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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Suffering for 10 months

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Suffering for 10 months

Post  Juliaprincess on Mon Mar 19, 2012 11:36 pm

My pain started 10 months ago and I thought I had a urine infection. I got antibiotics but it didnt clear up and then test showed I didnt have any infections. I went to the GUM clinic and got tested for everything and it was all clear. I saw a skin specialist 2 weeks ago and they diagnosed my with Vulvodynia. I was told to take Nortriptyline at night time. I have taken 10 mg for 2 weeks and now as of tonight I have been told to up it to 20mgs increasing by 10 mgs every two weeks until a max of 40mgs a night if I can tolerate.
I did take amatriptaline before but this had side affects for me.
I have pain all the time. My pain is mostly on the left hand side inner labia and also occasionally on the clitoris.

I hate to have this pain all the time and often take pain killers most days to get through the day. Some days I can tolerate the pain. I have had to have councelling due to a family problem and I am also talking to the councellor about the pain. I have found out that I have been abused as a child and also read this could be one of the reasons for suffering with Vulvodynia. I also have head aches which have eased since taking the Nortriptyline. I am hoping that with the increase in medication I will see some lessoning of the pain below.

Its affected my relationship now. I met someone 6 months ago and I am really happy in the relationship but I have had to tell him about the pain and he is very understanding. Sometimes I can have sex and other times the thought of having sex with the pain puts me off. For me luckily sex is not painful but having the pain has made me enjoy sex less and also put me off. I dont like being touched now as I did before.

The pain affects every aspect of my life. I have trouble concentrating at work now. I have a few close friends who know I suffer but its not easy to tell people and people dont understand anyway.

I have read others stories and feel so sad for myself and them.

I have recently changed to cotton underwear. I am contemplating using vasaline as I havent tried this yet but someone recommended it.

I have been referred to a pain specialist and am now waiting an appointment. I have read about the pudendal nerve affecting pain and am interested to get a doctors opinion on this

I have to say this is the worst pain I have ever suffered and I wouldnt wish this on anyone else. I am only 39 and have been quite sexually active in my life but havent settled down and had children. I have always wanted to but having this now makes me think I will never do this.

If anyone has any new advice then please pass on through this website. Really keen to help myself and others with this awful diagnosis.

One of my relatives thinks I have somatization disorder. Has anyone else heard of this or been told they have this?


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