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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Suffering for 10 months

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Suffering for 10 months

Post  Juliaprincess on Mon Mar 19, 2012 11:36 pm

My pain started 10 months ago and I thought I had a urine infection. I got antibiotics but it didnt clear up and then test showed I didnt have any infections. I went to the GUM clinic and got tested for everything and it was all clear. I saw a skin specialist 2 weeks ago and they diagnosed my with Vulvodynia. I was told to take Nortriptyline at night time. I have taken 10 mg for 2 weeks and now as of tonight I have been told to up it to 20mgs increasing by 10 mgs every two weeks until a max of 40mgs a night if I can tolerate.
I did take amatriptaline before but this had side affects for me.
I have pain all the time. My pain is mostly on the left hand side inner labia and also occasionally on the clitoris.

I hate to have this pain all the time and often take pain killers most days to get through the day. Some days I can tolerate the pain. I have had to have councelling due to a family problem and I am also talking to the councellor about the pain. I have found out that I have been abused as a child and also read this could be one of the reasons for suffering with Vulvodynia. I also have head aches which have eased since taking the Nortriptyline. I am hoping that with the increase in medication I will see some lessoning of the pain below.

Its affected my relationship now. I met someone 6 months ago and I am really happy in the relationship but I have had to tell him about the pain and he is very understanding. Sometimes I can have sex and other times the thought of having sex with the pain puts me off. For me luckily sex is not painful but having the pain has made me enjoy sex less and also put me off. I dont like being touched now as I did before.

The pain affects every aspect of my life. I have trouble concentrating at work now. I have a few close friends who know I suffer but its not easy to tell people and people dont understand anyway.

I have read others stories and feel so sad for myself and them.

I have recently changed to cotton underwear. I am contemplating using vasaline as I havent tried this yet but someone recommended it.

I have been referred to a pain specialist and am now waiting an appointment. I have read about the pudendal nerve affecting pain and am interested to get a doctors opinion on this

I have to say this is the worst pain I have ever suffered and I wouldnt wish this on anyone else. I am only 39 and have been quite sexually active in my life but havent settled down and had children. I have always wanted to but having this now makes me think I will never do this.

If anyone has any new advice then please pass on through this website. Really keen to help myself and others with this awful diagnosis.

One of my relatives thinks I have somatization disorder. Has anyone else heard of this or been told they have this?

Juliaprincess

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Join date : 2011-12-22

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