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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


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Post  blessed on Fri Mar 09, 2012 11:17 pm

hello. this is blessed. i live in toronto and since Dec 19th, i began with some pain in my vagina that started like a urine infection but as each day went by got worse. i never had a yeast infection but that's why my doc said it was. gave me some antibiotic but before i could finish taking them, i started having discharge, tormenting pain inside my vagina and pain, sensitivity and soreness on the outside. even worse, my majora labia were both so swollen that they were squishing the labia minor and that caused alot more pain. i have been back and forth to the doctors and they keep giving me all these different creams and meds but nothing worked. i cannot sit. walking is possible only without an underwear ofcourse and with both legs wide open! i can feel the pain down there with just passing my hand over that area, not even touching it. i feel as though the skin is being stretched out and everyday its getting worse. i finally got to see a gyne and after she went through all the reports and taking a look down there, she said that she could not see anything wrong. she told me to take diflucan for 3 weeks. now i had used this before and it didn't work but considering that i am dying in pain, i thought i'd just try it again. nothing happenned. i went back to see her today to get some urine/blood results. she said all came back normal and that i may have endometriosis (even though i have no symtoms for that) and i would know because i had it 9 years ago but after having surgery, i no longer had the problem. these pains that i am currently having are absolutely not what i had when i had endometriosis. so i really don't think thats the problem. also, everytime i mention to a doctor that my labia is swollen and not normal, they would take a look but obviously with me lying on the bed with my legs up so the area then looks relaxed and they would not be able to see the swelling so they claim its not swollen! this has been most frustrating as i know what i look like down there and i am telling you its very swollen to the point, i have to sometimes use my fingers to part the labia majora from the labia minora just to get some ease. i feel so hopeless and fed up because the way it looks, i may just have to live with this. i already live with the terrible pain of a slip disc that is 24 hours a day every day pain. i cannot work, cannot get pregnant, do not have any kind of social life since i can't sit, stand, or walk without pain and now this!! i began to get so desperate that i started searching google and when i came across these women talking about the same symtoms, i could not believe it! i mean this is something that exist! i am not crazy! its so sad though, that we have all the medical expertise right here in canada, and yet no one could help us. how does one go on in life living with this? how does a wife accept never functioning as a woman to her husband? is there anyone out there???????????????


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So sorry

Post  LizLemonny on Sun Apr 15, 2012 6:35 am

I feel for you I love you

One thing I read in your account did mean something to me - the stretching feeling in the skin and that it is very thin... this could be from Lichen Sclerosus for which you can get certain treatments and I don't think it shows up in tests very well, doctor has to think of it from looking at the area (it can look pale in patches).

Rest of it sounds like Vulvodynia so hopefully this forum will be of use to you.

Doctors do find this very difficult to identify and you may get some who will be minimising about it; something we all agree on!!!!!


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