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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Post  blessed on Fri Mar 09, 2012 11:17 pm

hello. this is blessed. i live in toronto and since Dec 19th, i began with some pain in my vagina that started like a urine infection but as each day went by got worse. i never had a yeast infection but that's why my doc said it was. gave me some antibiotic but before i could finish taking them, i started having discharge, tormenting pain inside my vagina and pain, sensitivity and soreness on the outside. even worse, my majora labia were both so swollen that they were squishing the labia minor and that caused alot more pain. i have been back and forth to the doctors and they keep giving me all these different creams and meds but nothing worked. i cannot sit. walking is possible only without an underwear ofcourse and with both legs wide open! i can feel the pain down there with just passing my hand over that area, not even touching it. i feel as though the skin is being stretched out and everyday its getting worse. i finally got to see a gyne and after she went through all the reports and taking a look down there, she said that she could not see anything wrong. she told me to take diflucan for 3 weeks. now i had used this before and it didn't work but considering that i am dying in pain, i thought i'd just try it again. nothing happenned. i went back to see her today to get some urine/blood results. she said all came back normal and that i may have endometriosis (even though i have no symtoms for that) and i would know because i had it 9 years ago but after having surgery, i no longer had the problem. these pains that i am currently having are absolutely not what i had when i had endometriosis. so i really don't think thats the problem. also, everytime i mention to a doctor that my labia is swollen and not normal, they would take a look but obviously with me lying on the bed with my legs up so the area then looks relaxed and they would not be able to see the swelling so they claim its not swollen! this has been most frustrating as i know what i look like down there and i am telling you its very swollen to the point, i have to sometimes use my fingers to part the labia majora from the labia minora just to get some ease. i feel so hopeless and fed up because the way it looks, i may just have to live with this. i already live with the terrible pain of a slip disc that is 24 hours a day every day pain. i cannot work, cannot get pregnant, do not have any kind of social life since i can't sit, stand, or walk without pain and now this!! i began to get so desperate that i started searching google and when i came across these women talking about the same symtoms, i could not believe it! i mean this is something that exist! i am not crazy! its so sad though, that we have all the medical expertise right here in canada, and yet no one could help us. how does one go on in life living with this? how does a wife accept never functioning as a woman to her husband? is there anyone out there???????????????


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So sorry

Post  LizLemonny on Sun Apr 15, 2012 6:35 am

I feel for you I love you

One thing I read in your account did mean something to me - the stretching feeling in the skin and that it is very thin... this could be from Lichen Sclerosus for which you can get certain treatments and I don't think it shows up in tests very well, doctor has to think of it from looking at the area (it can look pale in patches).

Rest of it sounds like Vulvodynia so hopefully this forum will be of use to you.

Doctors do find this very difficult to identify and you may get some who will be minimising about it; something we all agree on!!!!!


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