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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


starting neurotin tonight...

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starting neurotin tonight...

Post  ilovebaxter1 on Mon Mar 26, 2012 11:56 pm

has anyone had sucess with this??? i'm starting it tonight 100mg and slowly working up to see if it will help with my problem. I'm taking it for the irritation and itching of my vulva Smile hoping it works!!!

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Gabapentin

Post  xlmc89x on Mon Apr 16, 2012 8:51 pm

I actually just started gabapenten and I'm u to 300mgs-- uppingmy dose to 400mg tomorrow.. how have you been doing on it?

xlmc89x

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Re: starting neurotin tonight...

Post  ilovebaxter1 on Mon Apr 30, 2012 5:20 pm

Sorry to reply so late! Hi! I'm up to 1400 Mgs so far and still haven't felt any relief. Right now my doctor said to go up to 2500 Mgs. I haven't had any side affects besides a little sleepiness when I go up a dose but then it goes away after a few days. How are you doing on it? How far are you now?

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Still nothing

Post  xlmc89x on Fri Jun 08, 2012 2:36 pm

I'm at 1400mgs now and I don't feel any relief, how have you been doing? I've been using a topical steroid for the inflammation as well and I just started physical therapy yesterday but so far haven't felt much of a difference.

xlmc89x

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Re: starting neurotin tonight...

Post  ilovebaxter1 on Mon Jun 11, 2012 4:16 am

Right now i'm up to 2500 mgs and still no difference Sad since november ive been using clobetasol 3 times a week because i have inflammation too.

I called the Dr. yesterday and she said to wait a little bit longer on the neurotin and if still no sign of relief i'm going to tamper off and start something else. This is my first oral medication so im hoping there is something else out there for me. but its still a little upsetting Sad She also said that some women find that when tampering off the meds they realize that it was working when they start to reach a lower dose and we just dont notice it.

Have you tried anything other than neurotin? what are your symptoms?

ilovebaxter1

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Re: starting neurotin tonight...

Post  xlmc89x on Tue Jun 12, 2012 1:33 am

Well, I had been with a different doctor for a long time taking testosterone but it did absolutely nothing. So this new one put me on the neurontin and clobetasol (which I have been doing every night before bed for 30 days so far) and suggested physical therapy which I just started. I had my initial consultation last week so I'll be doing that twice a week for 60days... I haven't felt any relief either though so far.

Basically I've been told a lot of things. The first Dr. I saw told me that my testosterone levels were low and that it was important to elevate it so I did that for about 18 months. He recommended a vestibulectomy which I did NOT want because it seemed to make no sense to me. So now I'm feeling like my drive is back to zero which is difficult for my boyfriend and I'm still feeling no relief. I've been contimplating adding the testosterone back into the mix to see if it helps at all but it's difficult to be taking so many medications. I feel like a slave to all these drugs. Every night at 9pm I have to start taking my pills and putting on this cream or that ointment. It's exhausting. Basically I have inflammation at the vestibule but the clobetasol seems to bring it down so its much less red until it is provoked again either by an exam or an attempt at intercourse. EXTREMELY FRUSTRATED

xlmc89x

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Re: starting neurotin tonight...

Post  ilovebaxter1 on Wed Jun 13, 2012 4:16 am

ugh i know the feeling. i am so sick of the stress, these pills and creams and not wearing cute underwear anymore Sad I have been using clobetasol as well! it has helped with my inflammation but i haven't tried tampering off it yet. I have inflammation and redness in the creases of my vulva and my vestibule. My Dr. said to keep on it until we find a medication that works and then well see where things lead. I just want this to be OVER. It's been almost 1 year since this started and i never thought i would still be having this problem this many months after. I've been trying to keep my head up but its hard when i have to start tampering off neurotin and try a new medication. I wonder what it will be..I am calling thursday to talk with my doctor and find out.

ilovebaxter1

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Re: starting neurotin tonight...

Post  ilovebaxter1 on Thu Jun 14, 2012 5:16 am

also! i was just reading your post "my journey so far..." on the your story section and what a small world i go to the burlington office as well! however my dr. is Dr. Lipkin. She is great!

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Re: starting neurotin tonight...

Post  amtali on Mon Jun 25, 2012 9:34 pm

I tried Gabapentin for a few months. I found that it helped suppress unprovoked twinges of pain, but it did not help with pain during intercourse or any other provoked pain. I will say that my side effects were minimal with this medicine, unlike others I've taken in the past. But every woman responds differently to treatment, and every woman's pain is different. Good Luck!

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Re: starting neurotin tonight...

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