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» Sex after vulvodynia (husband edition)
Yesterday at 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Did going off antidepressants cause this?
Wed Aug 08, 2018 7:30 pm by Nancylee

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Tue Aug 07, 2018 6:01 am by Guest

» Hi girls! New in this forum
Thu Aug 02, 2018 11:11 am by Taylor1

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Anyone Else More Tense on One side?

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Anyone Else More Tense on One side?

Post  Kam10 on Sun Mar 04, 2012 4:21 am

Hi everyone, I have a few phsycial theraphy questions. I've been getting pelvic floor physcial theraphy since late Nov. Whenever I go into the office, I'm always tense on my right side. My left side is tense too, but not nearly as bad. Is anyone else usually more tense on one side? Anyone have any ideas on how to get my right side to relax?

At home when I do my stretches I can feel the difference in how far I'm able to pull my left side up vs. my right, and I also notice I release my left side more. I'm using dialotors and they have been helping. Last time I was in the office and not having swelling issues my left side felt normal, but my right side was still really tense. I know theraphy takes time, but I wish I could just figure out how to relax already! Esepcially my right side.

Also, anyone know how long I can expect to be in therapy? My therapist didn't want to give me a definant answer since everyone is different. I know it takes time, but the trail and error nature of treating V is driving me crazy! I just want to get my resting tension to normal ASAP so I know if it will help or not. Overall, I can't notice a different in the pain, but my resting tension is still high, so I keep telling myself not to panic yet.

Basically, I'm just feeling a little anxious right now and need reassurance that not noticing a diffrence yet and still being tense is normal.
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Re: Anyone Else More Tense on One side?

Post  Sarah001 on Sun Mar 04, 2012 1:41 pm

Yes, everyone I've spoken to about their pelvic floor has one side tighter than the other. On me it's the left side that is tighter and I tend to massage it out a bit more on that side to help even them up. There's no way of knowing how long physio will take, it takes as long as it takes to get a normal resting tone and no trigger points so could be a few months could be a year. Anxiety will hamper progress so as hard as it sounds try not to get anxious about it all and just keep going with the homework and sessions.
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Re tension on one side

Post  Sunflower82 on Sun Mar 04, 2012 7:52 pm

Hi,
I've been seeing a women's physiotherapist for about 8 months I have more tension on my left side. I also have tension in my tummy muscles and also a muscle in my bottom which also attaches to my pelvic floor muscle. During a session my physio will have a look to see how much tension are in those muscles as well as muscles internally. She had also suggested I take up yoga as this may have to stretch and relax my muscles.


Hope this helps
Kt

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Re: Anyone Else More Tense on One side?

Post  Kam10 on Mon Mar 05, 2012 12:16 am

Thanks for the comments. That makes me feel better knowing most women are tenser on one side. I know it's silly, but I often don't feel normal with all of these V issues. I'm know better than to think that, but the thoughts still pop in my head.

Sarah, it's so hard to stop worring sometimes, but you are right. I know I shouldn't stress out. It will just make me tense up more. Thanks for reminding me to relax and not worry so much. It's great to get reassurance that progress can be slow and to just stick with it.

Sunflower, my physical therapist also suggested yoga. Do you do yoga? If so what type? My thearpist didn't recommended a particular type, just to stay away from intense yoga pratices like power yoga. I started doing Yin yoga. You hold the positions for a long time, up to 5 minutes. I think it's supposed to stretch you connective tissue and help you relax your muscles. It's pretty mediative, which I need since I'm always thinking and feeling rushed. I just started it, so I expect it to take a while to notice any positive affects.

My therapist also recommended getting messages, but my bugdet is so tight right now. Theraphy is pretty expensive until I meet my insurance deductable, which is fairly high.
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Re: Anyone Else More Tense on One side?

Post  Sarah001 on Mon Mar 05, 2012 6:08 pm

Just a word of caution about yoga, if your muscles are tense due to pelvic instability don't whatever you do do yoga!! Your therapists will be able to advise and should know if there's any underlying instability. According to my physio there frequently is and yoga will make that worse and lead to more tensing.

Kam I use tennis balls, spikey massage balls, a foam roller and a couple of other knobbly massage tools on external muscles, it's not as good as a massage but better than nothing.
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Re: Anyone Else More Tense on One side?

Post  Kam10 on Thu Mar 08, 2012 1:46 am

Sarah, thanks for the heads up. I would hope my PT wouldn't have recommended yoga if she thought it would make things worse, but you never know. I haven't found it doing any damage, so plan on sticking with it, but I'll be sure to back off if I start getting tenser or just feel bad in general. I do apprieciate you speaking up. Also niced

I should start giving myself massages as well, or make my husband do them. I have a back massager I've completely forgotten about. I think I should dig that out of the closet. Not the same as a pelvic message, but I think releasing any tension will help.
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Re: Anyone Else More Tense on One side?

Post  londonlady on Fri May 04, 2012 9:33 pm

hello,

I just wanted to add my comments re yoga and physio, and uneven pain! It's really good to be able to talk about this, when I usually feel very alone.

I have been seeing a women's physiotherapist for about 8 months now with pelvic pain. I think its really normal to have different types of tension on different sides. I certainly do!

So far I found physiotherapy really useful, and with amitryptaline I can now have gentle sex, and only feel a bit achey afterwards, but I feel like I have reached a plateau now though - and I have never used biofeedback. How does it work and how do you do it?

My physio encouraged me to do gentle pilates and yoga - she said that anything to keep flexing the muscles in that area was good, and to help with general relaxation. At first I was very nervous about it and timid about causing myself any pain, but I do Hatha yoga once a week now and always feel good afterwards. It gives me my confidence back in my body for a little while which is great, and we always do a bit of meditation at the end, which helps me get through the week. I always feel much more tense and in pain when I'm stressed, so anything to relax is good. I wish I could go more than once a week! It also helps stretch my back out - and as I always sit with my pelvis tilted forward, or back curved out, my poor back needs it!

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Re: Anyone Else More Tense on One side?

Post  Sarah001 on Sat May 05, 2012 12:13 pm

Biofeedback involves a vaginal probe that shows you on a screen what your muscles are doing so you get used to how it feels to have them relaxed. It's normally done before trigger points are taken out so you keep the muscles relaxed afterwards and don't just tense up and encourage the trigger points right back in. Ask your physio about it as it's well worth knowing how to relax the muscles.
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Re: Anyone Else More Tense on One side?

Post  penfebruary on Sun May 06, 2012 5:14 pm

Hi there, I'm just wondering if anyone could explain a bit more to me about how to work out which parts are tense - ie the left or the right etc. I've seen a physio several times and done biofeedback which showed that I was slightly 'tense' but my physio did not elaborate any further... I've seen her about 5 times but all we've done is discuss my life a bit and use probes twice. I am going back to see her in June and would like to be able to ask her as many questions as possible. My last visit or two I was a bit passive to be honest because I'd just started ami which was working very well for me, however it seems to have become less effective despite increasing my dosage and I'm beginning to get panicky again. Anyway thanks for any information!
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Re: Anyone Else More Tense on One side?

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