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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


Hey, I'm new :)

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Hey, I'm new :)

Post  laura9 on Sun Mar 18, 2012 4:53 am

Hello everyone,

I randomly came accross this site when aimlessley searching around the internet ( I can't sleep). I first noticed signs of vulvodynia when i was 15, I took alittle piece of paper to my doctor with 'vulval vestibulitis' written on it when i was 17, got ignored. Took 2 years to go back at 19 and finally got diagnosed at 22, 3 years ago. (many more bits inbetween but thats the basics).

I have so much anger directed towards health professionals (despite being one myself) especially a lady calls margret, who goes under the job description of psycosexual counsellor. Thinking about it is making my hands shake. I attempt to spend every day of my life ignoring my symptons of vulvodynia. I dont feel strong enough to ever go back to a health proessional and discuss my treatment options.

I am trying to take the first step in no longer 'avoiding' by joining this forum (deep breaths) Smile

Thank you all for making me feel like a mentally sane human!! Laura xx

laura9

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Re: Hey, I'm new :)

Post  ButterflyLiz on Sun Mar 18, 2012 9:37 am

Hi Laura and welcome!

So glad you have found us! You will find a wealth of information and support here. Well done on taking the first step to journeying out of avoidance.. I have been stuck there many times myself. We all deserve to find relief, and sometimes the best way to do that is continuing the difficult search for helpful doctors, but you will also find several things you can try yourself if you look around the forum.

Unfortunately, dealing with rude, unhelpful and disrespectful medical people is something that most of us are all too familiar with, so you're not alone on that. This is a great place to share, vent and throw around ideas.

Oh, we also have a "secret" facebook group, PM Naomi if you would like to be added.

Liz xx
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I am new too !!

Post  Edina on Sun Mar 18, 2012 4:29 pm

Hi there I am new too. We could keep each other going, I am from the North West too. And in pain everyday now since week before xmas on v low ami at present, back to gynae in just over a week for first follow up. You could try another Dr and see if you have more success. must admit I have had to chase drs and appts and prescriptions. Keep Strong xx

Edina

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Re: Hey, I'm new :)

Post  naomi on Tue Mar 20, 2012 3:32 pm

hello! welcome to the forum.

dont be afraid to ask loads of questions...we all do! and educating the 'professionals' about this condition. Dont get me started on 'specialists'...i can feel my blood pressure rise already!!!

if u fancy joining the facebook secret group you are more than welcome, put names to faces. Message me on here if you'd like to. over the past few years I have met girls on here and on the facebook group that I really consider to be close friends...all deserve medals Smile

hopefully you will gain confidence to start the ball rolling and seek help again. and if you find a lady who lives near you and can recommend you a nice specialist, then all the better!

xxxx

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Re: Hey, I'm new :)

Post  laura9 on Tue Mar 20, 2012 9:17 pm

Thank you so much girls, its reassuring to read that there are actually decent doctors out there somewhere! Edina, I hope your follow up goes okay and your symtoms ease slightly soon xxx

laura9

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Re: Hey, I'm new :)

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