Vulvodynia Support
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» Hope to all my suffering ladies
Newbie here EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Newbie here EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Newbie here EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Newbie here EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Newbie here EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Newbie here EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Newbie here EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Newbie here EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Newbie here EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Newbie here

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Post  Dandelion Fri May 25, 2012 6:19 am

Hey all,

I'm Danni. I'm a 20 year old student from New Zealand and I've been suffering with Vulvodynia for almost two years now. The impact it has on my life has gotten worse over the last 6 or so months, to the point where I have been diagnosed with severe depression. I am about to start counselling with a psychologist who specialises in this sort of thing, and am on medication for it. I have a really amazing partner who has been with my from the very start, and is really supportive of me.

I'm really glad I found this forum, it'll be good to be able to chat with people who know what its like, and hopefully it won't feel so isolating anymore Smile


Dandelion

Posts : 3
Join date : 2012-05-25
Age : 32
Location : New Zealand

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Newbie here Empty Another kiwi

Post  Em Thu May 31, 2012 12:29 am

Hi, Am really sorry to hear how depressed you are but completely understand it. I have had this condition for a number of years and found most things havent worked, but that isnt to say that they won't for you. Mine started with pregnancy and has never gone away. I have 2 kids now and the reason that is even possible is that i use 2% lignacaine (that they use prior to inserting catheters it comes in a pre prepared syringe so east to use) to numb the pain. Initally it is sore, but after a minute or so it is fine once the lignacaine is doing its thing. So at least I can keep my sex life going this way otherwise it would be impossible. I find that there is very little support here in New Zealand, I have a bit more time now now so I am going to keep looking into things alot more and see what I can come up with as I am sick and tired of it and cant imagine that there is nothing that can be done about it. The important thing is that you are not alone with it and there is a lot more information coming out now than there was afew years ago.

Em

Posts : 4
Join date : 2012-05-30

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Post  Dandelion Thu May 31, 2012 5:15 am

I have found that amitriptyline has worked for me a fair amount - I have minimal everyday discomfort now, which is amazing. I haven't heard about that gel before, i might look into it though. I've been doing my research too, but luckily I didn't have the same struggle to be diagnosed that a lot of other people seem to have had. Its good to have found somewhere where other people know what its like - other people tend to not get it, or understand the affect it has on you.

Dandelion

Posts : 3
Join date : 2012-05-25
Age : 32
Location : New Zealand

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Post  Em Thu May 31, 2012 10:36 pm

Hi Danni, the lignacaine is just used prior to make sex possible, it isnt something that I would use all the time during the day. And to be honest still does hurt a bit to start with during sex but comes right. I have tried Amitriptylline as well but hated the zombie feeling it gave me. Onwards and upwards!

Em

Posts : 4
Join date : 2012-05-30

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Post  Dandelion Fri Jun 01, 2012 1:48 am

I realised that its used before sex, and it's still something that I would like to look into at least as the strain that this is putting on my relationship is getting worse. As supportive as my partner is the lack of contact we have (I've stopped be interested in anything relating to sex) is getting to both of us and our relationship is struggling because of it.

Dandelion

Posts : 3
Join date : 2012-05-25
Age : 32
Location : New Zealand

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