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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


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Post  blessed on Fri Mar 09, 2012 11:17 pm

hello. this is blessed. i live in toronto and since Dec 19th, i began with some pain in my vagina that started like a urine infection but as each day went by got worse. i never had a yeast infection but that's why my doc said it was. gave me some antibiotic but before i could finish taking them, i started having discharge, tormenting pain inside my vagina and pain, sensitivity and soreness on the outside. even worse, my majora labia were both so swollen that they were squishing the labia minor and that caused alot more pain. i have been back and forth to the doctors and they keep giving me all these different creams and meds but nothing worked. i cannot sit. walking is possible only without an underwear ofcourse and with both legs wide open! i can feel the pain down there with just passing my hand over that area, not even touching it. i feel as though the skin is being stretched out and everyday its getting worse. i finally got to see a gyne and after she went through all the reports and taking a look down there, she said that she could not see anything wrong. she told me to take diflucan for 3 weeks. now i had used this before and it didn't work but considering that i am dying in pain, i thought i'd just try it again. nothing happenned. i went back to see her today to get some urine/blood results. she said all came back normal and that i may have endometriosis (even though i have no symtoms for that) and i would know because i had it 9 years ago but after having surgery, i no longer had the problem. these pains that i am currently having are absolutely not what i had when i had endometriosis. so i really don't think thats the problem. also, everytime i mention to a doctor that my labia is swollen and not normal, they would take a look but obviously with me lying on the bed with my legs up so the area then looks relaxed and they would not be able to see the swelling so they claim its not swollen! this has been most frustrating as i know what i look like down there and i am telling you its very swollen to the point, i have to sometimes use my fingers to part the labia majora from the labia minora just to get some ease. i feel so hopeless and fed up because the way it looks, i may just have to live with this. i already live with the terrible pain of a slip disc that is 24 hours a day every day pain. i cannot work, cannot get pregnant, do not have any kind of social life since i can't sit, stand, or walk without pain and now this!! i began to get so desperate that i started searching google and when i came across these women talking about the same symtoms, i could not believe it! i mean this is something that exist! i am not crazy! its so sad though, that we have all the medical expertise right here in canada, and yet no one could help us. how does one go on in life living with this? how does a wife accept never functioning as a woman to her husband? is there anyone out there???????????????


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So sorry

Post  LizLemonny on Sun Apr 15, 2012 6:35 am

I feel for you I love you

One thing I read in your account did mean something to me - the stretching feeling in the skin and that it is very thin... this could be from Lichen Sclerosus for which you can get certain treatments and I don't think it shows up in tests very well, doctor has to think of it from looking at the area (it can look pale in patches).

Rest of it sounds like Vulvodynia so hopefully this forum will be of use to you.

Doctors do find this very difficult to identify and you may get some who will be minimising about it; something we all agree on!!!!!


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