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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Do I Have Vulvodynia?

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Do I Have Vulvodynia?

Post  chariot on Sat Mar 24, 2012 3:52 pm

Hi everyone,

I'm 23 years old. Ever since I was 17 (when I first started to try and use tampons), I've had a problem with inserting them. It would always hurt! It's like a burning, stabbing feeling whenever I try to insert anything up there. I didn't think it was a problem then, always thinking it was just because maybe I was too tight, but recently after a few failed intercourse experiences, I went to my family doctor. He prescribed me with Apo-Cephalex and that Flagyl cream for a course of 10 days each and said I might have something called 'vaginitis'. When I went back to see him after this treatment, he said the inflammation had gone down but couldn't do another exam because it hurt too much still. He then referred me to a gynecologist (but my appointment isn't for another month and a half).

In general, it doesn't hurt down there on a day-to-day basis. It only hurts when I try and insert something (tampon, sex, etc). I'm not sure exactly what I have. I went to see another gynecologist (not referred by my doctor but a friend of a family friend) and it was the most frustrating experience ever. He told me the pain was all in my head and I needed to get over it. He suggested I have a surgery where they surgically break my hymen. I tried to tell him it wasn't in my head - that I was actually in pain but he didn't believe me...

Anyways, I've been trying to take matters into my own hands until I can see that gynecologist in May. I stumbled upon vulvodynia as it relates to my symptoms but I'm not 100% sure if that's what I have.

chariot

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Re: Do I Have Vulvodynia?

Post  Sarah001 on Sat Mar 31, 2012 7:23 pm

Sounds more like Vulvar Vestibulitis to me, a subset of Vulvodynia but pain only with attempted penetration. A few of the ladies on here have that so search for the term, or VVS, in the threads.
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Sarah001

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Re: Do I Have Vulvodynia?

Post  amtali on Thu Jun 07, 2012 8:23 pm

Hi chariot. We have very similar stories. My symptoms started at 18, and now I'm 23 and getting surgery this summer. I have vestibulodynia (formally called vulvar vestibulitis). This just means that the pain you are experiencing down there is confined to the opening, the vestibule. Vulvodynia is a more general term for pain anywhere in the vulva.

For me, intercourse has been the main problem, but I have unprovoked pain at times as well. After trying several treatments, surgery was the best for me. You really should go see a gyno who has had experience with women's health pain issues like vestibulodynia. I don't know where you're located, but there are a few specialists around the country for this, including Dr. Libby Edwards in Charlotte, NC.

I hope you find the answers you're looking for. Don't give up. It takes most women several doctors to rule out everything and get a proper diagnosis. Good Luck!

amtali

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Re: Do I Have Vulvodynia?

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