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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


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Post  blessed on Fri Mar 09, 2012 11:17 pm

hello. this is blessed. i live in toronto and since Dec 19th, i began with some pain in my vagina that started like a urine infection but as each day went by got worse. i never had a yeast infection but that's why my doc said it was. gave me some antibiotic but before i could finish taking them, i started having discharge, tormenting pain inside my vagina and pain, sensitivity and soreness on the outside. even worse, my majora labia were both so swollen that they were squishing the labia minor and that caused alot more pain. i have been back and forth to the doctors and they keep giving me all these different creams and meds but nothing worked. i cannot sit. walking is possible only without an underwear ofcourse and with both legs wide open! i can feel the pain down there with just passing my hand over that area, not even touching it. i feel as though the skin is being stretched out and everyday its getting worse. i finally got to see a gyne and after she went through all the reports and taking a look down there, she said that she could not see anything wrong. she told me to take diflucan for 3 weeks. now i had used this before and it didn't work but considering that i am dying in pain, i thought i'd just try it again. nothing happenned. i went back to see her today to get some urine/blood results. she said all came back normal and that i may have endometriosis (even though i have no symtoms for that) and i would know because i had it 9 years ago but after having surgery, i no longer had the problem. these pains that i am currently having are absolutely not what i had when i had endometriosis. so i really don't think thats the problem. also, everytime i mention to a doctor that my labia is swollen and not normal, they would take a look but obviously with me lying on the bed with my legs up so the area then looks relaxed and they would not be able to see the swelling so they claim its not swollen! this has been most frustrating as i know what i look like down there and i am telling you its very swollen to the point, i have to sometimes use my fingers to part the labia majora from the labia minora just to get some ease. i feel so hopeless and fed up because the way it looks, i may just have to live with this. i already live with the terrible pain of a slip disc that is 24 hours a day every day pain. i cannot work, cannot get pregnant, do not have any kind of social life since i can't sit, stand, or walk without pain and now this!! i began to get so desperate that i started searching google and when i came across these women talking about the same symtoms, i could not believe it! i mean this is something that exist! i am not crazy! its so sad though, that we have all the medical expertise right here in canada, and yet no one could help us. how does one go on in life living with this? how does a wife accept never functioning as a woman to her husband? is there anyone out there???????????????


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So sorry

Post  LizLemonny on Sun Apr 15, 2012 6:35 am

I feel for you I love you

One thing I read in your account did mean something to me - the stretching feeling in the skin and that it is very thin... this could be from Lichen Sclerosus for which you can get certain treatments and I don't think it shows up in tests very well, doctor has to think of it from looking at the area (it can look pale in patches).

Rest of it sounds like Vulvodynia so hopefully this forum will be of use to you.

Doctors do find this very difficult to identify and you may get some who will be minimising about it; something we all agree on!!!!!


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