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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

Returning vulvodynia?

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Returning vulvodynia?

Post  Songstress on Thu Mar 22, 2012 11:23 am

I'm new to this forum, so I suppose I should out with my story as well.

I developed vulvodynia almost 4 years ago, while I was still dating my ex boyfriend. The first several times I visited doctors, I was told it was thrush, or a variety of stds, or the classic, it was all in my head. Meanwhile my boyfriend was convinced that I was withholding sex to punish him. (I never found out what for) I eventually got a referral to a gyno who quickly determined that I had vestibulodynia and chronic eczema. I was given hormone treatment and local anesthetic, but neither helped. I don't feel any doctor ever took my concerns or treatment seriously and besides being tortured by the condition, I began to worry that it was all in my head. I finally left my boyfriend after three years and started seeing a new guy. I have told him about the condition and the problems I had in my last relationship and he was very acceptive and supportive.

I found that sex with him didn't hurt but for the past two weeks, after we have been sleeping together for about a month, I have started having mild, but worsening pain. I'm completely devastated and terrified that the pain will come back and ruin the relationship. But I'm equally afraid to go to the doctor. I don't feel I can handle another year of running between doctors and I am petrified that, because the pain was gone for those few weeks, the doctor will say that it must just be in my head and stop treatment.

My boyfriend and I had sex yesterday and I still have a burning sensation between my legs. Sad I feel like I'm angry all the time because I basically had my sexuality taken away at 19 and I feel completely cheated. And I am really worried that it is in my head. I did have a bad sexual experience when I was 18 and I'm scared that that's what it's all about, because I don't know what to do if that is the case.

I really need support right now. Sad


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