain a bit more to me about how to work out which parts are tense - ie the left or the right etc. I've seen a physio several times and done biofeedback which showed that I was slightly 'tense' but my physio did not elaborate any further... I've seen her about 5 times but all we've done is discuss my life a bit and use probes twice. I am going back to see her in June and would like to be able to ask her as many questions as possible. My last visit or two I was a bit passive to be honest because I'd just started ami which was working very well for me, however it seems to have become less effective despite increasing my dosage and I'm beginning to get panicky again. Anyway thanks for any information!
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