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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


My Life with Vulvodynia

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My Life with Vulvodynia

Post  d.penny on Wed Mar 28, 2012 12:35 am

So glad to have found this site. And just let me say how brave I think we all are for continuing to try and find answers. I am 50 year old and post menopausal. I was diagnosed with vulvodynia about 4 years ago when I started going thru menopause. The vulovodynia started after a yeast infection. At first it didn't seem like such a big deal as there was only pain during intercourse which we were still able to have as long as my husband was gentle with me, and then the pain would disappear about 30 minutes later. I have an amazing husband who is very understanding and supportive. We have now been married 29 years. I did try bio-identical hormones and the estrogen seemed to take away the pain. I had also tried vagifem which also worked, but I was concerned about the estrogen as I had small breast cysts. About a year ago I developed an aching that went from inside my vagina on my right side and into my butt area. I also had aching down the back of both legs, and the vulvodynia was on my left side. My GP said I had pudendal neuralgia and prescribed a nerve medication. My dermatologist/gynecologist who treats me for vulvodynia agreed with my GP. I couldn't sit without pain, wore only stretchy pants, stood at the office and pretty well laid on the couch and cried every night. It was a devastating time, but I decided I was going to do my research and figure this out. I did not believe I had pudendal neuralgia as I had not fallen of a horse or done anything to cause such nerve damage. After much determination I found a pelvic therapist who confirmed I had vulvodynia on my left side, tense vaginal muscles on my right side (I tense my vaginal muscles without realizing it) and hamstring pulls in the back of my legs, again mostly on my right side. My therapist taught me how to go inside the vaginal area and touch and release on the sensitive skin to desensitize the area. On my right side I would massage the muscle in side the vagina and I did lots of stretches for the vaginal area and the hamstrings. I had to do all the stretching and massaging very gently at first, if I over did it I would be in pain. While still doing the pelvic therapy I started doing acupuncture which also helped. None of this was cheap, but thankfully my husband has a wonderful extended health plan. After about a year and a half I was much better and able to sit and wear jeans. Unfortunately there was still pain with intercourse. So about a month ago I decided to try vagifem again to see if I could have pain free sex. But this time when I used the vagifem it burnt me. I was using it every 3 - 4 day and tried it about 3 times before I realized that I was having a bad reaction to the vagifem and that it wasn't just my body adjusting to the estrogen. Major panic attacks set in. The pain was constant, I was going on a trip in a month and couldn't get rid of the burning. Once again I was wearing stretch pants, sitting on a special pillow with a cut out and not having sex. Even the Sunflower seed oil that I have always applied for vaginal dryness seemed to burn. I started taking lorazapam for my anxiety. Thankfully, I found this web site and started to read all the advise you girls offer. I had dilators and started using them, but instead of just inserting it to stretch me, I started to turn it as one of the members had suggested. I also started using vitamin E for the external vaginal dryness which worked. Thankfully the pain settled down enough and we were able to go away and have a wonderful trip. So once again I am back to sitting, walking, swimming, wearing jeans and having sex with pain. Which I am thankful for. I would love to have it all, including sex without pain, but if this is as good as it gets I am thankful. I will continue using my dilator daily and turning it to desensitize the pain. I also rinse my vaginal area 2- 3 times a day while I sit on the toilet to rinse on off the urine which can sting, then I apply either sunflower seed oil which I can once again tolerate or vitamin E oil. I take a vaginal acidophilus once a day and omega 3 fish oils 3 times a day for vaginal dryness. Thank you for this web site. I hope that something I have said here today will help someone else.

My best to you all
Diane

d.penny

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Join date : 2012-03-27

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