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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


starting neurotin tonight...

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starting neurotin tonight...

Post  ilovebaxter1 on Mon Mar 26, 2012 11:56 pm

has anyone had sucess with this??? i'm starting it tonight 100mg and slowly working up to see if it will help with my problem. I'm taking it for the irritation and itching of my vulva Smile hoping it works!!!

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Gabapentin

Post  xlmc89x on Mon Apr 16, 2012 8:51 pm

I actually just started gabapenten and I'm u to 300mgs-- uppingmy dose to 400mg tomorrow.. how have you been doing on it?

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Re: starting neurotin tonight...

Post  ilovebaxter1 on Mon Apr 30, 2012 5:20 pm

Sorry to reply so late! Hi! I'm up to 1400 Mgs so far and still haven't felt any relief. Right now my doctor said to go up to 2500 Mgs. I haven't had any side affects besides a little sleepiness when I go up a dose but then it goes away after a few days. How are you doing on it? How far are you now?

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Still nothing

Post  xlmc89x on Fri Jun 08, 2012 2:36 pm

I'm at 1400mgs now and I don't feel any relief, how have you been doing? I've been using a topical steroid for the inflammation as well and I just started physical therapy yesterday but so far haven't felt much of a difference.

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Re: starting neurotin tonight...

Post  ilovebaxter1 on Mon Jun 11, 2012 4:16 am

Right now i'm up to 2500 mgs and still no difference Sad since november ive been using clobetasol 3 times a week because i have inflammation too.

I called the Dr. yesterday and she said to wait a little bit longer on the neurotin and if still no sign of relief i'm going to tamper off and start something else. This is my first oral medication so im hoping there is something else out there for me. but its still a little upsetting Sad She also said that some women find that when tampering off the meds they realize that it was working when they start to reach a lower dose and we just dont notice it.

Have you tried anything other than neurotin? what are your symptoms?

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Re: starting neurotin tonight...

Post  xlmc89x on Tue Jun 12, 2012 1:33 am

Well, I had been with a different doctor for a long time taking testosterone but it did absolutely nothing. So this new one put me on the neurontin and clobetasol (which I have been doing every night before bed for 30 days so far) and suggested physical therapy which I just started. I had my initial consultation last week so I'll be doing that twice a week for 60days... I haven't felt any relief either though so far.

Basically I've been told a lot of things. The first Dr. I saw told me that my testosterone levels were low and that it was important to elevate it so I did that for about 18 months. He recommended a vestibulectomy which I did NOT want because it seemed to make no sense to me. So now I'm feeling like my drive is back to zero which is difficult for my boyfriend and I'm still feeling no relief. I've been contimplating adding the testosterone back into the mix to see if it helps at all but it's difficult to be taking so many medications. I feel like a slave to all these drugs. Every night at 9pm I have to start taking my pills and putting on this cream or that ointment. It's exhausting. Basically I have inflammation at the vestibule but the clobetasol seems to bring it down so its much less red until it is provoked again either by an exam or an attempt at intercourse. EXTREMELY FRUSTRATED

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Re: starting neurotin tonight...

Post  ilovebaxter1 on Wed Jun 13, 2012 4:16 am

ugh i know the feeling. i am so sick of the stress, these pills and creams and not wearing cute underwear anymore Sad I have been using clobetasol as well! it has helped with my inflammation but i haven't tried tampering off it yet. I have inflammation and redness in the creases of my vulva and my vestibule. My Dr. said to keep on it until we find a medication that works and then well see where things lead. I just want this to be OVER. It's been almost 1 year since this started and i never thought i would still be having this problem this many months after. I've been trying to keep my head up but its hard when i have to start tampering off neurotin and try a new medication. I wonder what it will be..I am calling thursday to talk with my doctor and find out.

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Re: starting neurotin tonight...

Post  ilovebaxter1 on Thu Jun 14, 2012 5:16 am

also! i was just reading your post "my journey so far..." on the your story section and what a small world i go to the burlington office as well! however my dr. is Dr. Lipkin. She is great!

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Re: starting neurotin tonight...

Post  amtali on Mon Jun 25, 2012 9:34 pm

I tried Gabapentin for a few months. I found that it helped suppress unprovoked twinges of pain, but it did not help with pain during intercourse or any other provoked pain. I will say that my side effects were minimal with this medicine, unlike others I've taken in the past. But every woman responds differently to treatment, and every woman's pain is different. Good Luck!

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Re: starting neurotin tonight...

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