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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Am I ready for tricyclics?

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Am I ready for tricyclics?

Post  penfebruary on Fri Mar 16, 2012 12:11 am

So I was diagnosed with V back in September and tried hydro cream for like, 2 days before quickly giving that up due to the pain.. since then I have only used lidocaine gel, which has been semi helpful for me. Went for another hospital visit this week and I am now being prescribed amitryptaline.
I am just wondering if this is a big jump? Having researched tricyclics, the side effects and inability to drink alcohol etc are worrying me - I'm only 20, and committing to taking a drug conceivably for life, or at least for a few years if it works, is worrying me quite a lot.
Are there any steps that should come before this? Or is it really time for me to take this medication? To be honest, if I got to be pain free.. I wouldn't care what else I had to give up.

(Please no personal stories about how ami didn't work for you - everyone is different, I'd like to go into this positively if it is the right option for me! Thanks Smile)

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also 20..

Post  ilovebaxter1 on Sun Mar 18, 2012 12:46 am

hi Smile i am also 20 and suffering from a v disorder that ive had for over a year..i have inflamation and irritation of my vulva (vulvitis) and when my inflamation goes down i am also going to be going on a tricyclic to treat the irritation. I've also had the same concern about not being ready to commit to not drinking/smoking since we are both sooo young and aren't even 21 year ya know? just letting you know youre not the only one and i think if it helps itll be worth it Smile I've also read that taking ami only makes you a light weight when you drink and you get more dizzy? im not sure though lol if you end up going on it please keep us posted id like to know if it works!


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Re: Am I ready for tricyclics?

Post  ButterflyLiz on Sun Mar 18, 2012 9:21 am

I would say ami isn't necessarily a big jump. It was the first thing I was offered & the first thing I tried. The only other major thing I can think of is maybe physio but you could always do that at the same time as taking ami. It's a difficult decision but on the balance of things, wouldn't it be wonderful if it worked for you? After all, if you get up to the highest dose and it doesn't help you can just come off it and try something else, or give your body a break for a while. I probably shouldn't admit this but I'm sure I had the odd sneaky drink when I was on ami...

Hope it works for you if you go for it! xx

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Re: Am I ready for tricyclics?

Post  JemimaSurrender on Mon Mar 19, 2012 3:48 pm

Amitriptyline was one of the first things prescribed for me too. I think it's pretty standard to go for it early on, although I'm not too sure why, I don't know if there's a high-ish success rate for it or not???

As for it being a big jump... My GP, and every other doctor I've spoken to, was more concerned about me having Pregabalin than Ami, so I don't think it's too much of a big deal. But I guess it depends how high you go up. I tried it for 3 months at 30mg a day, which was a lot more than they were happy to give me, and came off it cold turkey without any problems. And no one told me not to drink on them (this is the first I've heard about it!) and I didn't notice any difference when I was drinking.

I wouldn't worry about it too much though. I just ask for whatever they'll possibly give me, regardless of concerns, anything to get this gone!

I hope it works for you!

P.S. I'm 22...


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Re: Am I ready for tricyclics?

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