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» I don't know what to do anymore
Yesterday at 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Stretching the Pubic Area for pain releif

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Stretching the Pubic Area for pain releif

Post  pepper7 on Tue Mar 06, 2012 11:56 pm

Hi,

So Iv been looking round at a variety of sites to see whats going on really and a V sufferer had posted about a stretching technique she 'invented' that has really helped. Iv tried it a couple of times and its has helped a lot she suggests piling the pillows onto the edge of your bed and lying with your back on the bed and your bum on the pillows with your feet pointing towards the floor so you create a sort of arch with your back, you will feel a pull in the muscles leading down to the pubis.
The idea behind it is that the pubic muscles have been shortened for some reason and as such are factors in causing the nerve pain.
I have tried this a few times and I have to admit there has been some relief so I would recommend it.
Px

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Re: Stretching the Pubic Area for pain releif

Post  Sarah001 on Wed Mar 07, 2012 1:02 pm

I've seen the post you're referring to and a word of caution for everyone (bet you're all rolling your eyes and thinking will you f***ing shut up woman!! Rolling Eyes ) but anyone with back or SI pain should not do that stretch.
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Re: Stretching the Pubic Area for pain releif

Post  blessed on Fri Mar 09, 2012 11:20 pm

I have suffered with lower back pain because of slip disc for 11 years. i live in pain 24 hours a day limited in everything you can think of. but so desperate for some relief from this most recent problem that i am now thinking is vulvodynia, so i tried this stretch. i thought i was going to die! this is not for everyone. i am glad to hear it works for some, but with someone with back problem like me, its a big NO NO

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public stretch

Post  bluekangeroo on Thu May 17, 2012 7:30 pm

I tried this stretch too, it really strained my back. How do you do it without hurting your back? Maybe the arch I created was too big?

I started reading the Heal Pelvic Pain book by Amy Stein that that lady who invented this stretch recommended too, which has helped me understand a lot about the physio side but am not totally sure that the shortened muscles is my issue.

Worth a try though, is just a bunch of daily stretches and massage, beats zombifying drugs any day!


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Re: Stretching the Pubic Area for pain releif

Post  londonlady on Fri Jun 15, 2012 9:50 pm

I've been doing Amy Stein's routine too. I think it does help to relax me, but I don't think it will cure it on its own. I can really feel how tight my muscles are, so I think anything which can help me relearn how to relax is good.

I think just her advice to do deep breathing and get exercise is useful. It sounds ridiculously simple, and I am still taking quite a lot of amitryptaline so I'm not saying it is something which is replacing pain killers, but it definitely helps me when I'm in pain from sitting down at work to go for a 10 minute walk and do some deeper breathing.

xx

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Re: Stretching the Pubic Area for pain releif

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