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Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
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» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

Am I ready for tricyclics?

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Am I ready for tricyclics?

Post  penfebruary on Fri Mar 16, 2012 12:11 am

So I was diagnosed with V back in September and tried hydro cream for like, 2 days before quickly giving that up due to the pain.. since then I have only used lidocaine gel, which has been semi helpful for me. Went for another hospital visit this week and I am now being prescribed amitryptaline.
I am just wondering if this is a big jump? Having researched tricyclics, the side effects and inability to drink alcohol etc are worrying me - I'm only 20, and committing to taking a drug conceivably for life, or at least for a few years if it works, is worrying me quite a lot.
Are there any steps that should come before this? Or is it really time for me to take this medication? To be honest, if I got to be pain free.. I wouldn't care what else I had to give up.

(Please no personal stories about how ami didn't work for you - everyone is different, I'd like to go into this positively if it is the right option for me! Thanks Smile)

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also 20..

Post  ilovebaxter1 on Sun Mar 18, 2012 12:46 am

hi Smile i am also 20 and suffering from a v disorder that ive had for over a year..i have inflamation and irritation of my vulva (vulvitis) and when my inflamation goes down i am also going to be going on a tricyclic to treat the irritation. I've also had the same concern about not being ready to commit to not drinking/smoking since we are both sooo young and aren't even 21 year ya know? just letting you know youre not the only one and i think if it helps itll be worth it Smile I've also read that taking ami only makes you a light weight when you drink and you get more dizzy? im not sure though lol if you end up going on it please keep us posted id like to know if it works!


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Re: Am I ready for tricyclics?

Post  ButterflyLiz on Sun Mar 18, 2012 9:21 am

I would say ami isn't necessarily a big jump. It was the first thing I was offered & the first thing I tried. The only other major thing I can think of is maybe physio but you could always do that at the same time as taking ami. It's a difficult decision but on the balance of things, wouldn't it be wonderful if it worked for you? After all, if you get up to the highest dose and it doesn't help you can just come off it and try something else, or give your body a break for a while. I probably shouldn't admit this but I'm sure I had the odd sneaky drink when I was on ami...

Hope it works for you if you go for it! xx

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Re: Am I ready for tricyclics?

Post  JemimaSurrender on Mon Mar 19, 2012 3:48 pm

Amitriptyline was one of the first things prescribed for me too. I think it's pretty standard to go for it early on, although I'm not too sure why, I don't know if there's a high-ish success rate for it or not???

As for it being a big jump... My GP, and every other doctor I've spoken to, was more concerned about me having Pregabalin than Ami, so I don't think it's too much of a big deal. But I guess it depends how high you go up. I tried it for 3 months at 30mg a day, which was a lot more than they were happy to give me, and came off it cold turkey without any problems. And no one told me not to drink on them (this is the first I've heard about it!) and I didn't notice any difference when I was drinking.

I wouldn't worry about it too much though. I just ask for whatever they'll possibly give me, regardless of concerns, anything to get this gone!

I hope it works for you!

P.S. I'm 22...


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Re: Am I ready for tricyclics?

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