Hello I am new, and am looking forward for some support

[Feegal]

Hello wow, ( I feel soo silly for years I have had this pain for soo long, originally I thought I had vaginismus) for all those years talk more soon not feeling well wil write more later sorry all. I cant wait to connect with you al and explain my story to you all how its effecting myself & my husband soo not fun thats for sure.

I feel I had vaginismus for years, but really didnt know what I had, & why was soo painful all the gyno exams, every time we had sex soo painful and frustrating, could never use tampons soo painful. I now am soo happy to actually find out what i really had, my gyno told me about a a really good therapist in Adelaide, his names marek Jantos.
At this stage, have only seen him once, he also does myofacial release too its amazing at what he does, afer i had some internal stuff done that day, found out how inner thigh pain can radiate up to that area, also buttock pain can do that too. I am not happy atm, as bleeding its just not a good time to get back into doing them. Where is everyone else re with this, any support any help will help me out soo much, just needing anyones feedback anything to help me though this makes it soo much better knowing a freind heard of this forum.
I feel i hve had this for years, but never knew it. I have anxiety too, we also went through ivf also, and unfortunately didnt work out. That was back when i didnt know about the vulvodynia just thought I had vaginismus.

[sailirish23]

hello,

I'm new too. I didnt know anything about vulodynia until my symptoms appearred three months ago. If you would like to share some thoughts, let me know.

sailirish23

[vulvarpainsurvivor]

Hi Folks,
Just wanted to comment that although I am not among those people who thinks "vaginismus" is a myth, I do want to emphasize that a lot of different types of vulvar pain get unhelpfully lumped under that diagnosis when it is not necessarily correct, or not comprehensive enough. I spent several years thinking I had vaginismus, too, when it turned out to be a (probably) congenital overgrowth of nerve endings in the vestibule. The result--extremely painful sex--is the same, so it's easy to be fooled into thinking your muscles are just too tight or you're getting tense when you have sex. And then there are the doctors who tell you to "just relax," as if you could relax when you're in severe pain.

When I started the physical therapy which I though would cure me of my "vaginismus," I eventually figured out that the tension or relaxation of my pelvic muscles had nothing to do with my pain. I used a biofeedback machine with a vaginal probe which showed whether or not my muscles were "firing." (The machine is available from Empi, by the way.) The higher the number, the higher the tension in the muscles and vice versa. I found that I could have a 0 or 1 showing on the machine and still have severe pain when touched at the opening of the vagina. So while the physical therapy did not solve anything in the end, it was very useful for getting me to try biofeedback, which helped me figure out that tension was *not* the problem. And, as a bonus, I did learn how to control those muscles really well, and probably strengthened them--good for your sex life in the long run!

Best,

[Sponsored content]