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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

Am I ready for tricyclics?

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Am I ready for tricyclics?

Post  penfebruary on Fri Mar 16, 2012 12:11 am

So I was diagnosed with V back in September and tried hydro cream for like, 2 days before quickly giving that up due to the pain.. since then I have only used lidocaine gel, which has been semi helpful for me. Went for another hospital visit this week and I am now being prescribed amitryptaline.
I am just wondering if this is a big jump? Having researched tricyclics, the side effects and inability to drink alcohol etc are worrying me - I'm only 20, and committing to taking a drug conceivably for life, or at least for a few years if it works, is worrying me quite a lot.
Are there any steps that should come before this? Or is it really time for me to take this medication? To be honest, if I got to be pain free.. I wouldn't care what else I had to give up.

(Please no personal stories about how ami didn't work for you - everyone is different, I'd like to go into this positively if it is the right option for me! Thanks Smile)

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also 20..

Post  ilovebaxter1 on Sun Mar 18, 2012 12:46 am

hi Smile i am also 20 and suffering from a v disorder that ive had for over a year..i have inflamation and irritation of my vulva (vulvitis) and when my inflamation goes down i am also going to be going on a tricyclic to treat the irritation. I've also had the same concern about not being ready to commit to not drinking/smoking since we are both sooo young and aren't even 21 year ya know? just letting you know youre not the only one and i think if it helps itll be worth it Smile I've also read that taking ami only makes you a light weight when you drink and you get more dizzy? im not sure though lol if you end up going on it please keep us posted id like to know if it works!


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Re: Am I ready for tricyclics?

Post  ButterflyLiz on Sun Mar 18, 2012 9:21 am

I would say ami isn't necessarily a big jump. It was the first thing I was offered & the first thing I tried. The only other major thing I can think of is maybe physio but you could always do that at the same time as taking ami. It's a difficult decision but on the balance of things, wouldn't it be wonderful if it worked for you? After all, if you get up to the highest dose and it doesn't help you can just come off it and try something else, or give your body a break for a while. I probably shouldn't admit this but I'm sure I had the odd sneaky drink when I was on ami...

Hope it works for you if you go for it! xx

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Re: Am I ready for tricyclics?

Post  JemimaSurrender on Mon Mar 19, 2012 3:48 pm

Amitriptyline was one of the first things prescribed for me too. I think it's pretty standard to go for it early on, although I'm not too sure why, I don't know if there's a high-ish success rate for it or not???

As for it being a big jump... My GP, and every other doctor I've spoken to, was more concerned about me having Pregabalin than Ami, so I don't think it's too much of a big deal. But I guess it depends how high you go up. I tried it for 3 months at 30mg a day, which was a lot more than they were happy to give me, and came off it cold turkey without any problems. And no one told me not to drink on them (this is the first I've heard about it!) and I didn't notice any difference when I was drinking.

I wouldn't worry about it too much though. I just ask for whatever they'll possibly give me, regardless of concerns, anything to get this gone!

I hope it works for you!

P.S. I'm 22...


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Re: Am I ready for tricyclics?

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