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» I don't know what to do anymore
Today at 5:05 am by SinclairSassy

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Anyone Else More Tense on One side?

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Anyone Else More Tense on One side?

Post  Kam10 on Sun Mar 04, 2012 4:21 am

Hi everyone, I have a few phsycial theraphy questions. I've been getting pelvic floor physcial theraphy since late Nov. Whenever I go into the office, I'm always tense on my right side. My left side is tense too, but not nearly as bad. Is anyone else usually more tense on one side? Anyone have any ideas on how to get my right side to relax?

At home when I do my stretches I can feel the difference in how far I'm able to pull my left side up vs. my right, and I also notice I release my left side more. I'm using dialotors and they have been helping. Last time I was in the office and not having swelling issues my left side felt normal, but my right side was still really tense. I know theraphy takes time, but I wish I could just figure out how to relax already! Esepcially my right side.

Also, anyone know how long I can expect to be in therapy? My therapist didn't want to give me a definant answer since everyone is different. I know it takes time, but the trail and error nature of treating V is driving me crazy! I just want to get my resting tension to normal ASAP so I know if it will help or not. Overall, I can't notice a different in the pain, but my resting tension is still high, so I keep telling myself not to panic yet.

Basically, I'm just feeling a little anxious right now and need reassurance that not noticing a diffrence yet and still being tense is normal.
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Re: Anyone Else More Tense on One side?

Post  Sarah001 on Sun Mar 04, 2012 1:41 pm

Yes, everyone I've spoken to about their pelvic floor has one side tighter than the other. On me it's the left side that is tighter and I tend to massage it out a bit more on that side to help even them up. There's no way of knowing how long physio will take, it takes as long as it takes to get a normal resting tone and no trigger points so could be a few months could be a year. Anxiety will hamper progress so as hard as it sounds try not to get anxious about it all and just keep going with the homework and sessions.
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Re tension on one side

Post  Sunflower82 on Sun Mar 04, 2012 7:52 pm

Hi,
I've been seeing a women's physiotherapist for about 8 months I have more tension on my left side. I also have tension in my tummy muscles and also a muscle in my bottom which also attaches to my pelvic floor muscle. During a session my physio will have a look to see how much tension are in those muscles as well as muscles internally. She had also suggested I take up yoga as this may have to stretch and relax my muscles.


Hope this helps
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Re: Anyone Else More Tense on One side?

Post  Kam10 on Mon Mar 05, 2012 12:16 am

Thanks for the comments. That makes me feel better knowing most women are tenser on one side. I know it's silly, but I often don't feel normal with all of these V issues. I'm know better than to think that, but the thoughts still pop in my head.

Sarah, it's so hard to stop worring sometimes, but you are right. I know I shouldn't stress out. It will just make me tense up more. Thanks for reminding me to relax and not worry so much. It's great to get reassurance that progress can be slow and to just stick with it.

Sunflower, my physical therapist also suggested yoga. Do you do yoga? If so what type? My thearpist didn't recommended a particular type, just to stay away from intense yoga pratices like power yoga. I started doing Yin yoga. You hold the positions for a long time, up to 5 minutes. I think it's supposed to stretch you connective tissue and help you relax your muscles. It's pretty mediative, which I need since I'm always thinking and feeling rushed. I just started it, so I expect it to take a while to notice any positive affects.

My therapist also recommended getting messages, but my bugdet is so tight right now. Theraphy is pretty expensive until I meet my insurance deductable, which is fairly high.
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Re: Anyone Else More Tense on One side?

Post  Sarah001 on Mon Mar 05, 2012 6:08 pm

Just a word of caution about yoga, if your muscles are tense due to pelvic instability don't whatever you do do yoga!! Your therapists will be able to advise and should know if there's any underlying instability. According to my physio there frequently is and yoga will make that worse and lead to more tensing.

Kam I use tennis balls, spikey massage balls, a foam roller and a couple of other knobbly massage tools on external muscles, it's not as good as a massage but better than nothing.
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Re: Anyone Else More Tense on One side?

Post  Kam10 on Thu Mar 08, 2012 1:46 am

Sarah, thanks for the heads up. I would hope my PT wouldn't have recommended yoga if she thought it would make things worse, but you never know. I haven't found it doing any damage, so plan on sticking with it, but I'll be sure to back off if I start getting tenser or just feel bad in general. I do apprieciate you speaking up. Also niced

I should start giving myself massages as well, or make my husband do them. I have a back massager I've completely forgotten about. I think I should dig that out of the closet. Not the same as a pelvic message, but I think releasing any tension will help.
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Re: Anyone Else More Tense on One side?

Post  londonlady on Fri May 04, 2012 9:33 pm

hello,

I just wanted to add my comments re yoga and physio, and uneven pain! It's really good to be able to talk about this, when I usually feel very alone.

I have been seeing a women's physiotherapist for about 8 months now with pelvic pain. I think its really normal to have different types of tension on different sides. I certainly do!

So far I found physiotherapy really useful, and with amitryptaline I can now have gentle sex, and only feel a bit achey afterwards, but I feel like I have reached a plateau now though - and I have never used biofeedback. How does it work and how do you do it?

My physio encouraged me to do gentle pilates and yoga - she said that anything to keep flexing the muscles in that area was good, and to help with general relaxation. At first I was very nervous about it and timid about causing myself any pain, but I do Hatha yoga once a week now and always feel good afterwards. It gives me my confidence back in my body for a little while which is great, and we always do a bit of meditation at the end, which helps me get through the week. I always feel much more tense and in pain when I'm stressed, so anything to relax is good. I wish I could go more than once a week! It also helps stretch my back out - and as I always sit with my pelvis tilted forward, or back curved out, my poor back needs it!

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Re: Anyone Else More Tense on One side?

Post  Sarah001 on Sat May 05, 2012 12:13 pm

Biofeedback involves a vaginal probe that shows you on a screen what your muscles are doing so you get used to how it feels to have them relaxed. It's normally done before trigger points are taken out so you keep the muscles relaxed afterwards and don't just tense up and encourage the trigger points right back in. Ask your physio about it as it's well worth knowing how to relax the muscles.
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Re: Anyone Else More Tense on One side?

Post  penfebruary on Sun May 06, 2012 5:14 pm

Hi there, I'm just wondering if anyone could explain a bit more to me about how to work out which parts are tense - ie the left or the right etc. I've seen a physio several times and done biofeedback which showed that I was slightly 'tense' but my physio did not elaborate any further... I've seen her about 5 times but all we've done is discuss my life a bit and use probes twice. I am going back to see her in June and would like to be able to ask her as many questions as possible. My last visit or two I was a bit passive to be honest because I'd just started ami which was working very well for me, however it seems to have become less effective despite increasing my dosage and I'm beginning to get panicky again. Anyway thanks for any information!
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Re: Anyone Else More Tense on One side?

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