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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

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New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

Do I Have Vulvodynia?

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Do I Have Vulvodynia?

Post  chariot on Sat Mar 24, 2012 3:52 pm

Hi everyone,

I'm 23 years old. Ever since I was 17 (when I first started to try and use tampons), I've had a problem with inserting them. It would always hurt! It's like a burning, stabbing feeling whenever I try to insert anything up there. I didn't think it was a problem then, always thinking it was just because maybe I was too tight, but recently after a few failed intercourse experiences, I went to my family doctor. He prescribed me with Apo-Cephalex and that Flagyl cream for a course of 10 days each and said I might have something called 'vaginitis'. When I went back to see him after this treatment, he said the inflammation had gone down but couldn't do another exam because it hurt too much still. He then referred me to a gynecologist (but my appointment isn't for another month and a half).

In general, it doesn't hurt down there on a day-to-day basis. It only hurts when I try and insert something (tampon, sex, etc). I'm not sure exactly what I have. I went to see another gynecologist (not referred by my doctor but a friend of a family friend) and it was the most frustrating experience ever. He told me the pain was all in my head and I needed to get over it. He suggested I have a surgery where they surgically break my hymen. I tried to tell him it wasn't in my head - that I was actually in pain but he didn't believe me...

Anyways, I've been trying to take matters into my own hands until I can see that gynecologist in May. I stumbled upon vulvodynia as it relates to my symptoms but I'm not 100% sure if that's what I have.


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Re: Do I Have Vulvodynia?

Post  Sarah001 on Sat Mar 31, 2012 7:23 pm

Sounds more like Vulvar Vestibulitis to me, a subset of Vulvodynia but pain only with attempted penetration. A few of the ladies on here have that so search for the term, or VVS, in the threads.

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Re: Do I Have Vulvodynia?

Post  amtali on Thu Jun 07, 2012 8:23 pm

Hi chariot. We have very similar stories. My symptoms started at 18, and now I'm 23 and getting surgery this summer. I have vestibulodynia (formally called vulvar vestibulitis). This just means that the pain you are experiencing down there is confined to the opening, the vestibule. Vulvodynia is a more general term for pain anywhere in the vulva.

For me, intercourse has been the main problem, but I have unprovoked pain at times as well. After trying several treatments, surgery was the best for me. You really should go see a gyno who has had experience with women's health pain issues like vestibulodynia. I don't know where you're located, but there are a few specialists around the country for this, including Dr. Libby Edwards in Charlotte, NC.

I hope you find the answers you're looking for. Don't give up. It takes most women several doctors to rule out everything and get a proper diagnosis. Good Luck!


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Re: Do I Have Vulvodynia?

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