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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

My Life with Vulvodynia

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My Life with Vulvodynia

Post  d.penny on Wed Mar 28, 2012 12:35 am

So glad to have found this site. And just let me say how brave I think we all are for continuing to try and find answers. I am 50 year old and post menopausal. I was diagnosed with vulvodynia about 4 years ago when I started going thru menopause. The vulovodynia started after a yeast infection. At first it didn't seem like such a big deal as there was only pain during intercourse which we were still able to have as long as my husband was gentle with me, and then the pain would disappear about 30 minutes later. I have an amazing husband who is very understanding and supportive. We have now been married 29 years. I did try bio-identical hormones and the estrogen seemed to take away the pain. I had also tried vagifem which also worked, but I was concerned about the estrogen as I had small breast cysts. About a year ago I developed an aching that went from inside my vagina on my right side and into my butt area. I also had aching down the back of both legs, and the vulvodynia was on my left side. My GP said I had pudendal neuralgia and prescribed a nerve medication. My dermatologist/gynecologist who treats me for vulvodynia agreed with my GP. I couldn't sit without pain, wore only stretchy pants, stood at the office and pretty well laid on the couch and cried every night. It was a devastating time, but I decided I was going to do my research and figure this out. I did not believe I had pudendal neuralgia as I had not fallen of a horse or done anything to cause such nerve damage. After much determination I found a pelvic therapist who confirmed I had vulvodynia on my left side, tense vaginal muscles on my right side (I tense my vaginal muscles without realizing it) and hamstring pulls in the back of my legs, again mostly on my right side. My therapist taught me how to go inside the vaginal area and touch and release on the sensitive skin to desensitize the area. On my right side I would massage the muscle in side the vagina and I did lots of stretches for the vaginal area and the hamstrings. I had to do all the stretching and massaging very gently at first, if I over did it I would be in pain. While still doing the pelvic therapy I started doing acupuncture which also helped. None of this was cheap, but thankfully my husband has a wonderful extended health plan. After about a year and a half I was much better and able to sit and wear jeans. Unfortunately there was still pain with intercourse. So about a month ago I decided to try vagifem again to see if I could have pain free sex. But this time when I used the vagifem it burnt me. I was using it every 3 - 4 day and tried it about 3 times before I realized that I was having a bad reaction to the vagifem and that it wasn't just my body adjusting to the estrogen. Major panic attacks set in. The pain was constant, I was going on a trip in a month and couldn't get rid of the burning. Once again I was wearing stretch pants, sitting on a special pillow with a cut out and not having sex. Even the Sunflower seed oil that I have always applied for vaginal dryness seemed to burn. I started taking lorazapam for my anxiety. Thankfully, I found this web site and started to read all the advise you girls offer. I had dilators and started using them, but instead of just inserting it to stretch me, I started to turn it as one of the members had suggested. I also started using vitamin E for the external vaginal dryness which worked. Thankfully the pain settled down enough and we were able to go away and have a wonderful trip. So once again I am back to sitting, walking, swimming, wearing jeans and having sex with pain. Which I am thankful for. I would love to have it all, including sex without pain, but if this is as good as it gets I am thankful. I will continue using my dilator daily and turning it to desensitize the pain. I also rinse my vaginal area 2- 3 times a day while I sit on the toilet to rinse on off the urine which can sting, then I apply either sunflower seed oil which I can once again tolerate or vitamin E oil. I take a vaginal acidophilus once a day and omega 3 fish oils 3 times a day for vaginal dryness. Thank you for this web site. I hope that something I have said here today will help someone else.

My best to you all


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Join date : 2012-03-27

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