Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Suffering for 10 months EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Suffering for 10 months EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Suffering for 10 months EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Suffering for 10 months EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Suffering for 10 months EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Suffering for 10 months EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Suffering for 10 months EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Suffering for 10 months EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Suffering for 10 months EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Suffering for 10 months

Go down

Suffering for 10 months Empty Suffering for 10 months

Post  Juliaprincess Mon Mar 19, 2012 11:36 pm

My pain started 10 months ago and I thought I had a urine infection. I got antibiotics but it didnt clear up and then test showed I didnt have any infections. I went to the GUM clinic and got tested for everything and it was all clear. I saw a skin specialist 2 weeks ago and they diagnosed my with Vulvodynia. I was told to take Nortriptyline at night time. I have taken 10 mg for 2 weeks and now as of tonight I have been told to up it to 20mgs increasing by 10 mgs every two weeks until a max of 40mgs a night if I can tolerate.
I did take amatriptaline before but this had side affects for me.
I have pain all the time. My pain is mostly on the left hand side inner labia and also occasionally on the clitoris.

I hate to have this pain all the time and often take pain killers most days to get through the day. Some days I can tolerate the pain. I have had to have councelling due to a family problem and I am also talking to the councellor about the pain. I have found out that I have been abused as a child and also read this could be one of the reasons for suffering with Vulvodynia. I also have head aches which have eased since taking the Nortriptyline. I am hoping that with the increase in medication I will see some lessoning of the pain below.

Its affected my relationship now. I met someone 6 months ago and I am really happy in the relationship but I have had to tell him about the pain and he is very understanding. Sometimes I can have sex and other times the thought of having sex with the pain puts me off. For me luckily sex is not painful but having the pain has made me enjoy sex less and also put me off. I dont like being touched now as I did before.

The pain affects every aspect of my life. I have trouble concentrating at work now. I have a few close friends who know I suffer but its not easy to tell people and people dont understand anyway.

I have read others stories and feel so sad for myself and them.

I have recently changed to cotton underwear. I am contemplating using vasaline as I havent tried this yet but someone recommended it.

I have been referred to a pain specialist and am now waiting an appointment. I have read about the pudendal nerve affecting pain and am interested to get a doctors opinion on this

I have to say this is the worst pain I have ever suffered and I wouldnt wish this on anyone else. I am only 39 and have been quite sexually active in my life but havent settled down and had children. I have always wanted to but having this now makes me think I will never do this.

If anyone has any new advice then please pass on through this website. Really keen to help myself and others with this awful diagnosis.

One of my relatives thinks I have somatization disorder. Has anyone else heard of this or been told they have this?

Juliaprincess

Posts : 1
Join date : 2011-12-22

Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum