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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Do I Have Vulvodynia?

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Do I Have Vulvodynia?

Post  chariot on Sat Mar 24, 2012 3:52 pm

Hi everyone,

I'm 23 years old. Ever since I was 17 (when I first started to try and use tampons), I've had a problem with inserting them. It would always hurt! It's like a burning, stabbing feeling whenever I try to insert anything up there. I didn't think it was a problem then, always thinking it was just because maybe I was too tight, but recently after a few failed intercourse experiences, I went to my family doctor. He prescribed me with Apo-Cephalex and that Flagyl cream for a course of 10 days each and said I might have something called 'vaginitis'. When I went back to see him after this treatment, he said the inflammation had gone down but couldn't do another exam because it hurt too much still. He then referred me to a gynecologist (but my appointment isn't for another month and a half).

In general, it doesn't hurt down there on a day-to-day basis. It only hurts when I try and insert something (tampon, sex, etc). I'm not sure exactly what I have. I went to see another gynecologist (not referred by my doctor but a friend of a family friend) and it was the most frustrating experience ever. He told me the pain was all in my head and I needed to get over it. He suggested I have a surgery where they surgically break my hymen. I tried to tell him it wasn't in my head - that I was actually in pain but he didn't believe me...

Anyways, I've been trying to take matters into my own hands until I can see that gynecologist in May. I stumbled upon vulvodynia as it relates to my symptoms but I'm not 100% sure if that's what I have.

chariot

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Re: Do I Have Vulvodynia?

Post  Sarah001 on Sat Mar 31, 2012 7:23 pm

Sounds more like Vulvar Vestibulitis to me, a subset of Vulvodynia but pain only with attempted penetration. A few of the ladies on here have that so search for the term, or VVS, in the threads.
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Sarah001

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Re: Do I Have Vulvodynia?

Post  amtali on Thu Jun 07, 2012 8:23 pm

Hi chariot. We have very similar stories. My symptoms started at 18, and now I'm 23 and getting surgery this summer. I have vestibulodynia (formally called vulvar vestibulitis). This just means that the pain you are experiencing down there is confined to the opening, the vestibule. Vulvodynia is a more general term for pain anywhere in the vulva.

For me, intercourse has been the main problem, but I have unprovoked pain at times as well. After trying several treatments, surgery was the best for me. You really should go see a gyno who has had experience with women's health pain issues like vestibulodynia. I don't know where you're located, but there are a few specialists around the country for this, including Dr. Libby Edwards in Charlotte, NC.

I hope you find the answers you're looking for. Don't give up. It takes most women several doctors to rule out everything and get a proper diagnosis. Good Luck!

amtali

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Re: Do I Have Vulvodynia?

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