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    » Amitriptyline given for vulvodyina pain
    Yesterday at 11:33 pm by WVR00

    » Needing some reassurance
    Yesterday at 12:28 pm by Katiej

    » Amitriptyline Success and new-found love
    Yesterday at 12:24 pm by Katiej

    » New diagnosis, any advice whilst I wait for a specialist
    Yesterday at 3:57 am by jungleclover

    » Vestibulectomy today and no pain
    Fri Nov 17, 2017 3:28 pm by Dsrt16

    » vestibulectomy success
    Thu Nov 16, 2017 12:41 am by Hopeitworks

    » MY STORY & Vestibulectomy 2/8/17
    Thu Nov 16, 2017 12:06 am by Jgreen81

    » Pain aftee vestibulectimy
    Thu Nov 16, 2017 12:03 am by Jgreen81

    » Freaking out because I don't think surgery worked HELP!!!!
    Thu Nov 16, 2017 12:01 am by Jgreen81

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 3

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules


    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 1

    Vulvodynia help

    Tue Nov 14, 2017 4:27 pm by Katiej

    Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

    Comments: 3

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 4

    Newly diagnosed

    Tue Oct 10, 2017 8:37 pm by Brevispink

    Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

    Comments: 9

    Recent "Poke" Pain - So Confused/Losing My Mind

    Thu Oct 12, 2017 9:26 am by kelseybeth23

    Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

    Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

    Comments: 5

    Does anyone else experience this?

    Sat Oct 14, 2017 5:21 pm by Angelmegs

    Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

    Comments: 0

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 4

    Do you ever worry that you're making it up?

    Fri May 27, 2016 6:50 am by Lucci


    I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

    A few years into treatment, I had the diagnosis of PTSD added on for …

    Comments: 7

    Crotchless tights

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    Crotchless tights

    Post  Loulou on Thu Mar 15, 2012 5:28 pm

    Hi all
    Recently found some open gusset (sounds better than crotchless!) tights made by Pretty Polly (got them from Amazon

    I've always hated wearing tights but now that i'm confined to skirts i've got no choice till the weather warms up. These are vvd friendly and comfortable (takes a bit of tweaking to get the open bit straight) so I'd recommend them.

    I also wanted some thicker woollen tights for when it was colder. I didn't find any open gusset ones but did find a thicker woollen stocking to wear with a suspender belt and these did the trick - they worked with a normal suspender belt.

    But I'm still determined that I will one day wear my jeans again...


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    Re: Crotchless tights

    Post  ButterflyLiz on Thu Mar 15, 2012 6:36 pm

    Crotchless tights are amazing!! I found some in M&S (or it might have been BHS). Mine don't look particularly attractive around the crotch area but what the hey, it's not like anyone's gonna see!

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    Re: Crotchless tights

    Post  bluekangeroo on Fri May 18, 2012 10:17 am

    H LouLou

    Have you seen this website: uktights (im new so not allowed to put in the full link!) but it is dot com

    it is really good for all kinds of tights, I have got some crotchless ones on there and some great thicker thigh high socks. The service is excellent, next day delivery friendly service.

    I am not 100% sure the crotchless ones are any good, I do still feel some pain, when wearing them, but not as much as with proper tights.

    I love the socks though! and thank god its nearly summer, (come on summer) and I can wear skirts and bare (pale and pasty) legs!


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    Re: Crotchless tights

    Post  Loulou on Fri May 18, 2012 12:52 pm

    Thanks for the reference bluekangaroo - i'll check it out. But I agree, so much better when the summer finally comes and we can go bare-legged - roll on the sun!


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    Re: Crotchless tights

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