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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Am I ready for tricyclics?

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Am I ready for tricyclics?

Post  penfebruary on Fri Mar 16, 2012 12:11 am

So I was diagnosed with V back in September and tried hydro cream for like, 2 days before quickly giving that up due to the pain.. since then I have only used lidocaine gel, which has been semi helpful for me. Went for another hospital visit this week and I am now being prescribed amitryptaline.
I am just wondering if this is a big jump? Having researched tricyclics, the side effects and inability to drink alcohol etc are worrying me - I'm only 20, and committing to taking a drug conceivably for life, or at least for a few years if it works, is worrying me quite a lot.
Are there any steps that should come before this? Or is it really time for me to take this medication? To be honest, if I got to be pain free.. I wouldn't care what else I had to give up.

(Please no personal stories about how ami didn't work for you - everyone is different, I'd like to go into this positively if it is the right option for me! Thanks Smile)

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also 20..

Post  ilovebaxter1 on Sun Mar 18, 2012 12:46 am

hi Smile i am also 20 and suffering from a v disorder that ive had for over a year..i have inflamation and irritation of my vulva (vulvitis) and when my inflamation goes down i am also going to be going on a tricyclic to treat the irritation. I've also had the same concern about not being ready to commit to not drinking/smoking since we are both sooo young and aren't even 21 year ya know? just letting you know youre not the only one and i think if it helps itll be worth it Smile I've also read that taking ami only makes you a light weight when you drink and you get more dizzy? im not sure though lol if you end up going on it please keep us posted id like to know if it works!


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Re: Am I ready for tricyclics?

Post  ButterflyLiz on Sun Mar 18, 2012 9:21 am

I would say ami isn't necessarily a big jump. It was the first thing I was offered & the first thing I tried. The only other major thing I can think of is maybe physio but you could always do that at the same time as taking ami. It's a difficult decision but on the balance of things, wouldn't it be wonderful if it worked for you? After all, if you get up to the highest dose and it doesn't help you can just come off it and try something else, or give your body a break for a while. I probably shouldn't admit this but I'm sure I had the odd sneaky drink when I was on ami...

Hope it works for you if you go for it! xx

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Re: Am I ready for tricyclics?

Post  JemimaSurrender on Mon Mar 19, 2012 3:48 pm

Amitriptyline was one of the first things prescribed for me too. I think it's pretty standard to go for it early on, although I'm not too sure why, I don't know if there's a high-ish success rate for it or not???

As for it being a big jump... My GP, and every other doctor I've spoken to, was more concerned about me having Pregabalin than Ami, so I don't think it's too much of a big deal. But I guess it depends how high you go up. I tried it for 3 months at 30mg a day, which was a lot more than they were happy to give me, and came off it cold turkey without any problems. And no one told me not to drink on them (this is the first I've heard about it!) and I didn't notice any difference when I was drinking.

I wouldn't worry about it too much though. I just ask for whatever they'll possibly give me, regardless of concerns, anything to get this gone!

I hope it works for you!

P.S. I'm 22...


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Re: Am I ready for tricyclics?

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