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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Stretching the Pubic Area for pain releif

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Stretching the Pubic Area for pain releif

Post  pepper7 on Tue Mar 06, 2012 11:56 pm

Hi,

So Iv been looking round at a variety of sites to see whats going on really and a V sufferer had posted about a stretching technique she 'invented' that has really helped. Iv tried it a couple of times and its has helped a lot she suggests piling the pillows onto the edge of your bed and lying with your back on the bed and your bum on the pillows with your feet pointing towards the floor so you create a sort of arch with your back, you will feel a pull in the muscles leading down to the pubis.
The idea behind it is that the pubic muscles have been shortened for some reason and as such are factors in causing the nerve pain.
I have tried this a few times and I have to admit there has been some relief so I would recommend it.
Px

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Re: Stretching the Pubic Area for pain releif

Post  Sarah001 on Wed Mar 07, 2012 1:02 pm

I've seen the post you're referring to and a word of caution for everyone (bet you're all rolling your eyes and thinking will you f***ing shut up woman!! Rolling Eyes ) but anyone with back or SI pain should not do that stretch.
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Re: Stretching the Pubic Area for pain releif

Post  blessed on Fri Mar 09, 2012 11:20 pm

I have suffered with lower back pain because of slip disc for 11 years. i live in pain 24 hours a day limited in everything you can think of. but so desperate for some relief from this most recent problem that i am now thinking is vulvodynia, so i tried this stretch. i thought i was going to die! this is not for everyone. i am glad to hear it works for some, but with someone with back problem like me, its a big NO NO

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public stretch

Post  bluekangeroo on Thu May 17, 2012 7:30 pm

I tried this stretch too, it really strained my back. How do you do it without hurting your back? Maybe the arch I created was too big?

I started reading the Heal Pelvic Pain book by Amy Stein that that lady who invented this stretch recommended too, which has helped me understand a lot about the physio side but am not totally sure that the shortened muscles is my issue.

Worth a try though, is just a bunch of daily stretches and massage, beats zombifying drugs any day!


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Re: Stretching the Pubic Area for pain releif

Post  londonlady on Fri Jun 15, 2012 9:50 pm

I've been doing Amy Stein's routine too. I think it does help to relax me, but I don't think it will cure it on its own. I can really feel how tight my muscles are, so I think anything which can help me relearn how to relax is good.

I think just her advice to do deep breathing and get exercise is useful. It sounds ridiculously simple, and I am still taking quite a lot of amitryptaline so I'm not saying it is something which is replacing pain killers, but it definitely helps me when I'm in pain from sitting down at work to go for a 10 minute walk and do some deeper breathing.

xx

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Re: Stretching the Pubic Area for pain releif

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