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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


starting neurotin tonight...

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starting neurotin tonight...

Post  ilovebaxter1 on Mon Mar 26, 2012 11:56 pm

has anyone had sucess with this??? i'm starting it tonight 100mg and slowly working up to see if it will help with my problem. I'm taking it for the irritation and itching of my vulva Smile hoping it works!!!

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Gabapentin

Post  xlmc89x on Mon Apr 16, 2012 8:51 pm

I actually just started gabapenten and I'm u to 300mgs-- uppingmy dose to 400mg tomorrow.. how have you been doing on it?

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Re: starting neurotin tonight...

Post  ilovebaxter1 on Mon Apr 30, 2012 5:20 pm

Sorry to reply so late! Hi! I'm up to 1400 Mgs so far and still haven't felt any relief. Right now my doctor said to go up to 2500 Mgs. I haven't had any side affects besides a little sleepiness when I go up a dose but then it goes away after a few days. How are you doing on it? How far are you now?

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Still nothing

Post  xlmc89x on Fri Jun 08, 2012 2:36 pm

I'm at 1400mgs now and I don't feel any relief, how have you been doing? I've been using a topical steroid for the inflammation as well and I just started physical therapy yesterday but so far haven't felt much of a difference.

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Re: starting neurotin tonight...

Post  ilovebaxter1 on Mon Jun 11, 2012 4:16 am

Right now i'm up to 2500 mgs and still no difference Sad since november ive been using clobetasol 3 times a week because i have inflammation too.

I called the Dr. yesterday and she said to wait a little bit longer on the neurotin and if still no sign of relief i'm going to tamper off and start something else. This is my first oral medication so im hoping there is something else out there for me. but its still a little upsetting Sad She also said that some women find that when tampering off the meds they realize that it was working when they start to reach a lower dose and we just dont notice it.

Have you tried anything other than neurotin? what are your symptoms?

ilovebaxter1

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Re: starting neurotin tonight...

Post  xlmc89x on Tue Jun 12, 2012 1:33 am

Well, I had been with a different doctor for a long time taking testosterone but it did absolutely nothing. So this new one put me on the neurontin and clobetasol (which I have been doing every night before bed for 30 days so far) and suggested physical therapy which I just started. I had my initial consultation last week so I'll be doing that twice a week for 60days... I haven't felt any relief either though so far.

Basically I've been told a lot of things. The first Dr. I saw told me that my testosterone levels were low and that it was important to elevate it so I did that for about 18 months. He recommended a vestibulectomy which I did NOT want because it seemed to make no sense to me. So now I'm feeling like my drive is back to zero which is difficult for my boyfriend and I'm still feeling no relief. I've been contimplating adding the testosterone back into the mix to see if it helps at all but it's difficult to be taking so many medications. I feel like a slave to all these drugs. Every night at 9pm I have to start taking my pills and putting on this cream or that ointment. It's exhausting. Basically I have inflammation at the vestibule but the clobetasol seems to bring it down so its much less red until it is provoked again either by an exam or an attempt at intercourse. EXTREMELY FRUSTRATED

xlmc89x

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Re: starting neurotin tonight...

Post  ilovebaxter1 on Wed Jun 13, 2012 4:16 am

ugh i know the feeling. i am so sick of the stress, these pills and creams and not wearing cute underwear anymore Sad I have been using clobetasol as well! it has helped with my inflammation but i haven't tried tampering off it yet. I have inflammation and redness in the creases of my vulva and my vestibule. My Dr. said to keep on it until we find a medication that works and then well see where things lead. I just want this to be OVER. It's been almost 1 year since this started and i never thought i would still be having this problem this many months after. I've been trying to keep my head up but its hard when i have to start tampering off neurotin and try a new medication. I wonder what it will be..I am calling thursday to talk with my doctor and find out.

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Re: starting neurotin tonight...

Post  ilovebaxter1 on Thu Jun 14, 2012 5:16 am

also! i was just reading your post "my journey so far..." on the your story section and what a small world i go to the burlington office as well! however my dr. is Dr. Lipkin. She is great!

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Re: starting neurotin tonight...

Post  amtali on Mon Jun 25, 2012 9:34 pm

I tried Gabapentin for a few months. I found that it helped suppress unprovoked twinges of pain, but it did not help with pain during intercourse or any other provoked pain. I will say that my side effects were minimal with this medicine, unlike others I've taken in the past. But every woman responds differently to treatment, and every woman's pain is different. Good Luck!

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Re: starting neurotin tonight...

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