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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

Hey, I'm new :)

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Hey, I'm new :)

Post  laura9 on Sun Mar 18, 2012 4:53 am

Hello everyone,

I randomly came accross this site when aimlessley searching around the internet ( I can't sleep). I first noticed signs of vulvodynia when i was 15, I took alittle piece of paper to my doctor with 'vulval vestibulitis' written on it when i was 17, got ignored. Took 2 years to go back at 19 and finally got diagnosed at 22, 3 years ago. (many more bits inbetween but thats the basics).

I have so much anger directed towards health professionals (despite being one myself) especially a lady calls margret, who goes under the job description of psycosexual counsellor. Thinking about it is making my hands shake. I attempt to spend every day of my life ignoring my symptons of vulvodynia. I dont feel strong enough to ever go back to a health proessional and discuss my treatment options.

I am trying to take the first step in no longer 'avoiding' by joining this forum (deep breaths) Smile

Thank you all for making me feel like a mentally sane human!! Laura xx


Posts : 2
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Location : Manchester, UK

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Re: Hey, I'm new :)

Post  ButterflyLiz on Sun Mar 18, 2012 9:37 am

Hi Laura and welcome!

So glad you have found us! You will find a wealth of information and support here. Well done on taking the first step to journeying out of avoidance.. I have been stuck there many times myself. We all deserve to find relief, and sometimes the best way to do that is continuing the difficult search for helpful doctors, but you will also find several things you can try yourself if you look around the forum.

Unfortunately, dealing with rude, unhelpful and disrespectful medical people is something that most of us are all too familiar with, so you're not alone on that. This is a great place to share, vent and throw around ideas.

Oh, we also have a "secret" facebook group, PM Naomi if you would like to be added.

Liz xx

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Age : 32
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I am new too !!

Post  Edina on Sun Mar 18, 2012 4:29 pm

Hi there I am new too. We could keep each other going, I am from the North West too. And in pain everyday now since week before xmas on v low ami at present, back to gynae in just over a week for first follow up. You could try another Dr and see if you have more success. must admit I have had to chase drs and appts and prescriptions. Keep Strong xx


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Age : 44
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Re: Hey, I'm new :)

Post  naomi on Tue Mar 20, 2012 3:32 pm

hello! welcome to the forum.

dont be afraid to ask loads of questions...we all do! and educating the 'professionals' about this condition. Dont get me started on 'specialists'...i can feel my blood pressure rise already!!!

if u fancy joining the facebook secret group you are more than welcome, put names to faces. Message me on here if you'd like to. over the past few years I have met girls on here and on the facebook group that I really consider to be close friends...all deserve medals Smile

hopefully you will gain confidence to start the ball rolling and seek help again. and if you find a lady who lives near you and can recommend you a nice specialist, then all the better!



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Re: Hey, I'm new :)

Post  laura9 on Tue Mar 20, 2012 9:17 pm

Thank you so much girls, its reassuring to read that there are actually decent doctors out there somewhere! Edina, I hope your follow up goes okay and your symtoms ease slightly soon xxx


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Re: Hey, I'm new :)

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