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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 0


Sat Feb 10, 2018 12:18 am by rockylife


Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Hey, I'm new :)

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Hey, I'm new :)

Post  laura9 on Sun Mar 18, 2012 4:53 am

Hello everyone,

I randomly came accross this site when aimlessley searching around the internet ( I can't sleep). I first noticed signs of vulvodynia when i was 15, I took alittle piece of paper to my doctor with 'vulval vestibulitis' written on it when i was 17, got ignored. Took 2 years to go back at 19 and finally got diagnosed at 22, 3 years ago. (many more bits inbetween but thats the basics).

I have so much anger directed towards health professionals (despite being one myself) especially a lady calls margret, who goes under the job description of psycosexual counsellor. Thinking about it is making my hands shake. I attempt to spend every day of my life ignoring my symptons of vulvodynia. I dont feel strong enough to ever go back to a health proessional and discuss my treatment options.

I am trying to take the first step in no longer 'avoiding' by joining this forum (deep breaths) Smile

Thank you all for making me feel like a mentally sane human!! Laura xx


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Re: Hey, I'm new :)

Post  ButterflyLiz on Sun Mar 18, 2012 9:37 am

Hi Laura and welcome!

So glad you have found us! You will find a wealth of information and support here. Well done on taking the first step to journeying out of avoidance.. I have been stuck there many times myself. We all deserve to find relief, and sometimes the best way to do that is continuing the difficult search for helpful doctors, but you will also find several things you can try yourself if you look around the forum.

Unfortunately, dealing with rude, unhelpful and disrespectful medical people is something that most of us are all too familiar with, so you're not alone on that. This is a great place to share, vent and throw around ideas.

Oh, we also have a "secret" facebook group, PM Naomi if you would like to be added.

Liz xx

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I am new too !!

Post  Edina on Sun Mar 18, 2012 4:29 pm

Hi there I am new too. We could keep each other going, I am from the North West too. And in pain everyday now since week before xmas on v low ami at present, back to gynae in just over a week for first follow up. You could try another Dr and see if you have more success. must admit I have had to chase drs and appts and prescriptions. Keep Strong xx


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Re: Hey, I'm new :)

Post  naomi on Tue Mar 20, 2012 3:32 pm

hello! welcome to the forum.

dont be afraid to ask loads of questions...we all do! and educating the 'professionals' about this condition. Dont get me started on 'specialists'...i can feel my blood pressure rise already!!!

if u fancy joining the facebook secret group you are more than welcome, put names to faces. Message me on here if you'd like to. over the past few years I have met girls on here and on the facebook group that I really consider to be close friends...all deserve medals Smile

hopefully you will gain confidence to start the ball rolling and seek help again. and if you find a lady who lives near you and can recommend you a nice specialist, then all the better!



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Re: Hey, I'm new :)

Post  laura9 on Tue Mar 20, 2012 9:17 pm

Thank you so much girls, its reassuring to read that there are actually decent doctors out there somewhere! Edina, I hope your follow up goes okay and your symtoms ease slightly soon xxx


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Re: Hey, I'm new :)

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