Vulvodynia Support
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» Hope to all my suffering ladies
Do I Have Vulvodynia? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Do I Have Vulvodynia? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Do I Have Vulvodynia? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Do I Have Vulvodynia? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Do I Have Vulvodynia? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Do I Have Vulvodynia? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Do I Have Vulvodynia? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Do I Have Vulvodynia? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Do I Have Vulvodynia? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Do I Have Vulvodynia?

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Post  chariot Sat Mar 24, 2012 3:52 pm

Hi everyone,

I'm 23 years old. Ever since I was 17 (when I first started to try and use tampons), I've had a problem with inserting them. It would always hurt! It's like a burning, stabbing feeling whenever I try to insert anything up there. I didn't think it was a problem then, always thinking it was just because maybe I was too tight, but recently after a few failed intercourse experiences, I went to my family doctor. He prescribed me with Apo-Cephalex and that Flagyl cream for a course of 10 days each and said I might have something called 'vaginitis'. When I went back to see him after this treatment, he said the inflammation had gone down but couldn't do another exam because it hurt too much still. He then referred me to a gynecologist (but my appointment isn't for another month and a half).

In general, it doesn't hurt down there on a day-to-day basis. It only hurts when I try and insert something (tampon, sex, etc). I'm not sure exactly what I have. I went to see another gynecologist (not referred by my doctor but a friend of a family friend) and it was the most frustrating experience ever. He told me the pain was all in my head and I needed to get over it. He suggested I have a surgery where they surgically break my hymen. I tried to tell him it wasn't in my head - that I was actually in pain but he didn't believe me...

Anyways, I've been trying to take matters into my own hands until I can see that gynecologist in May. I stumbled upon vulvodynia as it relates to my symptoms but I'm not 100% sure if that's what I have.

chariot

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Join date : 2012-03-24

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Post  Sarah001 Sat Mar 31, 2012 7:23 pm

Sounds more like Vulvar Vestibulitis to me, a subset of Vulvodynia but pain only with attempted penetration. A few of the ladies on here have that so search for the term, or VVS, in the threads.
Sarah001
Sarah001

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Post  amtali Thu Jun 07, 2012 8:23 pm

Hi chariot. We have very similar stories. My symptoms started at 18, and now I'm 23 and getting surgery this summer. I have vestibulodynia (formally called vulvar vestibulitis). This just means that the pain you are experiencing down there is confined to the opening, the vestibule. Vulvodynia is a more general term for pain anywhere in the vulva.

For me, intercourse has been the main problem, but I have unprovoked pain at times as well. After trying several treatments, surgery was the best for me. You really should go see a gyno who has had experience with women's health pain issues like vestibulodynia. I don't know where you're located, but there are a few specialists around the country for this, including Dr. Libby Edwards in Charlotte, NC.

I hope you find the answers you're looking for. Don't give up. It takes most women several doctors to rule out everything and get a proper diagnosis. Good Luck!

amtali

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