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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Do I Have Vulvodynia?

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Do I Have Vulvodynia?

Post  chariot on Sat Mar 24, 2012 3:52 pm

Hi everyone,

I'm 23 years old. Ever since I was 17 (when I first started to try and use tampons), I've had a problem with inserting them. It would always hurt! It's like a burning, stabbing feeling whenever I try to insert anything up there. I didn't think it was a problem then, always thinking it was just because maybe I was too tight, but recently after a few failed intercourse experiences, I went to my family doctor. He prescribed me with Apo-Cephalex and that Flagyl cream for a course of 10 days each and said I might have something called 'vaginitis'. When I went back to see him after this treatment, he said the inflammation had gone down but couldn't do another exam because it hurt too much still. He then referred me to a gynecologist (but my appointment isn't for another month and a half).

In general, it doesn't hurt down there on a day-to-day basis. It only hurts when I try and insert something (tampon, sex, etc). I'm not sure exactly what I have. I went to see another gynecologist (not referred by my doctor but a friend of a family friend) and it was the most frustrating experience ever. He told me the pain was all in my head and I needed to get over it. He suggested I have a surgery where they surgically break my hymen. I tried to tell him it wasn't in my head - that I was actually in pain but he didn't believe me...

Anyways, I've been trying to take matters into my own hands until I can see that gynecologist in May. I stumbled upon vulvodynia as it relates to my symptoms but I'm not 100% sure if that's what I have.

chariot

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Re: Do I Have Vulvodynia?

Post  Sarah001 on Sat Mar 31, 2012 7:23 pm

Sounds more like Vulvar Vestibulitis to me, a subset of Vulvodynia but pain only with attempted penetration. A few of the ladies on here have that so search for the term, or VVS, in the threads.
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Sarah001

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Re: Do I Have Vulvodynia?

Post  amtali on Thu Jun 07, 2012 8:23 pm

Hi chariot. We have very similar stories. My symptoms started at 18, and now I'm 23 and getting surgery this summer. I have vestibulodynia (formally called vulvar vestibulitis). This just means that the pain you are experiencing down there is confined to the opening, the vestibule. Vulvodynia is a more general term for pain anywhere in the vulva.

For me, intercourse has been the main problem, but I have unprovoked pain at times as well. After trying several treatments, surgery was the best for me. You really should go see a gyno who has had experience with women's health pain issues like vestibulodynia. I don't know where you're located, but there are a few specialists around the country for this, including Dr. Libby Edwards in Charlotte, NC.

I hope you find the answers you're looking for. Don't give up. It takes most women several doctors to rule out everything and get a proper diagnosis. Good Luck!

amtali

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Re: Do I Have Vulvodynia?

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